Hi Christine, Thanks for your question. Steve was 67 years old when receiving the transplant. People living with pulmonary fibrosis might experience different journeys, so treatment options might also vary from one person to another. Kind regards, Helen
Hi @AngelMartinez-Im1jk, thank you for your comment. If you turn on subtitles, you can press the settings button located right next to the subtitles button. You can then press subtitles - auto-translate - Spanish. We hope that helps. Best wishes, Nadine
My sister died of Fibrosis of the Lung at 48 years old. At the time, I felt her treatment was incorrect, in so far as 25 years ago, they gave her several variations of anti-biotics. There are new medications now for this conditions to slow it down, and there is self help, in so far as to exercise (walk on flat) if you can. Eat well, fruit (pineapples, berries), room temp at no lower than 18 degrees. Vitamin C, D, Omega. In bed, lie on your side, with head above chest. As a Massage Therapist, effleurage (gentle stroking) on the back to relieve congestion with almond oil (but not on the bone ie. spine). I have just found out one of my friends has the early stages of the condition.
Hi @mop714, We're very sorry to hear about your loss and your friend's health situation. You're right, small lifestyle changes, such as a good diet or gentle exercise can help improve ones overall wellbeing. It sounds like you have gathered helpful information and your friend is lucky to have you by their side. For more helpful tips and information on pulmonary fibrosis, we invite you and your friend to visit: patient.boehringer-ingelheim.com/lwpf/living-with-pulmonary-fibrosis/taking-care-of-yourself We wish you both all the best, Annika
When are we going to have a medication for our skin? To control or to stop the skin fibrosis, tightening. This is one of the most cruel and weird, horrible of the autoimmune diseases. A disease that turns into mummies. Please , pharmaceuticals, scientists, give us hope. Help us!! 🙏🏼🕯️🙏🏼🙏🏼🙏🏼
Jas this video was so beautiful and you are such a star pretty girl! Your outlook is amazing and I pray God’s strength. May your days be long, strong, and full of continuous joy. You are a walking testimony! Thanks for sharing your story. ❤
Yo tengo EPOC y me canso para hablar y caminar, él descanso para mí es importante y seguir las indicaciones de los médicos tengo 70 años y nunca fumé él problema fué él humo al cocinar
Hola Jean Pierre, lamentamos leer el caso sobre tu estado de salud. Te recomendamos que te pongas en contacto con tu médico. Saludos cordiales. Te deseamos puedas mejorar tu salud.
Gadolinium based contrast exposure for MRI scans can cause this in patients regardless of kidney function. Triggered it in me over night. Ruined my life.
Thanks for sharing your story. I'm studying asthma for my science class, and this video was very informative on what living with asthma is like for an individual. I hope you find good treatment for your disease and find a way to live with your asthma rather than against it.
Dear Michael, We're happy to hear the video was helpful. In case you're interested in more tips and information about life with scleroderma, we invite you to visit: patient.boehringer-ingelheim.com/more-than-scleroderma/i-have-scleroderma. Wishing you all the best ❤️ Kind regards, Helen
Dear Amber, We are sorry to hear about your diagnosis and understand that this is not easy but terrifying. We recommend you to openly talk about how you feel with your treatment team/doctor and ask all the questions you may have. It is very important that you understand the disease you are living with and what you can do to manage it. We also invite you to visit our website where you can find out more about the condition including helpful tips for the daily life: patient.boehringer-ingelheim.com/more-than-scleroderma/ Wishing you much strength and all the best, Helen
Diagnosed a little over 5 years ago. Been on oxygen 24/7 since. Was pretty stable for a couple years but been getting worse. Been through all the emotions and feel blessed to have a long goodbye. Not everyone gets that. And I know where I'm going when I check out of here. It's going to be an upgrade and I'm not taking this oxygen hose with me. I did refuse to take either of the 2 medications. I realize I'm in the minority on that but it was the right decision for me.
Thank you for your comment. We are very sorry to hear about your mother's health situation and can imagine that this is not easy for both of you. In case you are looking for any information, for example tips for the daily life with pulmonary fibrosis, we invite you to visit our website: patient.boehringer-ingelheim.com/lwpf/ All the best for you and kind regards, Helen
