This started as a channel about living with chronic illness- but is evolving into a hub about wellness overall. Everyone is welcome! Personally I have Mast Cell Activation Syndrome (MCAS), and one of its most difficult symptoms, Multiple Chemical Sensitivity (MCS). I am also easily injured due to hypermobility and have cognitive symptoms.
The goal of this channel is to destigmatize chronic illness and trauma and to redefine what it means to live with them, and hopefully have some fun along the way!
It is also a travel channel and resource about car living with chronic illness.
The universe is telling you to make a change and stop continuing as you are doing. Time to have faith that brain retraining will heal your mcs. It will be painful in the beginning before it works but what do you have to lose, and you're probably used to pain anyway. This could be the start of a pain free future
@@eicrusade6161 thank you for your comment. Curious- do you follow me on Facebook as well, and is this in reference to the recent events I’ve posted about there? Or did you just feel inspired to post this on here today?
@@TheCanaryUncaged Saw Julie Genser's post about your accident. But I think you instinctually knew I knew by my post. Btw, she was one of the first to promote brain retraining as a legitimate treatment.
@@eicrusade6161 appreciate the encouragement. At this point, I really don’t have much to lose. Time to get uncomfortable, ugh. But I’m ready. Would be interested to connect and hear about your experience with brain retraining if you’re open to it.
I’m sorry to hear you’re struggling too. I’m in Maryland at the moment, how about you? I’ve actually totaled my car since my last video so I’ve been staying with some kind MCS friendly people in Baltimore but I can only stay here for so long.
@@TheCanaryUncaged Unfortunately, I don't know if they have a special name. They are extremely popular in flower beds here. We have a lot of them near a neighboring apartment building
I was actually sharing personal aspects of my story that took some courage and vulnerability to do, but if you have have any constructive criticism on how I can improve, I’d love to hear it!
That was one of my hobbies as a child. Some people found it odd, but they didn’t have 250 four leaf clovers! They are indeed rare, but where there’s one, there’s more!
I totally agree. Took a while for me to get the lesson, and letting go is an active process, not a destination, but it definitely opens us up to new horizons
Yknow I really like that way of putting it. I've been sayin I don't know anymore for a good while now but I gotta it does feel better to open yourself up physically and emotionally when saying it and throwin your hands up is a perfect way to do it. Hell yeah man👍 Thanks for the intriguing short and have a good day. You, good sir, get a like.
I guess it depends… for some things can get better and for some things do get better. For others things just keep getting harder and some level up and some don’t. It’s a crap shoot we are not always in control if outcomes… some we can can we can’t. These types of “quips” are often the very moment we find ourselves faced with a level up moment… the next mountain we choose to climb or just sit and look at it. You are just looking at it 😂
I think it depends too. Like you said, not everything is within our control. And sometimes it can be hard to discern what is. I wouldn’t say that I’m just passively looking at the mountain- there are a lot of things in the works- but life pelting me with lemons can definitely slow down the process because it can drain my energy. Thank you for your comment, as always
I see you, I hear you! The beauty of nature is soothing, the sound of the birds like an inner tune up as you share points along your journey. Wishing you the best on your path of openness and healing!
That massage therapist needs to be reported to the licensing body. That was not a mistake but a violation of your bodily integrity. That guy shouldn’t be touching anyone!
Dear, check out Dr Jack Kruse, he will help you charge up your body so you can heal. Ps he has lots of free info and a free forum. You don’t have to pay anything
What a lovely video, Daniel, and how wonderful to see you-- and to hear you--just take us all of a little walk and talk about how you feel. Ears wide open here. Why don't you consider coming to visit me? And you know, you might want to go see Betsy, in Winchester. Betsy is amazing. She will help you. Many advantages: She is not expensive; When you talk about "switching" your nervous system, this is exactly what she does. She can hook you up with just the right supplements, at low cost, that will really bring you into balance....as well as John Ellis water--very hydrating. And for "real life interaction" --she is always very open and compassionate, available to give her whole attention to you as both a client and as a friend. I would really recommend going to see her. We will be guests on a national podcast, on July 17. You don't have to be a lone wolf, unless you want to be. You have friends and people who care about you. We're all unique and it's rare for any of us to feel perfectly understood. But you can not only find kindred spirits but to also overcome your difficulties. Everything that caused the physical and emotional pain in your life can be reversed. You can be well and continue to tap into the unlimited capacity for joy and appreciation that you have an extraordinary capacity for. You are a very special person who has overcome so much and are still so young. I know you are in grief over what's been happening in the Ukraine, and beyond. But you have the people and the tools in your life now--although you might not be aware of all of them--to open new worlds of insight and hope. And I hope you'll be in touch, if and when the spirit moves you. Thanks for this lovely video.. I'll keep an eye out for future posts.
You are aware that Hypermobile Ehlers Danlos, MCAS and POTS 😅s a trio right ? You seriously need to see if you can get to a hyper mobile EDS diagnosis with a doctor that understands MCAS and that triad of pastoral orthostatic tachycardia to build your disability case it’s not easy but that’s the route to go. That’s what’s going down in my genetics line that’s where young people are able to actually get some direction going for treatment, and sometimes disability that cranial instability really does kick off the autonomic nervous system to develop the sensitivity. And the research suggests that ADHD and autism will ride along with that tried making it a full house then you add I don’t even issues for some such as lupus and rheumatoid arthritis so do whatever you can to get a full work up an access to Doctors
Appreciate your comment, I definitely have at least aspects of every single thing you mentioned 😭 but have struggled to find a doctor who’s literate about these things
Truth. Breathe through the next minute and then the next. Days can be long this way but nights longer. Congratulate yourself for every minute of every day and night and carry on. There is a difference between exist mode, survival mode, “living”, and thriving. What you describe here is exist mode. Whatever it takes to exist long enough to be able to take survival steps. Take as many survival steps you can to get to living. Then live each minute in a way you can perceive thriving. It’s a process. All valid. All part of a recovery process. If you have never had to simply attempt to exist to get to that point to try to survive and then back to a feeling of living…. maybe you don’t know what living actually IS to recognize you are not only living but thriving. You can do this. We can do hard things. Some just think they are doing add things and label it living and thriving…. Yet they are still satisfied…. So much never enough. Once you have experienced exist mode so little is enough to capture the thrive experience. Hold on and trust you can do this!
Yes./ find a way to make money and not make money to qualify for a disability disability doesn’t want to qualify. Good luck. It’s tough. Start now. Keep trying. You need it, even if it’s a bridge to recovery, you need it. I don’t have disability and got myself to a point access to care to qualify for disability became too disabling to work the process. It is a process and persistence when struggling and exhausted makes that double hard. Again, good luck ❤
I got MCS after 10 colonics wiped out my microbiome, so I know 100% that it was as a result of acquiring dysbiosis. Have you done stool tests and tested your microbiome to see if you have issues there? I would also check your beta-glucuronidase since it can block detoxification by recirculating toxins in the body. Also checking for malabsorption, stomach acid levels, H-pylori.
I’m really sorry that happened to you. I was given 30+ rounds of antibiotics as a kid for simple ear and throat infections so I am sure that my microbiome will benefit from some support. I hope I find some kind of probiotic I can tolerate. Appreciate the ideas, definitely something I think about when I get to a better place financially
You are mentally strong,and asking for help is a sign of strength. Love the “Captain obvious” reference lol. Awesome you have a Dr that is willing to help you out. Take care…
