Informative and educational videos about Li-Fraumeni Syndrome (LFS) and Living LFS.
Li-Fraumeni Syndrome (LFS) is a hereditary cancer disorder, linked to a mutation in the TP53 tumor suppressor gene.
Living LFS is a 501(c)(3) non-profit organization that encourages, empowers, and educates those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
I just found about this LFS awareness channel . Love this and how your spreading awareness about LFS . We are a family of 7 and 5 out of the 7 has LFS. My eldest son passed from a rare brain tumor at the age of 14 years old 12 days after his 14th birthday in 2022. Thank you for this and I will look into your website.
Terry, we're glad you found us. We have a private and very active support group on Facebook for people with LFS. The group has about 2000 members who support each other and share experiences. You would be most welcome: facebook.com/groups/lfssupport/
