I am still debating on going thru with the procedure and have listen (well tried to listen) to what it would sound like and this is the first video I came across that listed a day 1, day 30 and day 100 sound which was nice. The only question is, from day 100 to 1900ish (2000 - 2005) there was no more improvement of sound? Then what did it sound like once on day 1, day 30 and day 100 with the second implant. How long has it sounded like the 2021 sound? 2005 to 2021 is 16 years; what was it like during that time? You made it sound like the 2021 sound you hear with your implants is something that just got there.
Thank you for posting this video! It seems to be the most informational to this date of them I've seen. I have a friend at work who just got her second CI, and she was back to work after about two months at home. We talked about how it goes with her hearing, and she told me it goes quite slow,. Her doctor said her hearing needs about 2-3 years to develop and fine tune. The other videos I've seen makes the whole process like a miraculous moment, which is not true, since the brain and nerves need to have the time to grow and mature, learning to interpret the sounds and signals they are getting with the help of the implant. I researched because I wanted to know what my friend goes through, so I could understand her better and her situation. I'm very thankful to you, who made this insight and understanding possible!
My single side CI was activated 26 days ago. I wear a hearing aid on my non-implanted side so can hear the difference. I'll have to see what day 100 is like when I get there but I think the representation of day 1 and day 30 is very accurate. I can hear words and sentences pretty well - not perfectly, but pretty well - and it is robotic. But, from day one onwards I haven't regretted it - its a lot better than where I was and hopefully if I practice I'll get to where Tina was at day 100. Thanks for the video, one of the best out there in my view.
Hello, how was your initial experience of hearing from the implant along with the hearing aids. Were you able to still hear speech from hearing aids or even that got distorted because your implants were not fully functional for you. Curious because I'm considering implant. I can only hear from one ear with hearing aids on.
No one can really answer that. Because you are a hearing person, processing the signals mechanically, a CI does not do this, it processes digitally. It's a different kind of hearing, but you are getting so used to it, that this is your new normal. Your brain learns like a complete "new language". That's why you can't really compare CI hearing with normal hearing.
I recently lost all my hearing on just one ear and my other ear is still normal. So I can actually hear on the deaf side with cochlear? I’ve been trying a cros system (actually a couple different ones) and all they seem to do is overwhelm my good ear with sound and make my tinnitus louder. I am so nervous about having a consultation with the cochlear doctors and wandering if they will even say if I’m a good candidate for one. It’s driving me bananas not being able to hear with both sides of my head.
Thank you so much for making this video, i had just watched another one that was done completely in a robot voice. It was very difficult to watch for a mama of two deaf kiddos who are both about to be implanted (one is a reimplantation)
To be honest - this scares me. I’m late deafened and I’m being sent for CI evaluation. 1900 days later you could finally hear well… That’s 5 years and is a very long time to relearn to hear. I do appreciate you posting your experience though :-)
The funny thing about the brain, if I try to replay the clip after know what it's supposed to be saying, I can understand it pretty easily. Once I know what I was supposed to hear, our brains can fill in the gaps.
Thank you for sharing your journey with the implants. I am in late 60’s and experienced slow loss of hearing, especially in low frequency. Extremely impatient, poor foreign language skills, and border line ADHD! On the other hand, engineer with high IQ. Can I be a candidate?
Do you hear inflections in voices? What unit do you have? I have the med_el for 20 years now.my hearing was different when I was turned on.it sounded like mini mouse sucking helium lol. I think now it's time for a second implant but I could hear when I was first put on. I listened to cartoon,there are so many different tones.sponge bob helped me a lot.though 6 hrs a day of him want you to wrong him out lmao. Great presentation!
I was born deaf. I'm a very recent cochlear implant recipient. My activation was on monday. With no context for sound, I wasn't sure what to expect. The first hurdle I ran into was more about learning when to take a step back. My first full day, I tried to do way too much, and couldn't handle it. Yesterday and today were better. I've been doing basically what you said in this video. trying to listen when people are talking, as well as listening to audio books, or reading aloud, or having someone else read to me while I follow along. Even tried watching a few movies with the captions still on. I've found myself able to recognize some words already. Some I'm sure it's just because I'm reading them, and convincing myself that I heard it. but other times, I ask them to repeat, and close my eyes... and I actually do hear it. I don't know what the samples sounded like to everyone else, so I don't yet know if my experience will be similar. I know I have a long road ahead though... What I've learned so far, is that it's a marathon, not a sprint. Thank you for this video, I watched it awhile ago as part of my research before making the decision to try, and then again today.
The power of the brain is incredible. The fact that it can shape the sound from the cochlear implants over time, till it sounds practically the same as with normal hearing...
Fabulous…I am implanted (2018) with Cochlear nucleus 7 on the right side, even though I am profoundly deaf in both ears. Look forward to a 2nd implant after 5 years. Thanks for sharing about your experiences.
My cousin just lost hearing due to bacterial infection. She wears hearing aid in one ear which she got from another country cause she was visiting her family. Now she that she is in USA her infection is cured but her audiologist told her she can’t get implant in one ear. He said implants only done when you lose hearing in both ears. Could you share any information on this. Thank you in advance
She should get a second opinion. I've seen about a dozen videos from unilateral recipients where they had normal, or partial hearing in one ear, and severely reduced, or no hearing in the other.
Thank you Tina. What a wonderful demonstration. I am a pediatric audiologist who works and programs children with CIs. I am wondering what the difference in progression you had with your first vs. second ear being implanted. Did you second ear sound like the first one when it was first turned on. I know that many adults say that it makes sounds more natural and full with two. But I am wondering what the 2nd one sounded like by itself. Thank you so much.
Hi Lisa - My second side perhaps sounded a little better than when my first one was first turned on. Knowing what to expect also makes a big difference. For me, the hardest part of going sequential bilateral was taking the time to practice with my second side alone. I did/do so well with my first one and well, life <grin>, that I realize in retrospect that I didn't work on it as hard as I did my first one. With my first one, I had almost no auditory access to great auditory access. The second one definitely did provide that sense of balance on that previously unaided side, I did better listening in noise as well as localization. I also realized I could hear softer sounds with two than I could with one. If you look at my speech perception abilities, the percentages are about the same when you look at individual sides (92%+) but even with just 5 years' difference between both ears, my first side is still my dominant side. As you know, there are so many factors that can affect what it might sound like - was my better/worse ear implanted first, cochlear physiology, auditory deprivation (I was without any hearing on my second side for about 3 years when I gave up my hearing aid), how long I was deaf, right vs. left brain, etc. All I know is that I'm grateful that one battery dies, I can still hear. :)
Thank you for sharing this info! As an LD adult it’s hard for me to explain to others what I hear and I think this will really help me explain it to them!
Thank you Tina for all this fruitful information! I understand that there is way to go for my 3 year old bilateral implanted daughter. I was enlightened when you emphasized that we hear with our ears but we perceive with our brain. I am curious with the mapping process you’ve been through. We have mapping appointments every 6 months and it is done automatically with NRT measurements. I wonder how much of a difference it makes and does the “training” start over every post-mapping?
Hi Ismael - there's always a bit of recalibration after each mapping. It's like learning how to see clearly again after your glasses' prescription changes. The important thing is to keep taking data and if you notice that her abilities are dipping down, then you need to figure out why that is (e.g., mapping issue).
Activation 3 days ago. I’ll admit I was disappointed when I heard the unintelligible sounds. I have been wearing BAHA for 10 years. I have a long way to learn with my CI, right now it’s just screeching and staticky sounds.
It's definitely different at first - give your brain time and yourself grace. Also, do make time to practice because it helps you progress faster! Sending you positive vibes!
Other videos (by doctors) make it sound like CI’s are magic and work immediately and I knew that wasn’t true. Your explanation and timeline is interesting and well done. Thank you.
Thank you Dr. Childress for posting this video. I am a single sided deaf person having been a former full hearing person. My hearing loss was idiopathic in 1995 and hearing aids were of no help. All I hear in the deaf ear is unintelligible noise. I am slated to receive my first implant in a few weeks. I’ve heard the stories of the Daffy Duck and robotic voices and I was concerned that it might not get any better. Your video shows me that if a person puts in the work, they have a chance at making their hearing “normal”. I am curious about why it starts out as unintelligible static and ends up as high fidelity speech. Does the brain relearn what signals on those nerve pathways mean, or do the pathways actually become more active as they are used more. Two things that I worry about are am I too old and has it been too long? I’m 69 years old and I lost my hearing 26 years ago. Thank you Dr. Childress.
Hi Eric - as I said in my video, learning to hear through a CI is like learning a new language. It doesn't happen overnight. Your brain is used to receiving and processing an auditory signal in a specific (i.e., through the outer, middle and inner ear) and since the CI is bypassing the outer and middle ear and providing a direct electrical signal to the hearing nerve, your brain will need time to intepret this. Some people hear and understand right away, some people don't get to that point until later. There are so many factors. Since I don't know your whole hearing history, it's hard for me to predict how you might do. What I've learned over the years with CIs is "hope for the best but know that it may not work as well for you as for others."
As a parent of a child with SNHL who is bilaterally implanted, I really appreciate you sharing this information, and in such a well done video! I feel much better, thank you!!!!!
This was very encouraging. I have experienced single sided deafness worsening for the past 15 years and wear a BAHA. I will be getting a CI this summer. I’m so excited that I’ll go from hearing from my left side to hearing on my left side. I can be a very impatient person but for this process I need to finally learn some patience. 😜
Waiting to get my processor. My implant was 6 days ago. Left ear deaf from birth or toddler. My right hearing had 40% loss left after a bout of vertigo 7 months ago. I had 0 percent voice recognition my last test. I am ready to learn how to hear again even if I'm 67. Thank you for the insight.
The link to the simulations is in the video. They are 1, 2, 4 and 8 channel simulations that I re-purposed based on what I remember my perceptions being.
UPDATE: Live Transcript now available on all paid accounts including Pro, Business, Enterprise and Education. If you are Deaf or Hard of Hearing, you can contact access@zoom.us to request access to this beta feature.
Great video! I wonder if it is possible to simulate how various microphones might sound through heading aids or CIs? Most people are SHOCKED to realize how things might sound (unable to filter extra noises, etc) and why sound quality matters more for the d/hh community.
Thank you! To be honest, I'm wary of using simulations through amplification because there really is no way to simulate what each individual student hears due to different patterns and degrees of hearing loss. In addition, what individual students DO with this information can be so different based on when they became DHH, etiology of hearing loss, how consistently they wear their amplification, etc. I especially find the cochlear implant simulations to be the most scary. As a late-deafened adult, that is not what I hear through my cochlear implants. The CIs provide these (electrical) signals to my brain but then my auditory memory kicks in to help interpret the sounds. Kids that are born deaf may have much more limited auditory memory so what they hear is what they hear - our job is to help them to figure out what those sounds are. I find it more helpful to focus on strategies to make sure that the student/adult is provided with the best access as opposed to what what it might sound like.
@@hlpuears Yes, very true! I do think it helps for people to realize some of the issues students go through. I will never forget showing a teacher and aid how their student heard using the special stethoscope thing (otoscope?). Their jaws dropped. "I can hear the lights buzzing and that class outside the door!" Yep. They understood very clearly why the FM was so helpful.
@@AdventuresinPopUps Good point! I can see benefit to demonstrating the benefits of remote microphone systems but I'm a bit more leery of hearing loss simulations.
