I've just been diagnosed I'm only 27 doctors also told me I was fine until I went private and the Dr referred me for a MRI and they found that I had ms I've been suffering cognitively and get numbness and warm and other weird sensations I feel like I'm going to pass out at times and like I'm going to sink into the ground there's alot more symptoms I get I do get pressure in my eyes and blurry and face head they found the ms in my neck and brain and oh yes.y neck is always killing me
@@dylanjenkins-b6s I have an mri next week, i feel i have a new lesion because i recently started having problems with my neck too. At times it’s hard to sustain my head and that’s when i think oh heck no! You (ms) are not going to win me and I strengthen my neck by sitting straight and calm (i feel it mainly when sitting or perhaps that’s when the weakness is noticeable to me). I like the embr wave because when im feeling like i want to pass out i turn it on and put it to the highest level of cold, that helps out so much. My right eye recently started jumping, it’s horrible!! Through all of your symptoms stay positive. I know it’s not easy and for that i like to calm the mind by taking deep inhales and calmly exhaling. I do it as many times necessary until i come back to my senses of fk ms, you aren’t winning 🤣 It’s not easy! Minset is everything when dealing with a MonSter like this. Stay strong 🧠❤️ stress is your worst enemy!!!
@@MS.inspirational-ul9du yes it's horrible that's when it started get bad for me with my neck and head but now when I think of it I've always had cramping in my hands and feet for the longest time I couldn't remember and I can't uncramp them like if I bend my fingers they stay in that position and I can't straighten them it all adds up it was ms all along in my body just ready to sprout out
Hello❤ I watch all your videos. There is a video you posted a year ago walking with walker and without walker. But in this video you are trying to walk. When I saw that, I felt that you are in a worse situation now than you were a year ago. Because of that, there may be some delay in uploading the video. Anyway everything will be ok😊.Praying with lots of love🥰❤
@@jalvahh hi 👋 i appreciate you staying in touch ❤️ Last year was one heck of a yr for me in so many ways that’s why this yr i said that’s it!! My MS is the worst it’s been in the 5 years of being diagnosed. It’s my fault and as always, i want people not to do my mistakes because it’s not easy 🤣🤦🏻♀️ but i will keep fighting how i fought 2019-2020 and that makes me so happy ❤️❤️ just how it makes me happy that you’re active here. Much love to you 😗 thank you ❤️ everything will be ok and it starts with believing 😊
@@carmenlentz6098 i doubted making the attempt for that same reason 🤣 i like how we are on the same page but id have to move stuff around for that and I rather burn out something else 😏 decisions decisions 🤣 thank you 😊 I’ve been getting worse and worse but I keep fighting ❤️
@@joycewalbert1413 yes I am. My family is near. The best way you can help me is by staying strong 🧠 i can’t change my past, nor the decisions I made that led me and my MS to where it’s at. So please stay strong and never stop fighting. I hope my videos help and if they do, it make me very happy ❤️❤️❤️God bless you and thank you 😊
@@MS.inspirational-ul9du I will do my very best! I'm giving up most sugar now . Doctors always say I "look ok' . MRI looked bad to me. You stay strong and thank you so much for caring! 😘
Thank you for sharing your story. I pray that God will help you get through this ms. It's not fun having to deal with physical ailments. It's good that you reach out by sharing your stories. You're not alone. It may seem that way, but keep plugging in and sharing. ❤❤❤
@@jalvahh there’s a problem though. I haven’t been lifting weights and that’s where my workout motivation is at 🤣🤦🏻♀️ to be putting what I tell myself 😕
I safering same .mam. I can't find out what I do. I miss all my happy'moment. I spent 3 months no pain no swalling but no balance I fell afraid always.the doctor not told my situation correctly.how much time take to recover this situation ? Pray God for me pl, good lucks to all.
@@satyajit7007 do you exercise? Exercise repairs myelin but it’s not a magic wand. Consistency is very important in the myelin repair journey. Keep your head up ❤️ gratitude makes a difference ❤️ practice distracting your mind by doing things that make you happy, focus your mind on something else like crocheting 🧶 learn new things. Baby steps to success ❤️❤️ you got this 🧡🧡🧡
@@carmenlentz6098 I’m not ready to walk without support. I will try until I am able to let go of support ☺️ thank you, it’s cost me a lot pf heartbreak but I wouldn’t change it because it made me who I am, a fighter ❤️❤️❤️
Multiple sclerosis is a fully treatable disease and is by no means an incurable disease. Because modern medicine does not know the cause of MS, it is thought to be a difficult disease that cannot be cured. I believe we can overcome MS today. God bless all !!
Thank you ❤️ Don’t let the dx get to you ❤️ As someone told me “you are not your diagnosis” Exercise repairs myelin 🤦🏻♀️ medicine is not the answer! Don’t stress, it’s so not worth it!!! You go first ❤️❤️❤️
I know it is hard. Here is a tip. Put a band around both knees next time and push down on your knees. That should get your lower back aligned. Then, suchk in your gut. That helps me when doing straight bar curls. 💪
I AM EXPERIENCING MANY SYMPTOMS. I feel blessed by your video I go to the mayo Friday to discuss my concerns and hoping for an MRi. I have a daughter who has DS and all looking for a group home for her. This is in God's hands. God bless you.
How are you managing through your symptoms? I myself feel at my worst 🤣🤦🏻♀️ don’t ever give up❤️ my heart is with you both. This too shall pass ❤️❤️❤️ as i like to say “nothing lasts forever”
I’m hoping you find something that works well with your MS symptoms. I also have MS for a good few years and am having trouble with pins and needles in my feet, ankles, bottom and I’m sleeping an awful lot at the moment. Stay strong we are all here for you my lovely X
I have been so sleepy lately as well but mine is due to major blood loss so I’m drinking a vegetable and fruit drink that has been helping with energy levels. As im typing this reply I’m struggling to keep my eyes open 🤣 but I don’t give up easily. So, I took my pre workout and I’ll be going to the gym soon. I don’t like to dwell on what I’m feeling, so I distract my mind. Learn new things, create different neuropathways. You can sing,dance, watch a funny movie, play games (i love candy crush 🤣) Do whatever it is you like but distract your mind from those pins and needles. I know it’s hard just like I know simple is far from easy but it’s doable. Don’t let MS win ❤️ my heart is with you❤️❤️❤️
No 🤣 just need some time to come back to my senses 🤣🤦🏻♀️ I try to workout at least 4 times a week. I do have some equipment at home but I’m going to the gym.
🤣 oh what a struggle i go through with that 🤣🤦🏻♀️ there are days i drink a lot of water and other days i am not so good at keeping up 🤣 weakness gets to me and the last thing i want to do is walk every 20 min 🤣🤦🏻♀️ it is those days i have to remind myself how important water intake is 😊
My husband have the the same Ms. He have truede a Molly Suit. His balance balance is Munch bette agter using Molly Suit. All the best for you…. You are a fighter ❤️
I have never heard of that suit and best believe it looked ot up after reading your comment. Thank you ❤️ and please tell your husband my heart is with him and for him to never stop fighting this MonSter. Best wishes for you too for being by your husbands side in this battle ❤️
Thank you and hope you have someone to fight with to. You Can find videos on RU-vid with the Molli Suit. I send your wish to my husbond and he smiled and afsked me to return with a Big hug to you and wish you logs of luck and hope you Can talk with your doktor abort the Molli. 🥰💪❤️ love from Danmark
@@mariannesrensen8409 i do but it gets frustrating at times. That’s cute 🥰 thank you to both ❤️ it hope i can too, i recently changed my MS specialist and i don’t like her either 🤣🤦🏻♀️ it’s upsetting trying to be convinced medicine is the answer when you are so against it. With that said, hopefully she’ll want to because it’s not medicine. Love from California ❤️❤️
They prescribed me the same or similar medication, that is an infusion every 6 months. What I am taking is called Ocrevus, but it might be the same thing just a different name brand. Yeah, I was concerned about the side effects of this medication. I have a lot of the same symptoms you have. Can't stand very long, walk with a cane, have bowel and bladder urgency and frequency, slurred speech that comes mainly with fatigue. with me, diet made no difference. I went keto for a year for different reasons. I did Keto to avoid prediabetes. Lost 30 pounds, but it had no effect on my MS.
I absolutely hate medicine. I am not a believer like many that dmts are necessary to feel better because out of the three medications ive tried ive just felt worse. Do you workout? Back in 2020 i was a gym rat and saw results, obviously not right away and i lived by no pain no gain. I went from a walker to cane to not needing anything but walking like penguin 🤣 to me exercise is #1 for me to see results in mobility. Nutrition is important but for me nothing works better than working out. Do you exercise? Start slow and work your way up. Consistency is key 🔑
You are not alone in this. You are a precious lady, it is so so hard bit you are doing amazingly and should be proud of yourself. Dont beat yourself up. Its hard to exercise and cook and clean when you are in constant fear and pain. You can do this! ❤
Forget all foods from plants. Carnivore diet. Tons of reasons for doing that. Exercising is useless without right diet. All in your diet is binded to much higher protein intake you have now, i will bet with you. Eat much more animal fat.
Wooow that video was really amazing! As a personal trainer it is sooo great to see you push your boundaries as much as you can. Keep up the fantastic work! Out of curiosity: Are these 3 minutes also generally about the longest you can remain standing in one go? Or was the tiredness more due to the exercises?
I appreciate you noticing i really pushed myself. It always varies. There are times i surprise myself when washing so many dishes and there are times where 6 dishes in, my spine can’t handle and my upper body starts bending forward. MS is so unpredictable i hate it 🤣 but when i say im done my mind says no! Keep going 🤣 then i find myself struggling to get to resting point but i will always fight this MonSter 🤣🌧️🌈 theres always a rainbow after the storm ❤️
@@MS.inspirational-ul9du I really love your attitude, and that you keep going for as long as you possibly can! In this video here, what is the main factor that meant you had to stop the exercising? Do the leg muscles get weak and there's the risk of them collapsing? Or is it more the spine, core and balance? Or is it rather a "mental" tiredness, from all the concentration and coordination, that your brain just wants to rest so bad that you can't continue?
@@juliatrainer6813 thank you 😊 last yr 3 spine lesions were found. Stress on top of that 🤦🏻♀️ my quads are weak… id say everything 🤣 my core causes imbalance and Id say it’s also mental- when i feel that im starting to lose my balance it becomes mental because i tell myself i can do it! But my body says no! My core and really the body overall became very weak after starting a new dmt last yr
@@juliatrainer6813 thank you 😊 last yr 3 spine lesions were found. Stress on top of that 🤦🏻♀️ my quads are weak… id say everything 🤣 my core causes imbalance and Id say it’s also mental- when i feel that im starting to lose my balance it becomes mental because i tell myself i can do it! But my body says no! My core and really the body overall became very weak after starting a new dmt last yr
