I support all different disabilities and unknowns conditions and as person with a learning disability I 100% be hand the to all disabilities and all unknowns disabilities ❤❤❤
My son current age is 1 year 5 months and he diagnosed as Soto's syndrome at 8months age and getting seizures from 6th month onwards with fever. he has facial expression problem, walking problem but he is able to sit and play his self. Any medication to change the facial expression and also seizures control. FYI so far 6 times seizures came in span of 1.5 years age.
I went to high school with a guy who had sotos and he did have a generous head size but other than that he was quite lanky and walked with an interesting gait.
"My child is normal here" Oh, your child is normal anywhere. It's the haters who are not normal. Your child is beautiful as well as ALL children. If someone is hating on you, they are ugly and not normal at all.
I loved the long-form format of the video. But I would like to hear more from the children. I would like to have then have more of a voice. But very well done.
I have lupus and no breakthrough has been discover for decades because all funding goes to cancer. I can say the same to all kinds of other diseases and syndrome.
2:56 Dude, you can say "intellectual disability". It's the correct term, as per Rosa's Law, so no one is going to verbally crucify you for using it, like they would if you used the pre-2010 term for intellectual disability.
Yeah it shouldn't be a shame having intellectual or a learning disability, doesn't make you less worthy or less of a a human. It's important to recognice too so that person can get support and gets a better chance at life. I hate when people are ashamed and trying to hide things, like it will stop existing then. Though it's disgusting when someone gets bullied for having an intellectual disability, so I do understand if kids specially don't want others to know or feel ashamed but it shouldn't be that way.
I notice though that the physical characteristics of these children causes them to be a bit good looking more so than your typical kids. I'm just saying.
My brother will be 41 on 14th March 2019. He was diagnosed with Sotos Syndrome at the age of 12... We're from Northern Ireland. He also has features of autism. My mum & dad had very little support on Robert. He has a heart murmur, arthritis & other health issues. I feel sad now in 2019 that back in 1978 my brother has little to no support.
@@nowandaround312 God doesn't cause suffering. Why would a god who loves us pick and choose who suffers and who doesn't? LIFE and its trials and tribulations cause suffering. We aren't promised a life free of pain and suffering but we are promised an eternity with our Creator if we believe.
Mann kann dankbar sein das ich gesunde 2 Mädchen habe es treibt mir die Tränen in den Augen wenn ich das Leid der Kinder sehe.und deren Eltern die sie mit Liebe aufziehen.und das grosse Leid ertragen.
Dear God, Please can you heal everyone that has Sotos Syndrome from head to toe inside and outside 💖 Please can you give them Exallant Health 💖 Thank You God 👍🍯💖 Amen 👍🍯💖
My son has an unknown syndrome and many of his features look like Sotos Syndrome, but he also was born with craniosynostosis and scoliosis. He also has sugnificant developemental delays. They are considered to be mild to moderate.
