The Epilepsy Foundation is dedicated to enhancing the quality of life of people living with epilepsy through information, education, advocacy, support services and research. We work to raise awareness of epilepsy in the community to reduce stigma and create a more welcoming and inclusive society for all.
We can provide a range of support services for families, friends & community. Sometimes it may involve talking through the situation with one of our counsellors or special education sessions for as many people as necessary. We have available a wide range of resources to supplement the work we will do with you, including videos, information sheets and epilepsy management plans, a detailed website and the best epilepsy specific library in the southern hemisphere.
I have epilepsy, for 26 years it is uncontrolled. I need to exercise, and this is only way i can get strength up and exercise my best. Im hopefully goin to start goin with my partner, but i do want to go alone if i cud maybe. Just started watching video i will continue now ❤
Great video that resonates with my experiences. No health issues till I started having absences at 56. Was diagnosed as stress and I took SSRIs for 3 years with no benefit. Then, I was at home one night watching the tv and woke up in an ambulance with blue lights. I had collapsed and wife had to give me CPR. Been on Keppra for 4 years since, haven’t had andthe major, but still get those absences every couple of weeks, and feels like a hangover afterwards. Haven’t driven since, since I don’t want to live with the guilt of killing somebody. Gave up engineering work, now do part-time in a local office job. It’s really messed with my retirement plans - but you just got to adapt 👍
Absolutely disgraceful! Children with epilepsy SHOULD NOT be feared. They are still humans who have feelings, emotions, and also a right to education! I hate to say it, but they would never kick out an autistic child for having a meltdown, but they will kick out a child who happens to have seizures? Why is it so many educators have been trained in autism and how to apply coping mechanisms, but refuse to learn basic first aid for seizures? Some people with epilepsy, like my daughter, has lost everything else she used to do. She isnt allowed to ride a bike, or go swimming, she cant go to friends houses after school...the only thing she has left IS school, and I'm so glad she goes to a school who has made sure they know what to do for her. They also got trained in how to use her VNS device. Who is going to tell that little boy that he cant attend kinder because of discrimination? So angry right now, and i hope those parents take this further. NO child should be excluded because of a disability. EVERY child has a right to try and live their best life possible. I can only imagine how this will affect that little boys mental health. He is already terrified because of his seizures, now he finds that people won't accept his condition and would rather him miss out than do the training. If i can learn what to do, then ANYONE can!
I have epilepsy, I wish the woman had made a point of telling the audience how dangerous it is to drive, especially after her episode. Keep doing what you always did, may not have been the best message.
I'm a retired MD with partial seizures. TON of meds, (keep me stable), but keeping active at the gym is crucial. Finding people who understand why I can't remember things is tough. Keeping positive is difficult but important. All people with seizures should keep a diary is important. Get a bracelet with your Dr. phone number and the fact that you have a seizure disorder is so important!!
With me it's all about taking the medication. I can go to bed at 1 AM and I'm fine. As far as drinking; I learned long time ago I can't drink and I don't need to to have fun.
Well done Neil. Keep bringing awareness. My daughter is one of the 30% who is drug resistant. She is having VNS surgery tomorrow. I have my fingers crossed this will change things for her.
I'm myself is going through some people don't want call it disability but I do. It's also a condition. Here's my story -: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE---dHzo_w470.html
I use to have Epilepsy when I was younger but I outgrow it but come back because I have started to Absence Seizure and Petite Mal Seizure tiggers are fishing light and overheating
I am very epilepsy. Try had when I was younger coming back and I have a absent seizure one absent in Petite seizure mal ones not last Friday, but the Friday before I had Harding Moana where my eyes rolled back into my head.
I'm severely epileptic as well. I have grand mals and always go status epilepticus.... have been hospitalized by ambulance over 70 times. It's a really tough disease to live with...
This had such an impact on me. Just like Kirsty's family I did not know or were told that the epilepsy my beautiful 29-year-old son was diagnosed with in September could be deadly. On the contrary he was told not to worry and as Kirsty that it was mild. On 27 October he died in the morning getting ready to go to work. He was on his stomach and was found by his employer who had gone to his flat when he didn't come in to work. It was the most devastating moment of my life to receive that phone call telling me I had lost my lovely son and friend. His employer told me he had died of a seizure since he recognized the signs from Jonathan once having had a seizure at work. I had never heard of SUDEP either before and the coroner is still to admit that was what he died of, but I wish I had! We would have been much more involved and made sure some kind of alarm system was in place to alert his flat mates if a seizure occurred. We never got that chance. It is time the medical profession wakes up and make sure that ALL people who get epilepsy are aware of the dangers and what to put in place to safeguard themselves. I have since learned that over 700 young people, mainly young men, die every year and 250 in Australia from SUDEP. When you read the stories of these young people it echoes what I and Kirsty's family have experienced. God bless you all and make sure you take epilepsy seriously!
I am also a D.S. Worker and I’ve been trained for 4+ weeks . 3 And a half trained in different classes plus on sight training at the different homes. 😊
Thank you I hope one day there is a day where Epilepsy and none epilepsy (yes it exists I have both) will have medication where people can live life without having such a frightening condition to deal with.
