A place for anyone with migraine, vestibular migraine, or any vestibular disorders to learn about natural treatments, medications, diet, and more for recovery.
Can I just say that I live in the Netherlands. There is a mandatory basic insurance here but health care is then fully accessible to all.. I feel so sorry for those in the US who are dependent on health insurance through their jobs. It is totally unacceptable in a wealthy modern nation where health is not available for all. PS: so far I'm told I probably have Menieres because I've had multiple episodes of sudden dizziness with nausea where I have to lie down quickly & then sleep for hours (anything from 3 to 22hrs) Also have tinnitus & decreased hearing. I take Betahistine, which until recently has worked well...but also know my balance especially riding my bike is becoming impaired. I wish everyone here watching on this channel the very best finding a diagnosis & treatment for their vestibular problem. Vestibular issues are known to be very difficult to diagnose. Like other things it is an invisible complaint so often hard for others to be understanding about.
I get similar but less severe version of symptoms during and after my menstrual cycle. Therefore no one could actually told me there is a version of migraine without headache. After having these episodes for ten years, I got the diagnosis yesterday. I always thought I am having extreme and weird menstrual symptoms. I’m writing here maybe there are people who are like me, not always but periodically experiencing vestibular migraine. Thanks for sharing your story and may you all get better soon.
You just described every symptom I've been experiencing for about a month now. I haven't been diagnosed with vestibular migraines but some days I feel so dizzy I feel like I can't even get up.
I'm in the uk, and never had a diagnosis of VM, but I've had these symptoms for years, I also get tingling in my face, I wonder if anyone else gets this. I wish we had Dr Beh in the UK. I'm Menopausal due to surgery and I thought the estrogen hrt was causing my symptoms to get worse, when I stopped this I got a horrendous migraine. I have reintroduced hrt gently. Thanks for all the help, perimenopause and menopause have many symptoms similar to VM in a way, like tiredness dizziness palpitations. So it's difficult to tell them apart. Xxx
I just got diagnosed with this last year after Covid. I am on the way to hopefully getting recovered. Glad I found you. Every symptom and your story and symptoms describe me!
I have an exact same story and timeline of events from going to ER getting meclazine, vertigo attacks , physical vestibular therapy that helped until it didn’t ! Now I’m trying to get back to work but can’t shake the vestibular migraines . !
I've dealth with this for over 5 years. Bounced around from specialist to specialist until a vertigo/balance disorder specialist diagnosed me with vestibular migraines. Im on 60mg propranolol now per day and im seeing a 95% improvement. Sumatriptan is the abortive medication which eliminates all migraines within 45 minutes. This has gotten the symptoms under control for sure. I went from migraines/vertigo everyday to 1-3x a week. I got my quality of life back.
I am also facing similar symptoms but do not understand that it is vestibular migraine or not. I am on medication for the past one month and the experience is awful. Can anyone help me in this? I have started taking Vertin 24 tablet.
Thank you for your video. I can relate. I’m going through similar situations for the past year. It all started when I got off a ride at Centre Island (the tea cup ride) I was diagnosed with Vertigo. I get Vestibular migraines. Huh Vertigo is a symptom not a diagnosis! I get triggered mostly when I am stressed, tired, motion, loud noises, bright lights, change of weather, moving my head side to side quickly.
I like the hardware - software analogy. Sitting & driving are OK for me but not stores with lot of aisles and merchandise and closed spaces or smaller rooms. Some days are good and some bad. Started 2 months ago with slight throat pain and feverish feeling for one night. Then a few days later all this started. But no ringing in the ear. Imbalance while standing so always stand holding on to the wall or something.
I am a man. It’s not about what sex you are. I have been gas lit, brushed off, talked down to, lied to, ignored, told I was making things up, minimized, etc etc, by dozens of doctors. Male and Female Docs. So NO, it’s not just because you are a woman. I started taking my wife with me to visits, and guess what? Yes I was treated CONSIDERABLY better. The medical industry is full of a bunch of Narc docs. If they can’t put you in a box, then they want you to just get out. It’s an EGO thing. I have been dealing with this abuse now for over a decade and I am in much worse now than when I started this journey thru hell. Living in a smaller city doesn’t help for sure, but that’s not the primary reason for such a corrupt failure of treatment….. Egos…..
Welcome to hell, my brother - stay a while and listen... As a small child under the age of 7 and in the early 70s, I was diagnosed with a headache, but it was not recognized as a migraine. Back then, every doctor could choose what they understood as a migraine. And a small child likes to make things up... they said. The attacks disappeared during puberty, and it was not until I was 19 that I developed vestibular migraines with persistent aura phases. From then on, as a young man, I was treated in the same way as you. When I went to my GP with this first severe attack, he just said that the illness I am describing doesn't exist. I shouldn't be so lazy and go to work. I did that for many years until I was completely exhausted. Despite having completed my vocational training with a star, I was portrayed as lazy. After obtaining a university entrance qualification and then studying at university, the doctors' diagnosis slowly changed to psychological. It was only 27 years later that I became aware of migraines through the comorbidity of visual snow and finally received a clear diagnosis from several neurologists in a pain clinic. At that time I had already been completely unable to work for years due to a completely chronic illness. My migraine disease is extremely complex and could have taken a different course if treated in time. I even experienced an orthopedist doubting my diagnosis because I was actually in good health. You can't make this up... Hang in there! What else can we do?! All the best to you from Germany.
@@wirrwarr8834 I really appreciate your time in telling me the hell you have gone thru. It has only been thru the knowledge I have obtained from other people tortured in this manner that I have sustained the Will to Live. I have stood at the edge of that dark abyss a couple times in the past decade and gazed into what I thought was my only way out……but the people I would leave behind was the only thing that kept me from taking the last step, despite the perpetual pain I was in. Things ebb and flow in life of all human beings. Suffering is part of the human experience. Some people suffer in life more than others. All of these are axiomatic facts of life. However I firmly believe we should NOT force people to suffer beyond what we can reasonably prevent when IT IS OUR JOB…. As in the Medical Industry. When you do not neatly fit into a box and their flow charts of “Intake, Diagnosis, Treatment, Follow up, Discharge” in a successful manner, they just want you to DISAPPEAR. Of course not all, but a great great many of them do. And many do but aren’t consciously aware of that. As someone with formal education and thousands of hours of human behavioral psychology the patterns are extremely predictable and reliable. It’s an infringement of their Ego. It’s an affront to their “Grand IQ and Knowledge” they believe they have. All the while many of them having relatively average to slightly above average IQ and knowledge BUT VERY LOW WISDOM AND EMPATHY. And many people don’t understand what that word Empathy is. And what is the true meaning, it is to HEAR AND UNDERSTAND another persons position, feelings, perspective. It’s not agreeing with them or sympathizing, as is commonly thought and confused with today. But to hear and UNDERSTAND…… This is such a fundamental failing of this profession and it hurts so many people , over and over and over again. When we will collectively ever learn this and change this? I do not know.
I really appreciate your time in telling me the hell you have gone thru. It has only been thru the knowledge I have obtained from other people tortured in this manner that I have sustained the Will to Live. I have stood at the edge of that dark abyss a couple times in the past decade and gazed into what I thought was my only way out……but the people I would leave behind was the only thing that kept me from taking the last step, despite the perpetual pain I was in. Things ebb and flow in life of all human beings. Suffering is part of the human experience. Some people suffer in life more than others. All of these are axiomatic facts of life. However I firmly believe we should NOT force people to suffer beyond what we can reasonably prevent when IT IS OUR JOB…. As in the Medical Industry. When you do not neatly fit into a box and their flow charts of “Intake, Diagnosis, Treatment, Follow up, Discharge” in a successful manner, they just want you to DISAPPEAR. Of course not all, but a great great many of them do. And many do but aren’t consciously aware of that. As someone with formal education and thousands of hours of human behavioral psychology the patterns are extremely predictable and reliable. It’s an infringement of their Ego. It’s an affront to their “Grand IQ and Knowledge” they believe they have. All the while many of them having relatively average to slightly above average IQ and knowledge BUT VERY LOW WISDOM AND EMPATHY. And many people don’t understand what that word Empathy is. And what is the true meaning, it is to HEAR AND UNDERSTAND another persons position, feelings, perspective. It’s not agreeing with them or sympathizing, as is commonly thought and confused with today. But to hear and UNDERSTAND…… This is such a fundamental failing of this profession and it hurts so many people , over and over and over again. When we will collectively ever learn this and change this? I do not know.
@@freeandcriticalthinker4431 Oh man, now I have to tell you all about the depression *box,* it fits so well. Years ago I was in a special clinic for dizziness. As they couldn't measure the vertigo, I was accused, as always, of just making it up and that I should take my antidepressants. The faster I did that, the faster I would get better. I already knew at the time that with a vestibular migraine, the vertigo cannot necessarily be measured using the usual measuring methods with technical equipment. When I explained this to the young doctor, he asked me if I knew what he was doing all day. I had to accept that I was suffering from depression and anxiety disorders, period! Take your antidepressants! In the clinic where I was diagnosed, no modern measuring methods were used on me. I asked why? The doctor in charge said that no one had ever measured anything before. So why repeat it again?! Instead, I had to touch various parts of my body with my index fingers, among other things. When I had finished, he said, "Well done, you made it through the door on your first attempt." At the time, I was really suffering from vertigo, and at night I felt like I was standing on my head while lying in bed. At the same time, I was moving in all directions. He and his colleague were able to recognize the vertigo because I had to correct myself several times just before I hit the body part that was being pointed out. I didn't notice anything myself. It's just normal. Neither of them had the slightest doubt that I could hardly stand on my feet. Why am I telling you all this... well, the first medication I was given was a drug for vertigo. We call it flunarizine. As a side effect, it can trigger depression in 10% and more, depending on age. Guess what? So I had a drug-induced psychotic depression for a good two years. The good thing about it? Today, I can clearly say that I had never had depression in my entire life up to that point and never again since. I was stuck in the depression *box* for well over 25 years! During depression, you naturally have suicidal thoughts all the time. However, I also had phases outside of depression, just with migraines, where I thought, dear universe, turn off the light, that's enough. If I don't wake up tomorrow, then I won't be angry with anyone. You can hardly make anyone understand that, because most people never get to that point in their lives. And I'm angry! The suspicion that I received from doctors for decades is to blame. In all the years before my diagnosis, I only had one doctor who said, I believe you that something is wrong, but I don't know what. Unfortunately, the good lady is now retired, and can't be found, otherwise I would have thanked her for that one sentence. And I can't count the number of doctors I've been to. I'm in better times at the moment (reasonably better), but you keep asking yourself whether life is really worth living. There are days when I can't even make it to the mailbox. But then there's my wife, the children, the grandchildren, the cats, the garden... and let's be honest, when I'm dead, they'll only be allowed to bury me up to my waist, otherwise who's going to take care of the flowers and plants on the grave?
@@freeandcriticalthinker4431 YT has hidden my comment. They probably don't like the direct expression about achieving a certain _life goal._ You have to click on "newest first" at the top and then scroll down. Please excuse the inconvenience.
thank you so much for posting this, like many others here when this hits it is so scary and you worry that your life as you knew it is over. Thank you for sharing your experience and everything that worked for you- off to try it now. At least there is hope!
I recently bought Sumac and I love the flavor. It lingers and I like that. I'm just about a week into the diet. My neurologist suggested it. I actually have known about your sight for a while. I just hadn't gotten around to it. The Mediterranean meatballs were delicious. I do know chocolate and caffeine are fine with me. I only do a cup of coffee a day and every drink thereafter is caffeine free. Soy I can do but only limited because my belly says no after a while. Lol I am dairy free but mostly bc my body has retaliated and I can use the restroom. Lol some food we already don't eat bc my middle child has a stoma and those foods can either bulk too much or clog. So like beans and nuts and bananas. Just to name a few. And she's also sensitive to dairy and eggs. So my son is the only one having actual milk. I'm hoping it helps. I don't get dizzy all the time but I'm still hoping this will help with the now 6 migraines a month. I am on meds that have helped a lot because I was getting 11 migraines a month for about 7 years. I was in my early thirties and am now am in my early 40s. I do know that too much sunlight, heat, stress, poor sleep (hello insomnia, yes I have meds for that) and exertion are no bueno for my migraines. The rest I wasn't sure on but that's why I'm trying this diet.
I remember I was about 5 years old, live in Pakistan a small town. I suffer this experience, my parents took me to the local government hospital and they treated me for iron deficiency. Now I am 39 I have come to know that what I suffered was vestibular migraine. I have faced it time by time like whenever I take kidney beans and coffee in high quantities. Thank you for your explanation and awareness ☺️... Stay blessed 🙏
Thank you so much for sharing this. I recently was diagnosed with Vestibular Migraines. Super hesitant to get on medication but Neuro said I could start with Magnesium Glycinate to see if it helps. I will be watching your content to see if I can get ideas on how to approach this holistically. So glad I found you! ❤
i really believe i have this and it started about 2 months ago. i def have a hypersensitive brain and have battled chronic anxiety and panic attacks for years. the one thing though is i have no issues driving at all. but i do suffer big time in like a grocery store for years now. i always thought i was crazy but its good to know its a real thing. But it is possible to have PPPD and be able to drive with no problems? im fine when im driving. i also feel totally fine when im laying down too. its only when im upright doing normal everyday movements like in the kitchen or bathroom the twisting and turning etc etc etc. i can take a long walk too with no issue as long as im moving forward constantly. all my symptoms seem to fit PPPD. mine started after having a bad vertigo attack that lasted like 10 seonds. ever since then ive had these PPPD symptoms (but no vertigo at all it was just that one time that triggered it) my vertigo/dizzyness i like in my head instead of external vertigo. its def worse when im having bad anxiety its very obvious it makes it much worse
Hey! So I was diagnosed with VM when PPPD wasn't really being diagnosis. We now think I probably did have PPPD caused by the VM, but it just wasn't being recognized like it is now. PPPD is that constant background dizziness which I did have more more than 3 months.
@@TheDizzyCook my lightheadedness randomly started maybe a few days a week and then then started becoming every day 24/7. No spinning, just lightheaded like on an elevator or like my head was somewhat floating. Almost like I took a drink of alcohol and had that initial head change but it never goes away. I got diagnosed with vm and neurologist started me on Effexor. Said to give it 3 weeks. I’m just wondering if vm dizziness can last all day everyday or if maybe I have pppv. I guess the good thing is they have similar treatments. Thank you for the response!
Omggggg!!! The yogurt 🤦🏼♀️ 🤯I never liked yogurt my whole life up until til a few months ago I discovered I loved Greek yogurt. Which magically aligns with my everyday headaches and the onset of my vertigo. This is so sad to me lol…just when I thought I found myself a healthy(ish) treat.
I have that car experience all the time and never feel grounded. Always motion issues even when still. So glad you covered this as I will be talking to my doctor!
This is exactly what I have been going through for the last three years. And I have been through thousands of dollars of testing. I even just had an MRI to check for a Brain Tumor (which luckily I don't). I get attacks where everything spin so much that I can't even move from my spot. I even thought I was having a stroke at certain points. Thank you for this. I now have something to push my doctor's to test.
All these are 100% me except i do go through periods of bad headaches as well. But always off balance headache or not. Comes with severe stress which i had had a lot of so i had thought for years it was anxiety. When my symptoms started in 2001 my neuro put me on low dose Paxil for 6 months then tapered off. I was fine for a year or so. It came back and quickly. Then i went down the road of SSRI's and added Depakote. I got sick or side effects of antidepressants so ended up on Depakote alone fo4 about 5 years. I weaned off and was good about another 5 years until i had 2 back to back losses and the stress triggered it all again. I can barely drive down the stress. Now i guess it back on the med train. Going to try lamotrigine this time because i hated the weight gain from Depakote.
I have just been diagnoses and I am 3 weeks in. Again did not believe it. I am really impatient for this to go away and worry about my job. You symptoms are right on with mine. The movement issues, light sensitivity, etc. Scrolling tablet, etc. It is like you are moving but it take the rest of you to catch up!
