James L. West is a faith inspired, not-for-profit organization serving persons impacted by dementia. As a trusted expert, we provide personalized, innovative care and support for families, as well as specialized education for caregivers, healthcare professionals and the community at large. Our RU-vid Channel is a great way to get to know the James L. West Center and as a portal for educating on Alzheimer's Disease and Related Dementias and Care Partnering.
Had ANYBODY looked into nutrition as a possible answer!!!??? You all need to check out Hal Cramner of Phoenix, Arizona. He has several care homes and started feeding patients a Keto/Carnivore diet, with the family’s permission. Several folks have gotten so much better that they went home!! Drugs and more drugs are not always the answer people!
Hi @AnneBarnes-z9b. There are over 35 common symptoms of dementia. Getting a proper diagnosis from a trusted doctor and their team to understand what is causing symptoms is important to getting the right treatment plan put in place. Some of the more common early symptoms of dementia are: - sort term memory loss - difficulty concentrating that is different from your past - finding it hard to carry out familiar daily tasks, such as paying bills or confusion over making correct change - hard time following a conversation or story line on the TV or in a book - struggling finding words - being confused about time and place - mood or personality changes
Hi @ashleystone9530. Please email us at caregiver@jameswest.org so we can get you on the calendar of our upcoming programs. We can only provide CEU credits for attendance at a live program.
Give me a break at 32,000 medication infusion for a year. And brain bleed and brain swelling, just ridiculous adverse side effects, that in itself can require craniotomy emergency surgery…
I found this video most informative. Since both of my parents and many of my aunts and uncles suffered from Alzheimer’s, dementia and glioblastoma. My constant prayer is that I will not end up with dementia. My father had Alzheimer’s disease, and he also was very healthy and lived a long time with it. I think of him often because he taught me so much about caring and kindness.
I found this video most informative. Since both of my parents and many of my aunts and uncles suffered from Alzheimer’s, dementia and glioblastoma. My constant prayer is that I will not end up with dementia. My father had Alzheimer’s disease, and he also was very healthy and lived a long time with it. I think of him often because he taught me so much about caring and kindness.
My mom has had Lewy body Dementia for 10 years now, at least that's when I started noticing symptoms. Sadly, due to my step-father's denial, she wasn't diagnosed until years later when she was in the middle stages. About 6 years ago she became incontinent. a couple of years later she became doubly incontinent. She had trouble walking almost right away. First shuffling her feet, then progressing to a walker and as of the last 4 years has been in a wheelchair. About 2 months ago she became bed bound and has lost almost all of her core body strength. In other words, she can barely move, even to adjust her body position in bed. Her depth perception has been off for many years now. She's has a steady reduction in appetite as of the last 8 months. Now, eating very little, maybe 300-400 calories a day. Still drinking fluids, but she has to be coaxed. Her voice is very weak, but with a lot of effort she can say a few words. She knows who I am (her daughter) and knows who she is, although she will often get her last name wrong. Short-term memory is completely gone. She does still enjoy looking at magazines.... and can read a few words here and there. A few weeks ago she developed a blood clot in her left femur from being bed bound. She's now on blood thinners, but they are causing a few unwanted side effects. This is not an easy road to go down. My heart goes out to each and every one of you. Stay strong.
Leqembi, I was approved for this but refused it. I don’t believe it’s just been pushed through the FDA, and Medicare too fast. It’s a money maker for the drug co. and doctors.No thanks!
Is there any connection to long term anxiety and depression and the meds they have been using over time? Do electric shock therapy cause dementia to excelorate . Another question when I visit it seems I cause her anxiety what suggestions do you have for me and her Should I stop visiting her if I cause her extra anxiety when I visit and what do I do to help her?
Hi @dianewhalen9721 Anxiety is a common with those living with dementia. We always want to be aware of possible side effects with any medication or treatment by talking with the doctor and pharmacist. Have you tried visiting at different times of the day? It might be that she can manage visit better in the morning. We suggest coming with a simple activity that she would enjoy like looking through old photos, doing some gardening, or helping preparing/eat a meal. Finding the best time to visit and doing an enjoyable activity can help with anxiety but we still may have to constantly reassure, watch our body language, and work with the whole care team.
Thanks it was such a shock when a close relative of ours who always was charming and courteous towards others began saying inappropriate things to care givers sadly the nursing training was inadequate and this problem affected the quality of her care by nurses who took serious offense.
Excellent talk, but the disease isn't ParkinGson's, it's ParkiNson's. Many people also call it Parkison's, leaving off the N. But adding a G isn't correct either.
So very pleased with this videos it's so important to understand this . The more knowledge helps me to understand what my mom is going through my grampa had Alzheimer's that's my mom's dad and I see all these things you've been teaching us about. And I'm scared because I see it in myself. But I'm praying thank you so much
According to neurologist Dr. Ray Dorsey, the cause and rise in number of Parkinson’s is due to exposure to pesticides (e.g. Roundup) and dry cleaning chemicals (PCE, TCE).
Appreciated the listing and explanation of drugs, but stopped watching when suggesting that the goal was to remove plaques. The plaques are there to PROTECT the brain from inflammation. They're the firefighters attempting to put out the fire. Killing firefighters is nonsense.
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Where can I find data on your fact about the risks of general anesthesia causing dementia? My mom is in her 70s and had surgery on her knee a few years ago and I've been observing changes in her cognitive abilities, anxiety level, communication, and overall insecurity about many things.
Hi @aquarainhealer, there are several studies that indicate a higher risk of dementia after general anesthesia, but the studies are not conclusive. Below are links to a few articles that explain further. There can be many reasons and causes to why you are seeing changes in your Mom and we encourage you to see specialist(s) that can help pinpoint the causes of the changes so you can find the right treatment. www.ncbi.nlm.nih.gov/pmc/articles/PMC8807795/ www.healthline.com/health/dementia/anesthesia-and-dementia www.medicalnewstoday.com/articles/anesthesia-impact-on-memory#dementia
Hi @justmouse; a PET scan can pick up on the amount of a beta amyloid protein in the brain. High levels of this protein are a main suspect in helping doctors diagnose Alzheimer's disease
