PMD Alliance connects those impacted by Parkinson's and other movement disorders (PMD+) with the resources, expert guidance, and community support they need to thrive RIGHT NOW.
Whether it’s those living with a diagnosis, their care partners, adult children, support group leaders, or healthcare providers, PMD Alliance meets community needs by educating and empowering with free, high-quality events, resources, and community groups, as well as cutting edge continuing medical education opportunities for healthcare professionals.
We’re weaving a powerful network of those impacted by every movement-based, neurological disorder, because we’re stronger together. The PMD+ community embraces all those with Parkinson’s, essential tremor, Lewy Body dementia, Huntington’s disease, multiple system atrophy, tardive dyskinesia, and more, as well as those who play a role in supporting or caring for them.
Just a few comments on the information here: You can actually enroll in Part D if you have only Part A. If you are on an employer plan, it Is important to determine if your employer plan is creditable or non-creditable for Part D. This indicates whether the employer plan expected to pay as much or more as a Part D plan. If it is non-creditable, then you will still be subject to the Part D late enrollment penalty when you do enroll in Part D. (This detail does not apply for Part B.)
So suspected PK without expected response to CL. We tried the myobi and it actually made her worse. She actually responded once to a cueing from a guitar tuner with a beat maker/ vibration one day at which time she had remarkable temporary gait. her > sxs is freezing of gait. Since then I have not been able to reproduce this. Often wonder if the CUE1 avaILavailable in the UK could benefit PSP? or even Dr peter Tass Gloves?.
This is a very informative video. Thank you. My husband had DBS therapy April 2023 @ UCSF in California. It has definitely been a life changing experience for him. We are ever so grateful for this technology and to those who pursue, research and perform this amazing work.
Thank you very much Dr. Shprecher. Your analysis of difficult diagnosis is very clear. A very challenging clinical diagnosis. Is is common in Atypical Parkinson's to have a tremor on one side with bradykinesia present on the contralateral side?
Muchas gracias excelente tema. Debemos combinar los 4 tipos de ejercicios empezar con nivel principiante e ir avanzando según el desarrollo de la fuerza y masa muscular
Our Movement Disorder Specialist seems to have lost interest in treating my husband as he has progressed into an advanced stage. He isn’t interested in trying to make him more comfortable, any therapy, trying to adjust meds. Our doctor just suggests there’s not much that can be done, refers us to palliative care, which was only interested in us filling out forms to not resuscitate or intubate. He has ended up hospitalized twice in two years for an extended period which was terrible. Hospital standards whether you’re a Parkinson’s patient or not , can give a Rx dosage one hour early or one hour late, which is horrible for a PD patient. My husband each time came in to ER as he went into a decline where he was deteriorating in his ability to walk, and having new onset of psychosis. The only help we got from our Movement Disorder Specialist, was to increase Sinemet intervals and introduce, then increase the antipsychotic Seroquel (Quetiapine), which is an antidopamine. Everything just got worse, no troubleshooting, just told this is late stage and there’s palliative care, which seriously turned out to be a bridge to hospice. Very disappointing. I wish there were more Movement Disorder Specialists available. They are in short supply, so it’s hard to even get in for an appointment, and since the pandemic, they really prefer video appointments which don’t feel adequate for evaluation. Sorry, had to rant. It’s so depressing as a caregiver. 😢
Well. Guess my part D insurance will dramatically increase! Only $7 per month now. Monthly scripts cost $0 at the pharmacy. HWP’s is pretty cheap too and monthly meds are low costs at the pharmacy. Wonder how much of a shock it will be?
Good try by this doctor but I think he’s way off the mark. I sense it’s much more to do with the fact that our mitochondrial function is severely compromised. These are the generators of energy and if they can’t rid themselves of waste then they can’t generate energy. Fasting is probably the solution as well as exercise.
I’m a drummer, over the last 2 years I noticed my left arm was losing coordination speed and velocity. I was recently diagnosed with Parkinson’s. This explains what’s been happening with my left hand/arm and why I can barley play a drum role like I used to.
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on RU-vid cured my Parkinson Disease with their PD treatment protocol🌱🌱🌱..
I hv a cyst in pitutary gland, a bunch of symptoms from yrs togethr. Inappropriate sinus tachycardia with pots, probable autonomic dysfunction wid suspected case of autonomic neuropathy. Hv a bunch of symptoms the most terrifying being eye imbalance, vision issues, gait issues, severe bone pain n much more. Rhomberg is positive. Neurologist says its vestibular dysfunction. Have hypertension from two years now. Cant take beta blockers as its giving chest heaviness n breathlessness. More of postural hypertension. Hv been advised pet ct scan to rule out paraneoplastic lesion. How much is pet ct helpful in movement disorders??bp kind of shoots all of a sudden
So, the botulism toxin, one of the most toxic elements known to man, itself induces 'movement disorders' like Tardive Dyskinesia, yet - as a treatment - more botulism toxin is suggested. Americans who would fall for this, have to be some of the stupidest people to walk the earth in 6,000 years of human history.
Need help finding a “Dopamine Agonist” that doesn’t have the side effects like C/L. What else is out there to stimulate Dopamine - without the mania, constipation and nightmares? Mucuna and B1 ( maybe not taking enough) don’t seem to be doing enough and the C/L causes other awful, debilitating ( nightmares, etc) side effects in my HWP.. But w/o the Dopamine Agonist, they aren’t as active and not wanting to do as much.. Anyone have experience w / Selegiline? Doing Mucuna, L-Dopa, L- Theanine and B1- but not making a dent yet. Am I not giving right iteration or dosage? Thanks in advance🙏🏽
Hola. Padre tiene Parkinson y cadabes que almuerza le baja la presión 95/55 ejemplo. El es hipertenso y toma 1/2 pastilla en la mañana y en la noche. ¿es parte de la enfermedad ?
I am musician and this description of this problematic/s synthoms with my right hand is/are 100% precise... I have antiphospholipid syndrome and seems bradykinesia is a symthom of my desease. They diagnosed me focal dystonya but I always feel it was not that.
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌..
I have just recently been diagnosed with PD. Mild symptoms but nonetheless annoying. Thank you for all this great information! It makes me a lot less depressed for sure!
Es tan importante tener estos conocimientos, mismos que nunca había oido de un médico a sus pacientes, los felicito, Dr. Dr. Michael Alosilla Neurólogo, Es un gusto escucharlo , su explicación es muy clara y profesional
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again.’’
Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain😊”..
Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain😊”..
In San Diego I have seen no African Americans at All in my appointment or nurse or therapy or anything. Plus no one discusses women with menopause.....
Tengo parkinson fui operado el pasado noviembre del 2023. solo me implantaron un electrodo para estimular el lado izquierdo. aun esta pendiente otra operacion. gracias.