We provide life-changing support for anyone affected by any neurological condition through frontline professional Neuro services, innovative research and bold campaigning for change. Talk to a neuroscience nurse today by calling 0808 808 1000 (Mon-Fri, 9am -4pm).
Utter disgrace. My heart goes out to you my love. It’s an evil way to treat anyone yet alone patients. Get your MP on your case. Written complaint into Pals at the hospital. They have to deal with it. Good luck x
I'm a patient in the UK. I have had longstanding daily pressure headaches and migraines, light and noise sensitivity, upper neck pain on one side with tension and what feels like a ball in the base of my neck, nausea, vertigo, insomnia (in relation to this condition. I also have many others unfortunately, so have to try separate what causes which.) I spoke about this and very quickly the GP veered towards anxiety and depression. I was given propranolol and sumatriptan to treat the migraine. I then thought maybe my ill health is due to my thyroid - spent years working on that until levels normalised. But my headaches pursued. I continued at the doctor, they said they can't feel anything at my neck. I remember seeing a neurologist at some point but to no avail, perhaps I was prescribed some drugs. I later saw a chiropractor for my neck fortnightly and it was a big relief. Rest assured he felt the pressure ball at the base of the skull. My stomach, muscle and joints pains got worse over the years while dealing with the incessant headache - I was generously given a fibromyalgia diagnosis before being tested for much else, as they had already sprinkled me with anxiety and depression although I was only seeking for answers to fairly serious symptoms. All this shutting down achieved exactly just that - it shut me down. Then I spent some years suffering quite badly and working through it all. The headaches, the ibs, hormones and difficult menses, unstable joints and a heart that seemed to race no matter what I did. After working full time, studying part time online with so many illnesses while being invalidated and not supported in any way - and finding out the person I was building a life with had betrayed me and was lying to my face about it - my mind and body completely collapsed into a dark well for several years. Somewhere in that well, I was diagnosed with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia, Autoimmune Thyroid condition, Endometriosis... I tested positive for Borreliosis. I believe based on my symptoms that I have MCAS and I am very sure that I have Chiari. I did have a ultrasound performed in 2012 on the back of my neck outside of the UK. The result of this ultrasound said they found a "Collection of uneven cells 2,2 x 1 cm. Fibroma." The point of me sharing this pointlessly long comment is - we know our bodies. We share our stories. We share our stories, as a collection of symptoms. We present to others as impressions. Who knows what I reminded the doctors of - some anxious classmate of theirs, or a depressed actress they had seen portrayed in a movie somewhere. The point is - from the beginning of me sharing my symptoms to the doctor, I could feel exactly what is going on. Even when they invalidate for a decade. If you are reading this and you are a parent, or you are a woman, or you are a migrant, a disabled person, or a young person - please know your truth and express it with dignity, grace and kindness. If you do not, you risk losing your livelihood.
Almost 4 months ago my brother Had a heart attack and as a result have hypoxic brain injuury... initially he can only open his eyes with limited look around movement.. now He can move his lips tongue and eyebrows a little. And he also started to yawn.. and few times ..very few times..move his elbow,feet finger,shoulder and head ..but very little. Almost after a month he started breathing on his own... initially was put on a ventilator .. He was initially having food through NG tube now doctors have inserted through stomach what they say as "peg tube". He also have tracheostomy tube in the neck Also mri scans have shown global or severe hypoxic brain injuury He is only 33 . he also produce tears in both eyes.. he cannot even control his head ... ... Right now he is discharge from the hospital and we are caring for at home we are doing physiotherapy ourselves. To protect him from bed sores We are changing his position every hour on bed
@@cakerus111 I’m here in case you need to talk. My son, who is 37, and I have brain problems because of exposure to toxins and severe falls with traumatic brain injuries (him), and I have a concussion. We both have Lyme which is a neurotoxin and I’m dizzy and we both have headaches every day, and my son is in jail because he had a subarachnoid hemorrhage and smashed a mailbox. It complicated, but it’s been a horrific last 5 or 6 months for all of us as well. Did the doctors give you any indication of his prognosis? Why isn’t he in the hospital? Time ran out? They try to get people out asap! Again, I’m so very sorry for all of you, and please (and I’m not a religious fanatic), do what you can, but seek therapy and leave it in God’s hands. There is only so much you can handle. I will continue to send loving thoughts and prayers to all of you❣️🙏 It’s extremely difficult with a head trauma because you can’t see inside and you don’t know what he is going through either. It has to be the scariest form of injury. Please update periodically, or if you need to talk to someone. I’m a retired high school teacher, and the students used to tell me their problems. Bless all of you❣️🙏
@@Tinyteacher1111 i m trying to make whatsapp group for all those who have suffered from these brain injuries.. But people just leave the comment on RU-vid and doesn't reply and update the situation.... So if you are ok with the WhatsApp group things... You can share your number.
Today an pool ball hit the left side of my head not very hard but I feel pain in my left ear I don’t know if it’s my anxiety or if it’s real CAN SOMEONE PLEASE HELP ME PLEASEREE😭😭😭🙏🙏🙏🙏🙏🙏🙏🙏
Can this give subtitles, I am very sensitive to noise levels? This is due to brain damage from a severe bleed and your video was suggested for Stroke sufferers so should be ideal for me. Does it matter if disability stops me from sitting with crossed legs?
I was told by a neurologist there was nothing he would do . Yes , he refused to treat me . At least he let me know I had this condition . Minor lifestyle changes manage it for the most part , no more weight lifting or heavy lifting of any kind . Feels like someone hit me in the back of the neck with a baseball bat when it acts up . Not to mention when it gets throbbing ..... thats a different matter all together . After two previous neck operations to fuse vertebra 3-6 I doubt I can find a surgeon to treat it when it becomes too much for me to handle myself .
I am a zipper head and had the decompression surgery 4 years ago. I consider it a success. I still have minor issues but most of them are much better. 💜
what were your symptoms if you don’t mind me asking? i’ve just been diagnosed today after i had an MRI for headaches, I suffer with neck pain/stiff neck and dizziness a lot of the time, terrified of the idea of the surgery
@@jessparker6875 it’s going to be ok first! I know how scary this diagnosis is. I had bad ringing in the ear and when I laid down I could hear the blood rushing in my body. I waited too long to have the brain scan but once I did things progressed quickly and as I said before the surgery was a success for me. The surgery took me a while to completely recover from but it was worth it. Before the surgery my headaches had gotten so bad that I was always nauseous, dizzy and couldn’t open my eyes. My neck pain was so bad. All those things are better for me now. I wish you good luck. If you are in the Atlanta Metro area please let me know and I will tell you who my doctor is. He’s awesome.
@@perijetton9275 Hi, thank you very much it means a lot, i’m actually in the UK but thank you anyways, i’ve had a bad week with dizziness and neck pain but i’m going back on the 13th March for a follow up on my diagnosis hopefully everything goes okay 😊
@@jessparker6875 I had all you the same symptoms you had. Plus I had really bad ring/whooshing in my ears. The pain of gotten so bad that I was having daily headaches with nausea, and I could barely open my eyes. I’m almost symptom-free now.
I was thinking about something… what if we put artificial tissue all around the brain that’s big and foam and can fit comfortably around the Brain? If you have that and a helmet ur basically a human ram lmao
I thought my body would never be the same again, but you fixed it. My heartiest gratitude to you Dr Igudia for helping me cure my Hepatitis B Virus successfully.
Can you get headaches with mild Chiari Malformation? Because the neurologist said that you don't have headaches and vision issues with this mild chiari Malformation that was spotted on my MRI!!!... 😢 😕
Coming across Dr Igudia on his RU-vid channel was the beginning of a new life for me after using his herbs medication to cure my genital herpes virus permanently
No don't make it a fucking excuse 😂😂i bumped like million times also had bleed when I was in grade 3. Now I'm in grade 12 , I can't concentrate but in "video games" I can bring hellfire to your soul and the battle ground... Well but in studies it's just the opposite, I suck... Well i though could be of the brain injuries and bleeding in past but then later I realised it's just a matter of your inner motivation about doing something whether it's about something or just playin games.... Right now I'm workout on my concentration power as like this : per day sir 20 mins and study with focus... Take 5 mins break then again 20 mins study... Increase 5 mins per 2 days... This is the method I'm following... Currently I'm able to fully focus study till 55+ mins... I'm soon trying to get the goal of 3.5 hours as that's the duration of my 12th grade exams
I think this is something people don't necessarily realise. Unfortunately, at present there is no cure for this awful condition. My symptoms are much worse now than they were before surgery.
@@bobtomlin3451 me too surviving with that condition... Doctors preferring to keep the sugar level and weight in control and also suggests to maintain exercise for the rest of your life...
I’ve known for about a year or 2 about my chiari, along with having pots disease, which can coincide with chiari, it makes so much sense about why I’m having all these symptoms. Personally I have the headaches, neck pain, fatigue and muscle weakness, nausea, and insomnia roughly.
I had an Arnold Chiari malformation decompression in 1993. I was symptom free after the operation. During August 2021 I was in a motor vehicle accident and had a very bad whiplash. A started experiencing symptoms of Arnold Chiari after the accident. Wonder if anubody else was for years symptom free and then started with the symptoms years later.
Go back to your doctor get an MRI or CT scan, it is possible that your cerebellum has fallen and is again putting pressure on your spinal cord. It could be very serious.
The same thing happened to me. I was diagnosed when I was 5 (no surgery) and had minor symptoms up until a couple years ago. Now I'm 25 and 3 car accidents later and my symptoms literally affect my daily life in every way possible for the last 3 years.
Head injury from falling from being under the influence of marijuana and k2. Any prescription drugs or anasthesia surgeries prior to this could cause disorientation
Hi I had a head injury 5 days ago. As per this video can say it's moderate. I went to hospital and had MRI scan and the doctor said its normal. But till now I'm having pain on my neck, back shoulder both side and more pain on left and also having ear pain from 3rd day. On 3rd day I consult with another doctor and he said I'm having ear infection and have antibiotics with Ear Drops. But till now I'm having pain. Is this normal and will take few days to recover or I need to go for further treatment.
How is feel now .. I got head injury one month before starting I had neck pain back pain head pain also. Now little pain on head when press on particular area
We are same situation about you felling i have injured also then my ear is also infection. I don't know if it's my ear causes my head pain or what..If someone can help find out what the answer is
Diagnosed with Chari Malfornation 2 officially 11 years. Now adding Severe Spinal Stenosis. Was wondering if this is what led to a hole over an inch, on the left side of my head? Now have the xray proof. They want to do surgey but don't have the $$$. Am in constant pain. The twitches are shifting my head left. Started when I was 45. Went away an returned a third time in 2010
