The Gaucher Canada Channel is a place to share video stories about life with Gaucher disease and other rare diseases. Gaucher disease is a rare genetic disorder that is passed down from parents to their children through the genes. Gaucher is the most common of the group of diseases called lysosomal storage disorders.
This channel is sponsored by the National Gaucher Foundation of Canada (NGF Canada). The Foundation's mission is to improve the health and well-being of Canadian patients living with Gaucher through community building, education, advocacy, and support of research.
Bonjour. Mon fils est atteint de la maladie de gaucher. Il a huit mois et on va commencer la thérapie dans quelques jours. Merci bcp pour cette vidéo. Elle donne de l'espoir.
Emma, I didn't know you were living with Gaucher the entire time I worked with you because you live life to the fullest! It is so inspiring to see what you've done, how far you've come and how you're spreading the word about Gaucher! Keep it up! P.S. Love your blue polka dot bikini :)