I lost my beloved uncle to this devastating disease in February of 2024 at the age of 60. His father had died only a year before this with what they said was dementia. He also had a childhood brother who died as an infant with CJD like symptoms but was undiagnosed at that time.
I lost my mother to CJD in 2015, she also had REM behavior disorder "RBD". I was diagnosed with RBD in 2010. I started losing my eye site and short term memory. Myclonic movements when sleeping. I had to medically resign as a RN. I had started an all fruit diet 4 months before I went into full blown dementia . It took me 1 1/2 to recover almost all my faculties. It worked !! My biggest issue is having 4 children " 2 out of the 4 had RBD also. I can't find anyone to test my daughter and I via blood test or CSF for the mutation. The CDC called and spoke with my sister and I soon after my mother passed. They asked if we wanted to be tested. We both at the time said no " it's fatal" I didn't want to worry every day , am I starting to go downhill. CDC now says they have b never done that , four ER's pushed me out the door when I was declining. It was terrifying then and still is. I have contacted a lady that works in a lab here in the US. They need me to send my MRI " that showed a positive pulvner sign. They said it was normal. Never sent the results to my sleep doctor , who watched my decline . I feel I am going down again. I am so scared, nobody wants to test me to find out for sure. I need the information , especially for my daughter's sake. My other child that had RBD passed away in 2018. Crossing an interstate on foot at 5am" in the middle of nowhere . If someone reads this " if you can help me please . I'm about to give up . Thank you
My mom died from CJD. She went to her primary and he said it’s a stroke so he sent her to a rehabilitation office. One of the doctors said this is not a stroke. I have seen 1 case years ago and I guarantee you it CJD. we never heard of it.Thank god she went quick
Kids, grand kids, grand grand kids, grand grand grand kids, grand grand grand grand grand kids.........LOL. :D Old bitch, this is just a proof that you've lived enough. :DDDDDDDDDDDD
What’s the point here? A 200 years old bitch died? Does this make this family special at all? :DDDDD Idiots. It happens every day. Maybe not with this kind unicorn disease, but it does happen.
What do they mean the eyes go first? Idiots. Visual symptoms are only part of hCJD, not fCJD. These channels should be banned from youtube which only spreads anxiety terror, and nothing else.
What in the actual fuck is wrong with you? It's very clearly cjd, some people who are in early stages of the mutation are cognisant enough to talk and speak, it's later that they lose the ability to do so. To call her an "old witch" is so fucking disgusting
I had SFI, and then CJD, but I recovered from both. Probably because they were only in my head due to the too much shit (like this video) I watched on youtube...
@@СветланаТрофимова-у2щ Just cuz some CJD victims die in their 20s does not mean MANY young people die of it. It is exceedingly rare for people below their 50-60's and higher to die from CJD.
@@kinjalghosh3350it’s actually one in 2,000 in the UK. Don’t talk about something you clearly don’t understand. You have no idea the impact this disease had on my country
My mother was just diagnosed with CJD. No history of disease. We are in sock, it's devastating. Going down rabbit holes lead me here. We decided to go biopsy when she passes to find out if it's fCJD or sCJD.
@@SeecondToNone1 Sorry for your loss. Do you know by any chance if she had Covid? Covid virus has been known to cause prion misfolds which cause neurological issues similar to CJD.
@@da-yp1wu she did not have covid-19 and was tested at hospital multiple times. Was tested at multiple hospitals as well. Please explain to me how this works. Are you trying to claim every type of coronavirus or just this one specific stain? I cannot see how a simple coronavirus can accelerate the mutation of a protein molecule. But if this is the case please explain how.
Is it a GENETIC? Isn't is cause by ingesting PRIONS in beef, or deer? Don't entire families eat together a meal that may contain PRIONS and then gradually some get sick, only to blame their genes, when its really a single exposure to a version of MAD COWS DISEASE in the US?
The other kind is through infected beef, blood donation and organ transplants. But there have been effective measures that really reduce the chance of spreading/acquiring CJD in a person’s lifetime.
Not worth living and conceiving. It's a Familia disease that can't be stopped unless u accept not to make another unwanted family disease life. This disease just keeps going and going
My mummy is suffering from CJD and she is bed ridden, she is just 55..can anybody help me with any remedy.... I don't want to lose my mom... She is my world....
Unfortunately, it is a disease with no cure. There is likely not going to be a cure for at least a few decades, because we have a lot to learn about understanding proteins in the way that they are folded. I'm so sorry to hear about the loss of your mom. You can volunteer for protein folding at home by using any processing power of your laptop that's not being used, it folds simulations of proteins which in turn figures out how they interact. Continue in this is the best way to assist in finding a cure.
I think the same. I am Mexican. It is even more difficult here and it is so painful to see someone you love going through all this and there's nothing we can do. My mom was just diagnosed.
@@marcika listen idiot, obviously a lot of people looking into prion and CJD videos are doing so because they're dealing with it in their lives. Obviously, it's only a topic for people who are specifically interested in learning about it, or who are experiencing it in some way. You're a loser.