Confessions of a gal that lives for the outside stuffs- backpacking, long distance hiking, trail running, and active travel- along with videos documenting her journey overcoming the inner ear disorder Vestibular Neuritis.
I’ve been dealing with this for 9 months my only symptom is a swaying motion or up and down motion. Only just got it looked at last week doctor said it’s probably vestibular neuritis. Pls tell me a physiotherapist can help fix it.
Thanks for making these videos. I am in my 5th month, and still feel woozy and floaty often. I work on a computer for work which has been a struggle and sets me back. I hope that I will recover fully like you did!
@@SheilaBRI have improved a bit, I can do 8 hour days on the computer 3x a week now, it’s tough and I have to push myself. I did the VNG test and my results came back normal. The audiologist mentioned I could be experiencing vestibular migraines.
@@ChloeWarren-fz8gp Hi Chloe, did you do a VEMP test as well? How long have you been experiencing symptoms? Also, did you do one-on-one vestibular therapy with a physical therapist? Thank you so much for your help!!!
@@SheilaBRI just did the VNG and caloric test. 6 months so far been experiencing symptoms on and off. I went to a physical therapist for a few months and then stopped and continued to do the VRT excersise at home.
I noticed an improvement when I did an exercise by The Motivational Doctor here on RU-vid called “Fix Your Atlas and Miracles Can Happen” and focusing on relaxing my body through meditation. This helped me a lot because apparently, my spine and nervous system is what made the dizziness worse. I hope this helps someone out there! Thank you for giving us hope, I was feeling so sad for a while.
@@SheilaBR unfortunately, my ear problems are persistent because I now feel vertigo after a 3 hour flight. 😔 So I’ll keep trying methods but it caught me off guard. Trust me, vestibular neuritis is more tolerable than vertigo so I am now wishing it was just the feelings off balance instead of feeling like the ground is moving.
I’m almost 8 weeks. This is so encouraging thank you! The symptoms are so bizarre it’s hard to get anyone to understand what you are going through. It’s so helpful to hear your relatable story. I had an acute attack at onset and it was intense. Then 2-3 weeks sort of just lived life with weird sensations but week 4 things escalated a lot and I had to stay home and not drive. My PT started week 6 and it was baby steps. I’m anxious to be able to drive again especially. I’ll hold out for this coming for another 1-2 months hearing your story.
@@connorjudge6422 Doing a lot better 2 months later, I’d say 60-75% improvement since then. I’m able to drive again although not in the rain. I don’t love highways still but it’s doable. My visual vertigo went away for the most part thanks to VRT. If I watch too much tv it can make me a little car sick feeling but I think that’s a good thing to let my brain get used to all kinds of input. Physical exercise or heat/sun exposure can quickly trigger me. I still get a lot of fatigue and am not back to regular activity endurance but I’m not so concerned with that. I continue gradual increases of exposure. My biggest issue is sound sensitivity. It came on suddenly and it’s the biggest trigger for me to get a dizzy episode. I wear ear plugs in any busy environment. I can’t handle any competing background noise like multiple conversations or music or white noise in the background. If I get dizzy it’s def not as bad as before, it’s more of a disorientation/wobbly/nausea feeling and I can lay down for an hour and it passes. If I get too much sound exposure in a day, tinnitus gets a bit louder and my affected left side gets intense eye fatigue. I was told the eye is connected to the nerve so that’s why. Not a headache but the eye and temple feel very sore and tired. I try to take 15 minute rests throughout the day and it helps a lot to build up the endurance and exposure levels. If I can get rid of this sound sensitivity, I would be ok with the level of recovery I have. At this point though it keeps me from truly living my life still. Def feeling grateful and optimistic.
Update: Its been a little over 2 years for me after I first experienced VN, and I can actually say that I'm offically at 100%. No symptoms at all. It showed me personally that Lindsey is right; it really is possible to recover. I want to thank GOD, and thank you Lindsey for helping me conquer the most hellish period of my life.
Hi.. i had 2 episodes of vn in the past 6 months and although i dont have acute symptoms i still m struggling with visual issues and rocking feeling.. when were u out of symptoms completely and what all did u do
@uzmanausheen5475 hi, im really sorry that youre dealing with those issues. Ive made a couple of previous posts that detailed what I did and the different stages i was in at different times. IIRC, it was around month 9 until I could personally say I was (mostly) fully recovered. In short, what I did included the following: -LOTS of sleep -LOTS of sunlight (Vitamin D/infrared) -fasting and intermittent fasting -Eating salmon/fish oil supplements -"Wahl's Protocol" diet (diet for MS patients [i dont have MS btw] involving eating LOTS of plants) -VRT (tried to do it throughout the day too) -HIIT/playing sports -Dancing/capoeira (movement challenges like yoga/tai chi/capoeira are basically the ultimate form of advanced vrt therapy from my experience) -lots of walks in the park -gradual (re-)exposure to tough activities, like highway driving -sauna (promotes healing properties) -GOD/prayer + loved-ones + church support (helped the worst of anxiety problems, which is a big factor in long-term VN persistence) -believing that I could get better/support from stories like Lindsey's Things that did NOT help in my personal long-term recovery from VN: -medicine (it [arguably] helped with short-/medium-term symptoms for me though) Btw, the youtube channel called "The Steady Coach" also had very good videos with helpful tips that aided me. I hope you continue to get better
@@beestar504thank u fa sharing it means so much .. my story is a bit more complicated.. while i was recovering from vn i started taking antidepressants which then caused a whole bunch of new symptoms.. so i withdrew in 6 weeks.. but since after that i am dealing with withdrawal symptoms which are very much like vn symptoms and its so disheartening to b back to square one
@uzmanausheen5475 wow, that's terrible. I hate that you had to deal with those new symptoms. I dont know if this is helpful, but I had a point where I was advised by one of my doctors to take anti-anxiety meds for 6 weeks. At best it temporarily dampened the VN symptoms, and when my meds ran out, I had withdrawal via a significant spike in blood pressure (30+ points) for half an hour in the middle of the night. That scared me and had me worried about long-term damage or med dependency. After that I focused on natural methods and foods for my lifestyle and my body normalized and acclimated not having the meds. I hope you will be able to recover from your med side effects as well.
Giving up isn't the best option, i never give up on myself and it helped me find Dr Madida Sam on RU-vid whom with his natural treatments cured my Parkinson Disease and meniere disease/
Been exploring over a year.. Finally diag vestibular neuritis in L cochlea.. very similar journey.. getting better! Still get very fatigued ! Toprol made me paranoid of getting😮 12:59 in shower. Do physical therapy.. yoga. Walk at gym trying pilates I stop and rest if I need . Take pressure and reflux and Olly sleep gummies. Did stop wheat and sugar and one coffee per day Only dealing with fatigue. Dont stay long in big stores, some unstable motion feelings but encouraged! Do the work!
Hi Lyndsey you have been my only motivation nobody else got through to me, I am four months in suffering from a lapse and wanted to ask a question which is quite specific. Did you have a feeling of like you would fall backwards if you tried to focus on things up close? I find if I go to look inside a kitchen cupboard I get a sensation like at the beginning where my heart flutters and I feel like I’m falling. My insomnia has been tough I feel it’s holding me back so iv started magnesium, exercise wise if I try a run I feel like I have pressure in my head and feel floaty afterwards, did you at this point? Thank you for being so amazing xx
This a true blessing to hear your symptoms as they are exactly what mine are. The only difference is I'm 60 and feel like something is wrong with my heart even though I have spent lots of money testing to show my heart is fine. Every detail you describe is me to a tee... thank you sweetie.❤
Lindsey I can’t even tell you the relief I have found in your videos. By the grace of God, I stumbled upon your two year video and bawled my eyes out at the relief I felt listening to you. It is so scary to look on the Internet, and every time I did, I would be bombarded with horror stories that would make me go into this depressed. Anxiety filled state. I am on almost 2 months of my diagnosis with vestibular neuritis. Actually, I wasn’t diagnosed fully until about 2 1/2 weeks ago and I have started PT. But I just came on to tell you how incredibly powerful your video is and I want to thank you from the bottom of my heart for posting. I hope you’re still doing well. I am watching all your videos over and over to get through this.
Hey guys How is your recovery going ? Are you seeing a slow /fast improvement at all.. I'm now 6months into this awful journey ' Its been the longest hardest struggle of my life I spent 7 days in stroke unit Partially disabled/ non verbal for many weeks Cat scan /mri say no visible sign of stroke. Diagnosed with Vestibular neuritis I'd never even heard off this at the time ( nov 23) It's taken months to start walking again ' bed bound for 2 months .my heads still dizzy now and no sense of balance still. I'm having regular accupuncture still and also started with physio dome months ago Guys it really can be a struggle I just say from my experience keep ya Hope's up and keep battling it, .time is the only thing I can see that will see the back of this terrible debilitating condition God bless you all 🙏
@@Lovemy911 my journey with this started almost a year ago now… Ive noticed i have good days and bad days with it. I’ve really tried to reduce my stress levels and that has helped i think. It has gotten better over the months but some days it does come out of nowhere. But just keep your head up! I always continue to just focus on all the good in my life and stay hopeful for the future ahead! We all have so much to look forward to in this life and it doesn’t just stop here😊! God has a plan for our life… it can and it will get better!! On the days i have felt helpless I hold on to a Bible verse and read it over and over again❤️ He will bring you the peace that surpasses all understanding.
Based on my experience, I confirm the same trend. I am 4 and a half months into this nightmare and things seem to be significantly improving. I still have balance issues here and there, but I am learning how to cope with them. Because of anxiety, pure fear and recurrent panic attacks, I had to quit coffee after 20 years of daily usage... yesterday, I have finally had my first coffee in 3 months! Anxiety is still there, but I have managed to take back control on my life (for the first three months, this wasn't the case). This condition triggered so many seemingly unrelated issues all other the body: leg and harm weakness, consistent neck pain, leg pain, palpitations, chest pain or constriction... I can go on listing for an hour! Moreover, my symptoms increase any time I feel stressed about something, like an endless spiral: symptoms cause fear and fear causes more symptoms. It's so easy to feel hopeless, especially when you are misdiagnosed... thank you for your encouraging story!
Did you ever come off your SSRI? The lexapro took all of my symptoms away, but I recently tapered off due to side effects and they came back. At this point around 6 months in. I’m trying now to heal naturally. I feel the lexapro was masking the illness although it did help greatly.
Hi, I want to ask the same! I am in VN in 7. th month and I am thinking of ask my foctor to give me SSRI. This illness makes me totally hopeless, But I heard that it could be better to heal naturally I dont know Please Lindsey help us with an advice Thanks in advance!
Thank u for sharing ur video I’m getting better slowly I got vestibular Neuritis at 10/12/23 is not easy i was so frustrated tired fatigue all kind of thing but I try to stay positive i also go to balance therapy I’m getting better I’m going to my third month in January hoping to go back to work in January therapy did a lot for me still doing now my symptoms r 80% taking it day by day Thank you
Thank you so much. I am on a one year journey of very similar symptoms. Mine started with BPPV vertigo - violent attacks - crystals. I have learned to do the Epley maneuver and can clear the vertigo episodes within 15 minutes. Then new progressive glasses caused me major adjustments issues. Then my symptoms turned into light and glare and noise triggers. I experienced out of body vision experiences, walking wasn’t stable at times, I was very anxious in the beginning. I had major visual vertigo attack while driving and could not turn off the highway which was horrifying so I stopped driving long distances. A year later I am noticing mostly visual vertigo, brain fog, and pressure in my head. I have continued my workouts at the gym and I play lots of PICKLEBALL. Sometimes I have to fight through as my vision goes blurry and I loose my balance. But I have to say things do seem to be calming down lately mostly because I am not afraid and have tools to manage better plus I am doing VRT. My husband is my support, he massages my back and neck which is often quite tight. He is with me all the time when outside of the house, to provide me with security as we are both retired and enjoy being active. I have not had any testing yet, but have seen 3 doctors (family doctor, an ophthalmologists, an eye doctor, who specializes in concussion related therapy). All 3 have said it sounds like I have Vestibular Migraines (VM). I appreciate your positive attitude and will probably watch your video a lot as a boost of positive energy and hope. Best of luck to you. FYI: We have RV’d to Alaska went as far west as Homer and have RV’d coast to coast through Canada and down through the US to Florida several times as far south as Key West. Would love to know more about your job if you have time one day. Wendy Vlasman
Hi Lyndsey, if there any information or video which describes, which exercises you have performed starting VRT, how many repetitions and have you had CT scan to confirm it was that? Also what tests you had done to confirm it was v.neuritis? Not sure if you even monitor this channel, but any information would be appreciated. Our teenage son has got same symptoms as you had it and cant get out of this for 4 months now so glad to see there is a way out.
I realise it's an old video but I'm so glad I found this, I'm not as bad as you sound but very very sick and balance rubbish. So scared because I live alone, just had my second hospital stay. Your video has brought hope to my troubled head! Gonna contact my doctor about therepy, was it like a physio you saw? I have a fantastic guy the helps me with sciatica. Hearing your symptoms I realise I've had this longer than I thought but you have given me hope. Thank you. 😘😘
