The Global Resource for Advancing Cancer Education (GRACE:www.cancergrace.org) is a nonprofit organization founded by doctors, nurses, and other specialists who are committed to improving the care that cancer patients receive. The content here is provided by cancer experts for patients and caregivers on a range of oncology topics.
My mom died of vascular dementia i believe it was brought on by brain radiation for her lung cancer treatment. We were told that the lung cancer was gone that they got it all, after chemotherapy but the chance of a single cell going to her brain would prove to be fatal. My sweet mother chose brain radiation treatment and she beat cancer (so we thought). She got so weak, she lived 5 years after lung cancer diagnosis. She was cleared of cancer March 2024, had a stroke April 4th, lost use of her leg, never got better with physical therapy because she became child like and was hallucinating. Cause of death listed as pneumonia on June 30, 2024. Looking back, I believe the brain damage from radiation treatment caused her cognitive decline. We saw her getting more confused and had no idea she had vascular dementia til June, 20th, 10 days before she died. My poor mother. Her Dr's were lousy. We and she had no idea she had dementia. We would/could have done things better for her. We thought her UTI was why she was so confused after the stroke. 😢😢😢😢😢😢😢 rest with Jesus mom. We'll be with you soon. 🙏🏾
I have Small-Cell Carcinoma of the Lung, a Medialstinal Mass I believe is what they call it. I finished Chemo without Radiation, and I am continuing on through Immunotherapy Treatments. My next appt is tomorrow, and I get to meet up with my Oncologist. Over the past 12-days, I have been struck with this Rt Shoulder Pain, and I have already had a dissection of the Lymph node to that side, with the accompanying numbness/ache from the nerve being cut. This pain is deep below the shoulder and radiates to my hand and up my neck onto my left ear. It comes through in waves, and when it strikes I have to lay down, it is excruciating and I lose my breath. I already went to my PCP who knows of my condition and all my inpatient stays getting word done; they seem to think it is a pinched nerve from inflammation....I got x-rays, and tomorrow I can see the results. Pain meds and Anti-inflammatories just do not help. I say Yuck, because my Oncologist thought I beat this, my most recent scans show me clear as a bell...and now this! Uggh! I say to the Lord, just get me past the Election! Ron
Hi, I'm so sorry about your diagnosis. If the lymph node dissection caused nerve damage perhaps a consult with a neurologist who specializes in nerve damage. I'm curious if your tumor was resected. From www.cancerresearchuk.org/about-cancer/breast-cancer/treatment/surgery/remove-lymph-nodes , "Nerve pain-You might have numbness, tingling or a shooting pain in your armpit, upper arm, shoulder or chest wall. This is due to damage to the nerves during surgery. The nerves usually repair themselves, but it can take many weeks or months. Your doctor or nurse can give you medicines to help with nerve pain." Gabapentin is often helpful for nerve pain. Also topical (put on the skin) creams, physical therapy (PT), and massage and desensitization can be helpful. How did your appointment go with your oncologist?
@@CancergraceOrg I am scheduled for CT of the Neck...since I have Small Cell my oncologist feels that it is radiating from my spine. He ordered two Scans 2-weeks apart so they can compare them. I was prescribed Dexamethasone to help me. Thank you for responding...I get hit with Attacks with pain beyond the scale, and it lasts about 45-minutes, afterwards I am exhausted and very sore, like I am right now. I have had a few days with up to 4 attacks...what a mess. I know of the numbness and tingling (sunburn feeling) because of the dissection, but that was done in April, and it never caused such pain before now. I can only guess at what the real issue is, but todays x-rays did not reveal anything, sadly!
Geez, I'm so sorry. A CT will give a much better view than the xray. If there is progression in the spine there are several options that might help. Radiation for one thing can give quick relief and neurosurgeons have many tricks up their sleeve that might help. If the dex doesn't give relief call your onc office to let them know and ask about gabapentin and lyrica. Don't think you're being too pushy. Back pain from cancer is no joke. Let the office know you need help. I've never dealt with health professionals as kind and helpful as those in oncology.
I got a report on my blood work and after a paracentesis that I had six liters drained that fluid showed malignant ascites and my CEA was 4.5, my CA125 was 364.0, Cancer Antigen 19-9 is 38.5. They haven’t been able to tell me what type of cancer yet, but I want to survive. I have a CT scan on Tuesday, a paracentesis on Friday. I feel ok actually normal. My fluid has not built back up since my paracentesis. I am on a diuretic and that helps. I just wanting some guidance. I am sixty and just looking for some answers. Waiting is so hard. Thank you.
Hi. I'm sorry to know about your diagnosis and that it's not obvious from where it came. PET scans can see if there are any places that suggest a tumor (or inflammation or infection) is present. I assume you've had one? There are usual suspects for malignant ascites. If the fluid hasn't returned perhaps you'll not need another paracentesis as early as Friday. However until the culprit is found and dealt with it is likely to return. From jamanetwork.com/journals/jamaoncology/fullarticle/2757397 , "Certain cancers, such as ovarian, pancreatic, liver, and colon cancers, are more likely to cause ascites." Best of luck and don't hesitate to ask if you have questions, Janine
Very informative talk that answered my concerns. I was diagnosed with stage 4 cancer. From lymph nope under arm and malignant ascites. Thank you so much for sharing this information.
I'm so sorry about your diagnosis. I hope you are getting what you need. Please let us know if you have questions. Ask here or on our forums, cancergrace.org/forum/active Take care, Janine
Hi studiohost, I'm sorry. That is troublesome. Have you spoken to your oncologist/hematologist or you primary doc about what can be done to coax the levels to normal again? These problems can last. There are survivor groups online that are surely to have tips on what has been helpful. I'm not familiar with these groups other than knowing they exist but I do know that this type of crowd sourcing can be life changing. Best of luck, Janine
Yes, I agree. We encourage our faculty to use both generic and brand names which is a pretty easy thing to miss in a live webinar for our faculty who are accustom to using just one term. I'll pass your note along to our program manager and she may be able to correct this type of oversight in edit. Thanks for the input.
I had a pneumonectomy in 2015 and it is 2024. They removed my upper left lobe of my lung after being diagnosed with stage 1b NSCLC. I learn that I now have a left elevated diaphragm. I consider myself extremely lucky.
I'm sorry you're having this issue and if it's causing problems I hope you are able to have it resolved. Don't apologize for having good luck with lung cancer. I know how troublesome problems from cured lung cancer can be. Best of luck.
Absolutely! We have live lung cancer events every year. I believe the next is next February. However, we will have new videos by June 9... post ASCO which is next week-June 1-3. These videos will cover the most up to date advances in lung cancer management addressed at ASCO.
can 50 mg Cisplatine side effects last for weeks since the patient is on iron suppliement for 3 months and hemoglobin is still 9.5 it's not corrected after stoppage of chemotherapy my mother was on Cisplatine 50 mg every 10 days for 5 times at the same time she did 28 radiation sessions as she was diagnosed with colorectal vaginal fistula after removal of urinary bladder & genetal system 2 years ago and she's living on collecting urine from sack outside of her abdomin the radiation and chemotherapy last sessions was one month ago
@@CancergraceOrg my husband just had his 15th Pet scan on. Monday. He has one hot spot with an SUV of 3 compared to 3.4 last yr. We Praised the Lord as it has been a long 10yrs and stag 4 twice. Non Hodgkin's Lymphoma
That's great news Patricia. BTW, my husband is 15 years from his diagnosis, nsclc. He was branded recurrent twice within the first year. This past year he's had a year of suspicious scans but no cancer found in 2 biopsies. Very happy for our good luck.
CDC is aware of public concern about the safety of HPV vaccine. Since the vaccine’s introduction in 2006, vaccine safety monitoring and studies conducted by CDC, FDA, and other organizations have documented a reassuring safety record. There is no current evidence that HPV vaccines cause reproductive problems in women. From, www.cdc.gov/vaccinesafety/vaccines/hpv/hpv-safety-faqs.html
Im stopping the keytruda. Cost is 56,000.00. OU cancer center acting like they never got my application for financial help. Medicare paid most but i got a bill for 2,400.00. this is 😢 session. Rediculous cost for a drug.no thanks😢
If they lost your application they will prob work with you to get another one filed. The cost of these new drugs just keeps increasing. Practically no one could afford them. I just went through the mind-boggling process of getting Medicare. Especially if you don't have part c you shouldn't have much of a bill for your anti cancer treatment. The cancer center should have someone who will help get you through the financial process. Taking a break from treatment because you need a break is one thing but stopping because of the bills is awful. I hope you find a better way.
My mother has the same fluid in lungs Doctors have inserted tube for fluid to pass But it is not stopping daily approx 250 to 300ml fluid come out from it. She has lung cancer. What can be done to stop this fluid?
Medical and radiation oncologists may treat the underlying cancer with chemotherapy, immunotherapy, targeted therapy, and/or radiation to prevent the fluid from accumulating. A pulmonologist or thoracic surgeon will work with your oncology team to discuss other treatments available to remove the fluid and/or prevent it from re-accumulating to keep you breathing well. Your healthcare providers will work together to treat the cancer and your symptoms. Here is a list of links on the subject. Let us know if you have further questions. cancergrace.org/tagging/pleural-effusion Best of luck,
@@CancergraceOrg I want to know that 650 to 750ml of fluid is comming daily from drain in lungs and Doctors are unable to use talcum powder due to this is there any way to minimize that fluid so they can do this process.
@dharmendrajat007 treating the cause of the effusion is the only way to minimize the build-up. Alternatively, an indwelling catheter such as a pleurex catheter can be worn for extended use. It should not cause pain.
@@CancergraceOrg For how long cathater can be worn. She is taking Geftinib tablet but the thing is she is having fuild of red color and it there any thing which can help her in recovering. Her age is 56 and right now having complain of Diarrhea.
An indwelling catheter can be worn for as long as there is fluid that needs draining regularly. It is normal to have blood in the fluid of a malignant pleural effusion. It's important to let her onc team know of new or worsening symptoms like bloody effusions and diarrhea. They can suggest or prescribe something to help with diarrhea. If the rest of her cancer is progressing it may be appropriate for her to take tagrisso.
Thank you for sharing. I assume you're saying that you've not found these supportive care ideas helpful and I'm so sorry. Cancer really lives up to its reputation. Good luck,
The following playlist includes info about financial issues and ways to help manage costs. Best of luck. ru-vid.com/group/PLWsyUmdjLXhEF4K5JeaSzHArR7v0e1iqm&si=0rGB-xPY5SmCRsCX
Thank you for the information. My best friend is 50 and has MCL and she’s going in to hospital for the next 3days to stay and have her 2nd round of aggressive chemotherapy and she’s been told when all chemo is finished she will need a stem cell transplant. Really praying it gives her a fighting chance and she has many years left yet🙏🏼
I'm glad this is helpful. Speaking from a spouse and best friend perspective, I find knowledge/understanding of what's happening to be a great comfort (well, as good a comfort as can be had) and I've found quality of care is a broad spectrum so knowledge is quite literally power. Best of luck to you and your person.
@@CancergraceOrgYes, that’s SO true🙏🏼 My friend turned round to me a few months ago and said “do you know your the only friend I have that has researched my condition and educated yourself to know how to support me best and that means the world to me” she said it gives her great comfort as a lot of friends have disappeared unfortunately. Thanks so much I’m hoping for the best for her x
My side effects are crippling muscle agony, and l mean crippling where every movement is accompanied by a scream of pain, just trying to lift my arms is abject agony, walking impossible or even trying to stand is out of the question, accompany this with the worst uncontrollable diarrhoea unable to get to the toilet is beyond embarrassing - if this is the “fatigue” they are describing here l suggest the word fatigue is kinda being used loosely
Joseph, That sounds a lot more than fatigue. If you're not already, keep close communication with your oncology team, doc, nurses, techs. Also there are many online patient groups specific to treatments like immunotherapy groups on FB. You may get a better feeling about better options for side effect management or possible treatment break, or changes to discuss with your onc. Also a 2nd opinion from a major academic research center may have helpful input. I'm sorry you're going through this. best of luck, Janine
PET scan will light up like a lamp where cells are active such as in cancer, infection, inflammation, the brain, the stomach all show up bright on a PET scan.
I'm not sure what blue you're talking about. In these videos, there is no blue. There is an explanation of coloring that some pet reporting uses and is explained in an NIH article linked below. The section toward the beginning of the article titled "Optimal windowing of PET images" explains that the color system follows the rainbow color system putting blue near the coolest/least active areas. I hope this helps. When in doubt someone on your care team should be able to explain precisely what your's mean. www.ncbi.nlm.nih.gov/pmc/articles/PMC5067887/ Best of luck
Oh dear, I hope this is not what I have but my doctor said she found 3.7cm mass on the upper corner of my left lung. I’ve also been going through physical therapy because I have shoulder/shoulder blade pain that goes through my arms/fingers. My doctor thought it was coming from my neck or back. Now I have constant chest pains. I will have a Pet Scan on March 16th @ NYU. If this is what I have, I wish Dr. Vallières could treat me🙏🏼 He’s so knowledgeable, talented, skilled with a warm, calm demeanor. My daughter is getting married next year & also graduating vet school. My other daughter (her twin) will graduate med school. I want to be there for my girls milestone celebrations. I raised them as a single mom😢
Hi Katrina, I hope you don't have a pancoast tumor. If you do you should be in good hands. Actually, lung cancer's best weapon is to go undetected but pancoast tumors cause enough pain to be detected early enough to have better cure rates than the rest of lung cancers. FYI, the chief of clinical thoracic surgery at NYU Langone, Dr. Robert Cerfolio is a world renowned pancoast tumor surgeon. He practiced literally down the street from our house when my husband was diagnosed with a pancoast tumor. Hope you don't have cancer. A PET/CT is the right next move...after PT that didn't help...right? Keep us posted.
Thank you. Now I need to decide if I am going to restart Keytruda or not. There were some isolated cancer cells found in 3 of the 9 lymph nodes that were removed during surgery, so the oncologist recommends finishing the 17 cycles (we stopped after 5 when I had the adrenal crisis). I also had autoimmune flares of joint pain and Hidradenitis. So I am Concerned, but want the cancer to not come back.
When there are difficult decisions to be made, it's good to have another head in the game. This article is one of my fav all time grace articles. It discusses the who, what, when where, and why of 2nd opinions. They're never a bad idea and it sounds like you need a better understanding of the situation. cancergrace.org/post/insiders-guide-second-opinion Take care, Janine
I was prepared for all of the side effects of chemo, and I remember being told there were not commonly any side effects of immunotherapy. Well, Keytruda shut down my HPA axis and I ended up with an ambulance ride and a 4-day stay in the hospital in adrenal crisis (my cortisol was .8). I now am told I am steroid-dependent for the rest of my life. I’ve gained 30 lbs in 2 months on hydrocortisone. I probably would have taken the trade of adrenal insufficiency over triple negative breast cancer anyway, but I was not prepared and thought the symptoms (extreme fatigue, sleeping 18 hours a day, dizziness, extreme weakness, shortness of breath, stomach pain) were just from the chemo (AC).
Hey ARefinedMe, I am so sorry this has happened. For anyone else reading this you obviously want all the information so you can make decisions and ARefinedMe's experience is an unfortunate example of why it's important to check and double check resources yourself. You never know when your onc team is having an off day, or just isn't interested in how much you know. Refined, whether knowing the possible side effects could have helped catch this earlier and changed outcomes or changed your decision to take keytuda isn't isn't an excuse for your care team not to share or know side effect information. Steroids are joke to have to take forever. Again, I'm sorry for what you go through and hope you have or can learn to live and enjoy life with this new normal.
I took this pill for 6 months. It transformed me into a nearly disabled state. I stopped taking it, and I feel so much better. I had quit working because I couldn't function.
Hi solidcatink, I'm sorry you had to stop taking aromatase. It's shameful that the trial didn't record and report side effects other than cancer risk. Did you start tamoxifen or lower dose tamoxifen? I'm glad you feel better now.
Fantastic explanation! Thank you for this! It will be shared with my family so they have a much better understanding of the procedure my step-father just had. Amazing, you made this 8 years ago and it's still extremely beneficial and helping so many, I'm sure. 🙏🏼
Hello, since a month i cant really breathe that good also i have symptoms that sometimes like no appetite, sweating while sleeping. Im scared to go to the doctors
So sadly for Cissy's family and loved ones, she died on April 2, 2023. The clinical trials she endured did little to nothing to extend her life and in my opinion cause more harm than good. Cissy was a devoted and loving Mom, daughter, sister, niece, cousin, and friend as well as a very talented writer and fierce advocate for children. The pain of her loss will never leave us.
I'm so sorry we've lost Cissy. I can feel how much you loved her. Cancer is a devastating disease. Even treatments that are FDA approved can cause more harm than good. The understatement is, We need better treatments. Most everyone with cancer diagnosis has to make decisions about cancer care. Care plans have to balance one's wills and won'ts, it's critical and individual. Clinical trials are far from perfect, as is they are the only way to move forward. They are definitely not for everyone. Ideally, those who participate understand the risks. They should always be the heroes of the trial. That doesn't take away grief. Still it feels good to be proud all that Cissy did including being a part of advancing cancer care. I'm very sorry for your loss. Take care, Janine
NO. PFS stands for progression free survival and means there has been no progression on a treatmetment hence the treatment is working. It could be that there has been shrinkage or it remains the same.
Hi, I am so sorry your wife has passed. I know how recent it all is. Fortunately there has been advancements in treating egfr exon 20 nsclc. Sunvozertinib is approved for 2nd line treatment in advanced egfr exon 20 nsclc from results of phase 2 trials. We still need more though. Here is a video on the subject. Take care, ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-HNSNUzqfgYI.html
An xray can see air space in 2 dimensions. A CT can get a better look because it will give a 3 dimension view which can pick us pockets where fluid can hide, called loculated pleural effusion. Sometimes the lung doesn't completely expand but is clear enough to breathe well enough for most daily tasks.
Wow this pretty much exactly describes my pleural effusion that was brought on by hodgkins lymphoma. Only I was in really good shape so I didn't notice untill I tried running or climbing stairs. Day to day I felt fine
Hi, I'm sorry to hear of your diagnosis. It's not uncommon to come into a new cancer diagnosis in good health...otherwise, including PE's that aren't causing much shortness of breath. I hope you're doing alright right now.
Hi Claudine, I'm sorry you had or are having to go through this. Cisplatin doublet concurrent with radiation can be quite difficult and many people need to cut short the planned regimen. The 3 cycles you were able to take of cisplatin still gave your cancer a hit. I hope you are doing well
This explains exactly how my sister was diagnosed with adenocarcinoma stage 3 stomach cancer ,on 15dec 2023 and on 28 she developed ASCITES swollen stomach she's now in serious pain thw doctors from thw main hospital have abandoned her saying it's too late there is nothing they can do to save her life it's a huge stress for us but I'm a believer who strongly believes in god's miracles, I'll come here to tell her success stories soon oh later thank this chanel for the wonderful presentation
Hi, I'm so sorry your sister is going through this. If she isn't sure that nothing can be done to cure the cancer there maybe treatments to slow down the process. If no anticancer treatment is used hospice will manage comfort care and provide expertise for your sister and her family and caregivers. If she isn't sure she's getting good care perhaps she can get another opinion from an academic, research hospital. I hope for the best for you and her, Janine
I had a 7 week once a week infusion of cicplatin. I did not get nausia, but the brain fog was crazy and yea I think it has hurt my hearing and loss of taste. This and 35 radiations of my head and neck throat SCCN. Pretty brutal tretment==take my last two rediation nexy tues and wensday--dont know if it worked yet or not.
Hey Mick, I hope the treatment is a success. That is a difficult regimen. Glad you didn't have nausea. They use good anti-nausea drugs with chemo infusions so a lot more people do better than they would have 15 years ago. Chemo nurses have the best side effect management suggestions. My husband had concurrent etoposide/cisplatin and radiation in 09 for lung cancer and he's doing fine today. Best of luck, Janine
I just started my treatment, it's identical to yours 35 radiation to throat and neck and once a week cisplatin chemo over a 7week period. Today was second radiation and first of the chemo, how long before these side effects arrised with you, and did they subscribe over time. Hope your treatment went well and your c free ❤️
@@MorgansReviews I had my PET Scan April 9th. Results 100% Cancer free. I hesitate to tell you about my side effects, due to the fact I never had real horrible side effects. Worst I had was my taste was all messed up and dry mouth. I'm 6 months now post treatment, I have regained some of my taste but I still get dry mouth. I eat alot a Recola sugar free lemon mints. The reason I hesitate is because its different for everyone. I was lucky and I know it. My prayers are with ya and good luck! I edited this to mention the muscle loss. I did seem to have some after the chemo and also Fatige. I would be watching a program I was even interested in and would fall fast asleep. Both of those side effect have subsided now. All in all aside form the dry mouth and my neck being alittle sore fron time to time. I actully feel really pretty fantastic!!!! Considering all I went through. I do pray its the same for you.
@@mickthedawg4575 thank you so very much for the detailed reply, it's very helpful and very much appreciated, so glad to hear that all went well for you and pray it continues that way for you ♥️♥️♥️
My sister was diagnosed with stomach adenocarcinoma stage 3 shortly she developed ASCITES..... she's hasnt started chemo was advocating for fasting and keto but ascites is making life hell foe her horrible pain ....i hope she'll get through this by god's grace.
I'm so sorry your sister is going through this. If the ascites is caused by the cancer really treating the cancer is the best way to treat the ascites. I hope she does well and all the best to you, Janine
As stated in this video, when PFS can be measured in years for the outliers and months for others it is real and meaningful but if PFS can only be measured by weeks not so useful for people but that data does give us info for now we know.
I have been on creon for 1 year for epi and have severe deficiency. I can take 10 25k per meal and stool is formed but stool is still so sticky and greasy. Taking ppis don't help and taking slow release bicarbonate isn't making a difference either. Even my Gasto can't offer a suggestion to improve the results. No matter what I eat either a chicken salad or a chicken curry the end product is always the same. Any advice or something I can try? No other brands available in Ireland.
Hi Richie, I don't have any input. Perhaps this link can provide some help. my.clevelandclinic.org/health/diseases/21577-exocrine-pancreatic-insufficiency-epi Best of luck, Janine
Yes I agree. Please let me remind you that this video is 13 years old and radiation oncology has made some changes. So make sure the info you've taken from this video is still the standard of care. Don't hesitate to ask us. Thanks,
Hi my father in law has nsclc egfr lung cancer that had a micro metastasis in the brain which was removed with cyber knife. His latest MRI shows the tumor in the lung has now reverted back to the size when it was first discovered. He has been treated with osimertinib which shrank the tumor in the first 3 months by a third from 3cm to 2cm. The next scan showed it was still at 2cm and the latest is showing it’s back at 3cm. He has had a second opinion with a professor who said he can surgically remove the tumor but his oncology team are not happy with taking that route as they feel it could make the cancer aggressive and form a tumor/s elsewhere. He is due a PET scan in a couple of weeks and some other tests to see if it has mutated. We are so very worried as we have conflicting advice about the surgery. What are our options if the osimertinib has stopped working if 1. The cancer hasn’t mutated and is the same and 2. If it has mutated. Also is there more of a risk having surgery with this type of cancer or is it because it had already metastasised to the brain (which is all clear now)?
Hi Henrietta, I'm sorry about your father in law. If the brain met was the only metastasis and was completely removed then the primary could be considered the only remaining cancer which would make surgery an option if the tumor is otherwise considered operable. This is known as oligometastasis more on that here, cancergrace.org/post/importance-oligo-oligometastatic-or-oligoprogression. Ideally, the 2nd opinion is gotten from a specialist at a large academic research center. That specialist would be willing to advise who would be best to perform the surgery (or SBRT if unresectable). A lot of decisions depend on the individual's health/performance status, location of tumor, and willingness for whatever treatment. If it is found that the cancer has spread and tagrisso is no longer working anywhere then he could look into clinical trials (that specialist could help with that too). After using all TKI options then chemo/immunotherapy would be considered next. I'd certainly look into the oligometastasis options first. With surgery or SBRT there is possibility of cure. Systemic treatments aren't (haven't yet been) curative on their own. Best of luck, Janine
Wish all doctors felt like you do about side effects. My mother quit Keytruda after 7 treatments because of the side effects. Terrible pain in her hands, felling like crap and a horrible rash that looked like she was turning in to a crocodile. When reporting to doctors they were like “ Oh well”.
Uug, that's awful. Perhaps your mom will have a lasting benefit from the 7 treatments she's had. We still don't know enough about it but some people seem to have benefit many months after immunotherapies like keytruda have been stopped. Too, nurses, infusion nurses are a great go-to for info like side effects. 2nd opinions or a move for a better fit may also be possible. 30 years ago when there was little to offer wording like that was still unwarranted but the sentiment would have been understandable. Today there are options and it's accepted that doctors take quality of life to be a very important aspect of care. I'm sorry y'all are going through that.
@@CancergraceOrg thank you. I will try your suggestions. I’m glad she stopped because she has no cancer per scans. About 4 years ago she had cancer under her toenail and had her toe amputated. She had another scan this year and something showed up in her calf and was removed. The cancer had clean margins around it. As you can tell I’m not very knowledgeable when it comes to medical issues but this video was very helpful. Thank you
I understand, I came into the cancer world with as little knowledge as one can have. In 09 GRACE was lucky to have oncologists answering questions directly. As you can imagine the forums became a mecca for learners needing info quick. I can still ask our faculty when needed but lots of things become old hand while others move much faster than I can keep up with. TMI? :) I don't know what type of cancer your mom had but it does sound like as long as she gets regular scans she should be fine...not to mention everything that goes into active treatment. Below I've linked an excellent primer on 2nd opinions, even if the 2nd is far from home it will give a better understanding of what's maybe up and prob be able to help find a new onc close to home. And prep for the 2nd op so to have best questions they will be happy to answer them. cancergrace.org/post/insider%E2%80%99s-guide-second-opinion
Thank you all for your support. I just want to say that you are an inspiration. You have your illnesses yet take time to help me so I can help my mom. You are the cream of the crop, you are all beautiful people.
Tracy, that means soo much. My husband is the one who had cancer. It was supposed to be stage IV lung cancer but when he took a treatment break it never progressed. That was 11 years ago. The doctors on GRACE and all over social media teaching patients and caregivers like us and advocating for patient advocates have restored my upmost respect for the profession. Thanks, Janine keep us posted.
My 86 yr old father just got diagnosed this week, waiting to learn what stage he’s in. Meanwhile, we’re trying to learn what MCL is. Your video helps us understand our potential trajectory. Thank you for this great information!
Can you die of stage four lung cancer even if it doesn’t go to any other parts .. and I love your channel, and very thankful that you came here today to help save millions of lives around the world ✝️
The definition of stage IV lung cancer is that it has metastesized from it's original tumor. If a tumor doesn't spread it's really not considered cancer. And yes one tumor can grow to a point that can kill.