ASCP is the world's largest society of pathologists and laboratory professionals comprising pathologists, doctoral-level laboratory scientists, and a host of laboratory professionals, including pathologists' assistants, medical laboratory scientists, cytotechnologists, histotechnologists, histologic technicians, phlebotomists, medical laboratory technicians, and numerous laboratory specialists.
My materal uncle has recently been diagnosed with behcets he was prescribed with corticosteroids and immunosuppresants by rheumatologist and he was doing well but as soon as the doses of the steroids went down he suddenly had the disease attacked in his digestive system and he had to get operated for it and doctors didn't told us anything about diet and all but can wheat and gluten cause this diseases flare up?? If anybody knows please let me know do he needs to stop eating wheat as i know tht autoimmune diseases that cause inflammation get worse with wheat intake as it contains gluten???
Most are like me if in an HMO, passed from doctor to doctor and told you most likely have a form of vasculitis but only rheumatologists can make the diagnosis. Go there, get told all kinds of ignorant stuff. Suffer with it for 30 years being given steroid drugs to control it and still no diagnosis. I’ve had every Behcets symptom blisters everywhere depending on the episode, eyes, internal bleeding, bumps blood blister in the throat etc. Doctors don’t like to diagnose rare conditions
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Thank you for sharing your amazing story. I am facing with Behçet's disease as well. I got uveitis retinal vasculitis at 15 and now I'm 25. My ophthalmologist believes that it's Behcet's because they always check my body, blood cells both red and white, even my organs, all things are normal except my eyes that they didn't know how it happens. I spent my youth at hospital, got treatment every 2 month, took medications more than 5 pills in different types everyday. However, now I decided to studying aboard even this disease still appears. Someday I will be blurred person due to this disease, so if I have any chance to do what I want, I will grab this and do before I cannot. Your story really means to me and I hope anyone who faces with this disease goes well.
lovely video, I have had behcet's syndrome for over 20 years I am on a biological that seems to help, it is a cruel painful syndrome but with care support and the doctors it is bearable, I am under the combined behcet's centre of excellence at the royal london hospital, I wish you all the best take care x
Let me tell you: This bite hurts and it lingers a very long time. I have surrered (and suffer daily), chronic nerve pain much worse than this bite, but you won't be able to touch the bite area comfortably for a couple of months, at least. This venom is really toxic.
I’m so relieved right now. I have been researching for YEARS & now I think I solved this. In Boston - where we supposedly have the best medical care in the WORLD - but somehow no one could bother taking me seriously - just pass me around specialist to specialist. I’m done taking this from doctors - I am going to bring my boyfriend, and mom in with me too. Maybe then they’ll take me seriously..even though I’m a 38 year old woman - not sure if my adhd meds were masking some symptoms for a while or if i went into a remission but ugh relief. Literally making my appt now.
As a 50something year old woman I had absolutely given up on specialists- we live in a rural community and specialists are more than a 3 hour drive away. I went to them all, they dealt with symptoms I had but I gave up on going to them it was never any real answers. I didn’t expect a diagnosis when I went to the new local doctor we got.. he sat with me for an hour and a half. He had studied my chart prior to seeing me in our local clinic and I walked away knowing there might be an overreaching diagnosis. I have 5 of the symptoms for the diagnosis before I even going to the eye specialist.
Im new to the behcets world and its confusing. Because im so scared of a flare up i have a question. For those getting infusion treatments (biologics/infleximab) do flare ups still happen? I just got off of prednisone and only getting infusions so im just scared now that symptoms will come back. You all are amazing for going through this journey! ❤
I am delivering a sermon to you 🙏😊 please read Consistently Pray for forgiveness, guidance in a good (positive) direction, and for help against evil. Pray to be saved from hell (whatever that may be). Pray for your friends and your family too, it only takes a minute or so/less at a time to pray. Do it and your life will slowly get better, or maybe quickly. It probably just depends on you and the kind of person you are/have been. Don't wait until its too late and you have to suffer the consequences of built up bad karma from immoral acts/unrepented sins. Maybe together we can help make the world a better place by changing ourselves for the better, and changing things around us for the better. And addressing/thanking the CREATOR, LORD GOD at the beginning and end of your prayers would be a good idea 😊 Or just be my friend if you don't want to say the prayer 😄 I'm trying to help you get right with the LORD 🙏 Amen. I have worded a short prayer for you to say if you are not sure what words to use, it may not be the best but here it is 😊 '' CREATOR, LORD GOD, Please forgive me and my friends and my family for our immoral acts, please help guide us in a positive direction and please help us against evil. Please save us from Hell and have mercy on our souls. Thank you CREATOR, LORD GOD. Amen. '' Please say this at least once a day for at least a month, do it longer if you want to and can 🙏 You should prostrate yourself if you don't want to do spoken prayer, or do both 🙏🙏🙏🙏😊 Please worship the LORD GOD and not any idol. Please put your hands together 🙏 bow your head and say this prayer: "CREATOR, LORD GOD, please know that I worship you and not any idols. Thank you for everything CREATOR, LORD GOD. Amen" Say ' Om Namah Shivaya ' out loud or in your head 108 times, or try to do it 1008 times 😊 try to do it everyday if you want repeat this aloud for as long as you want to, try to do it for like an hour a day or say it in a prayer "Lord Jesus Christ, Son of God, have mercy on me, a sinner" You can also say this prayer once a day or repeat it aloud as many times as you would like to: "Hail Mary, full of grace. The Lord is with thee. Blessed art thou amongst women, and blessed is the fruit of thy womb, Jesus. Holy Mary, pray for us sinners, now and at the hour of our death, Amen." Thessalonians 5:16-18 "Rejoice always, pray without ceasing, give thanks in all circumstances; for this is the will of God in Christ Jesus for you." Philippians 4:6-7 "Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." "O Blood and Water, which gushed forth from the Heart of Jesus as a fount of mercy for us, I trust in You!" Repeat this aloud at least 3 times or as many as you want, do it everyday if you can I apologize for all the words 😊 I know how it may look
I clicked on this video because I have the trait, malik looks almost identical to how I looked at that age in the thumb nail and my name is Michael. I’m glad it turned out well
Any of you begin the process with a rheumatologist to find out what’s going on with you and gotten results of HLAB 07 and 39? I still haven’t gotten an diagnosis yet. But I would like to know if anyone seen this and what happened next.
The rheumatologist was the last dr I got to before my diagnosis but that is the best place to start! Depending on your symptoms they will rule out everything else. Unfortunately there's no lab tests to confirm Behçets, it's usually diagnosed based off of ruling out everything else and your symptoms.
Have had different symptoms for months and finally went to the GI. After explaining my symptoms, she immediately said she thinks it’s Behcets’. I didn’t even know this existed. Now i have so many tests to get through to get the diagnosis.
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I am 55 yrs old with hemoglobin SC. I had great complications with sickle cell at a young child. As an adult I rarely have issues but I remain under medical care and follow up on my eyes which are SC can compromise organs like the eyes. I stay hydrated, exercise, eat a healthy and balanced diet and try to remove stress from my life as it does bring on cramping in my joints. Praying that everyone afflicted with this disease find comfort and relief.
I have a similar story. I got oral ulcers at five, and it has gotten worse and now I’m 24. I’ve had over 100 mouth ulcers in a year. They’re so painful. My rheumatologist believes it’s Behcet’s. Your story really means a lot to me and I hope all goes well
i had it every day until corticosteroids therapy. now when im on mediication (high doses of steroids) i have none. but steroids come with a lot of negative side effect
I got diagnosed 2 years ago at age 22 and I’ve lost sight in my left eye unfortunately but my doctors don’t really seem to care so it’s frustrating. I take low dose steroids on and off for flareups but that’s it. I have all the criteria including attacks of aseptic meningitis and epilepsy. You would think that would make them put me on something but oh well.
My younger brother is going through the bone marrow procedure journey now and it’s the hardest thing he’s been through, his surgery is for sept 1st, please keep him in prayers! ❤️
How is he doing now? The procedures may be gruesome right now, but it's worth a try because it could radically improve the quality of his life going forward.
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