Since 1982, Alzheimer’s Orange County (formerly known as Alzheimer’s Association, Orange County Chapter), has been Orange County’s center for Alzheimer’s resources. We are dedicated to providing quality care and support services to the thousands of residents of Orange County who are affected by Alzheimer’s disease or other related dementia, and also partnering with local researchers to populate clinical trials to help find a cure.
Good lord has anyone told you about the unbelievable therapeutic efficacy of applying red and near infrared light on specific regions of the brain in cases of dementia, and other neurological disorders like Alzheimer’s? Some of the world’s leading neuroscientists are doing groundbreaking research compiling lots of data on its efficacy. For the many out there that will never be able to afford or have their insurance company approve this treatment, you may find comfort in reviewing Dr. Hamblin’s incredible success using red light therapy on patients like yourself at pbm2021 right here on RU-vid. You will be amazed.
When the FDA takes 1 year to get back to you the first time, is not “good”. Great they gave good input - it should have taken 1 month and come with $40m in funding. There are 6 million people with Alzheimer’s. At my Dads former facility, which was $13k base per month, with just 16 patients (and they only had 15 rooms filled), 6 died in 6 months. And these weren’t even patients far along in the disease. They could walk, speak, remember some things. So, you know what is dangerous? Doing nothing. The “care” facilities are really dangerous - understaffed with people making $17 - $23 an hour in expensive cost of living area, and they’re ticked off, which they take out in apathy towards the patients. If someone offered at least a *chance*, that is better than nothing - or even worse than nothing - which is the reality of what people have now. I’d rather give $13k / month in funding to a lab. Remember the mRNA vaccines have been around for decades. It wasn’t until Covid, that someone reached to pull out the woman who toiled away in obscurity in the underfunded bowels of university of Pennsylvania for decades researching mRNA vaccines. It’s great that she won a Nobel prize, but frankly, too little too late. The potentiality of mRNA vaccines for many disease pathologies. How much further along would we have been today had this area been adequately funded and researched for the past 20 years? It’s crazy what our societal perception of what “good” is. It makes zero logical sense. And it is entirely unethical. Funding and speed should be the expectation - nothing less. I’m also also very intrigued by the research being done in mitochondrial function in the microglia, especially for some subtypes of Alzheimer’s. There is also some interesting research being done in the area of quantum bio and bio electricity. Regardless, Alzheimer’s, many complicated diseases with multiple pathways, may be best suited for personalized, targeted therapies based on each individuals pathways. Some of this other research really focuses on cellular function, but less so on neurogenesis. I could certainly see how stem would have a big part to play in neurogenesis.
I have severe neuro toxicity / toxic encephalopathy from chemicals that crossed the bbb and killed alot of neurons, i am wlling to give my brain to you for practice, i cant live like that anyway
There are very effective studies originally from University of Arizona starting about 2-3 years ago. in this original study, there were 18 to 19 participants, all under the age of 18. Originally, the study was to understand what might be a possible treatment for the intestinal issues that a lot of autism have, since there is often a correlation between autism and intestinal problems. What they did, was they identified several microbiota (these include gut beneficial, bacteria, viruses, fungi That live in the intestines) that are an individuals without autism, but are not in the intestines of individuals with autism. What a lot of people don’t know this, but is an exploding area of research, is that the microbiota metabolites are used to develop many things - especially neurotransmitters, hormones, immune system, etc.,. Therefore, what the researchers did, was take microbiotic through a purified, fecal matter transplant, and they literally put the microbiotic in the intestines of the 18 or 19 participants of the study. They did this for of about three months. What they found was that not only did most of the intestinal issues subside - but surprisingly - many of the autism symptoms subsided as well! so much so, in fact, that at least two of the participants came off the autism spectrum altogether! They were initially concerned that once the microbiotic species were no longer being introduced after the end of the study, that the participants would regress back to having intestinal issues and autism. Instead - they found the opposite. Once the microbiotic species were introduced into the intestines and the Microbiome of the intestines, they continue to proliferate and stay stable. This resulted in a sustained positive impact. Now, there are hundreds of studies that are going on that are supported by NIH . Bottom line is that there is something called the Gut Brain Axis, and the Microbiome in the intestines plays a profound part in the brain, including for conditions like Alzheimer’s.
When my mum wants to go home its because she doesn't recognize it any longer. No redirecting hel0s when she is that adamant so I put her in the car and we go for a half hour drive and when she returns she is happy to finally get there.
The other new med, I’m told, did not receive the Medicare stamp of approval for coverage. Will this drug be covered by Medicare or is that still pending as well?
Great work!! Glad to see this coming into fruition... FDA approval is massive news thank you for your great work doctor hopefully the UK can get this implemented as well... how about intrathecal injections as another method of transplantation should perhaps be explored as well and get that FDA approved which might induce other benefits etc?
This is by far the best vid I’ve seen on Sundowning. Excellent . I’m surprised this hasn’t been viewed 1000x more. Thank you❤ my mom is going through is with Vascular Dementia now and as her daughter and caregiver I greatly appreciate this info ❤
You’ve mentioned therapies such as music and aromatherapy however have you seen the Nightingale research on Hypnotherapy. Seven areas of dementia improved with Hypnotherapy in a controlled study . Works well for pain also
This sun downing syndrome is terribly sad but it is also frustrating and sometimes downright infuriating. I used to have more compassion for my Dad but after months of caring for him every day , I am not only losing patience and hope but I get a case of what they call “shaken baby syndrome “ when related to infants but I get it related to my Dad’s daily hours and hours of crying
My sister had Lewy Body dementia, for 7 years. In the beginning, she was falling and forgetting things. She hallucinated, and saw little green furry things. With meds, she stopped hallucinating. She had round the clock care in her homr. Diapers, etcShe couldnt walk or talk! The last 3, were at the assisted living facility, The Residence , in Darien, CT
Thank you Mallory for over 40 years dedicated to those that needed you most! You started Acacia, it’s your baby and your passion and you gave your ALL! Enjoy your retirement!
Thank you Mallory, for your boundless compassion for the well being of the elderly and your steadfast dedication to be of service to others. You are my hero! All the best to you in retirement!
Thank you SOOOOoooo very much for this lecture! I am a caregiver for my mom who is experiencing Alzheimer’s. When Mom has a sun downing episode what works well for us is I tell her that she is safe with me in this place. We turn on RU-vid or other streaming services for videos of travel shows that she loves and she steps into THAT reality instead. I usually give her a cup of cocoa and she feels content. If I see her starting to disorient, I start to ask her about details from the show. This re-orients her back to the program where she was previously focused and she gets back into the adventure of travel or wildlife stories once more. We’ve done this routinely now for over a year and for her it works well. I also remind her that she is going to feel great after she has a good night’s sleep. Thankfully she usually does sleep fairly well and when morning arrives she has “reset” her abilities once more. Thank you again for this excellent presentation on sun downing. It is the best one On RU-vid and has a tremendous amount of helpful information! 😊
My mom thinks my brother and sister steals her meds and she thinks that someone mainly my brother is coming in her house stealing everything food her medicine what can we do for paranoia thank you
Great presentation... Question: So only a healthcare professional, i.e., physician, nurse practitioner, or physician assistant can complete and sign the POLST?
We are glad you liked it, and correct. In order to be fully actionable, a POLST must be signed by the patient or patient's agent, and by a licensed Physician, Nurse Practitioner or Physician Assistant. There are provisions for phone validation during the COVID-19 pandemic if there is no opportunity for the clinical professionals or patient's agent to provide a live signature, but those are for serious circumstances.
Timestamps: 4:20 What are the different care options available (in-home care, Adult Day Services, residential care)? 9:57 How do I know when it might be time for me to consider placement? 19:55 Do couples ever move in together? 22:40 What are the biggest challenges right now with COVID? Is it safe for my loved one to move in right now? 33:12 How do I pay for residential care? What about long-term care insurance? 37:34 How do I personally come to terms with this decision? 44:50 What if different members of my family don’t agree what we should do? 52:15 How do virtual family care consultations work through Alzheimer's OC? 57:50 How can I be sure my loved one is safe if I can't visit? Can I take them home if there is an outbreak? 1:03:31 What are the reporting requirements to families for Covid cases at care communities? 1:04:43 How does isolation work inside care communities and does it impact the person's decline? 1:07:35 How do placement specialists work? 1:10:22 What questions should I be asking to care communities? What should I look for in a community?
Mr.Allen, this is such a beautiful and heartfelt message. Thank you for sharing this❤ Mrs.Judy's smile is so radiant and wonderful. With love, Marcela.
