I love the metaphor of myeloma being a small animal in a cage.

A man diagnosed in 2011 received VRD for 6 cycles, then AutoHSCT. relapses in July 2023. receives VRD for 4 cycles, second AutoHSCT. maintenance lenalidomide.

Why didn't this video list EARLY symptoms of MM? Instead of just saying 'early detection yay'

There is hope

Thanks for sharing your story. ❤ I have recently been diagnosed with Smoldering Multiple Myeloma, I too have a high M spike and also I have the Free light chains. How many years did you say you went by until the myeloma became more active and you started therapy? Also, when you went through the induction was it really hard on your body? What symptoms did you have from the chemo? Thank you guys!

So if you were smoldering your bone marrow biopsy must have been less then 20% involvement correct?

I'm 72 years old have MM with fractured vertebrae so I am thankful for the videos. Some of the accents are a little hard to understand so the sub titles are very helpful.

How lucky you are!

Go Dr Abonour, that's my Myeloma Specialist, he's the best!!

❤❤❤

Very informative,thank you

Thank you Dr. Durie

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Can mass spectrometry take the place of a bone marrow biopsy?

I'm stage 3 had a fractured vertebrae and surgery. I'm 72 years old and in great shape, is 5 years a typical survival rate.

A number of posts below (i.e. entered before 07/07/24) mention that "... my oncologist has not explained all these options ...". My experience is that it is extremely important to have MM specialist looking at your case. Not just an oncologist or a transplant specialist or a hematologist but somebody whose main focus is multiple myeloma. I understand that a smaller hospitals may not have such people. If this is the case try to find somebody you can see 3-4 times per year in a larger city/hospital or even somebody you can meet on line. The point is that MM is an area of very active research, there are dozen (or more) options to go with, new drugs are approved every year and not every doctor has time to follow it up.

Would that signify that losing weight extend remisión?

Thank you

Thank you!

Good

Nice

Thank you. A great overview!

Sir kindly talk about one side hemorrhagic plural effusion in myloma patients

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide

Strong couple and strong survivor❤

What did your blood work look like?

Use subtitles

Thank You

I have one kidney due to donating the other one. Recently, the one kidney is now at stage 3 kidney failure as Acute Kidney Injury unspecified, and diagnosed with MGUS and experiencing much pain, weakness, fatigue, and numbness and tingling. Is there anything different to consider with one kidney?

My mother has myeloma and her doctor always knocks her out for the BMB.

Thank you on behalf of the rest of us.

GOD bless Tom, praying for my complete physical healing for GOD is my JEHOVAH RAPHA, my DIVINE HEALER, AMEN🙏🙏🙏

I had to go to a different doctor and they found out I had multiple myeloma. The first doctor Dr almond ran me around for 7 months and said I just wanted pills even though I was working

Does it cause GVHD like Monocolonial antibodies 😮

My father also but but he’s cancer therapy did work.But hè died from a influenza virus in the hospital,and I think my brother has infected him😢😢😢😢.

I have Mgus attributed by my oncologist to long term use of sertraline, an SSRI. After withdrawal, I've developed neuropathy and tinnitus, occasional shooting nerve pains and brief migraines.

Adrienne is such an inspiration!

Thank you for sharing your story. I've been diagnosed for mgus and have constant bone pain in my leg, but I no on ever investigates. I'm very concerned about it hearing your story is motivating me to press the issue and beg or demand a Ct scan ASAP

Thank you Dr. Joe for your clarity on bi-specifics. Your explanations are the best. Maybe on the next video, skip the background music. It’s a little distracting.

does this work in del17p ?

This sounds disgusting and damaging. Russian roulette.

Thank you 🙏🏾 😊

my mother patient of Multiple Myeloma aged 63 year old last year went through ASCT and now she is under maintenance therapy with linolidamide 10mg for 21 days and one week rest again repeated but now she is frequently suffering from anxiety, fatigue and constipation she is not fit as like she was well before transplant is there any other therapy in maintenance can be give like immunotherapy or some thing else with low side effects and fatigue after ASCT she has not given any immunizations what are the immunizations which she has to take

Hi Beth! Toronto Canada. Diagnosed 13 months ago and post T-Cell transfushion. MyHebogloben has responded from 72 0n Febuary 28th to last weeks reading of 124! I can walk and move around again seemingly as free as I did before my symptoms began in March of 2023. I am so thankful and along with some fantastic care I have recieved from the medical community here in the Kitchener, Ontario region, it is my belief that my positive attitude was second in things that have supported this positive response and speedy recovery that I have and am experiencing. humbly said! I had my Stem cell transplant complleted on January 4th 2024 and again my Hemogloben went from the low 70's On average since January to 90 on Mar 28th with a 13 point increase in one week ending on March 28th. My Oncologist whom I seen 1 week ago informed me she wished to start me on a maintance program after a one month break from last week. My investigations so far on what to expect in the mediications involved in such a maintence progtam has left me somewhat anixious on what to expect as it appears we are on the edge of a whole new round of medications to be introduced through research and even some new considerations within the medical field on different considerations on which avenue one professional verses the other may lead their individual patients. Any general consideration or guidelines you could share with me that would put me in a position to be understanding of the different choices I will be discussing with my care team?