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ALS United Greater New York
ALS United Greater New York
ALS United Greater New York
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As one of the largest ALS service organizations, ALS United Greater New York supports and empowers the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care to individuals and families affected by ALS.




Комментарии
@jonviglione
@jonviglione 3 дня назад
As a layman, i appreciated this explanation. My older mother has dementia and a recent ALS diagnosis - genetic testing revealed a previously unknown mutation of UBQLN2. She submitted a skin biopsy for further study. As her son I have a 50% chance of having this mutation but without a confirmed link I have no idea how likely this unknown mutation is responsible for her ALS. Given family history where her mother and Aunt both had dimensia I’m a bit concerned. Don’t know if anyone will see this comment (3yrs post video),but curious on an expert’s thoughts about how long this type of research takes or how concerned I should be :). Even without any response I enjoyed this video 😊
@alancondren9293
@alancondren9293 9 дней назад
What is ALS what does that stand for
@aghaagha-et3if
@aghaagha-et3if 2 месяца назад
Iam first person als mnd no family no genitic iam young girl moon from Pakistan
@aghaagha-et3if
@aghaagha-et3if 2 месяца назад
Please help me iam young moon from Pakistan
@aghaagha-et3if
@aghaagha-et3if 2 месяца назад
This treatment is very expensive
@jancraig9298
@jancraig9298 2 месяца назад
As a blk woman, unfortunately this disease isn’t very well known in the blk community. A lot of us don’t know that much about this horrible disease. I’m so sorry this beautiful sista, has to go through this. I often wonder, why God would allow such a horrible disease to be placed upon a beautiful soul like samone. I don’t know if this young sista is still alive & fighting . But if she is, I’m praying for you queen 🙏🏽
@martasatgo
@martasatgo 3 месяца назад
May you have peace and prosperity
@tu0ootu
@tu0ootu 3 месяца назад
beautiful person
@NJSMKMMS
@NJSMKMMS 3 месяца назад
Terrible disease, great attitudes….
@purebride8600
@purebride8600 3 месяца назад
Jesus still heals, only believe 🙏🕊💟 Psalm 103 1Bless the LORD, O my soul: and all that is within me, bless his holy name. 2Bless the LORD, O my soul, and forget not all his benefits: 3Who forgives all your iniquities; who heals all your diseases; 4Who redeems your life from destruction; who crowns you with loving kindness and tender mercies; 5Who satisfies your mouth with good things; so that your youth is renewed like the eagle's.
@Tayyab-hr1gp
@Tayyab-hr1gp 4 месяца назад
What is price of this voice device
@GinaSpector-mz2uq
@GinaSpector-mz2uq 4 месяца назад
Terrible Disease. My cousin had this , we were the same age.
@cynthiaurtz4921
@cynthiaurtz4921 4 месяца назад
I lost a vibrant, kind, and fun-loving HS friend to ALS. God Bless you all. With Love and Hugs ❤
@philipphanf952
@philipphanf952 4 месяца назад
greatiings from germany #ALSohappy
@michellemckenzie2146
@michellemckenzie2146 4 месяца назад
Great interview and love this idea!!
@GaZonk100
@GaZonk100 4 месяца назад
lovely woman. . .you could easily be my daughter. ..
@fernemcallister6774
@fernemcallister6774 4 месяца назад
Ghastly disease. Prayers.
@minion7720
@minion7720 4 месяца назад
What a lovely family bless them
@larsschaedlich278
@larsschaedlich278 5 месяцев назад
\
@migueljonz3901
@migueljonz3901 5 месяцев назад
I've smoked most of my life. But started smoking more after the first symptom showed up. After my diagnosis five years ago, I'm still riding my motorcycle. I do get cramps and have weakness in my shoulders and arms, but that's it. I will admit I smoke more CBD's now.
@kerickwalters2749
@kerickwalters2749 6 месяцев назад
@arferret
@arferret 7 месяцев назад
We just lost our beautiful friend to bulbar als. Such a cruel illness. We are off to her funeral today. Devastated to have lost a beautiful friend but relieved she is free from the cruel suffering this caused.
@loraineleuschke4186
@loraineleuschke4186 7 месяцев назад
May you all be blessed by the love of Our Lord and his unwavering promise to always be present for us, for the asking of it. Peace faith and love for you all💕🥰
@anneschrey
@anneschrey 8 месяцев назад
I always have ALS. I wish you all the best in peace .......
@susankamaka745
@susankamaka745 9 месяцев назад
Thank you for sharing your life with everyone. ☺️. I lost my brother-in-law 2 years ago to this horrific disease. I wish you light, peace and love…
@mavischadwick6445
@mavischadwick6445 10 месяцев назад
All thanks to DR ALAHO OLU on RU-vid Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🎉
@cinnie2543
@cinnie2543 10 месяцев назад
Well done. Thank you.
@lotwm1
@lotwm1 Год назад
i take thc gummies half of one and hemp gummie every 6 hours around the clock and doing great with ALs
@theironman1903
@theironman1903 Год назад
My mother recently diagnosed with ALS
@franklinbishop6272
@franklinbishop6272 Год назад
"promosm" 😂
@vicmaine05
@vicmaine05 Год назад
Rock on Positive Paul!!!
@rogerquirantes6574
@rogerquirantes6574 Год назад
Stay strong brother nice video.
@othienan4141
@othienan4141 Год назад
I need help. I want medical care. I'm getting weaker. I can't move me. muscle is lost. feet begin to shrink.
@clipsbysunny5773
@clipsbysunny5773 Год назад
ALS has touched our family also . This disease is horrible. Prayers for you and your amazing family ❤❤❤❤Samone you are beautiful ❤
@benken9601
@benken9601 Год назад
Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his RU-vid channel ru-vid.com/show-UClshMWAD9EFaKUTbdbtBH7A He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor 🙏🏻
@benken9601
@benken9601 Год назад
Hello everyone am very happy today am cure totally completely forever form ALS disease with the help of Dr omoye you can also contact him on his RU-vid channel ru-vid.com/show-UClshMWAD9EFaKUTbdbtBH7A He also cure all kind disease Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor ..
@davidgonzalez8758
@davidgonzalez8758 2 года назад
Doctor.loca cure me from ,ALS, I’m free for it now thank you so much you can also contact him on RU-vid channel #DrLocaHerbs
@benken9601
@benken9601 2 года назад
Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his RU-vid channel ru-vid.com/show-UClshMWAD9EFaKUTbdbtBH7A He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infection’s Body odor 🙏🏻….
@jassewall2170
@jassewall2170 2 года назад
A big thanks to you #DrLocaHerbs Just confirm am completely free from .ALS.🇺🇸❤ with the help of his wonderful herbal medicine, may God continue to bless you and your wonderful herbal medicine thanks so much doctor_loca. anyone looking for any herbal medicine should kindly contact WhatsApp place your order for his lovely herbal medicine 👇#DrLocaHerbs
@holliethomson6147
@holliethomson6147 2 года назад
Beautiful strong family xxx ❤❤❤
@giselemartin7370
@giselemartin7370 2 года назад
Courage Desi❤️❤️❤️
@shannelbrooks1728
@shannelbrooks1728 2 года назад
I recommend #Dr_aza to anyone out here On RU-vid his herbal medicine works perfectly well and It Eliminate the ALS disease just the way he prescribe it. Trust #Dr_aza Care Giver.,
@rolandbruce6853
@rolandbruce6853 2 года назад
It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, MS etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on RU-vid..
@sujatagarud3162
@sujatagarud3162 2 года назад
Is this lady affected by ALS ? Instead of just challenges, give with open heart.
@MsAchampion
@MsAchampion 2 года назад
Her smile is everything 😍 ❤️ I see Samone's beauty and how she was and her family is wonderful ❤️
@rolandbruce6853
@rolandbruce6853 2 года назад
It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on RU-vid..
@rolandbruce6853
@rolandbruce6853 2 года назад
It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on RU-vid.
@rolandbruce6853
@rolandbruce6853 2 года назад
It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on RU-vid.
@wendyqallab6906
@wendyqallab6906 2 года назад
Iam repeating myself but I really hate ALS.
@annabellelopez3993
@annabellelopez3993 2 года назад
I thank God Almighty who directed Dr Alaho Olu on RU-vid to me, he cured my Dad from (ALS)….