Waiting for part 2. Liya definitely has many of the symptoms that fall under CVI. MRI is normal though. So confused about the exact diagnosis. But waiting to learn the strategies to help
I have looked into all the sp ed course curriculum here in India and had even considered to do an appropriate course to be prepared to teach my daughter. The biggest problem I see is there is a lot of stress on identification of the different disabilities, behaviour management, ADL and stuff but really nothing about literacy.. Learning things that are taught in regular schools and modifying the access to our kids is what helps I suppose. I hope the syllabus for sp ed is modified in the near future as most sp educators sadly are not well equipped with teaching literacy to our kids. (I speak based on what I have noticed in India).
I had an argument with the occupational therapist in the best institute in India who used the Carolina curriculum to assess my daughter and mentioned she is cognitively less than 6 months of age for the exact same reasons. This was when Liya was suspected but not diagnosed with rett. I pointed out that all their assessment is based on her being able to use her hands. For example, sorting activity was to be done by picking and putting into the right color tray. I argued back telling my child knows how to sort, if I pick up a blue ball and ask where does it go, she looks at the blue tray. She knows, she is not dumb. She is just unable to pick and drop. I even told her that if Stephen Hawking was to be assessed the same way, she would probably say he is cognitively at less than 6 months of age. We spent so much to go there for IP admission for me to realise they are not modifying anything based on the child. They follow blindly an assessment sheet. The fact is the curriculum they followed was good and also has a detailed explanation of using an e trans board for children with motor difficulties. So my understanding is that the therapist hadn't read the whole book before assessing my child.
