The Macular Society is the national charity for anyone affected by central vision loss. We provide free information and support to improve lives today and we fund research so that one day we can overcome macular disease.
If you have any questions from the videos on our channel, please call our helpline on 0300 3030 111.
i just got the news of how im in danger of full blindess by the age 40. im 20 right now and was wondering of what jobs i could do. picking a career was hard enough without disability now im at the starting point again. this was useful to a certain level and im grateful. wish there were more resources, help, podcasts regarding vision loss related career, education, all life necessities.
I am 28 and have wet AMD which is a result of Best's disease. I do not have any other problems such as high blood pressure or diabetes. This kind of research gives me hope. I pray this is successful and helps a lot of people like us. Thanks for your amazing work. Best wishes ❤
Sorry to hear this. If you are UK-based we have lots of support available. Please do reach out on 0300 3030 111. Otherwise, we have lots of helpful information in previous webinars that can help.
Thank you so much for this work! I am a medicinal plant chemist studying pharmaceutical chemistry and I have been diagnosed with Central Serous Retinopathy. I am definitely going back to the first talk you mentioned. I just started listening but it’s so hard to find this topic from credible or current sources. I might reach out to you!
4 out of 1000 early diagnosed MD patients stopped themselves from progressing towards later stage MD while 78 out of 1000 stopped their disease progressing from the intermediate to the final stage. I’m just taking notes here.
I have early AMD and was told by the optometrist to take AREDS2. I read over and over that these vitamins are not beneficial for people with early AMD so I stopped taking them
Go get the studies she’s talking about and show them to your doctor. If they don’t have an explanation for why they presently disagree, and they don’t accept the studies then go get a new doctor. Or they do accept them and then congrats you just educated them. Sorry you’re dealing with MD. I believe you will get better!
How would one go about getting on/participating in one of these clinical trials (I'm in US)? Particularly the Vitamin A studies. I have dry MD, left eye much worse than the right.and myopic in both eyes. I have a lot of trouble in low light, can no longer drive at night. I do take Lutein 20mg with Zeaxanthin 1mg daily along with other multivitamins. I do get the complete eye exam with scans about every six months. Great video, thanks so much!
The ECLO was a tremendous help to me. I had no idea what support was available locally. She referred me to theM N D society and òther sources of support and information. Also was visited by a social worker.
I just looked up the eye power address that is given here and a scam detector says the website is very questionable. Not trustworthy - i hate seeing that. I just ordered on it. Is the site safe? Has anyone else ordered from the eyepower site?
Risk free $60 Lamp that cures every skin disease. With new UVB LED lamps. With LED technology it is possible to achieve the exact wavelength that cures Psoriasis. This is not achieved with fluorescent lamps. With the new LED lamps the dose is 1/100, there is no redness in the skin, there is no need to increase the dose gradually and to wait 2 months to see the skin cures. The skin cures in one week. You can get a refund if the lamp will not cure you Psoriasis after using the lamp 2 months.
First biology college course after diagnosed with chronic fatigue syndrome. In 1988 I asked professor how can I increase my mitochondria ?> He did not have a answer so I have spent years since then to find how to increase my energy. Thanks for this millions need help not just me.
It's amazing to discover that this research is being carried out and making progress against our rare disease - I do hope that its monogenic nature helps make Doyne a good cadidate for continued research, and that this can ultimately be fiancially viable. Does Professor van der Spuy have a blog / newsletter for keeping up-to-speed on the research? Thank you, Macular Society, for supporting the research and for sharing the news!!
Sir I am currently 22 years old. My eyes have macular dystrophy. I have had DALK eye transplants in both eyes. After how many years can macular dystrophy develop again in that eye? If so, how often can the eye transplant be repeated? And can I see with that eye for the rest of my life? Please reply. @macularSociety
I do have this and so does my mum and both my sisters . ive also been seen by Moorfields hospital in Central London so has my mum and one of my sisters . So some of the Images you have would be ours and never been treated on any of us . We would be more then happy to help in anyway we can for sure
yes - and no need to look directly- although the early sun won't hurt... but it penetrates lids and is also reflected everywhere - so you get red light indirectly really well... especially in forests as the plants don't use it and reflect it well..
@@Roberto-cg2grwhat's in reasonable limits how can there possibly be an overdose if one works or plays camps day after day in the bright Sun consider Pilots of jets are turboprops you're virtually Always In Bright Sun except for night time flights I was a Jet Pilot the only thing we needed was to bid ordinary sunglasses preferably polarized, I preferred and sunlight contains abundant infrared
Don't look directly at the sun, just facing in the general direction is okay, also red light reflects off a lot of things in nature so just being outside in the morning for 10 minutes may help.
Definitely better than any LED. Block all blue at night. Give it a try and let us know. Get 2700k led's or 3000k. But all artificial lights are worse than candles.
My experience in my local hospital really does depend which team are on at the time of your appointment. Having good experiences on one day was great but when they changed my day it was a different team and a very different and very uncomfortable e so asked to change my appointment day in future!
Thank you .i am having maculardegeneration , myvision is bad having-13 in 55year, can Any supplement present mangler degeneration .I got først time Wien i Washington 50
I have Dry AMD for 5yrs now and I do Eye Exercises and take Individual Eye nutrients daily and it keeps my AMD at bay. It works to stop its advancement. If I miss a couple days that AMD goes right back to disturbing my vision. Research a little and apply yourself and you can do the same. Research both and be patient for results for it took five months to get my eyes healthy to stop and reverse it some. My Eye Doctor approves and supports it. Getting shots don't do any better per my Eye Doctor. Be patient! 👍
I am using Platinum Red Light Therapy commercial panel plus a red light lamp for sleep plus the Mito Helmet and nasal clip which is able to through the sinus up into brain…stroke reversals,Parkinson’s, Diabetes, adhd, dementisetc. etc.. It builds up daily ATP, Collagen to our weight mass daily. etc. etc. Tgere is a great explanation in Buddha Maitreya the Christ u tube video Red light therapy I and Ii
Unfortunately, the injections in my left eye for WMD did not work and it has worsened. My right eye has MD but has not changed to WMD yet so I can still drive and have changed my eating habits to try to keep healthy.
Excellent talk and we look forward to the publishing the 2 year data. This has been presented at several international meetings. The results presented were very positive. There are also many other published papers on the subject which are also most encouraging. It is exciting times for A|MD treatments with so much research underway.
Risk free $60 Lamp that cures every skin disease. With new UVB LED lamps. With LED technology it is possible to achieve the exact wavelength that cures Psoriasis. This is not achieved with fluorescent lamps. With the new LED lamps the dose is 1/100, there is no redness in the skin, there is no need to increase the dose gradually and to wait 2 months to see the skin cures. The skin cures in one week. You can get a refund if the lamp will not cure you Psoriasis after using the lamp 2 months.
Since infra red passes deeply into tissue, can looking at a red light therapy light source with eyes CLOSED be even safer by pre eyelid tissue filtering for the best red spectrum transmission?
yes the recharging is from the inducted electro magnetic energy of the red light photons, at that angstrom frequency, matching some of the atoms of the molecules of the mitochondria. And in any way measurable an induction of energy without exchanging mass.
