Thank you for posting this. I’m just in the beginning phase of this so I’m glad to see it was only painful to you for a few days. Sorry you’re so young and having to deal with this. Yours may be familial.
Hey there! I still have a bit of a droopy eye buts it’s totally not that noticeable. As far as my first bite goes, I still have that🫠 A few years ago, someone in the comments mentioned Botox injections in the jaw to help alleviate that. May have to try one day!
@@AngieJeanelle my consultant said with having Botox there's a chance of the face dropping on one side :( I'd rather not and just keep it how it is than have that 😭 I hope it goes away one day x
@@JustAmz1 oh no!! Yea…I had my doubts about it so this confirms it. I won’t try it.😄 When I told my surgeon about it he said he sees how that would work but wouldn’t recommend. I’ve grown to live with it. 🫠
WOW 🤩!!!!! What a beautiful cabin to have a White Christmas 🎅🏻🎄🤶🏻🎁🧑🏻🎄! So warm, cozy and it’s so beautiful 🤩 in here! And it’s very homey, too! I can’t wait 😝 to celebrate 🙌 Christmas 🎅🏻🎄🤶🏻🎁🧑🏻🎄 in a cabin with my future husband and my family, too! YAY 😃!!!!! Well… Merry Christmas 🎄🎁, Everybody!!!!!
I had this same exact tumor and surgery in 2001 almost 24 years ago. I have had 3 blepharoplasties to correct my eyelids over the years, all in all, that was my biggest challenge over the years. However, in the last few years, I have been dealing with arthritis in my neck. I deal with a lot of stiffness and joint pain around C1 and C2 - which is right near where the tumor was, likely due to the surgical staples used to close up my tissues after the surgery.
The kitchen looks gorgeous 😍 I‘m so happy you posted again and glad you‘re doing well ❤️ also what do you use for your hair? It looks so smooth and flowy and healthy ✨
Thank you so much!🥰 oh, my hair is going through it at the moment - lots and lots of split ends and in need of a major trim, ha. I’ve been using a shampoo bar from “The Good Fill” and their dry shampoo as well. My hair (besides the dead ends) has held up nicely with just those two products.😊
@@AngieJeanelle thank you for the information ❤️ I like that your routine is so simple since I‘ve really found myself gravitating towards „less is more“ lately when it comes to hair and skin ✨
Hey @angie i hope you are doing well. A dear friend has gone through a sugery for schwannoma and is affected with a similar condition- horner. Can you please share the journey of your recovery around this? Anything that can make this get better quickly. It will be really helpful if you could throw some light. Plzzzz.....
Thank you for this video, I had cervical surgery ADCF on levels c3/c4 & c4/c5. After this procedure i was suffering pain as one might imagine, I have had spinal problems since 2013 and had a previous ADCF on level c5/c6. Because of my long standing pain history I have been on many opioids and was given ketamine after this latest procedure because of my tolerance to meds, I complained of head aches and arm aches plus blurred vision post op both a new symptom. They removed the ketamine because they thought this was to be the cause, A neurologist gave me a very brief examination and said I had a stroke during my surgery. I had many different doctors including my spinal team and I heard the phrase Horners. After 2 ct & 2 mri scans with each having a contrast on 1 scan. I was then told I have horners syndrome which I have never heard of, I’m still suffering from eye issues but the strangest thing is non sweating on the affected side. They think the cause was pressure from the tool which opened my neck, I had a cage fitted in the procedure. All the videos are good to watch as no one I know has heard of Horners. The sweating is the strangest thing.
Hi, I appreciate you taking the time out to make this video. I have recently been diagnosed with paraganglioma in my neck. The next step is getting a genetic testing, more tests and surgery, depending on if it is safe enough. I plan on getting a second opinion from Stanford hospital. I don’t know what to expect so I’m doing my research. I appreciate you making a video on this sensitive subject for us out here going through the same or similar issues as you. I understand the more tests the better the physicians can help me but I’m not going to candy coat this. I’m starting to feel like a lab rat and the last thing I want to be is a guinea pig. I went from seeing the doctor x2 a year for checkups to a whirlwind of appointments for testing. Paraganglioma is rare and I need to be reassured those physicians and surgeons are experienced. I pray I am guided to find the answers and peace to what I am seeking. You are a very brave lady and I tip my hat to you. I believe with the right supplements, good nutritious food, plenty of water and natural topical creams, the scar will fade and it will only be a memory. I have heard of “Scar healing tape” that may be beneficial. Take care and again Thank you for sharing your experience with the world. I don’t feel so all alone now. Angel from The Bay Area, Silicon Valley, CA USA
I'm currently dealing with Horner's Syndrome. It's been going on for 11 months and the Dr's still haven't found the cause of it after 10 scans, 3 MRI's and 20 Dr visits. I'm going in for another CT scan on the soft tissue of my neck later this month, maybe there's something there, I feel like theres something going on in the right side of my neck. There is a temporary solution anyone dealing with a droopy eye lid situation, try out the eye drop called UPNEEQ it get's your eye back to normal with one little drop, takes about 10 mins to kick in and last around 7 hours. It's an over the counter eye drop you can order online or buy at an eye Dr's office. I have a video of me using for my Horner's Syndrome. I hope this helps you and anyone else watching dealing with this issue. I hope we all get well and recover soon!
Hi! Where did you get the diagnosis? I have something inside my neck too, (submaxilar abd my eyelid drops) but I don't know what is it. I'd like to have a second opinion. Please, Thank you 🙏🏽
I had exactly the same thing. I had it removed in 2019. I have horners syndrome too as result. No sweat on the right, pain in my jaw sometimes when o chew and a little eye lol gotta keep it pushing though!!!! Thanks for sharing your story with us
If you're dealing with the droopy eye lid, try an eye drop called Upneeq. It's a temporary fix, take 10 mins to kick in, and it last about 7 hours. Hope this helps.
@@tari80 I wish I could get Upneeq, but I can´t get it here in Germany! I found out by coincidence that Tetryzolin drops have the same effect, but only for 1-2 hours and you must not use it regularly, maybe one or two drops a week... But my eyes are so painful! I really wish I had Upneeq!
@Punki80 Hey du, ich habe Ende des Monats eine OP. Mein Tumor sitzt um den Nerv meines Rückenmarks. Mein Chirurg hat Horners nie erwähnt.. Jetzt hab ich ziemlich Angst davor. Ist es besser geworden mit deinem Auge?