For over 50 years, our mission at the National Headache Foundation has been to further awareness of headache and migraine as legitimate neurobiological diseases. Much has changed during this time. With aid from advanced technology and clinical innovation, there are more treatment options than ever before. However, we understand that these diseases are still largely misunderstood and that finding the right treatment options for you requires insight.
We have collected the most comprehensive information on headache disorders and migraine disease, which we make freely available to you. Every day, our health care provider finder connects patients, who have just begun to seek treatment or those who are looking for more options. In your continuing pursuit of the treatment and understanding that you deserve, please know that the National Headache Foundation is your partner. We have been inspiring hope since 1970.
Thank you for the suggestion! We will have to look into making an episode about both. In case you haven't seen them we do have some episodes that cover CSF leak (not specifically related to EDS). Low-Pressure Headache - Finding the Leak ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-ySestbdPsds.htmlsi=EwLJjMAWXZ0MbTIm Low Pressure Headache - ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-9PfVNtr3kWw.html
I've had chronic migraines my whole life, and i mean classic ones that turn you into a vegetable. For the first time in my life i was able to get to my chiropractor as one was beginning, he adjusted c1, c2 and a couple others to stimulate the vagus nerve and take pressure off the brain stem. As the migraine set in the pain never reached typical levels, and were gone along with nausea, the aura, and limb numbness within only 2 hours; mind you sinse childhood my migraines would last between 16 - 25 hours. Never had I ever experienced a migraine subverted until those adjustments.
HELP!!! I'm a Hypermobile EDS POTS patient with a headache that started Sunday 10/21/2007 and has never stopped!!!!! I've seen COUNTLESS doctors and was diagnosed at Stanford but no one has been able to make it go away. It's not a migraine that's been ruled out however NO ONE has been able to make it stop not even when hospitalized. The Mayo clinic does not have any answers either. PLEASE HELP WILL TRAVEL AND HAVE TRAVELED OUT OF STATE!!!
I'm 50 and currently being diagnosed with EDS and chronic migraines. I'm a complete mess. This topic has really helped, and I have a fantastic neurologist that I think can really help me. Thank you for this episode. I've been trying to get diagnosed for over 30 years with a number of comorbidities.
Thank you so much for sharing your journey with us. It’s wonderful to hear that our episode was helpful to you, and that you’ve found a neurologist who is providing support and care. We hope we can continue to be a resource to you and wish you the best in your continued progress!
Mine feels more like a brain pain than a headache. Sharper and doesn't last long but happens more frequently when I overdo it physically and/or mentally.
I've suffered 3 CSF leaks between ages 24 & 42. The 1st was from a lumbar punture, which was the only reason I knew what was going on when the 2nd & 3rd leaks happened, spontaneously. I also suffer from migraines & I can say that the headaches & symptoms from a CSF leak are unlike anything else. Despite this fact, it's still extremely difficult to convince ER doctors to take you seriously. However, this video is very informative & taught me some things about how to advocate for myself, if another leak happens again, in the future. The only thing I'd add to it is an explanation about why blood patches are used & why they work (there's no blood flow to the dura that could bring the materials needed to repair a tear, so injecting our own blood into the space around the dura creates a clot that temporarily stops the leak until the collagen in the blood can repair the torn tissue). I also intensely dislike how often the interviewer interrupts the guest speaker. Waiting until he's in the middle of describing how one of his patient's was cured to ask him to explain what he does as a neuroradiologist is completely confusing, inappropriate, and rude.
Obrigado pela explicação , sofro de hemiplegic migraines, e aura migraines a mais de 35 anos è horrível vivo numa cama com forte meditação, que põe-me muito frágil, sem força para nada ja pensei em fazer coisas horrível comigo mesmo porque acho que isso nao é vida que tenho há mas de 35 anos , meu estômago pede ajuda por causa da medicação, 😢😢😢 encontrei o excelente Neurologist i London , Thank Dr paul, for your help now my life it much better ❤🙏🏾
On my MRI without contrast there was a lot of white matter lesions Adapters sharing the aura migraines with the neurologist which I told him I blacked out twice and he didn't seem concerned and he spent about 45 seconds with me. He did explain that the stroke could be centered from the spinal area.
I started having these when I was about 19, I'm about to turn 28 and I've been researching these things myself ever since..I've been paying as much attention as I can to my body when I have these attacks..I'm no scientist but I've pinpointed exactly where the pain comes from and that's exactly where the pain starts when you have a brain freeze..I accidentally discovered this, noticed the pain when I drank a glass of ice water and I thought I was having episodic migraines. Now I know this sounds crazy but when you notice a migraine coming on, feel your head go numb..I'm serious, as much as you can..you'll be amazed. It stopped the pain and the pain..I tried this because I've tried everything. Everything we do is basically external, cold, hot, it works but it doesn't work because it hurts inside you know?? I was given oxygen, yes it "might" help, microdosing with mushrooms "just eased" my pain, but all that just helps with headaches can't be good for you if you keep doing it.. the brain freeze was blocking it in there is trace..don't know what it is, but I really think doctors need to look into this. 👍 Please let me know if it helps you and tell your doctor if it does. We need a way to stop this pain guys..I know what you're going through-
I’ve never had headaches and after a nasal booster have migraines constantly. I saw in one warning pamphlet mention don’t take if ….something about brain bleeds (how would we know). But now all I see is info that it helps migraines. I don’t know if it was the ketamine bc there may have been other things… dehydrated, a medicine but ….. I still worry it was the ketamine booster.
Migraine and depression can be closely linked together. Dr. Dawn Buse discusses their relationship in this episode of our HeadWise podcast ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-roXyHyaJYhQ.html. Hope this helps explain their relationship a bit more
I found eating 100% clean nothing processed helps sooo much! And if I eat something with additives or preservatives etc i get severe aura migraines, micronised estrogen creams definitely work too! ❤
I get both side but more on right but when it moves over to the left I know I'm down the intensity is so must worse and longer the longest on was 9 days I nearly died or it felt like it. I'm so glad that ppl is paying more attention to this and jip i have been cald a vampire bc of the photophobia and noise.
Thank you for your podcast. I think it's so easy to get discouraged when you're dealing with a chronic condition. I really appreciate your conversations about so many different aspects of migraines. This one was like a gentle nudge and a good reminder!
You ladies are speaking my language; I struggled with this since 19 years old, including unexplained visual disturbances that don't fit the mold. However, through preservation and will, I graduated EE and got a law degree, and had a wonderful career, and learned to work around the "cycles". However, you are correct, there is a cycle of of a brain storm at play that puts us at a disadvantage. Or, ... perhaps ... it ultimately helps us ... as a genetic mutation. Who knows.
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I was taking a b complex when I noticed something in it made my head 'buzz' and my migraine retreat. Thought it was B2 400mg, B1. After a couple of months, I looked back at that first bottle that helped, and found that it was choline. Now, I make sure to take a b complex with choline in it to manage my migraines and stop them getting worse in any given day.
My migraines started off once a month and then became everyday after six months. I had to look beyond ibuprofen which couldnt touch the throbbing. Magnesium supplements and B2 helped a little. Interestingly, it was a component in a b complex capsule that stopped the ongoing throbbing- choline bitartrate. I hope everyone here finds something that works for them.
Thank you for this info. It took me a long time to figure out that some preservatives are one of my many many triggers. Especially nitrates and nitrites. My husband could see my face change when we ate out. Thiamine nitrate is in most of the flour, and nitrates or nitrites seem to be used a lot to preserve processed meat and bacon. I have learned I can stop eat bacon if I get the uncured meat with celery juice as the preservative. It’s at least one thing I can do to help. Still I’m in the chronic migraine group, though.
Very interesting topic. Thank you for sharing. It is always interesting how certain drugs can help with different medical issues. I am also glad you said this is something you need to talk with your headache doctor about. None of us with migraine are a one size fits all and it is usually many different things that we need to look at to help reduce migraine.
Interesting topic. I have always thought I had blood sugar level issues, but not to the level of diabetes. My headaches can cycle along with mealtimes, but not always. Maybe someday I’ll figure out what my issue is. Thanks. I sure wish I was closer to Dr. Cohen’s clinic.
I never had a typical migraine, I'm 15. How I describe it is that one part of spot of my vision is sort of blurred out and unfocused, I get nauseous too. I'm not sure if it's a silent migraine or something else
Silent Migraine is migraine with aura that is not accompanied by headache. What you are describing sounds like a migraine aura which occurs in approximately 25-30% of people with migraine. It is always important to have symptoms evaluated by a healthcare practitioner if you have not already received a diagnosis.
Great questions, you did a great job, great answers. How did you finish medical school with migraines? I couldn’t. I still get them now but I stopped taking the Migraine Medication Amerge (nara triptan) which I took for over a decade and it damaged my heart, heart attack, and almost fatal as all migraine medications. Now migraines last me 2 to 3 entire days and nights, last day, when pain is rescinding, I feel like someone had repeatedly hit me with a baseball bat. I swear when I’m in such pain sometimes I feel I want to d.. The natural path is always best.
Same exact thing I am experiencing. But I always thought they were migraines. I am also female. I am 49 and just finally realized what they were. So much medical gaslighting. Just edited to add... Apon doing some research there is a type that is more common in women.
Back in the 2020they found white spots an now it shows a little more I’m noticing I’m more forgetful an yes really bad headed an like a pressure in the brain my blood pressure it’s always run really low always on the 60 rarely if it’s up. Through the day I have really bad horrible pain
I have similar symptoms that start with severe fatigue, photosensitivity to light and irritation to noises. I have to stay in the dark room for a while, and sleep. It usually takes 24-48 hours to get better. Dizziness. I had zigzags once. Never happened again. Pressure on the left side of the face.
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It also is multiple "zaps" or stabbing, shocking pains in a row that are severe and make eating, drinking, talking, brushing teeth difficult or impossible.
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