Human Growth Foundation is a national, 501 (c)(3) nonprofit organization whose mission is to increase awareness of growth disorder and growth hormone deficiency as well as to provide research, education, patient support and advocacy. For more information, visit www.hgfound.org.
If you had a cancer near your pituitary as a child, which caused diabetes insipidus( antidiuretic insufficiency) and now it’s 15 years later and your IGF-1 was 92 in one test and then 85 the next year. Would you just automatically think it was growth hormone deficiency, due to the circumstances?
I had genetic test for HPP because my ALK was always in the teens when minimum is 40. And it showed I was positive for HPP. I’ve been waiting a year to see Endocrinologist… it sucks….
Wow this is a disaster that congress has allowed the FDA to interfere in the practice of medicine. And is impacting our military and others with traumatic brain injury. This needs to change.
All 3 of my children and I have Noonan Syndrome type 10 schwannomatosis type 2. LZTR1 mutation. My twins just started norditropin. It has been an eye opening experience for sure. We just found out 2 years ago.
do most people with idiopathic growth hormone deficiency have sufficient hgh when they are adults. that is the condition i have and since i’m discontinuing and getting retested for igf-1 levels i was wondering if i’ll be fine or not
