Reina (12, she/her) (Autistic/Epilepsy/ADHD/ID), Dad and family, sharing our life's challenges and adventures with you. Full length of our shorts are on our TikTok channel!
Hi,I’m 26 with Dyslexia,Devolpmental Delay both diagnosed that when I was young,might have more,but the more I grow up I find myself having,ADHD,I don’t have much too do,I definitely get bored so often,I’ve also got more anxious,so I understand,Renia on new places,but this is not exactly what I want to say,Please if you can,tell her that she is awesome! Because this is the second video I saw,you’re also doing a good job being her dad! 🥺 I’m planning on seeing more awesome videos with her in them! Thank you so much for sharing! & oh yeah,people like to stare,it bugs me but with seeing,Renia not give a care,she’s so awesome!
Thank you for showing us the life with Reina. I also have friends with kids with special needs and your vids helps me to understand their daily life more. Your family is lovely and I have so much respect how you let Reina be who she is but also help her to get to know the real (sometimes hard) world. It must be challenging, but I find it beautiful to see her smiling and enjoying what you do for her. Kids help us to stand still what important is. Good health and wealth for your family ❤
Just a reminder that learning disorders are not the same as neurodevelopmental disorders. Learning disorders only affect specific functions, such as dyslexia with words and dyscalculia with mathematics. I have dyscalculia. A learning disorder does not usually have a tangible effect on overall intelligence, it usually just effects that specific area. It's not very fun for me when I let someone know I have a learning disability, only to be met with people putting on their baby gloves in response.
I just found your channel and this was the first video I saw. I just have to say Reina is BEAUTIFUL, her smile is contagious and she’s so sweet! Following your channel!
Hello guys my name is Matthew I’m also autistic but do not have adhd I can relate to this video a lot it was hard growing up when it came to my conditions I thankful you made this video and I teared up 🥲 when watching this video may vid bless you and have a great day
Thank you so much for watching this video and finding out more about Reina and the life our family shares with her. Please subscribe to our channel to see more of her!
I was listening to her story and was flabbergasted when I heard the R word come out from a doctor, who says that abt a child? Who even says that to a parent- Reina is such a beautiful little girl and I’m glad that you’re letting her experience all the fun in the world with no shame, she overcame all the challenges and hardships that people staring or pointing won’t overcome everything she achieved, it tears me up that u we’re holding ur little girl while she was having a seizure, no parent should experience that, I know she’ll be loved by not only her parents but most of the people who watched this video! Much love to u and Reina🩷
You are such an amazing dad and Reina is so sweet and she's a bundle of joy!!Your family is so full of love for eachother!!:))I am so sorry you had to go through such a terrible experience with that doctor!!:( Wishing nothing but the best for you all!!
This was too cute and this is my first time here and I found you guys from the video you were talking about Reina condition. Also I really loved how she is very active and you let her experience as much as she can and you rolling down the hill.😊
Came across the IG account a few days ago and just loved seeing Reina enjoy Garfield. It was an educational experience for me, as well, to not only learn they do have special screenings in places for those who may need a calmer movie going environment, but to get to see someone like Reina be who they are, with your wonderful parenting helping her through life. There's a spark in her that's just amazing, and it instantly shows. There's no other way to describe it. Much love from Memphis.
I accidentally came onto Reina on FB and she just shines she is full of life and love for everyone one she meets, I admire your daughter so much I had no idea she was so sick. Reina you are so special and many people love you your a star honey thank you for sharing your life with us guys.❤️❤️
That doctor didn’t know a thing about reina! She is not the R word. She just sees the world uniquely. She has so much joy and love! I believe that Reina can do great things just in her timing. But maybe she is meant to teach you to slow down and enjoy the moments of joy
Hi there. I'm also the same age as Reina, and she seems so happy and carefree. I found you guys on Instagram, and followed you to youtube.thanks for being such a great parent 3
I am having trouble finding the right words to say, theres so much in this video that speaks about your character and fatherhood. Reina trusts her parents so much, and thats directly from your love and care. You took accountability and stayed honest about the negative feelings of raising a disabled child. But, youve gotten over the hurdle, and now love your family even more than you could imagine. Reina is really lucky having you as her parent, there isnt a single other person in this world that could do what you do for her. You remind me of my dad, I cant wait to be a father and raise my kid with as much love as i can. thank you for teaching Reina to be a shining ray of light. Hopefully i can do the same for my kid.
I'm new to your families channel, I'm happy I scrolled across a video reel on Facebook. Not saying my situation is related but my son started having seizures at 4 1/2 yrs old, he was delayed in speech at 3 yrs of age with a shorter word count than is expected. I immediately was in tears when you were sharing about that one event where seizures wouldn't stop. I had just witnessed him having a seizure in July and by October he had a seizure that would not stop. I carried him into the ER and got frustrated bc all they cared about was me filling out a form while I'm trying to hold my seizing child. I ran outside and called 911. They rushed him into the ambulance and couldn't help him and rushed him into the ER where they sedated him and life flighted him to a children's hospital. His seizures would affect his left side, jerk shaking, head was paralyzed facing the left, sometimes he would vomit during, he would be paralyzed after the convulsions stopped. Took him to a family doctor that helped me save my child's life. He went gluten free, dairy free and other things I eliminated. His allergy test showed many things he was allergic to, his white blood count stayed so high for many years, indicating infection, inflammation.. from 4 1/2 yrs of age to almost 11 yrs of age he suffered from noctural seizures. Then to top it off blood work said highly allergic to beef. That was yrs later when Dr checked for that. Come to find out I do remember telling doctors that wouldn't listen to me that in July of when he started having seizures, I took him for a bluebonnet photo shoot. I regret that day and wish I had never took him. He came down with a horrible body rash. Now I'm getting him tested for alpha gal caused by a tick. Dr says he has celiac as well. Strict diet for severe food allergies and a very low dose of keppra and vitamin d . I've taken him to holistic Dr's as well as his reg Dr. He's growing and excelling in school and no longer has a special education IEP, that accommodates him into regular classes.
Thank you so much for sharing your story. I can’t imagine how tough the journey must’ve been. One of the hardest things is to watch your child suffer and there’s nothing you can do about it. You’re an amazing parent to advocate for your child like this!