Тёмный
ALS Centrum Nederland
ALS Centrum Nederland
ALS Centrum Nederland
Подписаться
Het ALS Centrum Nederland is het expertisecentrum op het gebied van ALS, PSMA en PLS. Naast wetenschappelijk onderzoek met als doel het vinden van effectieve behandelingen, verzorgt het ALS Centrum scholingen en kwaliteitsprojecten voor betere kwaliteit van zorg. Het ALS Centrum werkt nationaal en internationaal samen en wordt gecoördineerd vanuit het UMC Utrecht.
Verhaal achter de deelnemer - Mark Buijs
7:34
4 месяца назад
MNDA - samenvattingen cognitieve veranderingen
1:16
7 месяцев назад
6 Omgaan met ALS (jongeren)
8:52
2 года назад
6 Omgaan met ALS (jongeren)
8:52
2 года назад
5 Wat is ALS (jongeren)
6:49
2 года назад
1 Praten over ALS (ouders)
9:07
2 года назад
7 Helpen en voor jezelf zorgen
8:24
2 года назад
8 Vrienden en school
7:27
2 года назад
9 PSMA, PLS en ALS
4:06
2 года назад
Promo ALS in het gezin
2:12
2 года назад
2 Mantelzorg (ouders)
8:22
2 года назад
3 Je kind helpen
10:14
2 года назад
4 Ouderrol
9:48
2 года назад
ALS Congres 2020 - Posterpitches
22:41
3 года назад
ALS Congres: Children with ALS
52:36
3 года назад
ALS Congres 2020: Bijpraatsessie Cure
38:24
3 года назад
ALS Congres: Welkom en introductie
28:19
3 года назад
Комментарии
@ManikMehrotra-ed6tb
@ManikMehrotra-ed6tb 3 месяца назад
Fufgiff👨‍💻👨‍💻👩‍💻👩‍💻
@ManikMehrotra-ed6tb
@ManikMehrotra-ed6tb 3 месяца назад
1:07 hhtu👩‍💻👨‍💻👨‍💻
@ManikMehrotra-ed6tb
@ManikMehrotra-ed6tb 3 месяца назад
0:24 0:28 0:28 0:28 0:36
@ManikMehrotra-ed6tb
@ManikMehrotra-ed6tb 3 месяца назад
0:24 0:28 0:28 0:28 0:36
@ManikMehrotra-ed6tb
@ManikMehrotra-ed6tb 3 месяца назад
0:24 0:28 0:28 0:28 0:36
@maaikeboot7527
@maaikeboot7527 3 месяца назад
💔 Verdrietig dat Mark zo snel achteruit is gegaan
@mmmixed4032
@mmmixed4032 6 месяцев назад
Goed
@JJ-cx8gl
@JJ-cx8gl 6 месяцев назад
Oh my goodness, I thought I was going to have another birthday before she was done speaking each sentence. I speak to grade schoolers faster than this.
@TrenteQuatre
@TrenteQuatre 9 месяцев назад
First
@issarice
@issarice 10 месяцев назад
Where can I get this device?
@jean-baptisteroelands7303
@jean-baptisteroelands7303 Год назад
😢😮❤❤❤❤❤🎉😮
@johnhalbe6530
@johnhalbe6530 Год назад
This disease is a waste a resources and a waste of money
@before1995
@before1995 Год назад
She is a really ALS girl or just showing people what ALS like?
@C4milxx
@C4milxx 2 дня назад
We have ALS.
@dzakekrodriguez822
@dzakekrodriguez822 Год назад
😅😊❤😊
@madameg8603
@madameg8603 Год назад
That guy does not look 56!
@xSeeJay91x
@xSeeJay91x Год назад
I was this in tetany attack (low ionized calcium level).
@Thetrurth
@Thetrurth Год назад
What after this test if comes positive or issue with sniffing please what the treatment
@o0jency0o
@o0jency0o Год назад
Or because his first language isn't English so she wants to make sure that he understands for the video.
@AM000
@AM000 Год назад
mans not 56 yo
@TDIPower123
@TDIPower123 Год назад
1:29 hope she messes her diaper while this struggle
@TDIPower123
@TDIPower123 Год назад
Her diaper must be full after this
@freedacrew
@freedacrew Год назад
Happens to me often, as a c1 quadriplegic and yes probably
@TDIPower123
@TDIPower123 Год назад
@@freedacrew must be hard to clean and change the diaper while sitting in wheelchair
@freedacrew
@freedacrew Год назад
@@TDIPower123 yes
@TDIPower123
@TDIPower123 Год назад
@@freedacrew can you change your diaper without held ?
@TDIPower123
@TDIPower123 Год назад
Does she wear diapers ?
@C4milxx
@C4milxx 2 дня назад
I dont know in her case, but in my case i do, we have the same disease so i guess she use them too
@tufaildawar1451
@tufaildawar1451 Год назад
vitalograph machine????? or spirometer?
@91rinoa
@91rinoa Год назад
omg why is she talking like this
@robmetcalfe
@robmetcalfe Год назад
Mine is because of producing too much stomach acid from too much alcohol. I try to control my drinking and always take omoprizol to quell the acid.
@claireo8987
@claireo8987 2 года назад
The Larson Maneuver stops laryngospasms! ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-eIdWRYOQenQ.html Now when I feel a spasm coming on, I just push behind my ear with one finger. The spasm stops within 1-2 breaths; sometimes it even prevents a spasm entirely. This has worked every single time for me, thank goodness! Hope it works for you all too 🙏
@come-crime-with-me
@come-crime-with-me 2 года назад
Nicely explained but why is she sounding like a robot
@thought4u598
@thought4u598 2 года назад
Other nostril should have been closed before sniffing
@blackpantheress254
@blackpantheress254 2 года назад
Shidd I have been having this for 3 days now, these doctors are so misleading and always try to make it out to be like a panic attack or mental issue and it's just not true. This is happening on it's on and came out of nowhere. Why must we beg doctors to really listen to us. I am headed to the ear nose and throat doctor soon wish me luck
@xSeeJay91x
@xSeeJay91x 2 года назад
I had this after to much alcohol.
@ayokay123
@ayokay123 2 года назад
Is this woman autistic?
@amyamy6709
@amyamy6709 2 года назад
I wake up from a deep sleep multiple times in my life…very frightening. I then stick my head in the freezer and breath in, it stops completely
@lyndawinship9855
@lyndawinship9855 6 месяцев назад
Oh I must try this . Thankyou for sharing . It is terrifying xx
@michaelrichardson6051
@michaelrichardson6051 2 года назад
I've had this since my 20s, now in my 70s. Dr. says caused by acid reflux. Like everybody says STAY CLAM, I know hard to do, take shallow breaths and it will pass. Just a chronic condition. Don't eat late at night, keep head elevated, helps ward it off at night.
@sensei1358
@sensei1358 9 месяцев назад
Thank you. I’m 17 and I have this since a week.
@irenedavo3768
@irenedavo3768 2 года назад
Have you seen Lifevac?
@nutajusin
@nutajusin 2 года назад
can anyone translate in english please, what the woman is saying?
@tinsje11
@tinsje11 7 месяцев назад
She speaking Dutch and just saying keep calm, breathe in, breathe out etc. I am Dutch as well and experience this approx 3 times/week. Gotten used to it but it still is frightening.
@taniabakalova2922
@taniabakalova2922 2 года назад
''eddŋdrmdjdcfggcvglgkgdlfckvkff
@janbroert
@janbroert 2 года назад
Herkenbaar verhaal van de revalidatiearts. Ik zit in (als patiënt) in een soortgelijke situatie…
@kbyrd4840
@kbyrd4840 2 года назад
Wow these two androids look very life like.
@come-crime-with-me
@come-crime-with-me 2 года назад
Was thinking the same
@demitriwelling1348
@demitriwelling1348 2 года назад
Excellent
@rosemarywright3513
@rosemarywright3513 2 года назад
I have ALS/MND and have been experiencing this as a result of a slight choke on liquids. It is absolutely terrifying. I'm not sure my doctor fully appreciates what is happening to me, rather explaining it as the result of spasticity in the neck muscles...
@silviaacostapatron7488
@silviaacostapatron7488 2 года назад
at this moment I´m recovering from that terrifying sensation after a laryngospasme...a slight choke with my own saliva....absolutely terrifying indeed....thanks for your comment, it made me feel supported
@jensdevos8972
@jensdevos8972 2 года назад
Pov je bent hier voor bio
@hoiikbeneenkip3308
@hoiikbeneenkip3308 2 года назад
Ik ook man
@rzhang7808
@rzhang7808 3 года назад
Sit upright, hhha
@hers6451
@hers6451 3 года назад
All I can do was LMAO!
@user-ii9we3hc4h
@user-ii9we3hc4h 2 года назад
"Everyone has left the room now and it's just the two of us..." and "Blow hard! Harder! Keep going, blow blow blow! A little more, almost there." The guy was literally trying his best not to burst out laughing.
@thomasst4312
@thomasst4312 3 года назад
Lol
@mankillsquare
@mankillsquare 3 года назад
Oh wow, I’m so sorry to see you have an unboxing channel. My heart goes out to you man. Hope you manage to work your issues out and get back to a normal life. X
@concharomero5391
@concharomero5391 3 года назад
DOn´t clossed the other noise ?
@chaiyoatid7996
@chaiyoatid7996 3 года назад
I am Herpes virus negative now, Dr Madida at RU-vid did helped me cure this virus with his herbal medicine.
@ThestrongMetro
@ThestrongMetro 3 года назад
hahahahahahahhaahahahahahha
@averysgranny
@averysgranny 3 года назад
?
@boureychin830
@boureychin830 3 года назад
This is a promise I made to *Dr Madida* that if he can cure me of my Human papilloma virus that I will tell everyone about his great herbal service and truly he cured me with his herbal medications. Dr Madida is truly a great herbal healer.
@yasmine3626
@yasmine3626 3 года назад
Hi everyone, my dad was diagnosed with Nurion motor Als disease and they told us there is no cure for it. But I want to thank Dr Ifa who reversed my dad Als with his herbal medicine treatment and I will continue to testify about treating him and God will bless you more. He can cure..Als, Herpes Hsv-1&2, HIV, HPV, Cancer, atonic seizures, reach him through Gmail: drifahome@gmail.com Doctor website: drifahomecentre.jimdosite.com
@yasmine3626
@yasmine3626 3 года назад
Hi everyone, my dad was diagnosed with Nurion motor Als disease and they told us there is no cure for it. But I want to thank Dr Ifa who reversed my dad Als with his herbal medicine treatment and I will continue to testify about treating him and God will bless you more. He can cure.,,,...Als, Herpes Hsv-1&2, HIV, HPV, Cancer, atonic seizures, reach him through Gmail.. drifahome@gmail.com Doctor website: drifahomecentre.jimdosite.com
@SurendraKumar-he3kc
@SurendraKumar-he3kc 3 года назад
Oh god, so is laryngospasm!! Too copy same act was with my father for 10 days, in duration of covid positivity, in india ENT dr just by telemedicine just started post covid hiccups treatment !!! But after watching this video...o my god...that was laryngospasm !!!!!! Anyways God saved him finally