This is the official account for Lupus Ontario. Lupus Ontario is a team of caring and enthusiastic volunteers and staff who are passionately committed to helping those with lupus live longer and better by raising funds that deliver vital support, education, awareness, and research.
Thanks for this presentation. Very informative in my understanding of the disease. So much to learn in own disease management both now and ultimately in the future - feel like I’ll never know enough or full picture of disease. Knowledge is definitely empowering when this disease and its unpredictable associates can remove the ‘good health’ we once took for granted.
I have secondary sjogren's syndrome I'm almost positive I have Lupus type 2. I don't know if my rheumatologist is aware of it I will show him your video and maybe he'll learn something
Doctor, please answer my question. Is Drug Induced Lupus a type 1 or 2? How many drugs are known to induce Lupus, at this time? 63 F with RA x 30yr. Also, Hashi, Sjodren's, Cushing's, Lupus and who knows what else.
I completed a full formal neuropsych eval after a non dominant hemorrhage and my "goofiness" post. I have been unable to find out exactly what i was or was not doing. My SLUMS was like 22 or 24. I am assuming I was off the fentanyl and any benzodiazepine long enough that it should not have been interfering. During Cognitive therapy post, I mentioned concern since much younger re possible ADD-Inattentive. The neuropsych was consistent with ADD but the neuropsychologist mentioned that the Executive Function issues are noted with Lupus as well. Unfortunately I am not certain I can understand how SLE activity interferes with neuronal function or possibly neurotransmitter specific. (I do have some improvement with atomoxetine which acts more at NE synapses (and presumably where amphetamines also work.) Pred helps too, and together ... But I still cant figure out hoe pred makes a difference. Since I have Rufus, I'm not certain how much MSK issues are RA v SLE.
I have lupus rheumatoid arthritis and fibromyalgia. I don’t like to bring fibromyalgia up with my dr. I can see her getting upset then I have to deal with everything is fibromyalgia. It is sad that rheumatology only like to see red hot joint.
Very informative. Thank you. My Gran passed at 61 undiagnosed from SLE. my mom passed last year after 64th birthday undiagnosed both SLE and Ms as well as diagnosed Hereditary Alpha Tryptasemia. The Uni Coroner said we all need to be tested. My ana was negative in fall, but dealing with alot aches and fatigue lately when im very energetic and want to be retested at the Uni. I felt i was dismissed at the Rheumatologist. Is it too early stage for positive results or im not as severe as them (at 45yrs old)?
I'm not a doctor. But you need to be a severe flare for some antibodies tests to show up as positive. I've suffered undiagnosed for so long (similar age) and let me tell you, pain is not normal. I knew before I was diagnosed whilst still under investigation. When confirmed I thought I was prepared. But nothing really prepares you. Wishing you luck, I hope its not lupus though x its awful x
You helped a young man with autism, Chris, live his life with such better quality. Thank you from a grateful caregiver who saw some remarkable results due to your attentiveness, patients and knowledge. You will be missed by many but it is now time for yourself, so enjoy your well deserved retirement. Best wishes and stay well!
Thank you so much,i need this information a lot,i hope you helping like me suffering in lupus like financial assistance to buy my medicine,,thank you ❤❤❤
It's very hard to deal with lupus, we go through a lot of different symptoms we don't know what to do, some of the medication don't work, and then when you take the medication the nasty side-effects that comes with it,, who want to feel this way... then we become so l depressed.. we need better help. My head feel like a burning tingling sensation , can anyone relate plz..
It can be quite a difficult journey, both physically and mentally. Joining a lupus support group may help, it may help to talk to others who are going through lupus. You can visit lupusontario.org/support to register for any of the free online support groups.
I just stay on a healthy vegan diet and avoid as much man-made pharmaceuticals as I can . I want the healthiest diet possible . I got through covid with no vaccination as none were available . I enjoy chai. And 😎 .I notice a lot less arthritis... ❤
@@Hismrs-ub1xe Only a doctor can provide medical advice, and each person's experience with brain fog is quite unique. It may help to join one of our support groups and discuss this with others with lupus. You can register for the free online support group at lupusontario.org/support/
Scientists have found the relationship of transgenic wheat (gluten) to people becoming stupid and sick - See the article published by PubMed - Gluten induced neurocognitive impairement (Brain Fog Lupus) www.ncbi.nlm.nih.gov/pmc/articles/PMC9256899/ They have been killing people for decades with transgenic wheat (gluten) and glyphosate. See the articles published for about 15 years by Dr. Stephanie Seneff and her team in the MIT.
Dangerous OMG how? I'm 61 1/2 no living family, newly dx 3 days ago. Haven't been able to work for 2 years I'm covered in Bloody sores numb and feel CRAZY. IN BEHAVIOR therapy already bc i feel like I'm going Nuts. Everybody stays far away from me. I hurt so bad I can only lift my arms for a few mins, can barely use my hands anymore, drop everything I cant sleep for numbness and I feel my mind slipping away I can't remember things from 2 mins ago. IM USELESS I literally am convinced I'll go mad before I get help from SSI Im About to be EVICTED THUS MO bc NO ONE BELIEVES ME. ANY SUGGESTIONS? I CANNOT BE HOMELESS with these wounds. Lately I feel lonely terrified disrespected and discarded. I have been a Nurse for 40 years NOT IN THIS FEILD THO and I'm getting worse not better. I hate to say it, but I have to. If after all ive done over 40 years, ive won 6 awards for going beyond the miles to help save peoples health, livelihood , their lives. Now here I am 6:50 Savings for retirement ALL GONE. IVE 30$ TO MY NAME. I'm truely afraid I won't be able to stay living anymore if I'm in the street. My whole life of caring so deeply for the lives of the ill.... was for nothing. Thanks for listening ( took me 34 mins to type this note) I'm on my knees begging Jesus to make SSI GIVE me MY MONEY JUSTA little esrly save me my dog and my home. Im DESPERATE I need Help please
Scientists have found the relationship of transgenic wheat (gluten) to people becoming stupid and sick - See the article published by PubMed - Gluten induced neurocognitive impairement (Brain Fog Lupus) www.ncbi.nlm.nih.gov/pmc/articles/PMC9256899/ They have been killing people for decades with transgenic wheat (gluten) and glyphosate. See also the articles written by Dr. Stephanie seneff and coworkers, MIT.
So happy to find your channel. This year (2023) being so hot and UV extreme - I've really struggled with holding down flares and in particular the cognition impairment which drives me crazy. Its so frustrating.. Blessings to all.
Air pressure coincides with my cognitive functioning. Bad days and good days are easily predictable . Low pressure- worse (99.8) Rising pressure - relief High pressure- good quick thinking. (101.2 - 102.1) So if you have some clients coming from higher pressure areas to you guys at lower pressure and they are like me... You will see repeatedly poor results. If you have that same patient travel there and wait. Then. Put them in an MRI machine. The slight I crease in the MRI machine as it's colder and there is more pressure in general could show improvment. Now I'm trying to figure out what's going on with my brain, I am pissing for a lupus assesment but as it stands I do have cognitive issues.
Or the other way around. It's like 102.3 and I can barely keep myself going right now. Lol.. I though 102.1 was the ideal. But apparently my neck is stiff and my head is heavy. Doesn't seem ideal.
mine is bad when the weather changes though im more me in the evenings I just work evenings i am shattered most the days maybe have a good day and go out then i am feeling bad again im just cutanious sun lights
im the same hate the weather i was in bed the other day so glad august in near the end back to wrapping up warm not fair everyone enjoying the holidays not me
What worsen Human Papillomavirus (HPV) is the fact that you don't know if there is a cure yet, I got cured from my HPV after using (Dr Alaho Adebayo Olu) herbs. You can get more information by contacting Dr Alaho Adebayo Olu on RU-vid Channel.🪴🪴
Thank you, Dr. Urowitz. I enjoyed and benefitted from your care for over 18 years, and I'm so grateful to have met you, been treated by you. Your entire team is so compassionate and helpful. Congrats on your moving on to complete your research and to retirement. Many blessings to you and your family! You've done so much for so many. God bless!
All thanks to Dr Oje Abacha herbal home for getting rid of my herpes virus with his herbal medicine you can visit his RU-vid channel for any kind of herbal products
Lupkynis is the best drug out there for lupus nephritis, Beny 104week data fails, life is more important than a few $ chose wisely time is of the essence. Choose Lupkynis at least review before deciding otherwise
Still amazed with the immediate healing I received from Dr. Ebose on RU-vid, now I'm free from herpes permanently and I say only God will reward you for all the good works you put out for people.....
Thank you so much for providing this information. It is reassuring to learn about current research and to understand, to the extent we’re able at this point, what is happening to our bodies that cause certain symptoms/behaviour to occur.
