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SMH DR VANTYL. MY LAST VISIT I HAD WITH YOU. YOU HAD MENTIONED HOW IMPORTANT IT IS TO STAY ON YOUR MEDS. I REMEMBER YOU USING A PATIENT OF 5 YEARS AGO WHO DECIDED TO GO OFF THEIR MEDS AND RUN DOWN THE HIGHWAY 169 NAKED. AND YOU LAUGHED ABOUT IT. I REMEMBER I WAS CUT OFF MY ANXIETY MEDS FOR 3 WEEKS. YOU TOLD ME YEAH IT IS SERIOUS YOU CAN HAVE SEIZURES AND YOU CAN POSSIBLY DIE. AS YOU TALKED ABOUT THE IMPORTANCE OF MEDICATION AND HOW IMPORTANT IT IS FOR MENTAL HEALTH PATIENTS TO SEEK TREATMENT. AND WHEN I DO SEE TREATMENT I HAD TO CALL AND CALL AND CALL TO GET REFILL MY MEDICATION BECAUSE I WAS ALWAYS RUNNING OUT. YOU ARE AWARE I WENT 3 WEEKS WITHOUT MY MEDICATION. THE LAST TIME I SAW YOU. ADD COME BACK THE VERY NEXT DAY. HERE I AM THE NEXT DAY. TO BE TOLD. ACTUALLY YOU HAVE TO RESCHEDULE. OKAY I'LL RESCHEDULE I'LL WAIT IN THE LOBBY AN HOUR AND A HALF. UNTIL THREE NURSES COME IN THE ROOM TELL ME TO LEAVE. DR VANTYLE REMEMBER YOUR PATIENT WHO THOUGHT HE COULD QUIT TAKING HIS MEDS IT WAS COVERING DOWN THE HIGHWAY 169 I BELIEVE THAT'S THE LAST STORY YOU TOLD ME. SMH UNPROFESSIONAL DOES DOCTOR AND HIS STAFF DOES NOT CARE ABOUT YOUR MENTAL HEALTH. SAD BUT TRUE. SHAME ON YOU DR VANTYLE..... YOU TRULY DON'T CARE ABOUT ANYONE'S MENTAL HEALTH. STEPHANIE AND STAFF VERY UNPROFESSIONAL. TOGETHER OVER ME AND ASKED ME TO LEAVE. GOD DON'T LIKE UGLY AND HE'S NOT TOO FOND OF PRETTY. FYI PLEASE DON'T GO TO THIS PLACE. THE WAY THEY TREAT YOU IN THERE IS TERRIBLE. WHAT A LITTLE BIT OF POWER WILL DO TO SOMEONE...... FOR THE NURSES WHO STOOD OVER ME. STEPHANIE I WOULD LOVE TO MEET AGAIN. OUTSIDE OF YOUR DOCTOR'S OFFICE. NO POWER OUTSIDE OF THAT DOCTOR'S OFFICE. I WOULD LOVE TO PRAY FOR THE THREE OF YOU 🙏
All the labeling has greater impact on mental health than the wide spread chronic pain. L didn't get diagnosed until age 44, now ten years later I am still in the process of getting all the comorbidities diagnoised, it is a full time job managing all that come with Ehlers-Danlos Syndrome. Grateful for providers like Dr.Chorley many doctors all but run when they hear Ehlers-Danlos, or are dismissive or completely ignorant about it
TLDR: Semaglutide helped Kimberly lose 72lbs in 6 months, improving her physical and mental health and overall quality of life. 00:00 🌟 Kimberly lost 72lbs in 6 months with Semaglutide after struggling with mental and physical health issues. 00:55 🌟 Lost 72lbs in 6 months, no more swelling or joint pain, now enjoys exercise. 01:23 😊 Losing 72lbs in 6 months with Semaglutide improved her mood, energy, and confidence. 01:49 👍 Switching to Semaglutide helped me eat healthier, save money on groceries, and lose weight, making it worth trying for skeptics.
Hi Kimberly. Very happy for you, I know all about how you feel or felt. It’s such a mind game! Although people need to know we are ALL different. It doesn’t work the same for each individual as far as the time frame of losing. It takes as much as 8 weeks to see any results. My lifestyle has changed drastically, this is VERY important. You must do your part in order to be successful for the semaglutide to work and to keep your weight off. I’m in my third week and I stay off the scale and forge on. My diet has completely changed, and consistency is probably the most important thing for everyone to know. Also to be very very patient. I have eliminated all alcohol, which I must say was difficult to do as I was accustomed to having cocktails every night. On keto because I need to watch my macros and I log those every single day and I load up of course on the protein and keep the carbs low. I also strength train three days a week Which is a must and on the off days I hike for 3 miles with my dogs. So like I said, you have to do your part or you will be wasting your time I’m excited at the end of four months to see what the actual numbers are, but I’m not gonna beat myself up as everyone is different, but I will stay to my lifestyle change because it’s going to be a forever thing and I will stay the course. I’m wishing everyone who is on Semaglutide the best of luck just be smart about it. Don’t waste your time or your money if you’re not gonna do it correctly Also don’t expect to lose weight the first four weeks of semi glide because it may not happen and that’s OK as long as you’re accountable for your lifestyle❤️
This video is a commercial. Don't get your hopes up by this group as they will only let you down. they will be more than happy to set up and appointment get yours hopes up and then crush those hopes like a useless tin can. they are not the caring nice doctor that actually understands EDS like he says. What they are is yet another health org that will be more than happy to destroy your hopes and leave you with no more than you had before contacting them. They prove what most of us already know. People with EDS are a lost cause, and unless the situation exactly meets the needs of the doctor not the patient he won't even speak to you, even if he has already made the commitment to do so. do your self a favor skip this one, and move on to some other doctor that seems to offer hope, because unless you fit exactly in this guys mold, then you are not even worth talking to.
Dr.chorely diagnosed me with elhers danlos, pots and mast cell activation syndrome I am extremely grateful that he listened to what i had to say and helped me get answers He encouraged me becoming a doctor myself and said "remember boys have cooties until they have a bachelor's in preferably engineering" which i thought was incredibly funny Hes the first doctor that made me feel human 100% recommend going to him
A lot of people get nausea and vomiting from it but the zofran works wonders, clears it up within minutes of taking the zofran. After a month I don’t even get nausea at all. Big warning tho, don’t drink on this! I learned the hard way after being told countless times not to and almost landed myself in the ER. Lesson learned. Other than that, this stuff is life changing if you’ve been struggling with losing weight.
Excellent information. I am so grateful that there are some medical people who actually believe it exists and how debilitating and difficult it can be. Thank you for sharing this with us. Thank you for caring for 🦓 ZEBRAS GENETICS 🧬.
Someone who has EDs recently asked me if I have it too because she noticed I'm hypermobile. I always thought I'm just really flexible. My mom used to yell at me when I sat on the floor with my legs like a W because it's bad for your knees. What this person told me is it's a spectrum and can be different for everyone. She asked me about any other weird medical issues I might have. I have Renauds syndrome, extreme myopia and a sensitivity to acetominaphin. I've had knee pain at times, but I've also done a lot of sports that can lead to knee injury, so I've always blamed that.
Please! I have called all of the online numbers. and have been discontinued.. I truly believe you can save my life at this point . I live in arkansas... there is knowhere to go.... and im in great medical distress!
Hello! I am not sure if you in Oklahoma but if you are not we also have Telehealth appointments with Dr. Chorley. For more information go to axishealth.net/eds-syndrome/
Thank you for the video, I am looking into myself having a diagnosis, for myself but mainly for my daughters as I feel they need to be assessed. Even my son has a few symptoms. I have only just found out about this and when I check I tick most of the boxes it made me cry. As for years I have tried to figure out how to live With this.. I know for a fact that my auntie has this to. The main thing was about my skin as it never heals properly. I have scars that are very old but have not faded. I am 57 years old and my joints hurt, so having some physio might help. I had a blood test the other day and my arm is just covered in bruises. They couldn’t take the blood as my veins kept bursting and I have bruises all over my arms. I have a feeling it has something to do with EDS. But mainly it’s the tiredness, it is just ridiculous how tired I get and embarrassing, I am always trying to stay awake. I wish I had been diagnosed much more earlier in my life. It would have made sense with everything that I had going on in my life, not just for me but my kids I would’ve been able to help my children more and been more understanding. They will all get tested as soon as I have. I was the family clown, in a nice way of course, I was the grandchild that could make my body do the most odd things and they called it the crab as I could Crouch down and put my arms behind my back and hold my hands behind my back and walk like a crab. My knees are so bendy they look like Iv broken them, but 57 years down the road it’s not funny anymore it’s painful and I find it hard to walk far.
My mother has it and I was diagnosed with it at 7 years old, For a long time I was told not to do many physical things such as do not swim do not climb a ladder or do not carry anything heavier than a gallon of milk and I believed it but I was in pain constantly and I decided to take things into my own hands and start exercising and eating right and while I still live with pain every day it's a lot less than it was when I was actually following doctor's orders as you the younger kid
She's the most caring person I know.She will do her best to solve your medical problems and if she's in doubt she will have you see another Dr that can help you.She has helped me so much. Thank you Jacklyn Rose.
@@axishealthcare1723 i miss seeing. Him. I only stopped becusse i moved further away but even my new dr suggested i make a future appointment with him. Luckily. Dr shepard at oak street health is. Smart too. Dr chorely always made me laugh. My muscies are atrophied and dr Shepard says. Its not something pt. Or exercise. Will help. I am now bedridden mostly ( dr. Shepard highly suspects ms. And says. Its more common with ehlers danlos).. itd be great to have. Dr Shepard and dr chorely both communicating . ❤ 😊 .
Well Dr Chorley was was right about my left shoulder. It definitely has gotten worse,no longer sits. In the joint at all and headed for either a salvage surgery. Or reverse shoulder replacement.. guess me and my Dr will know after my ct. Arthrogram.
I have vEDS. I was adopted, and don't have any known family medical history so I went undiagnosed until my body finally fell apart. I always thought I was just flexible as a kid, I could rest my wrists on my toes while stretching. As I entered my 20s, I started having stomach issues. I developed a stomach hernia and slow digestion, frequently vomiting food many hours after eating. Then ALL of my pelvic organs prolapsed. In my 30s my shoulder started slipping out of the socket, my fingers started to dislocate frequently. My teeth started to loosen and break easily. I'm approaching 40 now and my neck is unstable, my ankles have become unstable, and I keep having extensor tendonitis in my wrists and feet. I tore a tendon in my foot last month just from standing on my toes to empty the washing machine. My veins in my hands and feet regularly rupture out of nowhere. I had a massive hemorrhage a few years ago that nearly killed me. That was when I was finally sent to a rheumatologist, and a geneticist. I have Vascular EDS and I can expect to have a "major event" by the time I'm 45. I'm scared. It's so much more than just being flexible. 😔💔
Hi, I read your story. I think I have EDS too and I’m waiting to get tested. I feel your fear in your comment. I’m f’n terrified myself with my health issues. I hope you’re handling things okay. I just started to crochet and it’s doing a really good job distracting me from my fears. This summer equals another operation, this time on my hips. I’ll be making lots of potholders to hopefully numb myself. Anyhow, I hope you’re doing okay. 💙💙💙
My hEDS has been confirmed by specialists but my GP doesn't believe in EDS so she doesn't formalise the diagnosis. I've been tested for POTS but didn't have any issues with my heart during testing. My ankles are so instable I've twisted them many tines. Never dislocated anything though. I've fallen and hurt myself badly on many occasions. All doctors ask is if I was drinking (I don't). I'm fairly certain that we have this in our family, just that no one is diagnosed. It would explain so many health issues. To make matters worse, I also have endometriosis and ME/CFS. Make a guess why no one takes my EDS seriously. Not even when I bend my fingers beyond 90° or have places with very stretchy skin, or conplain about all the pain in my joints. My GP just gives me more antidepressants like that's the cure all.
Same as myself it's related to Asperger's mhtfr gene my mother has it severe ms my grandfather had it born with one eye working but amazing he got to 85 pain free even though he had slipped disk got over it.did get Parkinson's nsos in the end though.midley most if us have OCD from birth had to connect the dots myself
Dr. Chorley is honestly the best doctor that I’ve ever head , hands down !! He actually takes his time and listens to his patients no matter how long it takes .
Dr. Chorely, I don't know if you remember me, I'm always a mess and coming from far away. I have a syrinx in my spinal cord and it's toppled since I've seen you last. I need to come see you again as I am wheelchair bound. My facial spasms have moved from just my face into my whole body. I am waiting to get into a movement specialist but I really need to be tested for SPS and I am having a lot of very alarming scary signs. I don't know if you can help me with this or not but I would really love an appointment with you where I don't mess everything up. I'm so thankful for all that you do for the EDS community. I can't even tell you how huge it is to have a doctor in our corner.
I miss her so much and wish she was still my PCP in Pryor. She was wonderful and is one of the reasons I’m still here today. She thought outside the box which ended up leading me to a specialist (also within the Axis healthcare system) where I was diagnosed with a rare genetic disorder that had been missed my entire life. Axis lost a very special one with her.
I have a long history of chronic pain and other undiagnosed health problems that had me bedridden. Most doctors wrote me off as a hypochondriac with anxiety disorders. He was able to put all of the pieces together and diagnose me with Ehlers Danlos and a ton of it’s treatable comorbidities. He continues to educate me and I feel as though he treats me like he would his own family. He genuinely cares about his patients. He created a personalized care plan that has helped me to live again & have so much hope for my future. I’ll forever be grateful for him!
I just saw you and am glad that I did besides your vast knowledge, ability,bedside manner and as well your personality I made the correct/smart/choice to have you see me for primary and hEDS. Thank you for everything Doctor Chorley!!🇮🇪☘️🇺🇸
I’m so happy there are Doctors like you! I’ve been recently diagnosed with HEDS. I’m a 50yo woman living in the US and it has been such a struggle getting help for the symptoms I had for, basically my whole life. So many doctors would just look at me like I was a hypochondriac with anxiety. Some kind of injury happened in 2019 and it’s been so horrible since. It’s like my whole neck,back and hips have become unstable. It’s hard to sit up for more than 10 min without making it worse and I have to lay down most of the day to keep from being in so much pain that I no longer want to live. You give me hope! Thank you!
My biological father died from EDS (mitral value rupture) and I also have EDS and significant issues. This video makes me feel really heard and understood. My GP is really truely wonderful and I'm so lucky he has taken the time to understand my condition, and you're correct they only have so much time and we have a lot of comorbidities (EDS, pots, mcas, etc). This is the best explanation of our disability I've ever seen. Thank you. Also, do you happen to take on board Australian cases or reviews.?
That’s so awesome to see that there’s a good doctor and you know what EDS is, let’s me know that we can rely on at least one good person. Too bad you can’t teach all the other doctors about it. I have EDS, and I don’t think any of the doctors at our hospital knows what it is. I doubt my PCP would know what it is. Luckily my Neurologist knows it and so does my OB- GYN.
I am 63 but when I was a young girl I had night time pain in my legs especially my shins and when I would run my ankles would give out on me. It was very painful. Anyway, the doctor just told me it was growing pains. Later on I noticed that my twin brother could touch his thumb to his wrist and I could do it but not as well as he could. Since that time I have slipping rib syndrome and two great Toes that go out of joint I need it goes backwards sometimes. So I am going to the rheumatologist and see. I already have Sjogren's, arthritis, and am old blah blah blah. Lol
I'm so glad to share with you my experience on how I got rid of my EDS with dr imenherbal herbs on RU-vid channel. No more chemo. am completely free. Thanks Doc. ru-vid.com/show-UC1PVLGW
I’m so much grateful to Dr Igudia on his RU-vid channel who cured my type 2 Diabetes with his natural herbs medication and I’m also using this opportunity to recommend everyone who also suffers from Diabetes disease to contact him on his RU-vid channel because his herbs are indeed very effective and cures diabetes completely.
I wish axis. Had. A 24 hr er is my only complaint.. I went to an er in tulsa only to be mocked by nurses there and told things like ehlers danlos and slipping rib dont cause pain! The dr saw it differently though. Ii was kept overnight and put on steroids and. Norflex. At least I got relief
I'm so glad to share with you my experience on how I got rid of my EDS with dr imenherbal herbs on RU-vid channel. No more chemo. am completely free. Thanks Doc. ru-vid.com/show-UC1PVLGW
Dr. Chorley saved my life with an early cancer diagnosis. He saved my mother's life as well. As if that were not enough, he is great at explaining things and really listens. Add to that his charm and humor, and he is the best doctor anyone could ever want and a wonderful human being.
