MS stops people from moving. The National MS Society exists to make sure it doesn't.
We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
Suddenly, after walking 5 miles a day, I could barely walk. I have had also had invisible symptoms . I am frustrated and have no diagnosis. I am 77. At 74, I walked 5 miles a day and then suddenly could barely walk and still can't. Bowel and Bladder yadda yadda. Even if there is no treatment, I would feel vindicated if there were a diagnosis.
It’s neurologists like him that make it difficult to get diagnosed. He appears to lean toward “this is uncommon; so it is discarded”. Meanwhile, I am one of the 5% who has severe hearing loss in one ear, and I have trigeminal neuralgia…. and I have debilitating migraines. I have gone YEARS without treatment bc of doctors who appear to have the same attitude as this one. Finally I got a lumbar puncture and I am positive, 6 Oligo Bands and very high inflammation. I believe the migraines are caused by inflammation caused by M.S.
We understand what that feels like. Please know that we are here to help. You can reach out to our team of MS Navigators any time at: ntlms.org/ConnectMSNavigator
En primer lugar, toda la fuerza y el ánimo. Tengo un familiar con Esclerosis, al principio parece un diagnóstico terrible pero hay muchos tratamientos y cada vez surgen más. Trabajo para una empresa de estudios de mercado especializada en enfermedades. Si alguien está interesado en el realizar encuestas y estudios, ganar algo de dinero a la vez que colabora en el desarrollo por favor que me contacte. Simplemente si alguien quiere hablar de su enfermedad o lo que sea aquí estoy disponible. Un saludo y un gran abrazo
En primer lugar, toda la fuerza y el ánimo. Tengo un familiar con Esclerosis, al principio parece un diagnóstico terrible pero hay muchos tratamientos y cada vez surgen más. Trabajo para una empresa de estudios de mercado especializada en enfermedades. Si alguien está interesado en el realizar encuestas y estudios, ganar algo de dinero a la vez que colabora en el desarrollo por favor que me contacte. Simplemente si alguien quiere hablar de su enfermedad o lo que sea aquí estoy disponible. Un saludo y un gran abrazo
So what is your “ actual “ service record ? You stated to me that you had MS and served a year in the Navy prior to discharge. So why is there another interview with you saying you served 10 years ? I know, you’re a straight LIAR !! Stolen valor !!!
my mother had primary progressive MS. she was already in bad shape, completely bed bound, unable to speak, having seizures, and had a feeding tube 19 years after diagnosis. 23 years after diagnosis she was put in the hospital for seizures, the nurse put her ensure in her feeding tube and laid her back down. food went back up her esophagus, and she aspirated it, and died of double pneumonia. I was almost 19 at the time and she was 48. Primary Progressive MS is a horrible disease. 0
Can I ask a niche question: I was born with some of these neurologic symptoms because I have cerebral palsy: spasticity, lack of coordination, imbalance. But CP isn't progressive, and in recent years I've had scenarios of new potentially neurological symptoms. Because of the overlap in the clinical exam picture, does a primary care physician need to rely on imagining to differentiate a condition like MS from CP or complication of CP? Or is it something the a neurologist would need to evaluate?
u must think this way what worked then no longer work your brain say ok but the body says no way .we r know longer an automatic we have been down graded 2 a clutch before we get it in gear, engage the clutch then release it an put it in hope this works 4 you change the way u think.1 step at a time go 4 it good luck.
Gracias a la tecnología nutrigenomica mi abuelo mejoró muchísimo su esclerosis múltiple a tal grado que ya no toma ningún medicamento y dejó la silla de ruedas. Se las recomiendo ampliamente. 🙏
I’m pretty sure I have it. I saw a neurologist who diagnosed me with Idiopathic Peripheral Neuropathy in from my toes up to my knees in both legs and from my finger tips to my elbows in both arms but she never ordered a CAT scan. Now my eyes are doing weird stuff.
To all those struggling with MS or similar disabling illnesses; don't do what I did/do and struggle alone indefinitely, many families, friends, and even some doctors, are ill equipped to help/understand. Don't give up on yourself, find a group of others struggling as well that will listen and understand, make some friendships that have meaning. Humans don't understand that there are many levels of suffering and hardship, and they won't be able to understand that fact until they've experienced the levels themselves. Hopefully they never have to! Think of it like the pain scale at a doctors office, it's almost a joke using that as a tool since someone's 10 may be a 1 to those who have embraced suffering on a daily basis. Not to mention it only "scales" something which is readily treatable at the office/hospital/medical center(patient in patient out mentality, we should enter and exit on conveyor belts to add to the insult). You can't push through muscle weakness, fatigue, and a complete lack of energy production including unrefreshing sleep. Imagine waking up every day exhausted after having had your worst nightmare only to realize that it's just your new reality. You'll almost laugh at the fact you can't have actual nightmares anymore and all irrational fears in life do not exist to you anymore. Reach out for help using any means available early on and live your life to the fullest of your ability.
How about using the research for an actual cure plan!?! These daily meds that are being price gouged are not a viable solution for the patients or the planet.
I was told 24 years ago great, new treatments were coming within the next few years. Nothing has really materialized. People are still getting in wheelchairs. The only thing that seems to be progressing is this horrific disease. Unacceptable.
How can I get medication without insurance? I lost everything due to MS. I don't have any income and the doctors canceled my future appointments because I lost my medical insurance. I'm currently waiting to see a hearing judge for a decision on disability. Medical insurance was canceled due to a paperwork error but it's been 6 months since I can get an answer am I an application for medical insurance. F SSA found out I am trying to get disability so there are making me apply for state disability that will carry me until federal disability kicks in which creates another merry-go-round. I need some actual help.
Good luck buddy and hope it’s approved and turns out well for you 🤞🏽… the MAFIA SOCIETY (MS) is only good at advocating and fundraising for their own benefit in my opinion. With a bit of luck and who knows, maybe we will get somewhere in another 78 years…
@@grifter_alertThank you. I need the blessings I'm begining to think the same. Everyone I talk to wants me to do all the fundraising but send them the money so they can then take what they want before helping. I'm like if I could do all that then I wouldn't need them. Gotta get their 80% cut.
My Mom had MS from 1998-2020 there wasn't much information available noone seemed to know much about it including her doctor her in NC. I have Rheumatoid Arthritis and will have a MRI 8/28/24 to see if I have MS as well. I have developed Dysphonia since 2021 with no change after Speech therapy. I am a RN and I was my parents caretaker. My dad had cancer three times from years 1986-2006. So I am a very seasoned professional in the BS of life. Pray for me I do not have this wretched disease. I am on disability already for RA. My insurance is wonderful!! Praise GOD!! God Bless You All as well!! 🤗😘🌹
i got convinced that food is a big part of the problem and stopped having breakfast, and surprisingly. my condition improved a little, not a big, but noticeable improvement
The endurance, at stages do not exist. Especially without the necessary care. They no longer give the prednisone prednisolone, to assist or the nerve medications. etc. nor are they concerned with endurance, longevity or, success in exercise programs. or any quality of life at all.
I’ll live in the United states in the state of Georgia. I lost my job at age 52 and I. I found it really challenging to find another job. At that time I had been diagnosed with multiple sclerosis for about 14 years. I had a three fold problem. I was over 50, no degree, and I had a disability. I pinpointed where I wanted to work and what exact position. I stayed focused on that position and that employer and looked all over the nearby cities until I found the position that was open and where I was hired. It took about three months… Not very long really! I can’t remember back exactly but I think I was very honest and divulged my multiple sclerosis as well. I don’t think that’s always the best thing to do. I have been working in the role now for five years and it’s perfect for me. It’s a Office job air conditioning heating and I haven’t had any major disturbances with my disability.
