FASD United was established in 1990 as the National Organization on Fetal Alcohol Syndrome (NOFAS).
Mission: FASD United empowers people living with FASD and prenatal substance exposure to educate systems of care and the public, enact policies, and unite communities everywhere.
Vision: An FASD-informed world where people living with FASD and prenatal substance exposure are recognized and supported.
Thank you for speaking up. My son has FAS and I was always judged for telling him since I got him at almost 2 years, that he has FAS because people thought that I was labelling him. But I always said that he doesnt see it that way and it was so reasuring that you felt a weight lifting off your shoulders. My son just entered first grade and I hope that he will grow up happy.
10 years later... sadly so little has changed. America, and the world, is in denial. It makes me very angry. Someday the world will wake up this problem.
This is PURE amazing such an angel to take care of kids with FASD , my sound like my mom *foster mom* always been so attention on my issues and helping me through life , im 27 now its she's trying to help me get adult services going , im still struggling terribly at this point in life ... but i know theyre doing there best for me to try and help my situation get better i couldn't ask for any better parents , put up with so much through my life and they never had to its amazing amazing amazinggg! ... true angels to me i honestly dont know what id do without them id be SO LOST!!
I wish you peace. I had a psychic change after 30 years in and out of fellowships. My son is 12 and he had FASD and I understand he could have developed it even if I was not an alcoholic. I keep it simple these days and my life is full of peace,
This is tragic on so many levels- the actual story itself is tragic, and the reality that we as parents, educators, health professionals and society as a whole are ignorant in dealing with brain based disabilities. Until we accept FASD as a disability the majority of people will never learn to deal with it.
The women who spoke up and shared their stories are incredibly brave to do so. I'm sure it is hard to imagine what their life circumstances might have been to lead them to addiction, and the strength it must have taken to ask for help and admit how their actions hurt their children. I am grateful to them and the people helping them in their recovery for helping me see their experience. We can all help prevent this from happening to more women by developing empathy for those affected and educating rather than stigmatizing women.
Everyone is in recovery and healing and it's amazing. Keep going! My grandma was an alcoholic. There are many members of my community who have FASD. I don't have it myself, but I know people who do and whose mothers drank while pregnant.
Wow. As someone with FASD from this area it’s eye opening seeing this.affluent family and all my mom still drank. God bless the guy at 1:11, I was 16 in 2012 just as him. Wow.
Congratulations to all of the people living with FASDs, their caregivers and families, advocates and professionals, and especially the staff of NOFAS. It's exciting that our national organization is moving forward with its new name, FASD United and the beautiful, inspired logo. I believe that this change will provide a new impact and energy in the work we do across the country. Thank you! Donnie Winokur, The Chancer Chronicles LLC
Hurray for FASD United, a bigger, better tent nurturing a bigger community. Up to one in 20 children and adults affected! Keep up the good work FASD United. We need you and your message.
I am currently in a relationship with a man that has this Fetal Alcohol disorder. for the first few months, it was hard for me, cause his personality and disability likely affected our relationship. But once I start to learn more about his disability and learn about how to live with it, I realized that he was just as loving as a normal person and you just have to pay attention when the syndrome episode came.
There is no cure for fasd . It gets worse as they get older. They become depressed. They get in trouble with the police as they don't understand there are consequences for their actions. They have real bad outbursts snd find it very difi cult to get a partner. It's awful for them .
Hey there's a drink that makes you dizzy and makes you slur your words, and the next day you have a headache. Don't drink it while you're eating and drinking for a growing baby inside you. I don't believe that more than common sense is needed to avoid FASD.
For a few years I worked first hand with a young woman who, she recently confided in me, was most likely affected by this. Sadly she was terminated. I wish people had somehow been more aware about her situation.
