Lymphoma Action is the only UK charity solely dedicated to supporting people affected by lymphoma.
We want everyone affected by lymphoma to receive the best possible information and support, treatment and care. We work to achieve this by: · Providing information and support for anyone affected by lymphatic cancer · Raising awareness of lymphoma and its symptoms · Representing patients' and carers' views to policy and decision makers · Providing lymphoma specific training for health professionals.
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I have all of these symptoms minus seizures. My face has deteriorated on one side my mouth is starting to slouch on one corner, the cheek muscles feel like they're wasting away but my doctors keep writing me off. One suggested i seek botox & im aging. Had skin swab, blood test. All apparently reasonable. Gave me steroid cream, antifungal, antibacterial, still having symptoms. My arms keep balooning up, burns, skin goes tight sometimes leaks then dry & scaly & I have liaisons appearing on my face disrupting the hairs, my arms, my legs too now. I keep itching like I have a rash that's not there on my stomach n arms/hands. I have a lump under my ear between the hinge in my jaw & one at the base of my neck at the rear constantly going up n down in shape n sizes. The sķin on the ends of my fingers are going hard n dead. I keep getting pins & needles with numbness on my limbs n hands, if i brush the hairs of my arms or legs in tbe opposite direction it stings like loads of hot stingers & now I can go without eating for days at a time & when I do eat if it's a decent meal it's coming back up. I can't shut my brain down but I keep forgetting things and when i do sleep i sweat so bad i have to change my sheets and flip my mattress. I feel like I'm not being listened to by my doctors I've dealt with all this since March 2023. What do I do? I'm 30 live in the UK by the way
Hello Amy - it is not immediately clear the question that you are asking. Our suggestion would that if you have a question about the size of your spleen that you raise it with your mecial team - we send you our best wishes.
Hello Amy - thank you for asking this question. The information we have on Splenic Marginal zone lymphoma is here. lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/splenic-marginal-zone-lymphoma - we are unfortunately unable to comment on individual conditions so our suggestion would be to raise this with your medical team. We send you our best wishes.
Question. Can this condition cause a lump inside the neck and be surrounded by liquid? My husband had a biopsy which they drained fluid. Couldn't see so recently did another biopsy and drained a bit more liquid. Lump is much smaller looking due to this being done but can still be felt under the skin
Swollen lymph nodes caused by lymphoma: are most commonly found in the neck, armpit or groin are usually smooth and round usually move out of the way when you press on them (are ‘mobile’) have a ‘rubbery’ texture are usually painless - although they can sometimes ache or cause pain in nearby areas (for example, if they’re pressing on a nerve). Our suggestion would be if you are concerned that this a question to ask your husband's medical team.
Thank you for the excellent presentation. I was 4 years W&W and now 5 years post treatment and remission holding nicely(B&R) (atypical CLL/WM, low grade)
We're sorry to learn that you have symptoms you're concerned about, and I imagine this is a worrying time for you. The signs and symptoms of lymphoma are more commonly associated with other, less serious conditions, like an infection, for example. We would suggest to anyone who is worried about symptoms, to contact their doctor to talk these through, and to get advice, so we hope you will feel able to do this, with a view of seeking reassurance. We hope the information is helpful, and that you're able to chat soon with your doctor. We send our best wishes, and hope your symptoms settle down soon.
Thank you for your comment and we're sorry to hear of your situation. We are not able to offer financial assistance unfortunately. You may wish to look at an organisation called Lymphoma Coalition, who have a list of patient organisations like ourselves, around the world, with the aim of perhaps finding support a little closer to you. You can find their website here: lymphomacoalition.org/member-organisation/?_gl=1*dfyhr*_up*MQ..*_ga*OTM0NjU4MC4xNzE3NTE1MDEw*_ga_9QMQQK1LHR*MTcxNzUxNTAwOS4xLjAuMTcxNzUxNTAwOS4wLjAuMA..#africa We send our best wishes to you.
My husband has just been diagnosed with follicular lymphoma this week. Colorectal cancer in 2019 but so far he feels good, looks good, energy good, appetite good. I'm not seeing God showing up. I don't want to lose him. He is just 53. Waiting for referral to hemologist. Prayers for anyone fighting cancer of any kind. 😢
We are sorry to hear of your husband's very recent follicular lymphoma diagnosis which has followed his colorectal cancer in 2019. I imagine it is likely a worrying time for the family and we send you our very best wishes. I am attaching a link here lymphoma-action.org.uk/support-you which outlines the different ways in which we are able to offer support if ever either of you needed it.
I had 2 penis sores, and this nodules came out , and slight pain when touching it. Does this because or the sores , were nodules are fighting the infevtions?
We are sorry to hear that you are suffering symptoms. Our general suggestion is where you have symptoms which persist or are bothering you that you check it out with your GP.
Ooff I got one in my groan. Been there for about 2 months. Started out like a painful bruise in a spot with no color looking like a bruise. 2 months later it’s now a large lump size of a golf ball round and now it’s bulging out a few weeks ago. Today is the day it’s starting to hurt
We are sorry to hear that you are experiencing symptoms. Our general suggestion would be that if it doesn't go away within 2-3 weeks or gets bigger, you check it out with your GP.
My husband has just been diagnosed. He is on watch and wait. He is really dwelling on it and is quite depressed as he was always so fit and healthy. Thank you for this video.
We're sorry to learn of your husband's recent diagnosis, and can appreciate this is likely to be a difficult time for you both. It's understandable to feel different emotions when you receive a diagnosis, very natural to be taking time to process what is happening, and to reflect. There is generally support available if this is helpful, and if in the UK, we provide support, as well as WMUK: www.wmuk.org.uk/ If outside of the UK, The Lymphoma Coalition may offer appropriate support: lymphomacoalition.org/ We send our best wishes to you both.
I have pain in my underarm. I visited a breast specialist ; checked my breast, did mamagraphy, ultrasonography of breast and axilla. A small Fibrodernoma is found in my left breast but nothing else diagnosis in my underarm. But i have still a mild pain when I touch my underarm. I am really anxious what it can be? Does anyone gas gone though this. Plz give me suggestion
We'd suggest going back to speak with your doctor, if you're not clear on what may be happening for you. The symptoms of lymphoma are considered to be very common symptoms, that are usually linked to other conditions, less serious conditions, lymphoma would be more rare. However, it is important to continue to seek guidance if you're not comfortable with how things have been left. We send our best wishes, and hope you will feel able to reach out to your doctor.
It is possible to have lymphoma anywhere in our bodies, in places like our lungs, outside of our lymphatic system, as well as in our lymph nodes. We would suggest anyone who may be concerned about any health issues, to seek medical guidance from their doctor.
@@zilumorizip There are many types of non-Hodgkin lymphoma, and sometimes they don't need treatment straight away, and you continue to see your team regularly for check-ups (active monitoring). If you know the type of lymphoma, you may find more information here, although please bear in mind this is based on treatments offered in the UK; lymphoma-action.org.uk/types-lymphoma/non-hodgkin-lymphoma Your medical team are the best people to answer questions on your own situation, as lymphoma can be quite individual, and so we'd encourage you to continue to ask questions, particularly if you are feeling confused. We send our best wishes to you.
In November 2023 I was diagnosed with stage 3 extra nodal marginal zone lymphoma, I had a mass on my tongue and a lump in my neck, I had just given birth, I had some radiotherapy in February 2024 to try shrink the tumour in my mouth as it was starting to obstruct my airway, I am awaiting a PET scan in two weeks to see if the radiotherapy has worked, and to see if I need more treatments for the other areas affected. The fatigue is unreal and with a baby it’s just so hard. I’m happy you are in remission, it gives me hope ❤
Hello, thank you for sharing. We're sorry to hear you have been diagnosed with lymphoma, and needed to have treatment. We can appreciate this has likely been a difficult time. We send our best wishes to you, and for your upcoming scan.
I was diagnosed with breast cancer several months ago. It was the CT scan that picked up on the enlarged lymph nodes in my upper and lower abdomen retro- peritoneum . Biopsy shows B-Cell lymphoma. I’ve always been so healthy, no smoking or drinking, I exercise and stay active. I eat very healthy.
I was sorry to learn of your breast cancer diagnosis, and that you have also been diagnosed with lymphoma. I imagine that this may be a difficult time. Very often, why someone has developed lymphoma will be unknown, but we know that it won't be something that you've done, or not done, that has caused this; lifestyle factors are not generally linked to lymphoma. There can be risk factors that can mean someone may go on to develop lymphoma, but the risk is still very small. We have some information on what we do know about the causes of lymphoma, and this can be found here: lymphoma-action.org.uk/about-lymphoma-what-lymphoma/causes-and-risk-factors-lymphoma#otherfactors You'll see this gives details on cell changes that can happen in our bodies. It's really natural to think about what may have caused this, and I hope our information the causes may be of some help. We send our best wishes to you.
Hey @Lyphoma Action. I have this little lymph node on my neck and I feel it but it isn’t visible, I talked with my mom about it and she says it’s nothing but I was worried because it appeared so sudden. I am thin so I researched if thin peoples lymph nodes are visible and/or can feel it. Do you guys think I should go to a doctor or do you think it’s nothing?
Wait until you’ve had it for about 3 weeks and then I’d go to the doctor. The doctor will most likely dismiss it so you might have to speak up and say that you want to make sure it’s not anything bad and have it tested
We would suggest to anyone who may be concerned about symptoms, to get these checked out by their doctor, particuarly if these are persistent symptoms. The signs and symptoms of lymphoma are more commonly associated with less serious conditions, and often can be related to an infection. This being said we would always suggest anyone who is concerned, to check with a medical professional. We send our best wishes to you.
Hello doctor i have diagnosed with nhl t cell lymphoma i have got 2 times roung reports first one is squmas cell carcinoma and second one sarcoma both biopsy result are wrong taken 6 cycle chemo wrong after they did surgery inguinal and glutial region and removed my lympnode after the surgery report was came lymphoma stage 4 and they told 6 cycle chemo 4 cycles responded well after it relapsed bec of so many wrong drug taken previously again 3 cycles i have taken no use decease was so aggressive and they gived brentoximab it controlled well and they taken me to autologous transplant after transplant ater 3 months they gave me brentoximab 3 cycles for not to come back of decease but transplant after 6 months it came back they did biopsy and they r telling now before it was in blood now it came into skin And now they are giving vimblastine 10 ml for 8 weeks now 2 weeks over it was responding very well Will vimblastine cure completely in 8 weeks please tell sir ? Can i join college next month ?
Hello. Thank you for sharing, and we are sorry to hear of all that you are going through, we imagine it has been, and continues to be a difficult time. We are not able to offer medical advice i'm afraid, and as lymphoma is an individual condition, we would suggest your doctor and medical team are the best people to comment on your personal situation, including how the treatment is working. If you feel it may be helpful to read our information about T-cell lymphoma, you can find it on our website here lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/t-cell-lymphomas We send our best wishes to you.
I have swollen lymphs in my neck for 20 years sometimes they grow large and get back to small size.My blood have flu bacteria as I am experiencing flu and cough since my childhood.I consulted it with many doctors they give me anti allergy medicine it gets better untill i stop them using.I don't know how much they affected my immune system.
Hey um I’m 15 and don’t want to be paranoid but I think I have slow growing lymphoma. It’s been there for months now it’s very rubbery, some days it grows and some days it shrinks and the lymph node is in front of my ear but behind my jaw line and is lower down. I have no symptoms at all by the way other then the lymph node, that is the only symptom(this is specifically meant that I think I have mantel cell)
We are sorry to hear that you are experiencing swollen lymph nodes. Lymph nodes help to fight infection. They can become swollen for lots of reasons (for example, having an infection such as a cold), even when they’re working as they should. Most people who have swollen lymph nodes do not have lymphoma. If you have a swollen lymph node which doesn't go away within 2-3 weeks or gets bigger, our suggestion would be to get it checked out with your GP.
We're sorry to hear you are experiencing these symptoms and can appreciate this may be concerning you. We would suggest speaking with your doctor for medical advice, if the symptoms persist, or if you are worried. We send our best wishes to you.
I am assuming by cbc that you mean complete blood count. Blood tests have a wide range of uses but most types of lymphoma cannot be diagnosed by blood tests alone. A biopsy is the procedure usually required to confirm whether someone has lymphoma. We would also usually suggest if you are experiencing symptoms that are bothering you, you get them checked out with a doctor.
I am sorry we are unable to assist you in writing your assignment on lymphoma. However I am attaching a link to our website here lymphoma-action.org.uk/ and hope that the information it contains maybe helpful to you.
I am a survivor so far with low grade non Hodgson , I accepted trials of unlicensed drugs as I had seven tumour’s now in my seventeenth year feel so blessed
Hello, thank you for your comment. We have some information on our website, about radiotherapy and if you feel it may be helpful, you can find it here: lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/radiotherapy We send our best wishes to you.
I've been having swollen lymph nodes around my groin, but they're painless. I also read that they could be caused by fungal infection, which i have. I have athlete's foot on my toes and it's been a few weeks since i've had it and i finally started treating it since i realised it's a fungal infection. Also the swollen nodes popped around the same time i started having fungi on my feet. What do you think?
We are sorry to hear that you have been suffering symptoms. Here is the information we have on symptoms of lymphoma lymphoma-action.org.uk/symptoms-of-lymphoma. It’s important to note that these symptoms can have other causes. Having one or more doesn’t necessarily mean that you have lymphoma. If your symptoms are bothering you or get worse our suggestion would be to get them checked out with your GP.
We are sorry to hear of your husband's recent non Hodgkin lymphoma diagnosis and imagine i is likely a difficult, We lots of information on our website which is here lymphoma-action.org.uk/ If you have any questions please feel free to contact us. We send you both our very best wishes.
Sir plzz help i am from india around 1 months ago i noticed a node in my left side of neck it increases and decreases as i put hot water on it And now it also arises on right side of neck i am very worried an poor plzz help me i have no money🙏🙏 What should i do
@@freefireshortsbysaksham4836 We're sorry to learn of your symptoms, and can appreciate what a worrying time this must be. The signs and symptoms of lymphoma can more commonly be linked to other, less serious reasons, but it is good to always get any symptoms you're concerned about, checked out by a doctor, and so we'd suggest seeking medical advice from a doctor/medical professional. We know of an organisation in India, called V care foundation, that offer support to anyone worried about lymphoma, here are their details: lymphomacoalition.org/member-organisation/#asia We hope you will feel able to reach out to them for support. We send our best wishes to you.
If you are concerned about any symptoms you’re experiencing, we suggest you speak to your doctor. You might find it helps to keep a note of your symptoms and how they’re affecting you. You could have this with you when you speak to your doctor so that you remember everything you want to discuss.
I had mine removed at 27. I don’t take any antibiotics daily. My daughter had hers out at age 5 and she took penicillin daily til 18. I live a normal life and rarely get sick.
If you are have symptoms which are bothering you, our suggestion would be to check it out with your GP. It is however important to note that having one or more symptoms associated with lymphoma does not necessarily mean that you have lymphoma.
Hello, we're sorry to hear you are experiencing symptoms, and appreciate this may be a worrying time. The symptoms caused by lymphoma, are non-specific, and more commonly caused by other less serious conditions. If symptoms persist for more than 2 - 3 weeks, or if you are concerned, we would suggest speaking with a doctor to get them checked out. If testing is required, it usually starts with a blood test to give an overall picture of general health, and further tests may depend on the symptoms, and how you are affected. They can include scans or biopsy. You can read more about symptoms here: lymphoma-action.org.uk/symptoms-of-lymphoma and about tests here: lymphoma-action.org.uk/about-lymphoma/tests-scans-and-staging-lymphoma if you feel this may be helpful. We send our best wishes to you.
Thank you for a wonderful explanation!! Just diagnosed. Ready to battle this. Looking forward to feeling better. Actually my diagnosis was not a shock and I was grateful to have the answer why I couldn't function! I will share this video with my husband and family. Again, Thank you so much!
We are very glad to hear you found the information useful and that you are going to share the video with your husband and family. We have some other information on CLL/SLL which is attached here.lymphoma-action.org.uk/types-lymphoma/chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll - we send you and your family our best wishes
I have 3 that I can feel 2 small ones that are less than a inch big and one by my ear but I’ve had them for a few years and no other symptoms but I’m still nervous about them
We're sorry to hear you are experiencing these symptoms, and it sounds understandable you are nervous about them. Lumps and bumps can appear for many reasons, and are more commonly caused by other less serious conditions, or are nothing of concern. However, we would always suggest seeking medical advice if symptoms do not go away within 2 - 3 weeks, or if you are concerned. You may wish to read our information here about symptoms: lymphoma-action.org.uk/symptoms-of-lymphoma We send our best wishes to you.
Hello, lymphoma and it's causes is a complex area, and you may find our recent article on weed killer, and non-Hodgkin lymphoma helpful to read here: lymphoma-action.org.uk/behind-headline-link-between-non-hodgkin-lymphoma-and-weedkiller-1 We're sorry to learn of your diagnosis, and hope you find our website of help. We send our best wishes to you.
We are sorry to hear you mother has been diagnosed with this. There is information on both Splenic marginal zone lymphoma and active monitoring on our website lymphoma-action.org.uk/ - we send you and your mother our very best wishes.
