Good job articulating her perspective. Sometimes, I think being told that storytelling about one's disability can be helpful for self-advocacy purposes. Although it can create awkwardness and misunderstanding resulting in a poor interpretation of the shared realities. However, such behavioral participation can be perceived appropriate for those who have certain physical conditions, but it can also be unnecessary and further subject individuals coping with unseen intellectual unimproved strengths to personal embarrassment, especially if they agree to cooperate. In other words, decision-makers must discuss benefits and emotional risks when considering ramifications and unintended outcomes, even if individuals choose to engage in storytelling, and or if it is thought to be of significant value. Glendora Claybrooks
Hi Teri, I am so moved to hear you profoundly express what Kayla and you have gone through. I find your self-awareness and courage amazing. I knew what a devoted mother and advocate you have been all these years, but had no idea the level of obstacles you had and have to overcome, in order to get Kayla the help she needs. As for what will happen to Kayla when you are gone, please try not to worry. We sisters "will circle the wagons" and protect her just as we always have for anyone in the family that needs us. We love Kayla, so of course we will be there for her! Be proud of the example you have set for parents with children who are autistic, but also for parents in general. I am also so proud to be your sister and to learn from you. xoxox Lisa
Me gusto mucho su platica. Tengo mas de 38 anos de de experiencia en consejeria de adictos y tengos dos hijos adultos con problemas de drogas e alcol. Aunque el tema fue autismo Udsted como quiera me pudo ensenar como ver la vida un paso/dia a la vez un cuarto a la vez. Muchas gracias y que Dios bendiga a su familia.
