We’re a clinic focused on making invisible illnesses visible - join us on this journey!
We help people overcome complex health conditions including: 🔹 Fatigue Syndromes such as ME/CFS 🔹 Dysautonomia such as OI & POTS 🔹 Pain Sensitisation such as Fibromyalgia & Chronic Widespread Pain 🔹 EDS & HSD Syndromes 🔹 MCAS 🔹 Sleep Disorders 🔹 Related anxiety & depression.
Use the hashtag #ahcmillions to help us on our way to impacting one million lives by 2022.
If you’d like more free resources - join our connection, click here - facebook.com/groups/593374247764589/
Thanks for your comment, we find that those with a Dysautonomia condition find symptom relief through utilising a higher sodium diet (depending on other factors of course).
Hey, so increased supplementation = increased collagen production in the body? Was the collagen still faulty in the EDS/HSD individuals though? Does the type of collagen/protein supplements you take have any effect? I.e, if you take type V collagen, does it help only with type V collagen production? Or does it get broken down by the body to be rebuilt into whatever type of collagen the body needs?
Thanks for your question! At this point, there isn't a great deal of evidence suggesting that the type of collagen you take has an impact on what collagen is formed after the body has digested and processed it. The current recommendations are simply to consume more protein - and if some of that is collagen protein, that's okay. - Luke
I find a semi liquid diet with smoothie that have a balance of protein, fat, fibre and carbs helps elevate my constipation issues from having a bowel dysfunction since I was 1 and a half years old
Hey there! I'm going to assume you meant to say 'alleviate', and if so, that's fantastic! I also find a liquid diet helpful in getting the gut moving a bit more again in some of my patients with significant slow gut transit. My hope is that we can get them to eat solid foods as well, though, at least for some of the time, but that will depend on the individual. - Luke
@@ActiveHealthClinic_AU yes, haha that is exactly what I meant! And absolutely. Trying to keep someone eating some solid food for as long as possible is important. Some people sadly won't be able to as years go on and the condition gets worse but some can for many years. Everyone is different. I'm hoping to get a test done to get an official diagnosis so I can get the right treatment. It's time consuming but Its needed because it's horrible dealing with these gut issues
I don't eat meat so would like more info on supplementation for B12. Is it as simple as buying tablets and what dose? I see there's patches on sale as well.
There are plenty of different types of B12 out there; and which type you need will depend on lots of individual factors that would need to be discussed. However, my two general recommendations are that: Getting an 'activated' form of B12 (sometimes also called 'methylated') is a good idea, especially for our Invisible Illness population If you are prone to reactions to tablet/capsule supplements, consider getting a B12 Spray - these work really well! I'm not super familiar with the patches, so I won't comment on those. Hope this helps! - Luke
Thank you for letting us know about this. As I personally find it very hard to trust some groups. With that being said I like the idea of it not just being about 1 thing. As with fibromyalgia sometimes it can be 1 or 4 things.
I keep a daily record of things that go on in my day from pain that is different or stressful day. It help me with this. Please Remember you are stronger than you think you are and I wish you all the best on your journey 🌻🌟🧡
Sorry to hear of the challenges! It sounds like you may need to be working with a Dietitian to make sure you are meeting your needs, feel free to reach out to our clinic to discuss with a Dietitian further!
I will say as someone with ADHD that had to suppress it for school, there were a lot of times that i thought i wanted to eat, or drink, or doomscroll that i actually just wanted to move. I found that when i got an urge, pacing before or during completing it helped my health, and reduced the amount of unhealthy urges I'd have in a day.
Were would i find this item please? I am in NZ and i am live of one meal a day and one snacks a day. I have not been out for eat in the last 3 years due to this.
Hi @Gwen916, sorry to hear that you are struggling, I’ve found this NZ website that sells Intoleran www.naturitas.nz/b/intoleran, hopefully this helps!
@@Kayleetvvv delayed orthostatic hypotension, which is one of many forms of dysautonomia. My blood pressure dropped to 48/30 at its lowest point during the test.
Thank you. I'm starting my first class today. My osteopath recommended that I do Pilates to help correct my body posture and help me breath correctly as I breath from my chest and not my belly.
Thank You😊 & to all of you who continue to put up videos.Watch most,but not up to watching when come in nor commenting☹...To ALL, keep as well as you can😊
So what the ttt is is not a true to life test. I find this bizarre. No coffee or tea for 24hrs before test? No food 2 hrs before test? I won’t be following these procedures. I have 2 knee ligaments missing in same knee. I would prefer a true to life test.
I’m a 60 year old guy thinking about taking this up. It’s not really a problem for me but I’ve simply noticed that it seems to be something that women do and not men so much. Is that the case and if so, why is that?
Pilates was originally designed back in the war days and was initially directed towards Men and those who had been on the battle field and recieved injuries. It definitely has more of a female following these days, but Pilates is for anyone regardless of sex or gender, as all movement should be.
I'm so glad you guys are online and I've found your videos super helpful, but it's REALLY hard to hear this presenter. In fact, I can't even hear what your name is! Would it be possible to add a mike or tweak input settings and/or slow down a bit and be a bit louder? Thanks!
Thank-you so much for your feedback, we do usually have a Mic, so I will follow up and make sure our settings are better in the future, thank-you we so appreciate the honesty and helpfulness.
This is a wonderful question, and without knowing you well, it would be about observing your baselines and understanding what your capacities are, both within a flare and outside of a flare, and then understanding your baseline can help you to avoid PEM as best as possible. Unfortunately we can't be as specific as we usually are without knowing you, but feel free to reach out anytime!
I tracked thousands of pain flare ups for over ten years and found that soace weather is the primary trigger 100% of the time. I know it doesnt supposed to be 100% with anything, but what can i say, just saying it is a fact on my end. I confirmed this correlation by building a shielded room and so Fibromyalgia pain flare up is mitigated in 30 seconds to a fee minutes max vs hours of pain. I should add also that I found my cold sore outbreaks are from space weather, so likentheae CME solar flares this week gave me an outbreak. (Explains why the cold sore medication search was up 4800% in 24 hours). I found my chronic migraines and seizures are also 100% space weather triggered. After building a shielding room, I have not had a seizure since, but still get migraines even though I see 100% solar flare correlation, the shileding does kot work for migraine most of the time unless I shield immediately from the space weather the moment I feel it coming on. (Specualte migraine pain is a downstream lag effect and once cortical spreading occurs, its too late, just a theory).
We find that for some of us filming we need a prompt/script to keep us on track, this could be due to brain fog, cognitive processing, nerves etc, we're sorry if it's felt scripted but we do assure that that Brooke is very well educated in regards to EDS/HSD. Thanks for the feedback
This is not correct for people living with EDS and HSD. You are only referring to the population of ME/CFS. People with Dysautonomia and EDS and HSD have very identifiable triggers such as ligament laxity as muscles are both affected by weak CT in addition to having to work extra hard to compensate for ligament laxity, OI, OH, Inadequate blood flow also means low O2 to the cells and impaired perfusion leads to failure of the M’s to function adequately, not to mention MCAS, Medication, Sleep aponea and hyperarousal, Hormonal dysfunction, Autoimmune dysfunction and Anemia. What you have covered is ME/CFS, not the other more complex conditions. This doesn't cover any of the complexities of the multisystem issues.
Thanks for your comment, we absolutely agree, if we dive into this concept further, there is so much context that could be covered that you've mentioned. We do have quite a few longer videos that tend to cover this rather than this short one, but we do appreciate your feedback.
Can I please find out how I would go about get some of the information that you may have on P.O.T.S and fibromyalgia with out having a Facebook page please.
Absolutely, please email us at connect@activehealthclinic.com.au and let us know what support/resources you're looking for and we can find some more videos and resources for you.
I'm literally crying right now, because I've been fighting for years for doctors actually listen to me and stop saying that it's all in my head... Time is passing by and I keep getting worse! I'm reaching a point where I don't know what to do anymore. I need help.
We're so sorry to hear that has been your experience! ME/CFS is not all in your head, it's a serious & complex condition. We have a few Doctor's we refer to, if you'd like to email connect@activehealthclinic.com.au with any questions you may have or any support we could provide, we would be happy to. It's not all in your head!
I have Orthostatic Hypotension & ME and I get what I call adrenaline dumps in bed, sitting with legs up watching TV and it feels like excitement, like a ball of energy however I also get anxiety.for no reason - I just start feeling really unwell and when I've checked it's actually my BP dropping too much with a narrow pulse pressure. I get pots like symptoms obviously to get the BP up - my goodness what complicated bodies we have but your description is the very best ❤.
I'm trying to get support for my conditions that I finally have names for and understand better myself. Ill show this to people in my life so i can teach them how to better support my needs, thank you for sharing your collective knowledge its very much appreciated
