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Living Differently
Living Differently
Living Differently
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My channel is about inspiring others to do what they love to do. Despite having a setback or two. It's important to live life to what is given to us, and it's meant for others to share. I do everything of living life differently and how I see the world. I have experience with working with my hands and many other things, and it's time to give back to the world. Enjoy and follow me as we live on this incredible journey called life!
Traveling With A Disability Vlog
24:32
6 месяцев назад
Paraplegic Pressure Sores Prevention & Care
19:08
10 месяцев назад
Paraplegic Pressure Sores & The Wheelchair Life
10:42
11 месяцев назад
Комментарии
@tynsleycalistena9556
@tynsleycalistena9556 23 дня назад
Thank you so much for your videos! They've helped so much! I love that you're so down to earth and real about it!
@dianebarnes7779
@dianebarnes7779 2 месяца назад
awesome!!
@Truerealism747
@Truerealism747 3 месяца назад
Did it cause fybromyalgia symptoms from it
@livingdifferently470
@livingdifferently470 3 месяца назад
yupppers
@dlbrittain1976
@dlbrittain1976 3 месяца назад
also kia/hyundai have installed both port/direct FI......they used the direct for a long time....toyota is also installing the duel setup.......DIRECT INJECTION is crap to the intake valves.....as recycled crud is deposited on them....with no port injection fuel to clean them
@dlbrittain1976
@dlbrittain1976 3 месяца назад
First off...i agree.....they push small engines with TURBO-BOOST......but issues develop...later
@lorinawrocki8598
@lorinawrocki8598 3 месяца назад
Hey. Great video and explanation of FND and your symptoms. You have a really good attitude to dealing with your symptoms. I was diagnosed with FND back in 2019. I had an accident on the ice while lining a hockey game and was knocked out and sustained a TBI. That's when the FND symptoms started. When you mentioned the apnea, I didn't know it could be a symptom....but it makes sense. I did a sleep study and learned I had severe sleep apnea, which I believe was the result of my head injury. Thanks for sharing your story. You did an amazing job explaining things in your video. Cheers!
@stevenholton438
@stevenholton438 3 месяца назад
I wish you'd have shown the bearing removal...for fork and wheel! You seem to have plenty of leg strength to push your butt up into the chair at the end...I wish I could do that but I'm like 210lbs lol
@annejames4504
@annejames4504 3 месяца назад
I have fnd thanks for being so open n honest with it I typically get weakness, tremors anxiety poor memory n chronic fatigue n cnt remebrr stuff Hope ur symptoms get better
@-nanabanana
@-nanabanana 3 месяца назад
That's me as well. So far they had all been Seperate conditions and now fnd seems to be it. But I'm struggling so hard over this😢
@annejames4504
@annejames4504 3 месяца назад
@@-nanabanana yh its hard to get ur head around but with right supports n right mind set u can recover from it
@vivianlee8183
@vivianlee8183 4 месяца назад
Thank you for sharing. Great attitude.
@fndtoday
@fndtoday 4 месяца назад
Thank you for sharing this, and for explaining your symptoms so clearly in plain language
@cannymoose
@cannymoose 4 месяца назад
Great video. You're atitude is very much like mine :-) I hope you continue with these videos. Most people in have spoken to are very scared and stressed by this condition. It makes a difference to keep calm I find. It's refreshing to see you describe what happens with a calm demeanour.
@Tressy97
@Tressy97 4 месяца назад
i have some struggles since i was 23-24y old weird things happend, but after 2-3y they found out FND i go to an universitair Hospital, it something i also have to go to accept and also i see thing going little bit back, my legs are sometimes weak, i try as much to walk, but they told me also i have to accept life will be different, i did powerlifting, and ice hockey, now already 2y not doing these sport driving me crazy, idk how this will go futher, like they say nerve damages, Software problem. well now i'm 26 but i am pretty scared cause i still can't accept it that things goe different, i think i still need a long way to accept and just enjoy life, and looking to your videos is like therapy and also i have some epileptic shakings but 2y back to now indeed my body has changed, i need to accept but it is still hard mentally like , i drove back then to Motorcycle etc and now i can drive my car but i am honest with myself that this will be change too in future, am i afraid yes cause idk how, that why i go to special theraphy to accept and learn how life will going in future. - btw your story is also important i learn from it to be positive life is more then the things i used to do,
@sarahdawson7985
@sarahdawson7985 4 месяца назад
I was diagnosed with FND last May and I didn’t really want to accept it as here in the uk hardly any medical staff I’ve ever met have known what it is or how to help me? I’ve found it hinders the treatment and way people here help me if I have symptoms of other illnesses that need treatment and I have been told to chase up psychology services by several nhs medical staff members! Including my neurology consultant initially. I am lucky in that I have an FND specialist neuro dept here in Sheffield and so feel I am understood, but it is scary as not much is understood about this still.. so finding someone on here who explains it as simple neuro wiring dysfunction is helpful to show others that this is real and an actual brain disorder. Just because it doesn’t show on standard scans yet- available in the uk as basic mri only- it is real and is not something I made up! ❤
@Lolibob151
@Lolibob151 4 месяца назад
My brain deletes the drivers for my legs regularly... Its taking longer to recover each time...
@caro8491
@caro8491 4 месяца назад
Thank you. My daughter has fnd. You helped me understand. Light and love to you.
@magnatedove3442
@magnatedove3442 4 месяца назад
Bro way to open up and talk about this topic
@nicolerodriguez6416
@nicolerodriguez6416 4 месяца назад
FND is such a wild condition. I hate that other people experience this, but I do feel better that I'm not alone in this. I share several of these symptoms, and I am looking forward to learning more coping skills.
@Lolibob151
@Lolibob151 4 месяца назад
This is perfectly worded. Sorry you're in this club, but we're happy to help if we can :)
@stellaancimer8505
@stellaancimer8505 5 месяцев назад
i feel you, even if they are unknown they are still there, and make life so hard
@stellaancimer8505
@stellaancimer8505 5 месяцев назад
carnivore put alot of my symptoms in remisson*
@MikSonus
@MikSonus 5 месяцев назад
I was wondering how you were get back into the wheelchair. Glad you can still do your work on cars. New sub. I’m in physio at the moment and I’m picking up tips, thanks 🫶
@MikSonus
@MikSonus 5 месяцев назад
Thank you for sharing. 🫶
@ladybird8436
@ladybird8436 6 месяцев назад
😂 really like you and thanks i have FND too along with me/cfs... always try my hardest to carry on with everything xxx hugs
@ehlersdanlosmom6847
@ehlersdanlosmom6847 6 месяцев назад
you're a joy. thanks for sharing your journey with such a positive attitude. wishing the best for you and this strange condition.
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
good video
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
cool new/old brochures
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
its calif certifed......emissions also
@livingdifferently470
@livingdifferently470 6 месяцев назад
Yah, they have Federal and California for the Cat. But of course getting to involved in the video about that would take away the attention for the audience on other matters and topics. But yes thanks for commenting
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
@@livingdifferently470 i agree.....explaning CARB requirements on your video🤣🤣......just wish there would be one standard for all 50 states...using the calif standard
@livingdifferently470
@livingdifferently470 6 месяцев назад
Oh gosh I know! Especially when it comes sourcing the part and it's asked CALIFORNIA or FEDERAL! Like, WTF? WHY? You know?
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
toyota is one of few that uses port and direct fuel injection......which helps with intake valves....staying clean
@livingdifferently470
@livingdifferently470 6 месяцев назад
You. I hate direct injection because of that reason. I've seen the intake valve myself when changing out an injector on a Travers engine 3.6 And man. When I had my legs, I'm not even kidding you. I had both legs on the motor and pulling.... it finally budged with me ejecting backward. I absolutely hate direct.
@dlbrittain1976
@dlbrittain1976 6 месяцев назад
@@livingdifferently470 ....same for me......they never tell you the bad stuff about them
@babyBlack-xe1kh
@babyBlack-xe1kh 6 месяцев назад
Although you don’t have the strength to move your legs, you still have feeling in your lower limbs, right? Feelings can remind you to move after a long time. Is this much better than who are completely paraplegic?
@livingdifferently470
@livingdifferently470 5 месяцев назад
My brain stopped sending signals down to my legs. And I have spasticity also. It is very controversial in that topic with Healthcare and me and others. The fact is, is that I'd rather not go to doctors because they're looking from outside my body and only see a body. But they don't know what I feel and deal with daily. And I would want to live a happy life versus go into a doctor's room and ask what's going on with me when I already did that, and got bad results. To hell with knowing what can be or could be. To hell with looking at doctors and think they're people who have the answers and solutions. Because they're the worst patients. No one knows what is and isn't. What can or will be. The best way Ii see it and has worked for me. Accept and move on. You'll be better off.
@Fiddlinfrenzy
@Fiddlinfrenzy 6 месяцев назад
How about the rear wheel
@livingdifferently470
@livingdifferently470 5 месяцев назад
The rear wheel is more difficult to pack and service. That one is better to replace the entire wheel
@Yubin_Lee_Doramelin
@Yubin_Lee_Doramelin 6 месяцев назад
I'm suffering from dystonia and tremor for three years, so I thought the symptoms would relate to some kind of epilepsy (I went to neurology and took anticonvulsant for about 1.5 years)... but as it turns out, it was just FND. Thank you for explaining many symptoms relating to FND using easy words!
@livingdifferently470
@livingdifferently470 5 месяцев назад
You're very welcome
@deborahbuchholz836
@deborahbuchholz836 6 месяцев назад
I am so impressed with your attitude about your symptoms. I have been blessed with a supportive team of doctors. My neurologist has encouraged me to learn all I can but have stopped because of all the sad stories. You are an inspiration! I am glad you are improving!
@alhassanabdulfatawu1533
@alhassanabdulfatawu1533 6 месяцев назад
Misses seeing you bud 😮
@jamieolson3441
@jamieolson3441 6 месяцев назад
Missed seeing you!❤
@Lorenda-wv8vz
@Lorenda-wv8vz 6 месяцев назад
Thank you for this, you have really explained it in such a way that has made me feel at ease with my FND. it's been a long year and getting the hang of it now. My goal is to keep my life as normal as possible with my FND, episodes and all. Also makes me feel not alone that there are people that does understand and get me😊. Thank you
@laurafayeg2208
@laurafayeg2208 7 месяцев назад
memory foam bean bag helps
@spencerkeaton8234
@spencerkeaton8234 8 месяцев назад
it was so awesome to talk to you last night! Your perspective is God glorifying!!
@stellaancimer8505
@stellaancimer8505 8 месяцев назад
Do you have disability? Thanks
@maureenshaw737
@maureenshaw737 8 месяцев назад
You have a great way of explaining your symptoms, really clear. It’s so helpful as a fellow sufferer to hear how you deal with your symptoms. Wishing you good body, brain and electricity 🙌🏻
@livingdifferently470
@livingdifferently470 8 месяцев назад
Yes. My neurological symptoms are very real, very obvious, and they're not very common in the medical field. But we do live on with better lives despite our symptoms. I hope you subscribed because i like making videos for people.
@Vistalik
@Vistalik 9 месяцев назад
Amazing! Respect.
@livingdifferently470
@livingdifferently470 9 месяцев назад
Thank you
@lucypeutros55
@lucypeutros55 9 месяцев назад
Thank you for sharing these information. I do have question in the blockout do you loss consciousness or you can feel what is going on around you? Thank again for sharing this video and I hope you will get better!
@livingdifferently470
@livingdifferently470 8 месяцев назад
I don't lose consciousness. I can hear everything around me. I can even tell you what you did around me. And if you touched and where you touched me. I just can't respond to you. I have gotten much better since my video. I've started to drive again. .y symptoms are very minimal and rare now. Except the paralysis and tics. The stuttering and blackouts only occur under extreme cases and I've started to take medication that help a lot
@-nanabanana
@-nanabanana 3 месяца назад
That happens to me too! I actually started what I call passing out (I've never done it while drinking, I know cause I don't drink lol, so don't know if it's like that) just before and during the eclipse 😮😅
@-nanabanana
@-nanabanana 3 месяца назад
I'm so glad you're doing better. That's so great that you can drive again!! I'm so new at this and have so many questions, and it's seems too me that you must be the best embassador out there😀💕
@shauntayecooper9489
@shauntayecooper9489 10 месяцев назад
Hello I have a disability I have mild cerebral palsy and I live in Texas I am new to your channel?
@MikeyMikeM21
@MikeyMikeM21 10 месяцев назад
Damn bud put a shirt on..... 😂 doing great bud keep up the good work
@kylenicholas2957
@kylenicholas2957 10 месяцев назад
Love your personality . God Good 🙏❤️‍🩹🙏
@livingdifferently470
@livingdifferently470 10 месяцев назад
All the time God is good
@TimSaundersC4
@TimSaundersC4 10 месяцев назад
I have been a C-4 quadriplegic for almost 18 years. Throughout this time, I've encountered a few pressure sores, and the most crucial lesson I've learned is the importance of promptly addressing any signs of redness before it escalates. Each day, I have my Personal Support Workers (PSWs) take pictures of the areas of my skin prone to breakdown. Living with this condition has brought about a persistent daily anxiety, primarily centered around the fear of developing a pressure sore. Being paralyzed is undeniably challenging, but it is possible to make the best of the situation with the right mindset.
@livingdifferently470
@livingdifferently470 10 месяцев назад
i agree
@chantelle1654
@chantelle1654 10 месяцев назад
Thanks for the useful advice and congrats. Rethinking my wheelchair cushion right now.
@livingdifferently470
@livingdifferently470 10 месяцев назад
Yes I always think of different kinds. The reason why Im using my foam is because my friend Harold told me how many air cushions he's popped due to both his and mine's line of work. So My air would be more for other times. I do plan to purchase more robust cushions in the future though. The softer the better
@cleonaldopereira8929
@cleonaldopereira8929 10 месяцев назад
Parabéns meu guerreiro
@chantelle1654
@chantelle1654 10 месяцев назад
Thank you for sharing your story. It's really help me understand my own diagnosis of FND
@chantelle1654
@chantelle1654 10 месяцев назад
Frisbee Golf?! Awesome!
@livingdifferently470
@livingdifferently470 10 месяцев назад
Yup sure did.
@chantelle1654
@chantelle1654 10 месяцев назад
Really educational, thank you. I recieved no information about pressure sores from my medical team, 2 years into fulltime wheels...
@livingdifferently470
@livingdifferently470 10 месяцев назад
I know. You end up disabled and no one will be there to help you. I plan to make another video in my new place I moved to real soon
@chantelle1654
@chantelle1654 10 месяцев назад
@@livingdifferently470 hope you settle into your new place soon and it feels more homely for you.
@livingdifferently470
@livingdifferently470 10 месяцев назад
@@chantelle1654 oh it is. And spacious enough to record properly without all the small stuff on the counter tips. Excellent soft light etc. So I will starting here pretty soon thanks for your support
@chantelle1654
@chantelle1654 10 месяцев назад
@@livingdifferently470 that's awesome 😄
@chantelle1654
@chantelle1654 10 месяцев назад
Just found your channel. So glad that I did! Thank you for this resource.
@livingdifferently470
@livingdifferently470 10 месяцев назад
You're very welcome. My channel isn't very popular. But it doesn't stop me from making videos that are fulfilling and helpful. Thanks
@chantelle1654
@chantelle1654 10 месяцев назад
@@livingdifferently470 I've no doubt it will grow in popularity, especially talking about FND which is so poorly understood around the world and so little money being put into research and treatment, we're kinda left alone. I'm sharing you're vlogging here in the U.K FND community.
@livingdifferently470
@livingdifferently470 10 месяцев назад
@@chantelle1654 I am considering about making a video of how FND is known and understood to be real, but how the medical field lacks knowledge that people need to further understand. How paralysis can occur without a spinal or brain injury.
@chantelle1654
@chantelle1654 10 месяцев назад
@@livingdifferently470 🥰
@-nanabanana
@-nanabanana 3 месяца назад
@@livingdifferently470 that would be so helpful to so many sufferers and their Support People👍🏻💝 But I think that the Videos you've made are so awesome and just need exposure and shared more! I'll share them especially on 🇨🇦 sites for sure! I think you'd be great in Interviews!