I went to see a neurologist who recommended deep brain stimulation as the only sure "Cure". It seems excessive to me. Is recovery possible without such extreme methods?
Una genia Nora. A casi un año de haber terminado mis sesiones con ella, estoy muy feliz porque volví a hacer un montón de cosas que no podía y mi calidad de vida mejoró un montón. Gracias Nora por acompañarme❤❤ sigo usando todas las herramientas que me enseñaste.
Nora, fantásticos tus aportes. Personalmente, estoy luchando contra este mal y busco día a día superarlo...a veces gana la frustración, pero no hay que rendirse nunca. Soy estudiante de Educación musical y estoy, precisamente, realizando una investigación sobre la distonía focal del músico. Quería pedirte permiso para dejar un formulario TOTALMENTE ANÓNIMO que, quien quiera, puede responder, y me daría una mano muy importante. Desde ya, sinceramente agradecido.
@@norakrohn Muchísimas gracias, Nora!! Podrías darme una mano permitiendo que comparta en comentarios un Formulario de Google con una encuesta breve para después poder tabular los datos. También, si querés, podés contestarla vos misma (es completamente anónima, sin ningún tipo de dato personal, y sería una enorme ayuda). Nuevamente, te agradezco enormemente por tu gran predisposición!!
@@estebanbiennati7481 No hay problema, contás con mi permiso. No sé si hace falta cambiar algún ajuste de mi parte para que te lo deje compartir. En el caso de que sí, me avisás!
@@norakrohn Muchísimas graciasss, genia! Vamos a probar, ahí lo paso EDIT: Lo subo como comentario y lamentablemente se elimina. No sé si es algo que se pueda configurar en YT o no sinceramente. Si tenés alguna vía para enviártelo, como un mail, y capaz lo podés compartir en comunidad, y completar si querés. Ahí le podemos encontrar la vuelta. Nuevamente, SÚPER GRACIAS!!
Saludos, gracias por la información, soy trompetista y llevo 10 años con este problema de la distonia focal, el cual cada ves se ha hecho mas progresivo al punto de estar cada ves mas limitado.
Gracias por tu comentario, aunque obviamiente siento mucho que estés lidiando con distonía. Si no has encontrado todavía el trabajo de Jan Kagarice (trombonista) tal vez ese sería un recurso valioso en tu proceso de recuperación. Te mando mis mejores deseos
In my experience this isn't a good strategy, which doesn't mean you won't see fantastic players doing it. :) You can experience this for yourself by touching your nose, then stretching out your index or pinky finger to the side. Does it feel less tense, or more?
Hi Nora, very interesting topic, as a beginner Bass guitar player for 12 months now can i use this recovery tool or knowledge for this instrument? i have become really passionate about playing and learning this instrument i love it. What seems to be happening is when i sometimes can play a bass line then play it again and it goes all wrong with my finger positions etc i hope this makes sense by the way i am 64 so could this be a handicap on my playing? Many thanks.
Hi Kevin! Yes, all of this information can be used to put the brain and body on the right track even if we're not injured. And in my experience the brain is capable of learning new patterns at any age if those patterns coincide with the way the brain and body are designed to function.
Gracias por tu comentario, lo tomaré en cuenta! Por ahora te sugiero que eches un vistazo a este video sobre ese aspecto del Till Approach: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-kmdJLCzag44.htmlsi=c-ikpkCIGwCkoE5Q Saludos!
Hi David, I wish it were possible to answer this question in a RU-vid comment but unfortunately it isn't...in my experience the answer lies in learning a new approach to technique that honors the body's natural organization and physical logic, which takes time and (often) expert guidance. The dystonic symptoms go away when the dysfunctional system holding them in place is dismantled. Wishing you the best.
I'm wondering how/when do you move from creating this foundation using the blueprints from your healthy hand, to focus on the movements of the fingers specifically. Is it just a natural progression? Are there any specific videos you can point me towards? Edit: I'm at a point where I can approach and hold a position in the instrument using a more physically natural movement, however the moment I try to make any microadjustments with my fingertips, everything falls apart.
@windy110 The answer to your question is that the technique builds step by step, starting with being able to hold the instrument and then moving toward engaging the string (or whatever mechanism you use to play the notes of your instrument) and toward what we call Walking Hand and Arm, which is the basic moving mechanism. In general, continuing this progression on one's own is extremely difficult and full of potential pitfalls--I say that not to dissuade you or in any way pressure you to seek guidance if that's not what you want. I'm just being honest about the fact that it usually takes knowing the path well in order to keep our brains and bodies from straying from it, and that's hard to do if we don't know it already! You may find this video helpful: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-kmdJLCzag44.htmlsi=f0uzxyZvW4ukriSn. There are other videos on the @TillProject channel that could get you further along as well, although you'll have to adapt the information if you play another instrument. One thing I can tell you right away is that if you are thinking of "moving your fingers" that's actually the wrong approach. You'll see in my videos that we're actually designed to bring an entire finger/hand/forearm unit from place to place (try touching spots on your face and you'll see what I mean). So the way to start experiencing that on your instrument would be to put your brain in your forearm and move from there rather than from your fingers. In the end the individual movements of the fingers are of course part of the experience, but in order to get out of pain and injury first we need to connect them to the forearm and understand that the forearm is always the motor. I hope that's helpful.
@norakrohn Thank you for the response, it was very helpful. I got a couple more questions if you don't mind. While moving the arm as one unit, am I suppose to move at normal speed or slowly? Do I focus on the touch sensations in the fingers or do I disregard them? The "resting down" feeling, should I focus it on the fingers, or the arm? Are there any signs that can tell me if I'm doing it right or wrong? Is it ok to feel a little bit of dystonia while you move the arm as one, or should I always aim for no dystonic sensations? Is there a recommended amount of retraining I should per day? Or can I do as much as I can? Is there such a thing as doing too much? Thank you in advance.
@@windy110 Tough questions to answer over RU-vid comments but I'll try! :) The best thing, if you are able, is to have one-on-one lessons. - if moving the arm slowly helps you become aware of how you're using your arm and what you're feeling it's fine to go slow; eventually all movements need a certain amount of speed/momentum to make sense (think of walking for example...you can go in slow motion to really focus on what you're doing, but you lose the propulsive quality of your steps) - "right" and "wrong" are hard to sense for ourselves when we've gotten as confused as most people with dystonia are, which is why one-on-one lessons are so helpful, but if the movement feels similar to movement in the other arm or with a different object that's generally a good sign - focusing on touch sensations can be helpful or unhelpful depending on the context: if the sensation is bothersome or distracting you can just try to focus on moving the arm as a unit, if the touch sensations help your brain "see" a part of the body that has "disappeared" from our awareness then it's helpful - resting down is felt in the entire arm, the same way our arm feels at rest when we put our hand on a shelf or our opposite shoulder - dystonic symptoms are a sign that the brain's strategy isn't 100% accurate or complete, but that doesn't necessarily mean the element you're working on isn't correct; it may just need more repetitions of the right "blueprint" or there may be other elements that need to be learned for the symptom to diminish - especially in early stages, 10-15 minutes a few times a day of repeating the correct movements is a good amount of practice; too much is unnecessary and will tire the brain and/or risk confusing the correct blueprint with less ideal versions
@@norakrohn Thank you so so much for the answers. I'd love to get some direct help, however I am a bit of a unique case, I am not a musician, my "instrument" is a computer mouse and keyboard, so I don't think there is anyone out there who can guide me through this. But your videos are great when I'm able to translate to my situation.
@@windy110 I’ve helped other musicians with typing, so please feel free to contact me through my website if you’d like some assistance! www.norakrohn.com
Muchas gracias por la información brindada sobre este tema. Soy pianista y tengo distonia hace 4 años. No he avanzado mucho en ese tiempo. Podrías brindarme consejos para pianistas? Gracias
Hola @agustinurdiciain9215, gracias por tu comentario. Te recomiendo ponerte en contacto con Hugo Bermudez (facebook.com/hugobermudezpiano/). Él trabaja con los mismos principios, los cuales de hecho vienen originalmente del enfoque Taubman para piano. Suerte!
Hi @johnsmithers5044, the Till Approach is a system of string playing (primarily violin, viola, cello, upright bass) that is based on physical logic, as I describe in my videos. The principles of the approach can be used in an injury recovery context, which includes dystonia, and those same principles can be adapted to other instruments. By dismantling the physical and cognitive context that is giving rise to dystonic symptoms (different in each individual case), in my experience the symptoms gradually dissolve. Please watch some of my other videos or contact me if you'd like to know more.
Thanks very much for your comment, although of course I'm so sorry to hear you're dealing with dystonia. I know how exhausting it is. It's interesting that your instincts led you to experimenting with your right arm. In my experience what works best is when we're able to understand the principles behind the healthy movement on the non-affected side and then apply those principles to the left side as a "blueprint" experience. Of course, good guidance helps (and for most people is essential). Wishing you the very best.
Dobro jutro, Nora Slučajno sam vidjela vaša videa..Zanima me da li vi imate Dystonia Cervicalis..Kako mi možete pomoći.Imam Dystoniu Cervicalis 7 godina u vratu..Primala sam redovno botix kod vrhunskih neurologa. Idem fizioterapetu..Netazumijem vaš jezik.Dolazim iz Hrvatske,želim vas kontaktirati.,hvala Maja ♡
Hello Maja, unfortunately I don't know anything about cervical dystonia. You might consider looking at Joaquin Farias's work if you have not already. I'm sorry I can't be more helpful. Best wishes to you.
Muchisimas gracias por este video tan valioso para mi Nora, padezco distonía en la mano derecha, soy guitarrista.quisiera ponerme en contacto con usted para recibir mas consejos y ayuda. De qué manera puedo contactarla?
I'm so sorry to hear that, and I completely understand. Know that recovery is possible with the right tools, and in the meantime the most important thing is to get support from people around you and do everything you can to care for yourself. I am sending you my very best wishes.
toco la guitarra flamenca cai en una distonia hace 7 años tarde mas de 1 años en recuperme al 80% pero actualmente hace 1 año cai otra vez ahora empezar de nuevo a recuperar poco a poco ya he conseguido un 40% teniendo en cuenta que me quede en la ultima caida al 10%. pero del 40% al 80% es mas rapido que desde 10 a 40. me recupero con estudios muy lentos y dominando la situacion en todo momento.
Gracias por tu comentario, aunque por supuesto lamento que estés lidiando con distonía. Según mi experiencia, el camino más directo y seguro hacia la recuperación es a través del uso de movimientos basados en la lógica física, lo cual muchas veces implica un cambio de abordaje en varios o muchos aspectos. Cuando los movimientos que empleamos obedecen la misma lógica física que usamos en la vida diaria se vuelven más estables y no experimentamos tanto vaivén en el proceso. Te mando mis mejores deseos para tu recuperación.
@@manuelgabarri1280 No sé si la pregunta era para mí o para el otro guitarrista, pero igual te respondo. :) A grandes rasgos se trata de reemplazar el abordaje anterior (el que alberga los síntomas distónicos) por uno que respete la lógica física inherente del cuerpo (y por extensión, el cerebro). Voy tratando los temas más comunes en mis videos--y las prácticas que usamos para acceder esa "lógica" en el cuerpo y en el cerebro--pero como cada caso es individual, es difícil entrar en más detalle sin ver lo que pasa en tu situación particular.
@@norakrohn básicamente lo que me pasa es al arpegio mi guitarra el dedo anular esta torpe no logro un movimiento natural y efectivo y el meñique se me tensa
@@manuelgabarri1280 Entiendo, gracias. Creo que lo que hace falta entender es que el síntoma distónico es (según mi experiencia) el mero resultado de un contexto completo que abarca muchos elementos distintos: nos parece algo "sencillo" que de repente no está funcionando, cuando en realidad es solo la punta del iceberg. Vemos que hay algo que no funciona en el dedo sin captar el problema de raíz, que podría ser por ejemplo en la muñeca, la palma, el hombro, o todos a la vez. Por eso es imposible dar consejos individualizados, aun conociendo los síntomas particulares, sin trabajar directamente con el individuo. Espero que tenga sentido...
60 years ago when I was 4 years old I got hooked on the 5 string banjo, all I wanted was to make it sound the way Earl Scruggs' banjo sounded. I was intent on learning this, when all the kids came from school they all played outside until dark but I went straight to my dads banjo and practiced until bed time. from then up until around 30 years ago I played in several well known bands, recorded my own work and was often hired to play on others albums. There were many years I'd practice 6, 8 and even up to 16 hours every single day! Needless so say I got very good at it and everyone knew it! But around 30 years ago I started to notice no matter how much I practiced I began to make mistakes often and just miss little notes more and more frequently and it only got worse, and finally so bad I literally could not play the banjo! No one even knew of focal dystonia back then and finally around 30 years ago I gave up and stopped trying. Many of my RU-vid followers kept telling me to try gloves with the finger tips cut out but I thought that was a silly thing to do. Then 2 years ago I got the bug of wanting to play again so I bought gloves with fingertips cut off and the first time I tried to play using them I could actually feel the banjo in my hands a little like it felt when I could play my very best. I was diagnosed in 2012 and have since tried Botox and everything else under the sun, nothing worked. I could just hold a banjo in my lap and my hands would start to clinch! 2 years ago when I started using the gloves I have not missed a day of practice and tho I don't practice so many hours as I used to it FINALLY is coming back, and I can actually play again! I probably never will get as good as I once was but this is proof dystonia can be overcame! Being a musician yourself I know you probably were told you'd never play again I wonder if you have any advice at all you could offer to help me? As I said I am making progress but basically am having to relearn all over again, amazingly I remember the neck, frets and pretty much everything I knew but getting my right hand back I can see is going to take some time, so anything at all would be so greatly appreciated! And thanks for your video! I'm off right now to check out your other videos! Thanks also for anything at all you might offer! PS: Sorry so long! But if you couldn't tell I'm pretty excited to be able to play at all again! :)
I'm glad you are starting to see some movement after all of this time! My best advice is that (in my experience) recovery is most successful when it involves examining and changing the motor patterns we are using on the instrument. That means identifying a physically logical way of approaching the playing and then giving the brain and body direct access to a "blueprint" for that movement, often by using the other hand or using an everyday object in place of the instrument and then asking the brain to copy that experience. Best of luck to you!
Hi Alain, thanks for your comment, although of course I’m so sorry to hear about your dystonia. Two people you might contact if you haven’t already are Jan Kagarice and Anna Detari. Both work extensively with MFD in the embouchure. Sending my best wishes.
Interesting thoughts.As a flamenco guitarist who very suddenly, basically overnight, developed focal hand dystonia in my right hand about 8 months ago, Completely Relaxing definitely feels like it provides an unnatural base to work from. The most frustrating part is recreating what was natural before when whatever that was feels like it’s been deleted from existence.
I'm so sorry to hear about your dystonia. You describe the experience very well--the blueprint we used to rely on ceases to be functional and/or accessible. My recovery came via creating a new blueprint, one that honors the physical logic that enables us to use our bodies quite successfully (often even the affected limb!) in daily life. I wish you the absolute best in your recovery.
Highly recommend this method of recovery. Logical and very effective. I have been with dystonia in both hands for 5 years and with this strategy I am seeing some promising signs. Awesome.
Great video Nora thank you so much! I'm an electric guitarist but began my professional aproach late, at 21 y o, now I'm 27. During the pandemics I experienced for the first time focal dystonia, probably mainly as a result of emotional stress, incredibely it went away after couple weeks in which I lower my practice time. Sadly this year It came back worst than before during the middle of my semester at university, I feel that as consequence of stress of the academia, other personal situations that affect me psicological and also excess time of practice. I've found out that when I'm more relax and focused on enjoying my playing the sympotms reduce. Anyways thank you again!
Thanks so much for your comment, although I'm very sorry to hear about your dystonia! It's a complex condition with many interconnected parts, but I'm glad you are finding ways to help yourself. The information I share in my videos can be applied to guitar playing as well, and our hope is that over time it will be developed to the same level for guitarists by people who deeply understand the nuances of the instrument. In the meantime, I wish you the best.
Hello Nora! please tell me, I’m a pianist... and my 4th and 5th fingers began curling under my palm. I suspect that this is focal dystonia((((it is very difficult to realize this when you have studied all your life to be a pianist and work as an accompanist in a musical school. What do I need to do(((((
@@armanbolshov I'm so sorry to hear about your dystonia. Since you are a pianist I highly recommend you check out the Golandsky Institute (www.golandskyinstitute.org), which is the center for the Taubman Approach to piano (which has helped numerous pianists with dystonia). You will find a list of faculty there, and in particular I can recommend Hugo Bermudez (facebook.com/hugobermudezpiano/): his webpage is in Spanish but he does speak English! Please let me know if I can be of further help.
Hello Nora. I have focus dystonia in my right hand. I can’t “remember” how to hold the bow anymore. Some symptoms stay even when I don’t play, when I’m holding a mug or something similar… how can I contact you? I wish I could talk more about it.
Hola, Nora. Ya que el enfoque Till está basado en el Enoque o Técnica Taubman, me surge la siguiente inquietud ¿el enfoque Till también utiliza movimientos de doble rotación (propia del enfoque Taubman) en los instrumentos de cuerdas frotadas (violín, viola, etc.)? Interpreto que en caso de usarlo, dicha aplicación sería en los dedos índice y anular...
Hola! Gracias por tu pregunta! En grandes rasgos, sí, la rotación es una herramienta fundamental del enfoque Till. Es un tema complejo, así que creo que la mejor manera de conversar sobre este tema sería por mail. Si te animás a contactarme a través de mi sitio web (www.norakrohn.com) te respondo con gusto! Saludos 🙂
I've had FD for eight years.. Had Botox Injections, etc I have yet to find anything that actually works...keep hearing about how so many people have been cured or can cure you...but they all seem very dubious....as far as I can make out, there is no known Medical Cure as yet!...Too many Witch Doctors on here. Wish you well and hope one day there a genuine cure.
Dear Ms. Krohn, I am 14 years old and have acute musician's focal dystonia and have been a big fan of your content ever since I developed dystonia in the early summer of 2023. I know it is a very complicated thing but from a logical, scientific, and objective perspective, since dystonia, as a condition truly is not actually damage to the brain but a maladaptive rewiring of the brain and given the fact that the brain can always adapt and rewire itself through time as long as the brain has not suffered any type of damage cellularly or structurally, it seems that through consistent and deliberate retraining that shows progress in the recovery journey, the brain's neuroplasticity can eventually rewire the brain back to normal and overcome deeply ingrained changes/neuroplastic limits as dystonia does not actually cause any structural or cellular damage to the brain that prevents neuroplasticity from overcoming these challenges and given the fact that the brain is always technically able to continue rewiring itself. It can be extremely challenging and take a very long time to achieve a full 100% recovery with no dystonic symptoms and sensations from effective retraining but from an objective and scientific perspective, it seems certainly possible. What seems variable for each individual is the rate of recovery and the time it takes rather than the actual possibility of a full 100% recovery, which logically seems to be guaranteed with effective retraining and time considering neuroplasticity's amazing abilities to overcome deeply ingrained and even hard to reverse corrupted neural pathways and the fact that dystonia does not actually cause damage to the brain that prevents neuroplasticity from overcoming these challenges like a stroke or Alzheimer's would. So in conclusion, it seems that as long the retraining results in progress in the recovery process and the retraining is consistent, then disregarding the rate of recovery and time it takes, eventually, the brain will rewire back to normal. What differs for each individual for this challenging and often unpredictable journey is the rate and time it takes to achieve the full 100% recovery. Sidenote: I use the Taubman approach which you actually introduced previously and owe the rest of my entire musical life to you!!! I have not yet fully recovered but have seen truly significant and noticeable improvement! I started retraining 1.5 months ago and am feeling progress every single day! It seems the most important thing about retraining is finding the most ergonomic/biomechanically correct/efficient way to play your instrument.
Hi Norman, from my perspective everything you've said is right on track! I'm thrilled to hear you have seen improvement and hope it gets better and better. Sending you my best wishes for complete recovery.
The short (and unsatisfying!) answer is that, as far as I'm aware, scientists still don't understand what is going on in the brain and/or nervous system that actually causes dystonia. And I should stress that I am NOT a neurologist! However, what's fairly established is that dystonia manifests as involuntary muscular contractions/loss of muscular control that aren't being caused by an identifiable condition (like Parkinson's, for example). In the case of a task-specific dystonia such as Musician's Focal Dystonia, these symptoms generally only appear (or appear most often/most strongly) when the person is performing a certain task. Contributing factors may include unhealthy motor patterns, cognitive tendencies or strategies, psychological traits like anxiety or perfectionism and/or traumatic experiences and how they manifest in the nervous system, possibly genetic factors, and possibly other things scientists haven't even identified yet! The good news is, recovery is possible. Hope that helps, and wishing you the best.
Thanks Nora. About fifteen years ago I developed a snatch in my third finger of my left hand. It came out of nowhere and I’ve never managed to cure it. Bloody frustrating really. I’m wondering if it could be the condition you’re describing. Thanks for the reply.
Hi there, I'm so sorry to hear you're having symptoms! Have you checked out the Taubman approach to piano? That's the body of information where everything I share originally comes from: www.golandskyinstitute.org/. If you want a recommendation for a teacher you could contact Hugo Bermudez: facebook.com/hugobermudezpiano/
Great stuff, same conclusions I’ve come to from bits and pieces I found around over the last 10 years. A early one was a few lines in a blog about practicing flute on a wood stick… so the carrot stick makes total sense. Same with holding the instrument the opposite way, amazing how physically refreshing that is… how it seems all hand ft has also one common thing, a shoulder issue
I am really enjoying your videos and would be great to be in contact, however I am a guitarist, have you ever helped a guitarist before? I have dystonia in both hands.
The solution I recommend involves regular one-on-one lessons. If you'd like more information please contact me through my website, www.norakrohn.com. Take care!
Saludos hermosa dama gracias por información y felicidades por tu recuperación, se que usted es violinista, mi pregunta es, estos principios aplican para guitarristas?
Yo soy guitarrista y tanto estos conceptos como los de Sophie Till me sirvieron. Eso sumado a los ejercicios de Ruth Chiles me ayudaron a estar actualmente cerca de la recuperación.
@@mazzorcca5491gracias.... Lograste recuperar la naturalidad del movimiento? Porque los videos que dispone este canal referencia que, al tocar no debe quedar pulsado el debo más bien aconseja trasladar la mano completa por eso preguntaba que si aplica estos principios en guitarristas, al tocar algunos pasajes de velocidad no se puede trasladar la mano completa necesariamente se tiene que extender los dedos para llegar a esas notas lejanas, como lo haces tu adoptaste otra manera de ejecutar el instrumento?, saludos camarada, la verdad no es nada grato venir tocando bien y de pronto perder la habilidad paulatinamente.
@@leoleiva1666 Gracias por tus comentarios! Efectivamente, sí, los conceptos son aptos para guitarristas. De hecho trabajé con un guitarrista que hoy se encuentra 100% recuperado. El tema que sacás--sobre la velocidad--es una pregunta que surge muchísimo en el primer contacto con la información y es totalmente entendible. La respuesta es que hay otras herramientas--principalmente la rotación del antebrazo, lo que es el único movimiento del brazo que puede ir a la misma velocidad que los dedos--que acompañen el elemento de "Walking Hand and Arm" y brindan la velocidad necesaria. Si querés saber más no dudes en contactarme. Saludos.
i'd just like to share, im a pianist and im recovering, beating my Dystonia . For some reason someone told me, it's not a hand problem or technique problem, it's a rhythm problem...? And all of a sudden i felt the same feeling i did when u showed me the exercise to grab the bottle ? It was like all of a sudden my mind wasn't engaged in "fixing my dystonic hand" it was "Play the notes on time like ur supposed to" Functional focus And for some reason it's helped a lot? My dystonia is getting better... im getting my freaking hands back !!!!!!!!!!!!!!!!!!!
Hi there, I'm so sorry to hear about your dystonia. It's understandable that we fixate on "controlling the fingers" (or whatever body part experiences dystonic symptoms), but in my experience recovering means seeing the bigger picture: the symptoms are so distressing that they are what gets our attention, but in fact they are being held in place by a combination of faulty movement patterns involving the entire body and our technique as a whole, plus the state of our brain and nervous system around the instrument. Recovery, in my experience, is not about learning to "control our fingers," it's about dismantling the entire context that is causing the dystonic response, and it's not usually a quick fix. I hope this information is helpful. Best wishes to you.
Hi, thanks for your question! I think strength training and stretching are great supports for any musician, and in some cases supplementary training and/or body work are crucial, especially if someone has a congenital condition, an acute injury, or needs help establishing good proprioception. However, my experience is that when healthy, physically logical and efficient technique is in place, there is less need to "manage" or "shore up" the body's functioning to keep our playing healthy. I hope that distinction makes sense--we need all of it, just in the right proportion! :)
i will recover from my focal dystonia!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I have MFD since March of 2018. Mine happened seemingly overnight and during a time of great distress at my job. I’m talking about the kind of stress that cause people to not sleep, not eat and contemplate leaving a career I’ve had for more than 30 years. I’m retired now but still have the condition. My instrument is the Piano and it affects only my right hand. Two things cause my hand to become uncontrollable, Typing and playing the piano. In all other situations I don’t seem to have a problem. Still looking of relief.
Thanks for your comment, although I'm really sorry to hear about your dystonia--I know how hard it is and the range of impacts it can have on one's life. The Till Approach, which helped me recover, is derived directly from the Taubman-Golandsky piano method (renowned for solving piano injuries of all kinds). I highly encourage you to check it out if you haven't already: www.golandskyinstitute.org/testimonials/#dystonia
I suffer from dystonia in the neck and I recovered well, but 3 months ago I was suffering from dystonia in my left hand, my hand gets twitches and spasms but when I hold anything in my hand, my hand is normal let go of anything the tension and spasms start, what It's the solution .. I recovered well from my neck and then my hands came to me, I don't know how
Hi there, I'm so sorry to hear you're dealing with this issue. I don't know anything about cervical dystonia and unfortunately it's not possible for me to comment on your situation without being able to see what's going on. If you'd like, you are welcome to contact me via my website, www.norakrohn.com, and we can arrange a session or you can send me a video of your symptoms. In the meantime, I'm wishing you the best.