I wish I could find support:( It's been horrible without it. We live in rural area so nothing even remotely close to attend and online is so saturated that its not much help.
My husband suffered from this horrible desease, it was very gradual with him ,he changed very slowly over 20 years. It is so tiring for their caregivers and I have so much sympathy for you. ....you never know what they will do next with no inhibitions or who they will insult.
now This IS Love .. at its most beautiful .. strong and true ... To have it , even a memory of it , is a Blessing. Keep Strong and Bless You All! Thanks for sharing
I really appreciate your story. I am so lost with my husband. It's a bit comforting to hear that someone else has these experiences. Thank you for sharing.
I AM 70 THE WOMAN IN MY LIFE IS 53 AND IS IN REALLY A REALLY BAD PLACE DOESN'T REMEMBER EVEN THINGS AS UNABLE TO WALK AND I HAVE KNOW ONE TO HELP SO I CAN UNDERSTAND AND YES ANGER REAALY BAD
Always enjoy re-watching/re-remembering Teepa videos! They just "pop up" on my cell...called "algorithms", right? I especially related to (@ 11:00) *Sound-large groups(I wear ear plugs to help focus on 1 person) *Simplify music-hard to process/organize multiple instruments. 🦋💗
❤ thanks for your video. My mom had alz…. But the experiences were similar. You look back and retrospectively see the signs. Sadly, the main way we learn is from experience. Then, when you have learned to deal with one stage… there is the next stage with its new challenges. Our ignorance and frustration makes it hard to remember our love through all these challenges
I had cirrhosis and encephalopathy caused memory loss then I had a liver transplant then I lost oxygen which killed my memory and 40 days later I went over 4 1/2 minutes without oxygen, and then hours starved with oxygen without oxygen this week was the worst I didn’t know where it was I didn’t know my name I didn’t know my wife’s name at first I got scared but now I don’t get scared. I just know that I have a problem, but I don’t remember my childhood on my marriage 44 years I’m told I got in trouble with the law 35 years ago and I went to buy a gun and they told me I couldn’t. And I love to hunt and I want to grab my son is done all the time so he hast to lock it up. I’m not allowed to have one. I don’t understand why they tell me but I don’t believe them, I’m not suicidal I’m in control of my motor skills and function, but I just have severe memory loss and I don’t think that’s fair to me as a human.
Amen sir. And God bless you & all. Im 40. I was diagnosed w mild cognitive dosorder 1.5 yr ago. It's a long is a long story, but I've had epilepsy since 6 months baby from a spider bite & high fever. The epilepsy got worse as I got older and as a kid, not much was known about that. I actually got kicked out of 3 Highschools bc of seizures. I know in 2015 I started having bad headaches and chest pains. My lungs were checked, my heart was, my brain was, my kidneys were, my liver was. & The hospital said "Wow, your so healthy". I'd been smoking since I was 13. But the lung doc said, "ud never even know it.' In 2016 things got real bad w my chest and head. So my x took me to hospital. They put me in a coma & told everyone it'd be 2 days at most but they put me in coma. My x told mom and family I had trigeminal neuralgia, septic shock and ARDS. K. I was in the coma for 7 days. In the 3rd day my x told my ma they had to pull the plug cause I had no chance. My fam came and they poke to my x begin him not to pull the plug. After I woke up the 7 day, they kept me for a week. When I left they said I'd need to get used to walkin again bc coma but my health was perfect. But, my seizures started actin up, I couldn't breath lying flat bc pain, i was throwin up or nausios constantly. There was so much. But the doctors kept tellin me I was healthy as a horse. My neuro changed my epilepsy med a few times but that was it. In 2019 rememberin names got hard. But my doc said it's from the seizures. I went into sepsis again and when I came out he said, "u need to xhange ur additude to life". Ur an awesome man sir bc my x became abusive and was also tellin people I was nuts. He & my doc said I needdd to be put in a mental hospital so I went to my brothers and was put in (I forget the name but it started w an m). There for a week, they sent me home w papers that my health was off but not crazy. There's more, but I'll go to in 2020 I went into a grand mall seizure & after it my x was throwing me around & then literally threw me out the door. I stayed w friends so I could be by my kids & a few months later, I went into Septic shock again. After that, I gave my life to Christ 🌊🙌and moved to sc w fam. I found new epilepsy doc and my old one wouldn't give him my records. Kept putting it off. He had me see a liver doc bc pains I have. I learned my liver was scared, had fatty tissue and was 21cm. That doc fought to get my records from my old one. My ma used to fix computers so she said she'd see if she could find them. SHE DID! & I learned that 2016 I hadc been diagnosed w a cyst on right kidney, a damaged liver, emphfsema, pulmonary edema, I had a heart attack before the coma, lots of slower in my brain, the septic shock trigeminal neuralgia and ARDS PLUS, I WAS ODed on toprimate the 3rd day in the coma. When we went back on it to print the rest, the records were gone. (What is good, is I took pics of them w my phone so, I have thade. I got my vns battery changed 1.5 yrs ago and then saw a neuro physc after bc it's done that way. That's when I was diagnoses w mild cognitive disorder due to, 2 brain surgiers, seizures my whole life in temporary lobe and meds I had been on. I've all records. For a few months now ive to where I get mad reali easy (which socks people bc I was never 1 to let anything bug me. Christ Chas reason for all) I feel horrible about gettin mad. So I keep in my room if I'm not at work or church. I also, forget names of people I've worked pt w for 2 years. I can't see in dark. I can't sleep at night even when I do,I wake up every hr. (Thank God for His word). I was seizering non stop for 2 hrs a few months ago & threw my guts up during them. I been have seizures weekly now. A few nights ago I chewed my meds instead of takin w wayer then spit them out cause taste. I can't walk wouy goin urine. There's so much more. But, I've givin it to God. Bc even though I thank God every day for my new docs, I don't trust docs at all! So, whetever I'm at w all this, I remind myself, God's got reason. I cant no one change His plans anyway. U couldn't pay me to c a doc again, for anything but my epilepsy & its bc bc of all I found & now have copys of from my past docs. I'm on this cause I'm trying to learn things mysrlf and take care of myself w God alone. Thank u for ur postings and I agree sir, w proof and copies, DOCTORS CANT BR TRUSTED! I had to change my name in full, my address isn't where I live, change all my emails, numbers all. But Gods got reason for everything and I'm livin proof to that. Plus - 2 Cor4::18 Fix ur eyes not on what's seen but what's unseen. What's seen is temporary what's unseen is Eternal! & Epf 3:20- LET GO & LET GOD🙌 God bless u w all my heart and thank u for ur info.
Often times I make a lot of cryptic connections in a conversation and confuse the ppl I’m talking to but then I explain it and they understand, but it always made me feel insecure because I’m not thinking the same way most others do? Maybe I think too deeply? It’s hard to tell if you’re functioning normally vs if you’re dealing with a mental problem, so looking at a dementia patient and tracing back to their first ‘signs’, it’s easy to lump yourself into it and think something is wrong with you when there isn’t. You only notice the signs when it becomes too apparent.
Teepa has taught me so much I'm learning how to look after my husband more from Teepa than anyone I've spoke to I'm in Australia I'm 78 my husband is 80 thank you Teepa for your help x
My dad turned a page💞dad brought cookies and water for us in his adult family home room. A very miraculous gift to me in these last years. Redeemed our relationship and blessed his soul. So sorry mom and my sister could not take that time with him.
I have a friend who has been taking care of his wife for the past 8 or so years and he cannot leave her alone for more than five minutes. I think I might have notice her demeanor changing back about 4 years ago when we attended a Reno gun show, where Ken, our friend, had a booth. The last time I spoke to him, I suggested he sign up for IHSS, to be her caregiver, receiving payment for his care. I might have spoken to him about 8 months ago and he had not yet looked into this service. I get paid to be my grown daughter's caregiver, she is adult delayed. I think our friend thinks that she may somehow get better, but I don't know, I feel very bad for him as I enjoyed visiting the gun show and looking at his impressive collection of Native American jewelry. He has invited me to visit him at his home in Reno to look at the jewelry that he sells. This disease is horrible, it takes someone you love and destroys their minds and bodies.
Thank you so much for sharing this. It has really helped me even if it has made me sad as to what to expect from my wife who has been diagnosed the same.
I am so so glad i found your video. My wife has this and her twin sister died of this in December. I am so struggling to cope. i love my wife dearly and will have been married 40 yrs this August. Your video has helped me somewhat so thank you for posting it.
We very much appreciate you doing this. We have a close relative who has it and her husband is her loving caregiver. It's helpful for us to know how to help and especially him.
