I love your flexibility of thinking. This is a really lovely space, which I haven't found with other chronic illness channels where I can feel like I'm failing at being a person.
Wow. This is the kindest most human cleaning with chronic illness video ive found. 1) Hydrate and nourish 2) Pace (timers and wearables) 3) have a schedule of tasks and be flexible 4) rest more than you are cleaning (mandatory❤) and do compensatory strategies e.g sit to do things rather than stand 5) batch cleaning (section off areas) use bins to collect items to be relocated to their sections. 6) do little tasks when you can. E.g put it away, dont put it down Sorry i got really tired half way through. This video is sooooo good though. Lots of love to my fellow spoonies
It's a struggle to figure out what's going on. We need to keep looking for solutions. Sometimes I sit just sin the recliner & cuddle with a dog or cat. I have 2 dogs, 3 cats. 😊
COVID and Long COVID can definitely cause long term problems. I have a positive ANA and low ferritin for the first time in my life for over a year since my covid infection . COVID destroys red blood cells and causes terrible fatigue. My infectious disease doctor said every single one of his patients has Iron deficiency anemia. Please consider protecting yourself from repeat infections 😷.
I'm so sorry to hear that 😞 thanks for sharing that information! I was curious what exactly COVID played a role in, but not many people are talking about it anymore sadly. I haven't stopped masking at all since 2020! I also avoid overly crowded places etc. A lot of people think I'm overreacting but I know I'm not 🤷♀️
I know I already said this a few weeks ago, but I’m so happy the iron infusions have helped you!😊 Have you seen any improvement energy-ME/CFS- wise? I think feeling more energy in a normal way and feeling more energy in a CFS way are two different things, I can tell the difference. I feel like I can feel more energy normal wise and not CFS wise.
Thank you so much! 🥰 I absolutely understand *exactly* what you mean and it is 100% the same for me, I haven't noticed any energy in a CFS way, it's all the normal way. Like the CFS weight and fog are still here, but I don't have the additional lack of energy in the normal sense. I don't think anyone without CFS/ME would understand what we mean 😂 so I'm SO glad you know exactly what I'm talking about!
@@xosammtastic Glad I’m not crazy! I definitely have noticed a lightening of fatigue since starting POTS medication, but am still just as debilitated by CFS as before. I’m not as miserable and more energetic when it comes to talking, and don’t crash as much. But I can tell certain days when POTS fatigue is really affecting me and when it’s just my ME/CFS.
@@ruby3200 you're absolutely not! I unfortunately (but also fortunately I guess lol) had to start the gluten challenge yesterday and the fatigue that is coming with my body's response to that is so much different than my ME/CFS fatigue too! I don't know if I could ever explain it to someone without it, it's just a totally different veil almost? Like ME/CFS does effect me cognitively, but it's much more physically..where the other types of fatigue were like my brain was on 1% battery life 😂
@@xosammtastic oof! I didn’t know what the gluten challenge was so I Googled it….Im praying for you!😆 Eating gluten messes with my digestion really bad. I think I have IBS. Dairy upsets my stomach too. The worst for me though is red meat and anything fried. Within an hour or two I will get horrible stomach cramps to the point I’m writhing in pain and won’t find relief until I throw up and it’s fully out of my system. When I first got sick I would throw up everything, so now when I get sick like that from eating food I’m sensitive to, I think I kind of have PTSD from the trauma. The worst thing I ever had to do for a test is drink contrast. Like I said, I was throwing everything up to the point I couldn’t keep the contrast down, so I called the hospital and they said “oh it’s no problem we’ll just give it through an IV.” They put me through all that suffering for nothing. It’s safe to say I’m still mad about it. I hope the challenge isn’t too hard on you. They should award medals or give some kind of reward after we have to suffer through tests. Praying all goes well, and you get some answers!🙏🏻✝️🫶
That's how it was for me! I was so scared to start because I thought I would throw up 😂 it has been awful, but no throwing up so I'm at least grateful for that!! It's just a lot of pain, stomach pain, joint pain, muscle pain. But I can handle that! I would have been so mad to find out I didn't need to drink that 🤦♀️ my doctor was at least nice enough to say she wasn't going to make me eat gluten unless the genetic test was positive...sadly because it was positive we have to rule it in/out 😂 Thank you for the prayers and positive thoughts! It's going to be a long 6 weeks but the support helps me keep going! 😊
I am a minimalist now. Declutterred the stuff in my apartment to manage easier. I am a full time wheelchair user. I am 53. I have Spina Bifida a Chiari 2
Use a new torlet brush to clean off dirt from shoes and boots. Ican not reach my feet with my hands Also clean off wheel chair and walker wheels before put into cars.
30 pairs of underpants. If not able to get laundry done this week maybe next month. Suppose put on clean underpants before going to town. In case you have to go to the emergency room.
I wish you could too! They are fantastic for storage.... unfortunately not at all practical to *use* 😂 so I'm glad I have some smaller ones to pick and choose shadows
Yes, I stick the pans to other palettes or flat boxes, or I can make them to measure. Even glued aren't to difficult to move to my leisure. But all that money for empty palettes...
@@xosammtastic You are welcome, I have enjoyed it, plus I don't have any JS, so I rely I look at them on line(me and colors, I have a montain of nails polishes that I'm reorganising, right now and I'm never full)... I fell your stains 😞my carpet was full of make up and candles
My main goal for 2024 is to use my kindle instead of my phone to read! I’d also like to finish getting the outside of the house painted and the inside started, one wall at a time lol
Omg you have no idea how much I needed this video lately. I’m flaring right now and fighting with insurance; everything is such a headache and I struggle with figuring out which illness to prioritize at any given moment. It’s ridiculous 😭
I'm so sorry you're struggling 😔 dealing with insurance is not just a full time job sometimes, it's actual torture! You're not alone though! This time of year is absolutely terrible for me and you're so right, which one do you pick to focus on first when they are all ruining your life lol I hope you can get all the rest you need and the flare starts to calm down soon 😊
These mattes are fragile and a challenge to repress. I would like to recommend watching Facesbygina to repress matte shades, she saved me from having to thrown out cracked or shattered shades.
I've tried other things like attaching a microfiber cloth to the stick, but the dusters just work much better! I wish they would come up with a washable version that is as fluffy
I was looking up the photo for this and it was showing me screen shots from the film and I'm like ugh these buck teeth and noses I cannot 😂 I felt creeped out for 2 days lmao
How do you not like A Christmas story and home alone!😆 I was scared of the live action grinch when I was little and haven’t seen it since. And I watched it’s a wonderful life last year for the first time and thought it was depressing and weird. My favorite Christmas movie is Holiday inn I love that movie. I don’t know if you’ve ever seen it, but I love the Barbie animated nutcracker. It’s definitely the best nutcracker movie around.😂 I love Christmas with the kranks too. I’ve been watching the new hallmark Christmas movies.I really enjoyed a not so royal Christmas, and a timeless Christmas(I think this one was made a few years ago it’s on Hulu). 🎄
I absolutely have some new movies to watch now! I haven't seen the Barbie nutcracker but I love Barbie so I'll check it out! And I swear that's everyone's reaction as they are classics! I just can't stand either kid in those movies 😂😂
The genetic link is adhd Asperger's heds my father had cfs obvously has adhd undiagnosed my now late mither surely had Asperger's and got severe ms heds so true ve got add Asperger's adhd i had a fall oelvic pain in 1997 then cfs then pits now fybromyalgia 6 years dr kenz adhd connection.my son now has adhd Asperger's
@@Truerealism747 that's interesting to know! I did see something recently that had me wondering if my anxiety could be more of OCD so this is something I should bring up with my therapist. Thank you for mentioning it!
I found your channel today so I have so much to binge watch 🥰 These are really good suggestions especially the neck relaxer and the blanket. I have both and love them so much.
I got a pair of the quiet loop earplugs a few months back that I wear at night. If you don’t get them for Christmas buy them for yourself, they are a must! I also can’t live without my bamboo fabric cooling blanket and my sleeping eye mask. Also a great food gift are chocolate xoxox bars they are dairy and gluten free, I eat them everyday with my medication I take in the afternoon and love them.
Thank you for all of these suggestions! I am always looking for an easy food, days like today I find myself not eating enough because I don't have the energy to even pour something in a bowl 🫠 and I will absolutely be checking out the loops and the cooling blanket for the summer. My night sweats before a migraine attack are murder when it's hot
Not great with words?? You are one of the most honest people here. I’m sick of finding youtubers who ‘claim’ they have ‘recovered’. Honestly?? I have been sick for ten years and nothing has cured me. I have a lot of things that helps me but not cure me. I even paid for gupta to become better, waste of my money to be honest i could have found the tips on my own. The tips do help me to keep me good but it has not cured me. Listening to you makes me feel so much more valid. THANK YOU!!! Because i haven’t been diagnosed and been told it is psychological which it isn’t. I have been going to a therapist who has said to me that i do everything i can and she doesn’t have many more tips because it literally do it all. You name it: pacing, acupunture mat and points, taking naps resting, breathing techniques, doing things that make me happy, now walking with a cane and having a weelchair, reading happy quotes, staying away most of the time from negativity and social media, heating pats, infrared cabine, my UV light, vitamine b12, pre pro biotics, trying to excercise to my ability (which is my homebike in my house),… Yeah i love to hear more tips in the future. Sorry for the ranting, wishing you and all the other cronically ill people the best ❤️
The beginning of this video made me tear up. I feel like no one really talks about how hard it is to let go of the old expectations you have of yourself and your living space, so hearing "it's okay to not meet those expectations" hits different. Thank you for these tips <3
Thank you so much for watching, I'm glad I could remind you that it's okay to not meet whatever "normal" expectations are 🥰 it's so hard to not put that pressure on ourselves, I needed this little reminder myself as I'm having an asthma flare and my chores are piled up on me 🫠
I'm glad you didn't get stuck with a full size! I know they make a curly one specifically, but I do not believe it would work based on the reviews of the other ones 😂
