Animation, short films for kids, ME/CFS awareness, lifestyle blogs
About me: Jenny - 34 - Libra - Multipotentialite - USA & UK - Born in Los Angeles - Moved to EU 2012 Live in the UK since 2013 - Spoonie - Recovering from ME/CFS and Fibromyalgia (since 2006) - Studied art and animation at UCI/UCLA (as you can see from my top video!) but since becoming ill work part-time at home in admin/media/customer relations/video/images - Love games, glamour, animation, vfx, metaphors, archetypes, symbolism, tech, SCIENCE, social patterns, philosophy, and mysticism
Hi everyone - as of 2024 I am still generally at the same levels but have made some life adjustments out of necessity to take care of myself. I live a slow, quiet life but am able to work freelance 30 hours a week from home online and do some social activities on a careful pacing basis. I still experiment with nutrition and gentle movement practices. I will still experience PEM when i go beyond my daily routine. I also now have Long COVID which mostly affected my heart and kidneys but I have experienced great improvement in time. Everyone's journey is different. Everyone's support systems are different. I just hope you keep trying and find what works for you on your terms and anywhere you have hit your limit I pray you receive exactly what you need. ❤
Hello my dear thanks for watching and yes I know the range of severity can make explaining the illness so complicated. Compared to many I have moderate PEM. I wish we knew more about why the severity levels differ so much. Huge love and solidarity with you on your journey. Xx
how do i get diagnosed? I've been in and out of clinics and hospitals with certain symptoms but doctors feel that I am just trying to get out of work or am hysteric because I am a woman! symptoms started after i returned from a hiking trip and had a viral fever. had unexplained chest pains, intense fatigue, i feel pain all over my body mostly in my limbs especially the legs, after exerting myself like doing intense exercise but i later realised it triggers my crash. my sleep gets really bad when the crash happens. worst sleep ever! i wake up unrefreshed and as though my energy is depleted from the sleep. i think i would feel better if i did not sleep! my veins will pop for no reason and i get breathless.. this made me very depressed and i got many tests done. doctors say i'm just having anxiety. i can still think, speak and work. two years on, my condition is somewhat more well managed because i don't get any activity due to the pandemic. is this CFS or something else? Can someone help me? TIA.
Unfortunately it depends what country you are in, and even then its just a process of elimination. If you've already been checked for other neurological, immunological or auto immune illnesses you can start to assume you have ME/CFS and follow pacing tips and advice online for fibromyalgia. Follow the news from the Open Medicine Foundation and a patient advocacy group in your country to start. Good luck - gentle hugs -
@@ShermanTank13 I also have "just" the mild version of ME/CFS... I'm thankful not to be bed or house bound... but even with the "mild version" it is not a life that it should be with sports, walks, being productive etc. Have you heard of the brain retraining programs like DNRS or Gupta? In my opinion the explanation of these programs is the solution for ME/CFS and why there will never be a pill or medical model who will help with this... I'm in month 6 of the program now and I'm doing a lot of better but still a lot to do. I want to share my experience to as much people as possible because no one deserves to live like that.
@@Kaazzaam88 yes I've read the Neuffer ANS rewire program and have done the Gupta programme and worked as a patient of the Optimum Health Clinic for ten years. I've learned a lot of good tools and manage better with them but I'm in no way recovering from the disease itself at this point. I think it requires a level of security and access and privelege that I just don't have at this point in my life. I hope you improve or even recover. Please never be afraid to share your story all experiences are valuable.
@@ShermanTank13 Really sorry to hear that :/ I hope that you'll get your life back and find the last peace of the puzzle for you. Just never give up. All good luck to you and thank you :)
I'm in the US, am 80 years old and have exactly those symptoms since a flu shot in 2014 Gone from Doctor to doctor, but no visible markers. You're describing me, except for additional vision disturbances, bladder/colon attacks and constant neck pain. My heart goes out to you because you're so young, GOD Bless You Girl!
damn.. How are you doing now in 2019? I have CFS too, and IBS on top of that. Do you have any strategies to cope with especially PEM and brain fog? I wish you all the best
Only pacing and reducing activity, lifestyle changes and a really excellent diet full of veg. It won't cure you but you might find symptom relief. I am not any better, but if I eat poorly and do to much I always get worse. My bf with IBS responded really well with the FODMAP diet so I'd recommend giving that a try for 6 weeks. I have regular support from The Optimum Health Clinic who I also work for part time.
