Welcome to our channel! We are Jenny and Tony and we are an interabled couple who met in 2012. We want to encourage, empower, and educate others as we embark on this journey! Overcoming adversity is a huge theme on our channel and we want to remind you each week, that YOU are stronger than you know! We hope that you'll subscribe to our channel today and join our RU-vid family! Love, Jenny and Tony
In my family we have 2 people in Nursing Homes. One for Parkinsons. The other for bone cancer. I was a caregiver for my mom after multiple strokes. You are not alone. My heart aches for you. Sending all love and prayers your way.
There is a program called Celebrate Recovery it's Christ based and they have a grief share group. Can be any reason for grieving.... It's helped me tremendously. Every community should have a group. And it's free ❤
This is an amazing story. What you have done to make Tony’s room so good. Awesome ideas for including Alex in his room. Tony will be so appreciative of his time with the family and his young son. All the best to you all 🥰
Please, please, please get a trust done before most anything else! We waited too long to finish the papers because we didn't like either of the lawyers! Took 1 1/2yrs to get through probate and I paid lot for the lawyers (43k). Now we are trying to sell 2 of 3 properties in CA (we live in NV) he and his sister inherited from their dad and the spouses were not included in the titles... Lots of paperwork. One thing that my hubby did was put POD on the house checking account (pay on death) which just made it easy to transfer the funds. Get a list of things that need to be changed as far as titles and stuff. Saves your mind. I still haven't grieved, yet. I waited for probate to be over... So, anytime, I'm gonna blow!
Keep up the good work .l have stumbled on your channel. And can't help be moved, lam in Timaru South Island 🇳🇿🇳🇿🇳🇿New Zealand.will send a card for you all ,please take care until the next time Lesley
Ο Θεός να σε έχει καλά Tony να γυρίσεις γρήγορα στην οικογένεια σου εύχομαι Υγεία σε όλους σας προσευχές για σενα για γρήγορη ανάρρωση ❤ Φιλιά πολλά ❤❤❤
I hope you know that you can file a complaint with your state insurance commissioner dept Praying God gives you wisdom, strength, and comfort in the days ahead
MS is a terribly progressive disease. I was 69 when my husband was diagnosed with Stage IV lung cancer. I advocated as much as I could for everything but knew there was no recovering from it. I cared for him at home for 6 months until he passed. Although I knew it was hopeless, I had to keep it all inside. The last month or so, he just kept saying he wanted it to be over. He knew. I knew. But he was tired of the treatments, the doctors and the pain. I fully understood. I never tried to delude myself but I wanted to keep him at home so he could feel normalcy. Watching the person you love most in the world slowly leave you is the worst thing I have ever been through. You have your children and your faith and your family to get you through. Just enjoy every day you have with Tony. Having doctors and staff to come to him so he doesn't have to keep going out or being transported is probably a big relief for him which is why he may feel better. People who are ill get tired of being moved, poked and prodded. Glad he has staff around him whom he likes and people are not constantly changing. All of these things give him a lift. You are doing all you can and I am sure he appreciates and loves you with all his heart. Blessings to you, Tony, and your family. 💖
No one should deny anyone life saving care. Insurance companies are for the rich not for anyone else. Free healthcare for everyone is what America needs now. The rich get to live the poor get to die. No hospital should deny anyone because they don’t have the right insurance 😢.
We need universal healthcare. I lived overseas for a bit, no paperwork. If you have a problem, its taken care of right away. The last thing you need to hear as you're dealing with this is that the insurace company will deny your claim. This is the US, we do things exceptionally well here. I'll never understand how we don't have universal healthcare. This story right here gave me the chills. And its ridiculous. I am so sorry you had to go through this. You are a strong person and thanks for sharing.
I commend you for sticking with your husband I know it sounds like why wouldn't you.. I 11 years ago had to have 9 surgeries from complications due to Venus staitus disease stayed all together 8 months on my back during this time my wife of 20 years filled for divorce while I was hospitalized the one person you needed the most decides to leave you because you can no longer work I found out that day you truly don't know anyone nor trust anyone.. after that was given a 90% chance of never walking again went through 4 months of rehab in a nursing home. Had to start life over I lost everything I worked Soo hard over the years to build together all gone divorce was finalized she was remarried 2 months later..it hurt still does I don't miss her it hurts the way I was played.. was I a perfect husband no but nothing I did to cause her to leave other than her money won't be there anymore,... praying for you guys!!!
I'm just learning of your journey, and all I can say is you are doing everything right for your husband and your son. Please make sure you do something for you as well. I'll keep you all in my prayers.
God Bless you and keep you strong!!! Jenny, be sure to take good care of yourself and accept all offers to help you from loving friends and family!!!! 🙏🏼- Laura in NW FL
The lovely hospitals in Florida moved my mother who was in a similar situation an hour away from us without telling any of us. She was unconscious for weeks and couldn’t make a decision and none of her health care proxies were contacted. We found out when my sister went to visit later that day. Two days prior they gave us the option of stopping all treatment and letting her die that day. When I asked for a second opinion, the doctor yelled at me in front of my siblings and uncle to shut up and then told my brother and uncle who have the same illness to think about their time which would come very soon. That was 2012. My uncle just died. My brother is still alive and working. Florida healthcare is awful and basically the GOP set death panels which they alleged the democrats would do. Don’t trust any GOP state hospitals.
Much admiration and love sent to Tony and Jenny. God bless your message of we all need to take care of each other. Tony is an inspiration to many people. Thank you for sharing your story with us.
Have your doctor research a disease recently discovered and written about called VEXAS. My brother's symptoms were similar to what you are describing and took him to endocrinologist, urologist, arthritis specialists, infectious disease doctor, ophthalmologist and many more. One of his doctors, who was also a personal friend, took it upon himself to do some research of my brother's combined symptoms and discovered the disease of VEXAS. VEXAS is so new that few doctors in any field have heard of it. You might find your answer in that research. Good luck to you and your family.
Jenny, there is a doctor in Connecticut at Yale medical center named Lisa Sanders. She also writes for the New York Times.she deals with undiagnosed illnesses and is very successful. People have gone to her with years of being undiagnosed and she gets it solved. If u look her up , u can find out how to see her. She’s very selective, but with your story there is a good chance she would take Tony on .She would reach out to doctors all over the world with Tony’s symptoms and more likely there is a doctor out there who has seen it and knows what it is and what to do. I sincerely hope u try to get her to take Tony’s case. I believe it may be the miracle you and Tony are looking for. I follow ur story and it just breaks my heart. Helen, New York
I don't know how this came on my feed but I am so glad I found you guys. You are lovely and an example of life and strength ❤️❤️❤️ love Tony message please keep them coming it would be great to have a live chat if possible
I understand what you're going through I'm a caregiver for for my husband❤ he's doing lot better he's able to set up move around in his riding wheelchair❤ he had a total of five Strokes from 2017 to 2019 I myself I pray a lot and God Is A Healer❤❤❤
I hear what you're saying about continuing to fight but there is a lot of dignity in realizing death is likely imminent and changing your goals to align with reality. Dying with dignity is an idea that often gets lost in the fight to survive. Thankfully, most Hospices do a great job of helping patients and families through the process. I'm so glad you had a supportive team to help you understand that. Especially in America, we believe we need to keep fighting forward, and sometimes that is the best path, but often that leaves the patient to suffer because medicine isn't as elegant as we like to think it is. Sometimes the patient needs to hear it's ok to let go but often it's the family that isn't willing. I'm so glad you found a great skilled nursing facility and that Tony is working on HIS goals and you're. supported. It's always difficult when you have young children. I'm glad your kids are thriving.
Your faith strength and courage, which you seem to have in abundance will carry you through. I, as I am sure many others are, am praying for you and your family.
