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Multiple Myeloma Research Foundation - MMRF
Multiple Myeloma Research Foundation - MMRF
Multiple Myeloma Research Foundation - MMRF
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The Multiple Myeloma Research Foundation (MMRF) was established in 1998 as a 501(c)(3) non-profit organization by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy's diagnosis with multiple myeloma, an incurable blood cancer.
The mission of the MMRF is to accelerate a cure for each and every myeloma patient. As the world's number-one private funder of multiple myeloma research, the MMRF has raised over $500 million since its inception and directs 90% of total budget to research and related programming. As a result, the MMRF has been awarded Charity Navigator's coveted four-star rating for 18 years, the highest designation for outstanding fiscal responsibility and exceptional efficiency.
For more information about the MMRF, please visit: www.themmrf.org
Комментарии
@amyjenkins9187
@amyjenkins9187 12 дней назад
What are some labs that would be a red flag fot this
@Starbeoghtuser3475
@Starbeoghtuser3475 12 дней назад
Thank you
@somersetflower
@somersetflower 13 дней назад
Does anyone know how long first. Blood screen for myeloma rakes to come back ? Please I'm going bonkers waiting. Great video though very informative.
@ElephantsRock19
@ElephantsRock19 8 дней назад
Maybe about a week but a bone marrow biopsy may take a bit more. Hopefully you've got them back by now. Wishing you well.❤
@rambleon2011
@rambleon2011 14 дней назад
Everyone is so happy and smiley about a horrible disease
@kimjohnson325
@kimjohnson325 27 дней назад
Can you tell me what to look for,I have positive CD marks cd3 cd5 cd20 cd79a cd23 and pax5 Bcl2 so what to look for ,I have no cule
@amyjenkins9187
@amyjenkins9187 Месяц назад
Great video, very informative
@julesj5853
@julesj5853 Месяц назад
I swear this man is related to my step dad, he looks almost exactly like my step dads, dad when he was younger!
@MargaretJMorris
@MargaretJMorris 2 месяца назад
MY BREAST CANCER JOURNEY I’ve always been a healthy, active person. I don’t take any medications, I eat the best I can, and I walk at least two miles every day. I also get my routine mammogram every year. In November 2019, I went in for my annual screening. Several days later, my doctor called to tell me they’d found a suspicious area, so I needed to go back for a follow-up mammogram and an ultrasound. After that, a biopsy confirmed that I had breast cancer. When I received my diagnosis, my husband and I decided to get a second opinion. I’d heard good things about Nature Care Health Clinic, which happens to be a well known and certified clinic known for treating various types of chronic diseases and illness such as cancer, diabetes,tuberculosis,lymphoma etc Before this time, i was suppose to undergo Lumpectomy as suggested by my oncologist but he suggested and referred us to Nature Care Health Clinic cause he has had lots of similar cases as regards my diagnosis and most of them came out with positive testimonies.Not withstanding, we contacted the Clinic as He suggested, and we started our treatment with them following their prescriptions accordingly. Few weeks later, I began noticing drastic improvement in my body generally, this natural formula was so effective,It helps in lowering blood pressure and lowering blood glucose levels. Therefore, it is really good for hyperglycemic, Cancer and diabetic people. It also reduces fatigue, etc promotes tissue regeneration and so many other functions. I guarantee you will stand 100% chance to beat your condition. This formula helps to boost your immune system and can eliminate cancer cells from blood cells, it shrinks cancer tumors gradually. Trust me, this is one of the best treatments for cancer and the side effects that come after its treatments. This formula practically beats my thought and perceptions about natural products,I use to be a strong critic of such especially when it comes to chronic illness such as cancer. I am indeed happy that I gave it a shot and I can confidently assure you that a trial will actually convince you. have also recommended their services to many individuals as well and most of them can also testify positively to their services (even if i haven't got feedback from some of them). however i will leave their contact below just in case any one wishes to contact them, I am sure this will absolutely help so many individuals with similar illness you can always reach out to them via email: @ Naturecarehealthclinic@outlook.com
@kathleenwells1683
@kathleenwells1683 2 месяца назад
Thank you. very informative
@gimoriwilson7141
@gimoriwilson7141 2 месяца назад
This video needs to be shown to every newly diagnosed multiple myeloma patient
@mikxtr
@mikxtr 2 месяца назад
Given the recent acknowledgement that the renal "correction" for African Americans is not based on science and led to under diagnosing renal disease, how would that change these results and estimation of MGUS/MM diagnosis in that population?
@clarencemcneal5963
@clarencemcneal5963 2 месяца назад
I’m currently scheduled to undergo Stem Cell Transplant and this video was very informative. I’ve found to this point that I have responded favorably to the 3 21 day chemo and I too am optimistic. Todd experience was enlightening and as I’m listening to this broadcast it has provided me with the understanding of the process and expectations.
@daryllnottingham3330
@daryllnottingham3330 2 месяца назад
Very well done. Particularly appreciate the personal considerations - each individual is unique.
@betzib8021
@betzib8021 2 месяца назад
But how does the protein produced by the plasma cell relate to the antibody with the light and heavy chains of protein? No one ever explains that. They talk about the m spike...the paraprotein...the light and heavy chains... and the kappa and lambda....how do all these things relate...they are all produced by one plasma cell? Are some of them synonymous? Everyone assumes the patient has a background of knowledge that we don't have.
@maritapiccini8341
@maritapiccini8341 3 месяца назад
I am a multiple myeloma pt here in Italy...does this apply to us here Thank you ...grazie di ❤
@patrickboudreau3846
@patrickboudreau3846 3 месяца назад
Dear, the love of my life is going to start batteling her first relapse. I am scared and discouraged. I realise that we won’t grow old together. It’s killing me as well. Thank you for your work and your dedication to this field. Your intelligence is used to help others and that is beautiful.
@josephoommen1205
@josephoommen1205 3 месяца назад
What a great contribution to humanity ,patients like us❤ God
@nancyworld4391
@nancyworld4391 3 месяца назад
Very clear and succinct.
@ElephantsRock19
@ElephantsRock19 3 месяца назад
Ms. Guisti is such an inspiration and force in the fight against multiple myeloma, what a blessing! I am just curious, exactly what type of myeloma does she have, i.e. IgG, IgA, IgM, IgE, or kappa or lambda light chain, or non-secretory, etc...and what treatment has she had? There are so many people that are still told (and many still believe) the 3-5 years prognosis, but 30 years is outstanding! It would be amazing if we could hear more of her personal story of how she's endured and thrived all these years! 🕊️🙏❤️🕯️
@TheMMRF
@TheMMRF 3 месяца назад
Thank you so much for your kind words, curiosity, and questions! Our Founder recently participated in a Livestream event with our Chief Mission Officer, Anne Quinn Young, where she discussed her myeloma journey more in-depth. Here is the link to that discussion: event.webcasts.com/starthere.jsp?ei=1658344&tp_key=82b1169819
@ElephantsRock19
@ElephantsRock19 3 месяца назад
@@TheMMRF Thank you so much for your reply, much appreciated! ❤️
@broderickmaxwell9501
@broderickmaxwell9501 3 месяца назад
Very good information and is presented in a manor that is easily understandable. Thank you for taking the time to explain our options. 👏🏾👍🏾🎗
@jillseiter1307
@jillseiter1307 3 месяца назад
Keep on riding! I'm rooting for all people with myeloma to keep living their best life. My husband fought it for 16 years before getting pneumonia during a stem cell transplant.
@dwightmcsorley7292
@dwightmcsorley7292 3 месяца назад
Please speak a little slower. It's a lot of info to take in even with rewinding.
@Christynmaine
@Christynmaine 3 месяца назад
You can slow the narration in settings, upper right on screen. 👍
@alexhenke1979
@alexhenke1979 4 месяца назад
Wonderful Video! It is fantastic to see (ex-)patients literally climbing mountains!!! And the good vibes 😎
@ElizabethHernandez-vd6oy
@ElizabethHernandez-vd6oy 4 месяца назад
This is amazing. Gives me more hope. Shows me I can do more with my life. Diagnosed in 2021at 58.
@LorraineNichols-il8pv
@LorraineNichols-il8pv 4 месяца назад
Good information
@deborahburt9456
@deborahburt9456 4 месяца назад
This gives me hope. I am a hiker who was diagnosed with non secretory MM in 2023. I had my SCT in December of that year. I long to be back on the trail. It would be an honor to one day join you. Thank you for this beautiful film.
@lexconor8498
@lexconor8498 4 месяца назад
Top shelf bak2bak vids! Wow! I'm so grateful to find all that critical information in one place. The slideshow was especially helpful and I don't feel as confused. Thank you for putting in so much effort. It has paid off in spades for me And many others I am sure!
@bajabell
@bajabell 4 месяца назад
Wonderful ....... Such great memories of my walk with you guys ...... Still walking with new hip !!! ...... Carry on the good work ..... Best regards Richard Bell
@iloveshaakah
@iloveshaakah 4 месяца назад
Excellent excellent excellent. Thank you sir!
@wxman2003
@wxman2003 4 месяца назад
I am just starting my treatment. Doctor wants to do stem cell eventually. I dont have any caregivers to help me out. I have no clue what I am going to do.
@pamelabuchanan437
@pamelabuchanan437 4 месяца назад
Thank you for taking your time to give this comprehensive and excellent presentation!
@millfordgang2593
@millfordgang2593 4 месяца назад
love this
@farginargle
@farginargle 4 месяца назад
Wonderful story, thank you. After my recent diagnosis, it is interesting that I am counting my blessings more now than ever.
@elizabethbohannon7691
@elizabethbohannon7691 4 месяца назад
Yes! It sharpens you focus, doesn't it?
@ceilafincher7612
@ceilafincher7612 4 месяца назад
Way to go girl! GOD'S BLESSINGS to you forever!❤😊
@deserewright4719
@deserewright4719 4 месяца назад
Tell em sister
@alexgriffin1726
@alexgriffin1726 4 месяца назад
Great video, i just had my bone marrow results. I am waiting to go through it all with my dr. One of the fish tests stated i have a LOW POSITIVE FOR PARTIAL 5'. My research says that puts me at stage 1. I am ready to fight this thing and get the cells down to zero. Can i get treatment at stage 1? Again, I appreciate this video. It really reinforced what I've been learning. I am working on putting together a great care team. Im really not trusting who i have right now.
@DavidBellas-qw1sj
@DavidBellas-qw1sj 5 месяцев назад
Kathy Giusti and Anne Quinn Young have been leaders in finding a cure for multiple myeloma - Thank you!
@floradaniels9220
@floradaniels9220 5 месяцев назад
I forgot to mention that I am a Multiple Myeloma patient; having gone through transplant and 24 month maintenance regimen. Now in remission maintaining with a cancer pill in a 28 day cycle to keep it in remission. Making healthy diet choices and keeping the exercises recommended to help stay healthy. Looking at you; I feel encouraged and hopeful that there is hope to live quality and many more healthy years. Emory Winship is the best💕thankful for inspiring stories like yours to bring hope. Thank you ❤
@floradaniels9220
@floradaniels9220 5 месяцев назад
Very informative and encouraging. Thank you so much for giving such detailed and impressive information about living and dealing with Multiple Myeloma. You are a blessings. Let’s keep the faith ❤
@rebeccathomas6425
@rebeccathomas6425 4 месяца назад
So thankful for the info❤
@ElephantsRock19
@ElephantsRock19 5 месяцев назад
Very informative, thank you for this video! I've been following y'all since my brother was diagnosed in 2001, and now I've been diagnosed with MGUS in 2022. The MMRF is a priceless organization that has been so extremely helpful to me and my family!
@herd1952
@herd1952 5 месяцев назад
Speaking as a 10-year Myeloma survivor, this video is one of the best introductions to the Myeloma journey. The only thing missing is a referal to the International Myeloma Foundation as well.
@cathiebarnett3606
@cathiebarnett3606 5 месяцев назад
Ian, this is wonderful. Where do you get your treatment?
@sfeeneygirl
@sfeeneygirl 5 месяцев назад
THANK YOU for everything all of you are doing.
@sfeeneygirl
@sfeeneygirl 5 месяцев назад
Thank you! This was very informative.
@observatory87
@observatory87 5 месяцев назад
I was diagnosed 12 years ago at Stage 3 my medical history therefore indicates the myeloma has been active for twenty years. Currently I am not on treatment.
@tombilhorn8445
@tombilhorn8445 5 месяцев назад
Grateful for the work you continue to do.
@user-wj4mb8gh9j
@user-wj4mb8gh9j 5 месяцев назад
Excellent presentation and information. Thank you for helping me understand so much as a newly diagnosed MM patient. Will watch this again and again.
@apache318
@apache318 5 месяцев назад
Good Explanation of MM! Appreciate it
@ronnielee9268
@ronnielee9268 5 месяцев назад
This video was great!