PHAWARE GLOBAL ASSOCIATION phaware® was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical professionals, phaware is dedicated to engaging the global community. Working on the forefront of technology, phaware drives our cause forward by leveraging state of the art tools and creative content.
OUR MISSION Creating global pulmonary hypertension awareness through engagement and innovation to forge a new course to a cure.
OUR VISION To improve the quality of life for PH patients by leveraging technology as a tool which will one day make pulmonary hypertension history.
OUR APPROACH Given pulmonary hypertension is a rare disease often misdiagnosed, we are leveraging state-of-the-art social media hardware and software to extend knowledge of this disease beyond the traditional affinity group to create awareness and to educate.
I am excited to be a candidate for this procedure and get my life back testing starts next week and by this time next year I hope to be able to do things again
You're right, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
Greetings from oakville Ontario I had cteph chronic thrombosis pulmonary hypertension disorder and had pfo at trillium hospital in Mississauga my cteph was triggered by having a stroke while driving home from work on April 4 2020 thanks for reading my message
My name is Karine I had balloon angioplasty in 2019 and it greatly improved my quality of life. In this PH awareness month I would like to thank all the doctors in TGH. You are the best team.
Thank you so much. I'm blessed to have you, Dr. Rayner, and Dr. Prutkin on my care team. I never knew having a heart catheterization could be so much fun, but you and your disco ball never disappoint. Thank you for all you do and pouring your heart and soul into helping people feel better.
My name is Stephen winter and i had cteph had surgery at the Toronto General hospital under the direction of doctor laura Donahoe on aug 4 2021 dr perrot was also involved with my surgery my condition was discovered from a stroke with dvt of 4 blood clots and through pfo closure surgery at trillium hospital in Mississauga under the direction of doctor Jeffrey puley
And I thought I had met all the beautiful nurses at Sulpizio when I had my PTE done. Apparently not. Thanks for giving me a second chance at life UCSD Health. Such great teamwork!
I had my PTE surgery at UCSD in February of this year. It was a complete success, but with a few unexpected surprises. I had to be intubated for a week after surgery as I was not ready to be woken but once I was awake I progressed very well . I went home after 3 1/2 weeks in the hospital and I’m now feeling nearly normal six months after the surgery. Dr Victor Pretorius and his team at UCSD were absolutely incredible.
Im waiting to hear from UCSD for my initial PTE surgery consultation. My pulmonary team at Kaiser believes I am a good candidate for the procedure. Hopefully I will be able to have the surgery soon at UCSD.
Im waiting to hear from UCSD for my initial PTE surgery consultation. My pulmonologist told me that working on older clots like mine (12 years) is sometimes preferable than new clots. We shall see! 😄
Table 2. HA (haemagglutination) Ta____a 3. IHA (indirect haemagglutination test) with paired sera for serodiagnosis of viral infection CALCULATION: Titre of antibodies in the 1st serum 1:20 Titre of antibodies in the 2 Nd serum 1:80 Divisibility of growth of titre 4 times
Dr. Fernandes is the GREATEST. I lived through PTE surgery and I know what a valuable member of the team he is. I must emphasize the word “team”, because without their seamless coordinated effort at UCSD I don’t think I would have achieved the outstanding result I did.
I relate to this story so many ways except I'm taking more precautions because less people in my area are taking precautions and plenty of out of state people thwarting the rules. Though I belong to a few groups and pop in from time to time lots of wallowing or reminders of this person or that person who died and it becomes more about death and complaining than actual support.
I have pulmonary hypertension because of my lupus. Now I have Hep C. I am a really scared. Thank you for sharing. This was very good to hear now! Keep Fighting and I wish you the best!!!!!
Great story and thank you for sharing. I feel the same way getting discharged from the hospital. It was great to hear someone who has this issue as well. Again thank you for sharing!!
Well said. I wish I had a man like that. I live without a caregiver. I hope you know you have a lucky wife. She has an understanding of the disease and so rare to find.
Palletive care in Temple is not clear. They say cancel patient only. I have lupus and pulmonary hypertension. Lupus Drs because of the low platelets was an oncologist and in a cancer hospital
I am a male 39 on methelphenadate (ADD) started in grade school. 5’6” 138lbs in ok health. As I started training for free diving (hypoxia?) I started getting PH symptoms and was started on asthma meds. Is this type of methamphetamine included in your study? Your thoughts?
Thank you for explaining the clinical trial process concerning the amount of paperwork involved and more importantly that there may be procedures done during the trial that a person may not ever get outside the trial. I am more open to perhaps being a part of a trial than I was in the past.
I am always gratful to him. My son has a tetralogy of fallot, and underwent heart surgery almost 10 years ago, when he was a very little boy. Dr. Young was a then primary care physician. He is really nice and gentle. Hope he can practice for a long time.
