You are so accurate Karl in describing how I feel during the flare up and what I want and don’t want to. I am amazed. Your understanding of psychology of this condition gives me hope.
@MeMe-wz5hv thanks for your comme ts amd support. If we can look beyond the pelvic floor and see a person, an individual suffering we have a greater chance of helping them
I’m experiencing every thing the same what the young guy experiencing.. and you are talking about neck pain , yes I have for few years bulging disc on my neck that is giving me tingling on my left arm and fingers and of course stopping me doing activities playing soccer or other hobbies and could be connected with my prostatitis and Cpps for about 6 months , recently I have stopped going to doctors specialist like urologist he told me this the end of the road he said 10 weeks on antibiotics that was not doing anything probably destroying other things on my body still taking some Dou dart for shrinking the prostate because I have urine retention about 130mil before was about 200 mil looks like is going down after 6 weeks of this medication .. just other day I had on top of my daily flare had a different pain more like nerve pain put it calmed down , I have good days and bad day , today I went to see My phisio Stwart Baptist in Sydney nsw I have been seeing him for ab5-6 weeks about my pain on pelvis and I follow his exercises and today performed a massage between my legs i was scared of the pain my start again but was feeling such good feeling of wormed and explain to me that was blood flow in that area , I hade all da a good day that was interacting with people walking in the city and that felt like I’m a life again…… I had also 2 months ago such good days like pain almost gone was left just a little uncomfortable for about 5 days but also days to come,,, up down steady and like this is my life in the last 6 months,,, I know I can get better because it’s how I am !!!
I’m experiencing every thing the same what the young guy experiencing.. and you are talking about neck pain , yes I have for few years bulging disc on my neck that is giving me tingling on my left arm and fingers and of course stopping me doing activities playing soccer or other hobbies and could be connected with my prostatitis and Cpps for about 6 months , recently I have stopped going to doctors specialist like urologist he told me this the end of the road he said 10 weeks on antibiotics that was not doing anything probably destroying other things on my body still taking some Dou dart for shrinking the prostate because I have urine retention about 130mil before was about 200 mil looks like is going down after 6 weeks of this medication .. just other day I had on top of my daily flare had a different pain more like nerve pain put it calmed down , I have good days and bad day , today I went to see My phisio Stwart Baptist in Sydney nsw I have been seeing him for ab5-6 weeks about my pain on pelvis and I follow his exercises and today performed a massage between my legs i was scared of the pain my start again but was feeling such good feeling of wormed and explain to me that was blood flow in that area , I hade all da a good day that was interacting with people walking in the city and that felt like I’m a life again…… I had also 2 months ago such good days like pain almost gone was left just a little uncomfortable for about 5 days but also days to come,,, up down steady and like this is my life in the last 6 months,,, I know I can get better because it’s how I am !!!
@@dumitrustoica-n7g you can overcome this. Be consistent with your self care. Be patient and be kind to yourself . Check out the 'pelvic pain natters' podcast too
@aleksandrpokusaev9175 this suggests that your dosage is too high - duration, intensity and frequency of these techniques is agitating symptoms. Do them for shorter durations, with less intensity/discomfort and allow more time between them. In time they will settle again
How old were you when you went through all of this..?? Supposably men over 50 do not get chronic pelvic pain syndrome... The reason I asked the last 5 months I have gone through major anxiety and panic disorder. It has affected my mental health and physical health quite significantly. Most recently now I was diagnosed with possible prostatitis. However I am 50 years old. I did have or was diagnosed with prostatitis approximately 8 to 9 years ago.. after a few months it eventually went away on its own. Been suffering again for the last 2 months... Still going to urologist for more testing...
LOL, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
I've been dealing with this pain since 2017, come and go, then come again. All the test came put negative, i even tried the shockwave therapy, 6 times per session. It did work, and the pain gone, but after 4 later, the pain sensation feeling come back to me now..until now. ( Just right after i ejaculated).....😢
@@pelvicpainmatters-beatingp1648 thank you for replying. And if I may ask, how often do you masturbate now as apposed to before the symptoms got worse? I don't suffer myself, but I was told to not use a death grip also as I use lubricant. I'm kinda single so I perhaps masturbate a bit more. Do you this is good advise to men?
If I may ask how often did you masturbate before the symptoms as apposed to now.? I don't have symptoms but as I'm single lol I masturbate more. I was told to not use the death grip lol, use lubricant as I'm circumcised and to breath. I think that advise helps too..
Man. I have similarities. Mine started at 19 years old. I’m now 47. I had Vericocele surgery at 21 years old. The pain has been constant ever since. Opiates about killer me. One road I would like to try are the stretching exercises.
You have done an incredible job with this video. So much valuable info regarding this relatively unknown syndrome that causes such a drastic drop in quality of life..
Karl, time you wrote a definitive book on CPPS to complement Alan Gordon's more generic THE WAY OUT. What's missing in Alan's otherwise marvelous book are the tools specific/peculiar to the management of this condition, especially the biological/physical component of the 'biopsychosocial' model experts like yourself propose. Susie Gronski's book is one fine attempt to incorporate all aspects of this holistic approach but as a practising doctor suffering from CPPS I would love to hear -- in print -- your unique voice. Waiting for a response. Thanks and warm regards. P.S. Is there any place in your protocol for modalities like Transcutaneous Tibial Nerve Stimulation or drugs like Amitryptiline/Nortryptiline in the short term to ease the pain if it's bad enough to ruin one's sleep and push back recovery?
Thanks for your support and kind words. A book has been mentioned several times by my piers and patients. It is a project that we are working on slowly behind the scenes. Watch this space.. I have no issues with medication, or nerve stimulation to be part of a patients recovery. But, I would always encourage patients to use their own self care techniques to help calm down their symptoms. It means a patient has greater control of their own symptoms. Combined together they can create a really powerful recovery protocol.
Hi all! Mustafa here. I realised that the pain relief audio link has stopped working. Please find it reuploaded here: drive.google.com/file/d/1jmp1_tG0u_XcmCI79ni0ex2aWgy5_2xi/view?usp=share_link
Pardon me Robbie for being blunt, but sitting in the UK it's fine for you to say 'don't do it alone'. As a sixty year old practising physician and CPPS sufferer fighting a lone battle in India, I have no other option. Thanks to the incredible efforts of commited counselors like Karl and Susie Gronski, I see a glimmer of light at the end of this dark tunnel. Thanks a bunch anyway.
Walling yourself off from people who are a source of unwelcome drama, thereby increasing your general anxiety level -- the kind of people who can be labelled mildly 'toxic' in current lingo -- is a crucial component of the recovery process IMHO.
Two nuggets of wisdom: "You are not your pain" and "What matters is your mind's response to your pain". The second one is harder to grasp and act on. The limbic brain is on autopilot and as stubborn as a mule.
What would you say to someone like me -- a sixty year old doctor from India suffering from CPPS for the last seven months -- who has no support group or team of therapists familiar with the Sarno-Schubiner approach in his country to rely on? I am not a 'lone wolf' by choice.
hard flaccid, erectile dysfunction, loss of ejaculation, libido, urination problems etc. Were those who read these comments and give their opinion lumbar sacral X-rays made here to see the lordosis? The sacral angle? the sagittal balance? the pelvic angle? If they have any imbalance in the spine or herniated disc, the sacral angle changes, a hyperlordosis occurs, the muscles of the coccyx to the pubis pull back and block the seminal duct and arteries, they also stretch the pudendal nerve, their lumbar muscles contract, the pelvis changes position and there is a contracture of the iliopsoas muscle that squeezes the pelvic musculature
I had been suffering from a condition called Hard Flaccid for over a month. I believe it was caused by using a tight condom during intercourse that lasted for 45 minutes to an hour. Additionally, the frequency of having sex every day for the past 7 months since my marriage, sometimes up to 4 times a day, could have contributed to it. It is also possible that nutritional deficiencies due to excessive sexual activity played a role. One night, after using a condom during sex, I felt a slight numbness in my penis, as if I had lost sensation in a limb. The next morning, my flaccid penis was significantly smaller than usual, and I experienced erectile dysfunction every day since then. I consulted a doctor who suggested taking multivitamins containing zinc, magnesium, Vitamin D, and melatonin for sleep. I diligently took these supplements for a month. Initially, I couldn't feel anything in my penis, but as days went by, I started experiencing numbness and a cold sensation. My scrotum also felt drained and shrunken. I noticed that my flaccid penis became less sensitive and hard to touch, with no sensation when pinched. It was during this time that I learned about Hard Flaccid Syndrome. Surprisingly, I felt some relaxation in my penis when urinating, possibly due to the warmth of the urine, which gave me hope. Occasionally, I would feel anxious, but the melatonin tablets helped me improve my sleep. I also experienced symptoms like constipation and loss of sensation in my lower abdomen. I sought the advice of a urologist who found no physical issues and suggested that it might be psychological. However, I knew for certain that it was not solely a mental problem, even though I was going through a challenging period in my life. I tried watching videos on pelvic muscle relaxation and practiced it for a few days, which helped me relax my penis temporarily, but it would return to a hard flaccid state when touched. Later, I read somewhere that aerobic exercise could alleviate the problem. I started jogging for a few days and immediately noticed a change in my body. I wish I had known about this earlier during my suffering because cardio exercise significantly helped me regain my erections. After about a week of jogging, I regained sensation and my sex life returned to normal. I even noticed an increase in both girth and length of my penis after recovering from the condition. It was a rewarding outcome after a month-long struggle. Gradually, I resumed sexual activity, approaching it as one would approach any new sport. From my understanding of this syndrome, our bodies have a remarkable ability to heal themselves, and the condition was our body's way of recovering and strengthening after an injury. It suppresses sexual urges for an extended period to allow for a full and robust recovery. Therefore, my advice to anyone facing this problem is to be patient with your body, engage in cardio exercises, eat nutritious food, and take your vitamins. You will witness a complete recovery. Thank you, cardio!
Hello, thanks for the video. I have been suffered with hard flaccid and erectile dysfunction for 7 years. Can these muscles (glutes, hamstrings, lower back, abdominal and hips) caused hard flaccid and erectile dysfunction?? If I stretches these muscles, will it get rid of the hard flaccid and will my erections return to normal??
@@oceandriver7 No. My butt was sore, abs I used to have the pain when I hold it up and don't go to toilet that built up the pressure. I used to have back pain when I lean my back forward and hold it there for too long. I don't get the pain anymore now as I has been stretching my glutes most everyday, I can see massive improvement. No more soreness of my butt, no more abs pain, no more back pain but still suffering with some part of hard flaccid. I'm still working on my glutes to try to get them to relax, then I'll work on my abs, adductor, hamstring, knee and hips to get them relax so hopefully it will resolve it and everything will get back to normal. Anymore questions?
My penis is always flaccid and feels like a lifeless hard cord, haven’t had an erection in 4 days. I will get very aroused but my genitals don’t respond at all as if the blood flow is blocked and they feel hollow and very flaccid. I’m praying so much and am getting depressed more and more every day. A part of me is gone and I don’t want to live like this.
@@cullenlamb5413 Did you do anything specific to resolve it? Or just quit thinking about it and reduce anxiety? It seems very strongly linked to anxiety/stress.
Going thru the same man. Keep ur head up. I’m going to the park n walking n sweating. Idk if it’s cause I gained a lot of weight on my stomach area that made me get hard flaccid… always been workin n active w a nice length n girth now I feel like shrimpman smfh…. I need my mojo back ASAP FAM if anyone knows a cure please RESPOND
Thank you so much for your share… I have struggled with this for a few years and it’s turned my life upside down .. I never quit but I do get so scared and down on myself… listening to this has giving me another push to get up and keep going … no one understands how bad this condition is for a person to go through… I talked to you about a year and a half ago on Skype or zoom … I’m Josh from San Diego… I Wil keep pushing
Keep on working to create the right environment for your body to heal and recover My advise is to not battle/fight your way out of this. Yield, soften, let go. Be gentle and kind to your body
"Hey bro, do you wanna recover from your chronic pelvic pain?" Uhh... yeah, sure. What are you suggesting? "Great. All you have to do is try this super sweet drug which is similar to LSD and DMT." Uhm... how exactly is that gonna cure me? "Listen bro, if you use a drug which acts a painkiller then you won't feel the pain, so your chronic pelvic pain is gone." What on Earth does that even do to fix my pelvic floor problem? "..." Better yet, won't the painkiller effect, assuming that even works, won't that immediately return once the drug wears off? "Nah man, just trust me on this. Do this, and you'll be right as rain." Uhm yeah, how about piss off?
@G6gblov Vvuuv is your hard flaccid in a permanent state or does it go away for example when you’re peeing or laying down. Also how long has this been going on for?
I have for years Penis pain und pain in my pelvic floor area during and after sexual acitivities. its horrible. urologists found no infection. can you help me?
Sorry to hear this. You have done this right thing by seeing a Urologist. I would be happy to help., We run individual or group sessions. Please email me at karl@thepelvicpainclinic.co.uk for more details
