The THANC Foundation is committed to supporting research and education in the early detection and treatment of thyroid and head and neck cancer, to advancing new therapies, and to alleviating the suffering and functional impairment of patients who undergo treatment.
I was diagnosed back in February of last year squamous cell carcinoma I had issues with my tonsil and they did biopsy turns out it was a large tumor and they removed my tonsil and more a lil bit of my tongue I have a feeding tube I did radiation and chemo all that’s done just ready to see see how and start eating again
My husband is suffering in papillary thyroid carcinoma ,his aga is 30 now and his pTMN stage is pT2N1amx so now i want to know about his condition. Please reply me mam please
THE RADIATION ITSELF DOES NOT CAUSE ANY PAIN! BUT THE MASK IS A BIT UNCOMFORTABLE, BUT YOU WILL GET USED TO IT AFTER FIRST FEW TREATMENTS. MY RADIATION THERAPIST MADE THE MASK WITH BIGGER EYE HOLES, AND BIGGER OPENING FOR THE MOUTH, WHICH REALLY HELPS. MORE ROOM TO BREATHE!!! WHATS GREAT IS THE RADIATION ITSELF ONLY TAKES 5 MINS OR SO. 😂v
Hi, I am doing ok! Over the surgery but no voice yet, the speech valve has not enough room in the esophagus yet, so a few dialation needed. Other than that, I guess it is just a case of adjustment to a new life now. Thankyou for asking ❤
Hi.. I just read about the larynx removal. Sorry to hear about that. I would like to know more about the procedure please, someone very close to me has the same problem. would really appreciate any kind of information you are comfortable sharing with me.
Hi, tell your friend it'a not the end of the world! There is so much support now, and tho op itself is literally pain free afterwards. Just a few weeks and months of re-adjustment needed. I was lucky I did not need chemo or radiotherapy afterwards. But every patient is different. I suggest there are some fantastic groups on facebook to do with advice and speak to thousands of ppl who have had this done. Best of luck, Michael. 0:23
I'm here to watch to see how scary laryngectomy is because I might have to get it myself, not because of cancer but because I think and see my vocal cords protruding or sticking out behind my epiglottis. There are two flaps behind my epiglottis that move when I make sound, but when I stop, they stay open and stand right above the round throat hole. I really hope my ENT doctor says I'm overreacting and those sticking-out vocal cords are normal anatomy because of how I was born. The last time I saw a throat doctor about my visible epiglottis, I lived 8 months with anxiety and severe panic attacks, only to find out that I was born with a rare condition called uprising visible epiglottis. I'm 30. I'm trying to get myself psychologically and mentally prepared for this; it's scary. I've never had to go to the hospital in my life.
I feel your pain. I had an accident and now both vocal cords are paralyzed. They told me I may have to have this. I feel way too young and it’s terrifying. I can’t even sleep because I’m so worried. I’ll be keeping you in my thoughts and hoping for the best outcome no matter what happens. You’ve got this. Life will go on. We will adapt. ❤️
Have had enlarged lymph nodes in neck, chest and armpit. Just got priliminary dx of thyroid cancer via doppler. Now it’s CT and biopsy for staging. I already have MS, and am tired of having a low quality of life. After watching this video, and reading testimonies of patients who went through treatments, yet had recurrences, I just don’t know if I want to accept treatment and put my body through more trauma. I am a believer in Christ, so deaath doesn’t scare me, but more suffering does. Not trying to be negative, just truthful.
A beautiful and emotional video to watch. The caring and hand holding by your partner very special to see. I send my hugs and love to both of you. Bruce the swimmer New Rochelle N.Y.
Thank you for sharing your videos. A recent wellness CT chest scan was normal, with the exception of two 2cm nodules on my right thyroid, and one 8mm nodule on my left thyroid. The endocrinologist did high resolution ultrasound scans and determined that although the right side nodules appeared 'concerning', the left side nodule appeared as a 'suspicious' solid, hypo-echoic nodule with intra-nodular blood flow and micro-calcifications. FNA biopsies confirmed the right side nodules are benign, but the left side nodule was classified as "non-diagnostic." Another round of FNA biopsies are scheduled in the next few days on the left side nodule. My "layman's research" would indicate a very high probability that the left side nodule is either a papillary or follicular carcinoma. So the wait continues ...
Hi Gary- how did things pan out for you? I’m dealing with a similar situation. So far it looks to be just one nodule on my thyroid but it came back suspicious. I see a specialist this Friday. I’m a bit scared.
@@KP-tn9cq Well, the cytology report from last week's FNA biopsy says "consistent with benign follicular neoplasm." But the endocrinologist emailed me today and said there is a possibility of a 'false negative' analysis, so he wants to do a follow-up ultrasound in 6 months, based on the ultrasound features of the nodule.
Sincere thanks for sharing this informative presentation. Ultrasound showed 3 nodules on my right thyroid, approximately 2cm each. Pathology of the FNA biopsy indicated that these are benign. A small 7mm nodule was found on the left thyroid, which is solid, hypo-echoic with micro-calcifications, vascularity and intermediate elastography. The pathology report of the FNA stated: "cytologic and cell block preparations showed only blood" and therefore, pathology was non diagnostic. That nodule will be biopsied again in a few days. From my own research, it would appear that there is a high probability, even if the next biopsy is also non diagnostic, it could be a malignancy, based on the factors. I am 67 years old so it's a bit of a worry.
my husband was diagnosed 3 days ago with cancer of the larynx, he's 54. They want to immediately remove his voicebox, I was hoping there's an alternative that isn't so drastic. But I had heard about a TEP prosthesis which helps a person to still talk. I'm worried about his quality of life, and of course I want him around, I'm terrified and not too many people to talk to about this (all family & friends live out of state). I'm 47 so it's shocking to me for us to be dealing with this so early in life. It came on suddenly, he had laryngitis then one day overnight his voice was gone & trouble swallowing. The pathology report said "SITU" so I assumed it's very early but they said they want to remove the voicebox this month. All seems very quick to me. scares me.
Really look into to it. I have had a total larngectomy and I'm 44 and it is a nightmare .I still had to do radiation and chemo. I wish I had done ot first but like everyone says I'm alive. But it's been so hard. I wouldnt wish this on anyone
It is scary I had hard time swallowing,spitting blood and lost my voice and they kept sending me home. I had to have a feeding tube for 3 months a gtube. They took my chest muscle out and put it im my neck I'm lucky to be alive. It changed my life atos the slp the doctor was great everyone. It is so mentally frustrating.
Your husband's case sounds very similar to my girlfriends. She had to go threw it at around 44 years old. She can still communicate, people just have to listen really hard. Her voice is just a very light whisper.
Hello! I'm soo sorry to ask this question but I'm really desperate. My father needs to have this surgery and he's 64. How long can one live after total Laryngectomy and what's the quality of life?
None of these people understand what a deformity is unless they also have a forehead that comes out instead of being flat. Living with a forehead like this has been a nightmare
My fiancé just got diagnosed with this and I am trying to keep it together which I know I will because I have faith that everything will be all right and you sir I just wanna let you know it doesn’t matter if your face changed or your neck changed you’re alive! And only a shallow person would care about what the other person looks like it’s the heart that you should really be looking at when you’re looking at a person anyway and I’m glad you’re OK! And I’m really glad that you have a understanding loving partner next to you!
I was diagnosed with SCC in 2017. Scariest time of my life, my oncologist said to me at the beginning, she’s going to be a long road but we can fix it. Il never forget those words. I never thought once that I was going to die,ever!! Got the chemo and a month of intensive radiation (every day) it was behind my tongue and I had to feed for a year through a tube, but he was right, been clear three years now. Cancer takes you to places you never knew existed but I do believe that you come out the other end stronger and with a totally different outlook on life. All the best from Scotland. I was 51 when diagnosed. P.S. Don’t smoke kids, it’ll fck you up eventually.
