Infusion Access Foundation (IAF) is a community of patients united to protect access to treatments that you get at a clinic, such as infusions and injections. We support each other across all diseases and advocate with one voice that reaches policy makers.
Find out from real patients what life with chronic disease feels like. The invisible pain, the insurance battles, and the hidden full-time job "being sick" entails, can feel like too much at times, and it is a weight you shouldn't have to carry alone. It is so important that patients with rare and chronic diseases are heard. Follow patient stories detailing life with lupus, multiple sclerosis, thyroiditis, Chron's, RA, and other chronic and rare diseases.
Are you an infusion patient that wants to help shed light on the chronic disease journey? Reach out to the Infusion Access Foundation team so we can hear your story and help you find the right pathway for you to be really heard.
Iam new to the thyroid eye disease diagnosis. I have 1 eye bulging and symptoms definitely are effecting my capability to work and go to school. This is hard to navigate even today
I'm so godly proud 👏 of you. I am glad to know that you are doing well and having an opportunity to get back into your life as you know it. I love you, Ambrosia, and I am so grateful for you and knowing that you are going to be alright. ❤ Have a blessed day.
Thank you so very much for sharing your story, I have Graves and went to so many eye drs who did not know anything about TED, Finally I found a dr who told me about this infusion medication. So grateful! These last two years have been so very difficult
I was diagnosed at 30 and still my eyes are swollen and bulged out. It has been so awful for me mentally and physically also and im 57 now been through 21 surgeries its awful
I have been suffering from graves disease for 7 years now. Nothing has change. My health is just getting worse. I have been living on anti thyroid drugs but they dont seem to work. Im confused and scared. They say there are only two ways to remove. Surgery and radioactive iodine. In my country, our option is only surgery. But i am afraid of the surgery because I dont trust our own health system and doctors. I dont know what to do
Change your diet I don't trust Drs either, they constantlt trierd to talk me into removing ny yhyroid gland but after reading books, that doesnt actually stop you from having it so cjose not to get it removed. When ever i changed my diet it went into remission, Drs would constantly say to me "the medication must be working" but i havent taken it in like 9yrs 😂
Hi, thanks for sharing your story. It started a year ago with sudden pain in the back of my right eye. Went to see a few eye doctors and they also said: dryness or migraine. I knew it was something else, we know our own bodies better than the MD s. Finally after several opinions w different eye doctors, I convinced one of them to order CT and it shows that I have thyroid eye disease, although the blood lab it shows all normal. The eye disease doctor mentioned about the infusion treatment every 3 weeks for the next 6 months. I am a guy in the 50's with no history in my family at all about this type of disease. Did you know anything about the treatment, how effective? I am just cared of the several side effects the treatment has. Thanks again Sebastian
Check out Medical Medium start doing his liver detox over and over again or any of his healing protocols. Thyroid Healing Book is fantastic too. You can heal this, im just starting my healing too. Good luck
This is the best video I’ve seen to describe how it feels to live with TED. Having Graves is bad enough, but the diagnosis of TED is FAR worse. Thank you for your advocacy.
Such an inspiration! Thank you for being brave enough to share your story, strong enough to overcome it, and passionate enough to make changes for others. You are a hero!
We are so glad you found this video useful and are very excited to be able to continue to provide our community with these resources. If there are any topics of interest to you in the biologics space that you would like more information on, please reach out and let us know! Be sure to check out our patient stories videos as well.
I feel for Ann. I know Ann. This is the first time I have heard her story. Otherwise I have seen Ann's work, advocating for others, including patients whose lives at put at risk by our private insurer health care system. Bravo for Ann's bravery and her willingness and courage to help others.
Great point with the 10’s of millions of $$. Beautiful and honest story. Failing at getting well because of money is heartless and unacceptable. Speak out and stand up for the underdog. Touching. Thank you for this story.
