@desertoctane6444 I am so sorry you guys are going through that. I know how terrifying it was for my parents. Please stay hopeful, I am sending you and your family love and strength 💕
What a brave lovely young lady. What you have gone through is just awful but you have shown such a resilience and fighting spirit. I wish you a long and happy life with no more major issues with MS. Stay strong beautiful lady xx
My son has marburg variant he 17 was in a coma for 4 week and woke up with his right side not work and its been 8 week now and its slowly coming back he to tuned 18th in hospital . We all so proud of him and i am of you ❤️ he can stand put he can not walk jet put its early days .i will try and get him to see your video Put he finding it hard to understand that he has ms big love he gos for mri on Tuesday thanks x
I am praying for you as my ms came from nowhere and totally crippled me almost immediately. I know how you must feel, i pray for you to become stronger each day 🙏🏾
Hi MS Meg, I would like to know if spinal top is painful?, my Doctor suggested that I maybe have MS so I know at some point I will have to do a spinal top. Please I would like to know what to expect, thank you
I have chiari malformation, tethered spinal cord and EDS which all mimic MS. I’ve had so many of the same symptoms you have had. Weakness, paralysis, Bell’s palsy, psuedotumor cerebri -trouble speaking and finding the words - thinking the words in my head but diff words come out, even sudden vision loss. Balance issues because the brainstem helps control balance ---Have you ever heard of chiari? Not questioning your dx, but the vision loss was very sudden in my case , both eyes - terrified me. Chiari is often misdiagnosed as “possible”MS. The vision issue is what stumped them …So I just felt led to share with you. It took me 10 years to get a correct dx after my vision loss . They didn’t really know what to do all answered said MS but then steroid packs and things started to turn around. And symptoms will Flare up and be pretty bad and other times it’s like nothings wrong . Anyway I just wanted to share - symptoms since they are so similar and I try to get the word out about chiari I wish you well In your journey to health.
Megan you look amazing. You are very pretty. You are absolutely an inspiration to all that struggle with this terrible disease. You are so correct about taking things like sight for granted. Keep pushing in you pt and you have come so far. I am praying for you to get sight back to follow you make up artist career. God bless you and keeping positive. Your doing great. Xoxo.
5:15 this makes me so mad. I was diagnosed in 2017, so I know that that MS can hit like a wrecking ball outta nowhere. The fact that no one gave you steroids is seriously sending me rn. 🤬 These people had zero idea what they were causing you by ignoring your condition. MS is far too common for people to be this ignorant about the basic treatment of symptoms.
When I was 28 my lupus (undiagnosed) got so bad I couldn't stay awake, could feed myself, couldn't bend my legs or lift my arms. It took getting this bad for lupus to be diagnosed. I have had symptoms all my life but no one ever took seriously. I'm so glad they were able to figure things out for you and you are back to functioning
I can’t believe you went all those days in that condition. Some, not all, but some medical professionals really do not make it easy to trust them or have any faith in the whole system. I’m glad you finally got help and are doing okay.
Thank you for sharing your story Meg. I was having system's for years none of my Doctor's would believe what I was telling them. It took me 3 years going through a few doctors. Finally I went to see a nurse practitioner that truly listen to what I was saying she sent me for a MRI of my head and spine. When the results came back possible MS . She sent me to a MS specialists. He look at MRI did some tests in his office & sent me for a spinal tap right away. Everything came back positive He diagnosed me with Primary Progressive MS. Mine is affected my walking and my speaking.
truly a great video, I pretty much have gone through everything that you have gone through but I did not spend as much time in the hospital as you have. But my vision is one of my downfalls. I’ve tried numerous of the MS medication‘s and I’m looking at switching once again. numerous people have said to try the plasma paresis, but we didn’t do that. I live in Pennsylvania, so in the snow comes and it’s cold outside a lot of times I’ll just go sit on my porch and that tends to help me a lot. I have a power chair and manual chair. Tonight my big highlight was I was able to take a shower without a lot of assistance. Still had my wife there to babysit me but I was able to take a shower. I’ve gone to three different Nuro ophthalmologist will, your pen, medicine, and our local ophthalmologist. when I first met my narrow ophthalmologist, the renowned one he said eventually I would be blind and I said blind is in white black? No, he said I’ll be able to see I just won’t be able to tell what everything is perfectly so that’s how it is every morning I wake up pretty good but after I’ve been awake for a while, the doctor said as once my body gets hot and my brain stem gets hot that is time to take a rest so you’re the only other person I’ve heard of that had the same problem in both eyes and that’s when the doctor from Penn Madison said that’s the only place in your whole body that can affect both your eyes is in your brain stem. I have recently applied for a service dog, hopefully I will get that and that will provide me a little bit of support and assistance with things like opening the doors, etc. derek raines PA I am on Facebook. If you can find me send me a message. It did do a great job on your video and your father, joining along as well is really wonderful.
God has Power He can heal you He can help you it’s relationship not religion He is truly the Greatest Father and the Bestest Friend who always knows and wants what is best for us you should get to know Him 😊❤
I have MS and went paralyzed on the right side of my body when I was 23 also! found out I had it when I was 16 by going blind in my left eye. I also did the plasma exchange! I can relate so much
My daughter has MS. She's only 21yrs old. And it is sad to see her struggling with such sickness. But, she is strong and she is trying her best. I'm sad because she doesn't have insurance and now she is in another location that she is supposed to have rehabilitation but they just don't care. So she tries to do exercise on her own and with me. Hopefully she gets approved and gets her on the right track. Because she is a mom of an 18 month old little boy. She needs to come home.
How are u feeling now hi I’m Desiree I was dx2010 😢and I was driving walking etc 2021 I was just weaker now just accepting I’m not walking anymore u mean rehab will help me rehab hospital 😮 I wanna ask nuero I would love to walk again
This is Soo inspiring 🥲 I can relate I have relapse and remitting MS. I use to play college football now I can barely walk. When I got diagnosed I cried for like 15-30 minutes. I am so happy to hear your recovery! I know how hard it is not to be able to do things you love. That was me 1000%. The thing that broke me down the most was everything I realized I took FOR GRANTED. Once again your story is very inspiring. I now know it's possible to recover at least my speech. I also use to make music. It was actually good 😢. Once my speech started slurring that was the second sign 🤦🏾♂️. I was diagnosed back in January 2023 they think I had it for 2yrs prior. I felt symptoms but the doctors thought I had COVID 😮💨. But I should have just went in... I have soooo much to say but I'll leave it there. Hopefully your better!
I love to hear about your story. It’s amazing very inspiring to me see how far you’ve come, and I pray your progress keeps going in the most amazing direction for you .mine isn’t super bad, but I was diagnosed with MS year ago and it is severe. They put me on the chemo drug can’t remember the name. I believe it’s the one that starts with an R same one you got kind of put on but My memory is one of the things that are most affected by my MS I have balance issues I have issues with my right eye, I can’t look down because when I do the lesions in my spine get pulled and I get vertigo and sometimes I faint, I have severe heat intolerance to wear the MS flares up in the heat, and I lose my ability to speak properly, or speak at all for a short amount of time it was very difficult because I have a son that was born the year prior and it’s hard because yes he’s running around and playing and enjoying and learning how to walk I realize I’m slowly losing all of that and when he gets big enough and he wants to do things I won’t be able to do those things because my MS won’t stop But once I got the chemo drug, we noticed things started to get a little better but I still have a lot of problems with it. I also have cerebral palsy on top of it. I was born with that so I get severe migraines. I get bodyaches where it just hurts through my entire body. I have sleep paralysis that is very scary. That affects me almost every night I have severe muscle spasms. And I still have a lot of speech issues, but I have a very supportive family behind me and I love hearing other stories. It’s very inspiring.
Good to see you are doing good, I am someone that shares information, the Bible tells us that Satan is out, seeking whom he can devour, God is to give abundant life and life more abundantly, if you are not living in the abundant life it is possible that Lucifer, who is out to steal, kill and destroy may have found you, he is out, seeking whom he can devour, I want to give you the names of two men on RU-vid that specialize in what to do if Lucifer has found you the first one’s name is Curry Blake and Second one is name, Andrew Wommack. Please listen to all of their stuff and they will equip you as to what to do next. Thank you for listening. I love you have a beautiful life. Thank you.
Wow, this made me tear up, choke up. I couldn't imagine how scared you must have been and how your parents felt. I definitely got choked up when you were describing the loving care your BF gave to you. Not many men will do this. You both are blessed to have each other. I will keep you in my prayers
Glad to see the progress that you've made. There is some research related to cutting down sugar and improvements that follow respectfully for nerve damages caused by MS. Everything we eat these days is packed with sugars. processed food and even fruits that we consume are modified genetically to have the highest amount of fructose and glucose to make it taste better. Sugar is not something that has been around up to the last few hundred years or less. Our bodies are not used to intake pure energy in this form. Empty calories I mean. Cut sugar and processed food containing high simple carbohydrates, and replace your source of energy with healthy fats and a lot of green vegetables and fiber. If you do it correctly and consume a lot of fiber I promise you you'll see improvements that you wouldn't have believed were possible. Good meat, fish, chicken, butter, unsweet cream, olive oil, avocado oil, nuts in every kind, cheese, tons of vegetables, greens, spinach, berries. What else do you think the body needs? nothing. I promise you I promise you you'll see improvements. Mentally, physically and medically.
