CurePSP is the leading non-profit organization dedicated to the awareness, care and cure for 3 neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, we establish important partnerships and fund critical research. Through our advocacy and support efforts, we enhance education, care delivery, and quality of life for people living with PSP, CBD and MSA and their families. Science, community, and hope are at the heart of CurePSP’s mission and all of our services.
CurePSP is a registered 501(C)(3) charity within the United States. EID: 52-1704978. Our work is possible thanks to the generous donations and support of those in our community and beyond.
My father is diagnosed with PSP and we feel helpless because doctors say there is no cure for this disease . What should we do now ? any suggestion from anyone ?
After going to "the best" Neurologists in New York, I am convinced that any person on the street could treat MSA just as well. That sounds very negative but if we are honest and evaluate what we are told after all the many tests we must come to the conclusion that Neurologists know next to nothing about MSA. Sad but true.
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms..”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain..”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain.”
My name is David a Olsen. I was diagnosed with Parkinson’s disease in 2017. My symptoms have been changing since I’ve had the disease lately. My symptoms is when I’m standing still I’m rocking back-and-forth for no parent for no reason at all. I still have some mobility issues I’ve been going to therapy and I’m doing boxing for Parkinson’s but my balance, like falling tendency to fall backwards is still there. I have eye problems I’ve been going to a nuclear ophthalmologist. I was wondering if I was missed diagnosed and I have another question the DBS that use for Parkinson’s they want to do that on me would that help somebody that had PSP, or does that not work for that kind of disease? I hope I wasn’t misdiagnosed. If there’s any information you could give me it would be greatly appreciated. Thanks for all you do.
I'm in the process of finding out which form of FTD I have. It's looking like non-fluent / Broca's. I'm in the early days and I'm trying to educate myself and my family asap while I can. This RU-vids is unusable for me because there is SO much 'background music' that I can't follow what you are saying. I'm not just whiney; I want/need to understand what you're saying. Please turn back-ground music etc. in your vids? Thank you.
please control the functionable cerebellum for build to the movements, slower system has to be in therapy training in step by step faster with the right cerebellum actions and the movements beginning is with muscles fibers actions and not with the acivation of the tendeons developed by Gabriele Mayer professional therapist, researcher
Thank you Dr. Fleisher for covering so many issues our community struggles with as they care for their loved ones. I'm certain everyone wishes they had you as their neurologist. Along with your medical experience you posses compassion for the patients and care partners you serve.
If PSP, Asymmetric parkison due to accumulation of Tau then is it any way out that we are able to reduce excessive tau protein and neuro health of person can be restored. Must be some cure ???
I lost my partner of 14 years just a month ago from MSA . It was an awful disease . I was his 24/7 caregiver . He truly suffered . I miss him so very much .
My 75 year old father is some 80 % confirmed to have this, but parkinson's is most certainly a factor. Alot of the issues and symptoms line up and the last few years of history with him being at home seem to confirm a few things. He had hallucinations and weakness at home, would stop eating and drinking. eventually hospitalised with dehydration and such. Lost roughly half his Body weight in 6 months down to 54 kilos. Now has Postural hypotension so can't really walk far or stand long and has had several nasty falls (which new hospital 1000 % monitor now to ensure he doesn't fall again ) , bladder issues, REM disorder, sleep problems, but has been steadily improving the last 2 weeks at a new hospital. Have to tackle his depression, in order to get a Stomach endoscopy test done, to confirm if has had stomach cancer. Overall, his mental health has a good shot at recovery to a good extent, his physical issues are 50/50,
Giving up isn't the best option, i never give up on myself and it helped me find Dr Madida Sam on RU-vid whom with his natural treatments cured my Parkinson Disease and meniere disease...
My father's symptoms started with urinary retention in 2019. In 2021, he showed signs of ataxic gait and slightly slurred speech. In 2023, he had episodes of syncope leading to orthostatic hypotension. The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
Below is the time progression of my father's symptoms. 2018 - High blood sugar 2020 - unable to empty the bladder completely 2022 - Slurred speech and loss of balance while walking 2023 - Fall of BP on standing and two episodes of unconsciousness that lasted 1 min The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
My name is David a Olsen. I was diagnosed in 2017 with Parkinson’s disease but lately I have the symptoms of PSP and MSA I don’t know which one I really have. Some days are good some days or not. I have balance problems lately falling backwards, or the tendency to fall backwards. Luckily I’ve been able to catch myself now I have high blood pressure I have swallowing problems I have droolingand I have very bad hand coordination. I don’t know which one I have nothing seems to be working. It’s getting a little worse each year is is there any way to find out which one I really have thank you for any help you can give me
I was diagnosed with Parkinson's Disease in 2012. Later in 2017 I was diagnosed with Multiple System Atrophy, but have done my best with the huge support from the Multiple System Atrophy Coalition to spread awareness of MSA through documentaries and while displaying the MSA Beast my 1970 Dodge Dart as a rolling billboard for MSA awareness.
@@RobdeKlerk-qg6lc my very 1st symptom was a tremor in my hands and blacking out when standing. It is extremely hard for an EMT-I to do an IV in the back of a rolling box going down the road.
