I woke up with pin holes in my body one morning then started hearing voices. I believe they or someone used the same mechanisms used for Epilepsy to implant electrodes. Nano radio.
Incredibly helpful. Thank you Dr. Benjamin Tolchin and to everyone who made this information available. The empathy and expertise shared here is all too rare a quality among clinical professionals. I have found that patients either need to search high and low to find a great neurologist or do a significant amount of due diligence in order to have meaningful conversations with their neurologists.
look up a high fat diet? Jun 15, 2006 High-fat, low-carbohydrate treatment that dates back to Biblical times is making a comeback for children with epilepsy. The ketogenic diet is 90 per cent fat and 10 per cent carbohydrates and protein. Among people with intractable epilepsy, where nothing helps,about one-third no longer have seizures or need to take medication after going on the diet, said dietitian Nancy Moore.
With Parkinson’s, u move around all the time. With Epilepsy, u don’t until u have a seizure. There’s no way it’s gonna work. It’s as much of a scam and is just as dangerous as the vns is. With the vns, every time it shocks u it stops ur heart and can make u faint. I’ve always hated the idea of this stuff. Not even doctors know how the brain really works. It’s obvious that someone like me who has 2 (3 when on banzel meds) different types of seizures, they can’t do anything. I’ve even had one of the best neurologists in the state and he couldn’t do anything either. I’ve had x rays, mri, eeg, and stayed at the hospital without meds so the doctors could watch me to see how my seizures work, but they can’t find anything wrong with my brain. Like there’s no scare tissue to take out or anything. My seizures are more generalized and come from many different parts of the brain. They can’t do anything
I’ve fallen on my face and broken my collarbone and cracked my rib from having seizures. But u don’t want something like this. My friend got the vns and she kept fainting when it shocked her brain because it kept stopping her heart.
I've had 2 era's, the first one was the pen & paper (very noisy, I'm sure they got a lot of "artifact" bc I was distracted). The 2nd was the newer, quieter one.
There are certain issues when it comes to driving and epilepsy. Not everyone with epilepsy should drive. If the seizures are well controlled, it is generally safe for those people to drive. If the seizures are not well controlled (uncontrollable and/or unpredictable) the affected person should not drive. There are some gray areas and good judgement needs to be exercised. In some cases, a seizure can be tolerated if the affected person gets a sufficient warning that a seizure is likely to occur where they can pull over to a safe spot and stop driving. The same goes for people who have seizures, but they do not lose consciousness and they do not lose motor control in their case. These people should be prepared to pull over too if they start to feel funny or they start not to feel right just to err on the side of caution.
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He had the RNS implanted in 2013 in NY and also had a temporal lobectomy in may 2020 in Tampa, which resulted in memory loss. He still have seizures after all of that.
I've had a temporal lobectomy too plus a useless vns absolute rubbish 🗑 😑 it was on for 3 secs off 10 came down the stairs got a compound distal radius fracture plus dislocation omg 😲 the pain 😢 I now have a bloody metal arm holding everything together
Of course it's possible to live well with epilepsy!!! I was diagnosed when I was 22 years old, you are programmed to enjoy and experiment at that age and my life turned 180 degrees, it started suddenly, there was no apparent reason, it was horrible, I did not understand why was that happening to me? But it happened and this made me strong and with the support of my family I was able to went ahead...today I'm 30 years old and I'm very comfortable with my life: I live alone, I'm a professional, I work for a great company, I go out with friends, in general my life is pretty active, I don't get scared if I have a crisis and I know what to do and it's funny, because people ask me: it doesn't scare you? And I answer them: "no, actually, epilepsy made me very strong" 😊
