What an incredible man and story. A dear friend of the family, Nancy, just passed away recently from a GBM. She was sick for a long time and was hesitant to go to the doctor and by the time they found out what was going on she was ready for hospice. So incredibly heartbreaking. I'm so happy to hear a GOOD story about a GBM survivor...there aren't very many good stories, many sad ones. Another inspirational young man is The Shape Game here on youtube! His name is William and I believe he is a 5+ year survivor that's had a great outlook and positive attitude throughout his journey Thank you David, I am so glad you are here ☀️
He a rare case ,hopefully one day all will have a chance to survive. My brother had glioblastoma he survive only a week granted never knew when it started , he had multiple seizure went to er ,got diagnosed via cat/ MRI scans. We were told he wouldn’t survive a biopsy ,stay a couple of days in hospital then sent home on hospice . Lost my brother 4 days later.
GBM Agile is a trial currently being led by GCAR: Global Coalition of Adaptive Research. You can learn more by visiting www.gcaresearch.org/research/gbm-agile/
Thank you and may the Lord bless you. 🙏🏼 I have recently been diagnosed with Grade IV unmethylated GBM at 67 years of age. Started Temozolomide and Radiotherapy this week. Trying to learn more about treatments. ❤️ 😰
They connect to the audio box which is also connected to the microphones! Helps us hear how loud we speak into the microphones and make sure there's no annoying background noise 😄
Great interview David! Thank you David and the GBM Research Org. for doing such incredible work in the GBM community and research. Your story is very inspiring and it’s so awesome that it has reached so many people in need of hope, help and understanding. Really proud of you. ❤
Lost my sister about 6 months ago. She lived 2 1/2 yrs with it. So sorry for your loss. I definitely believe in alternative protocols which my sister didn't do. Terrible disease.
Loosing my daughter in law slowly 2.5 years since her surgery, hoping for more time even though she isn’t the girl she once was, blind and confused she has 2 little girls who love her dearly.
How does he get credited as the "longest GBM survivor in the US" at 20 years from diagnosis? There's someone who works at the neurosurgery clinic here in Cincinnati that's over 30 years from dx, and there are a few 30+ year survivors I've talked to online - not sure if they're all in the US but at least one of them is. There are hundreds of 20+ year GBM survivors in the US. It's obviously not the norm, but it's a solid chunk of people.
That’s great to hear! Perhaps you can get some of these 30+ year survivors you know to connect with the Glioblastoma Research Organization and share their stories.
Wow ... unbelievable interview 👏👏thank you for sharing...Positive attitude.. positive thoughts.. positive outcome...Good luck to you David & your fiance...lots of love and happiness and cute babies...🙏❤️🍀🤞🍀😊
Wow, this is a great story. It is not all that surprising you had bad side effects from the chemo and radiation, but to then get radiation induced cancer? That is horrible. Have you looked into DCVax-L? Like you, Brad Silver is alive and well with NO RECURRENCE since 2003. Also, he had no adverse side effects from the DCVax-L cancer vaccine. No horrible rounds of poisons, radiation, or an optune cap you have to wear 24/7. I also think Jennifer Sugioka may be living (again, with no recurrence the last I heard) because of DCVax-L. Jennifer was diagnosed with gbm in 1999 or 2000. Apparently there are DOZENS more long term survivors of glioblastoma if you google for them. So David, you are part of that club.
What a lovely interview ❤ thank you for this! David is so kind 🙏 I reached out to him back in the day one ofbmy best friends was diagnosed with GBM. I lived a little bit longer than what the doctors predicted but sadly Brazil health system had so much negligence, he was also fighting the system besides GBM. Staying around people who fought together with him, made his last months be filled with love and courage. He never allowed negativity in, even on his last hours.
I am 52 and childhoood cancer survivor. I was diagnosed with Wilm’s tumor in 1977 at age of 6. I had a left nephrectomy with 2 years of chemotherapy and cobalt radiation. Lucky for me I had an 85% cure rate. I did great until 1997 I was discharged with Papillary thyroid cancer and had a total Thyroidectomy. It was a rough few years, but life became more normal. At this time I had been Oncology nurse for 3 years. In 2012 I relapsed with Thyroid cancer. I had a butterfly mass on my layreangeal nerve. I had 2 amazing surgeons. Life moves on and I was diagnosed with a Leomyosarcoma of the abdomen. My mass was near renal artery and was about 4x4 mass with clear margins. That was the most difficult Surgery I have had to go through. All my surgeons agree that Cobalt radiation had a lot to do with all my cancers. I am a slow healer to the abdomen. I have also been a nurse for 30 years. Being on both sides has humbled me. I thank God everyday for life I have been given. I am thinking about starting a podcast for long term pediatric patients that have survived and are looking for support as there have been many more challenges that we all have faced. I absolutely loved listening to this interview. I am writing a similar story. I would have no idea on how to start a podcast, but if you could reach out I would love that.
Has anyone ever told you that Cobalt Radiation can cause other cancer years later? I had Cobalt Radiation when I was a toddler for tumors in my trachea. Twenty five years later I had a thyroidectomy due to 4 precancerous tumors on my thyroid. I was told it was probably caused by the Cobalt Radiation. Three years ago I was treated for breast cancer and I was very nervous to have radiation again. It can be frightening.
@@darlenepietzak9847my spouse had childhood cancer and has developed cancer again 14 years later the oncologists are 99% sure it was from radiation she received as a child it’s devastating.,
My dad was just diagnosed with Butterfly Glioblastoma. They removed a lot of it however it's all throughout his frontal lobe as well as some in the back of his brain. He thinks he's 95% himself but he's not. It's been a month since his craniotomy. He thinks with chemo and radiation he will be able to live a year even though the oncologist said 16 weeks with treatment. I don't know how to help him understand.
Amber, I still watch you you and support doing great job. Love you so much just because you doing what you’re doing. My husband is still fighting it not easy. Your mom knows what I am going through. Keep doing, love you❤❤❤😂
My heart is with you beautiful, my husband has glioblastoma, 10 months, still doing ok. He is now on lomustine. Recurrent glioblastoma last 2 MRI . Wish you the best.
I loved this, Jordy is such an inspiration and I’m so happy you have these podcasts, thank you!you two are both amazing, strong women and doing so much for so many❤️❤️❤👏🏻👏🏻👏🏻
I know what Kelly Kelly is going through. I lost my Dad 31 yrs. Ago and I lost my Mom 11 yrs. Ago both from Cancer. Its still hard for me especially around Birthdays and Holidays. I will never forget about them and I'm always always always thinking about them. Love You Alot Always Princess ( Kelly Kelly) B.T.W LOVE LOVE LOVE YOUR LONG LONG AMAZING PHENOMENAL HEALTHY THICK SEXY SEXY SHINY HAIR HAIRSTYLE AND THE COLOR ❤ ❤ ❤ ❤ ❤ YOUR HAIR IS DEFINITELY ABSOLUTELY ❤ 💯% HEALTHY FULL OF BODY AND BOUNCE AND DEFINITELY SHINES LIKE SILK ❤ ❤ ❤ ❤ ❤ ABSOLUTELY 💯% AMAZING PHENOMENAL GORGEOUS STUNNING HEALTHY THICK SUPER SOFT SUPER SILKY SUPER SUPER SEXY AND DEFINITELY ABSOLUTELY 💯% 💯% SUPER SUPER SHINY HAIR THAT ALWAYS ALWAYS ALWAYS LOOKS NICE IN YOUR VIDEOS AND PHOTOS 📸 📷 🖼 🤳 ❤ 💖 YOU'RE SO SO PRETTY BEAUTIFUL GORGEOUS STUNNING ELEGANT CLASSY ADORABLE AND YOU'RE A SWEETHEART ❤ ❤ ❤ ❤ ❤ YOU'RE DEFINITELY ABSOLUTELY ❤ 💯% A PRINCESS AND A GODDESS AND DEFINITELY ABSOLUTELY 💯% A PERFECT 10 ❤ ❤ ❤ ❤ ❤ 😂 ❤ 😂 ❤ 😂 PLEASE!! PLEASE!! STAY SAFE AND STAY HEALTHY 🙏 ❤ 💙 💓 💕 TAKE CARE AND GOD BLESS 🙏 ❤ 💙 💓 💕 LOVE LOVE LOVE YOU SO SO MUCH PRINCESS ALWAYS 🙏 ❤ 💙 💓 💕 👸 LOTS OF HUGS AND KISSES ALWAYS 🙏 ❤ 💙 💓 💕 💋
Love you beatiful, doinggood job. My family move from Croatia to Canada 1998. My husbend 2023 in August was diagnosted with Glioblastoma. It is April 2024. HE IS STILL DOING GOOD ❤❤❤❤
My husband was diagnosed with Glioblastoma grade IV. He’s had surgery for removal of the tumour but before we could start radiation the tumour has already grown. We start radiation soon but what’s the path after that ..can anyone help.
Also everyone who is searching for the path to health, I’m hoping that your hear truth and do the best you can to cope. I am so thankful to be learning! I’m going to look for a trial to help me get to back to my dream! My dream is playing lots of golf with the Amazing BMWGA golfing ladies and the leoladies came to take me to lunch. I feel very Thankful!
Thank y’all for sharing your path and what you learned! I had surgery for glio 12/07/2023. I am in process of choosing my path. I feel very lucky to be in this process. God Bless!!!
I love what your doing! I feel so bad sometimes, to look at my wife with her brave face, doing everything, while all I want to do is sleep. I think its harder on the carer than the patient.
