Facial Palsy UK is a charity established July 2012. Our mission is to ensure that every person in the UK affected by facial palsy is given access to the best information, treatment and support available. www.facialpalsy.org.uk Charity registered in England and Wales, No. 1148115 and in Scotland, No. SC045086. Company limited by guarantee and registered in England and Wales, No. 8107184.
Great job - I hope you can do more of these, particularly a child's day, someone who is born with FP, etc. Thanks for all your advocacy and educational work.
it trully is important to do it everyday... the ones on the cheek are the most painful ones... im used to it know but at first it was so painful that it would make me cry.... but i knew i had to do it... For everyone who is dealing with bells palsy, dont freak out and do your stretches...
Here is the reply from our Medical Advisory Board: 'Our recommendation is that electrical stimulation should only be used in cases of chronic paralysis where surgery is not an option. This is because there is some evidence that electrical stimulation can increase abberant reinnervation i.e. Make synkinesis worse post facial palsy. Patients are better served carrying out mechanical stimulation in the form of massage and stretches which has a better evidence base behind its efficacy.'
i was also born with facial paralysis and this video really resonated with me. i wish there was a foundation like this in the us. i've always felt very alone and had a lot of the same feelings mandy has. i've always always wanted to try surgery but know i'd never be able to afford it and am afraid it wouldn't work anyways. thanks for posting this video!
If you are on Facebook, there is a group for people who had facial palsy in childhood or from birth. One of the members also helps run a support group in the US. facebook.com/groups/fpkids/
The same thing happened to me 1974 , I was pregnant with twins at 6 or 7 month maybe, I could not be teated with steroids , or I was not treated with steroids, and I never recovered , I'm 59 years old now.
good morning , 1st how can I contact you ? 2nd have mercy and please help me on my CURSESICKness BELL PALSY in long 14 years faceSUFFERING , NECK AND MY TEETHS etc !....
i am most appreciative of the videos.. i had bell's palsy when I was 37 weeks pregnant, Nov 24 2015.. I was flaccid for 1.5 months. Now at 7+ months I have been feeling synkinesis and i have lost hope. I am a physical therapist and have tried ES, massage, heating and exercises daily for 2 months, then 2xwk until just ocassional massage and exercise. I lost hope.. and this gives me HOPE today. Thank you VERY MUCH God Bless you!
i am most appreciative of the videos.. i had bell's palsy when I was 37 weeks pregnant, Nov 24 2015.. I was flaccid for 1.5 months. Now at 7+ months I have been feeling synkinesis and i have lost hope. I am a physical therapist and have tried ES, massage, heating and exercises daily for 2 months, then 2xwk until just ocassional massage and exercise. I lost hope.. and this gives me HOPE today. Thank you VERY MUCH God Bless you!
I am currently on my 7th month after being struck by bell's palsy on my left side.I am recovering but find myself facing problems of synkinesis. Thank you so much for these videos which are a godsend to me.
