Pancreatic cancer is a major health issue for Northern Ireland with 266 people diagnosed in 2018. Sadly, only 1% of those diagnosed will reach 10-year survival. NIPANC has been established to make a difference to pancreatic cancer by working to: - Increase public understanding of this cancer - Promote awareness of the signs and symptoms to both medical professionals and members of the public - To help fund vital research - To support patients and their families
NIPANC, aims to bring together families who have suffered losses from pancreatic cancer, families who are currently facing a diagnosis and survivors of the disease
The charity has developed out of an informal group all affected by pancreatic cancer coming together for support and fundraising. NIPanC looks forward to working with other charities to help fund vital research and promote early diagnosis of the disease
NIPanC, exists to give a stronger voice to families affected by pancreatic cancer in Northern Ireland.
God be with you Brian I am so sorry I lost my mom from this disease. She suffered 1 1/2 years . She lost weight, stomach pain, couldn’t move bowel. Doctor did blood work everything fine . Told her to drink water and take laxatives ugh unbelievable! It probably the insurance companies making you go through steps to avoid paying! I am angry she suffered too long unnecessarily! Demand scopes and scans ! Don’t let them tell you it’s nothing!
Problem is, you tell the doctor your symptoms and they ignore them. I was going to doctors for a year and they kept blowing me off. Finally went to the hospital, stage 4. That was in January 2021, I'm still here for some reason...
My beautiful beautiful daughter died 2 yrs ago of pancreatic cancer. She didn't go to Dr. She did have back pain. I think she wanted to keep it from us, she was a highly qualified nurse. She asked us to take her to A and E on Wednesday, was diagnosed on Friday, came home Friday and died Wednesday. My heart hurts so very much. She KNEW pancreatic cancer was a death sentence for her as she was a nurse. She knew she was dying. I broke my heart and asked her "why you darling"? And she said why NOT me mamma. Part of me has gone with her, she was beautiful, kind and my life. God bless all sufferers and their loved ones x
Kerry Irvine obituary With a five-year survival rate in the single digits, pancreatic cancer is one of the world’s deadliest cancers and tragically Tyrone woman Kerry Irvine knows this to her cost. Since losing her husband Noel 10 years ago this month, Kerry (48) has been devoted to raising awareness of the signs and symptoms of what can be a treatable cancer if caught early enough.
My sister died at age 44 from pancreatic cancer. It was a long, extremely painful death. Less than a year but it seemed like years. She also could sleep or lean back. She slept sitting up bent over a pillow.
warnig signs are change in bowel habits..(more frequenct diarre) ,, (people need to have a look at their stool) ,, behaviors of blood sugar.. I had a fasting value of 5.7 which is within the norm,,, but buy your self a blood sugar kit and see how your body response to a meal.. I am late stage.. back pains started 10 days ago,, stomac aches 4 weeks ago.. indigestion problems.. meeting today with doktor where I will tell him that this is pancreatic cancer and I need a scan ASAP. From last friday I have been anxious thinking about death.. I can't deal with it and have left the home a bit,, my kids do not have to see their farther with death anxiety. Yeasterday and today I am working on how to deal with the emotions so i can get some few quality days with my kids. with my advnaced symptoms I might only have 2 months left.
This is weird to write. but I am 100% convinced I have late stage pancreatic cancer that has spread to my brain (and maybe other parts) First obvious sign.. Last february I contacted the healthcare as I have noticed that I had to pee more and go up in the night to pee. Then secondary is the change in bowel habits.. I had more often diarre. Third wieght lose from he summer untill now. Then the obvious.. almost 4 weeks ago started the slight abdominal pain.. now diabetic syndroms.. think I have weeks to live.. I will go to healthcare today and bang on the drum. I noticed a lump in the back of my head this saturday.. I have a 4 and 7 year old kid.. I am crush,, have not sleept probably in the last two weeks. Nobody in my family can believe it since I have not have a formel diagnosis. Not coming into work. I am probably more in a risk group due to a earlier occupation ,,(did work with radioactivity as a phD student) So anybody out there.. Know your body.. If you have a change in bowel habits or peeing habits,, and keep track of weight.. react immidiately.. Monitor your blood sugar.. I did not know my "normal" fasting value.. I got a value of 5.7 last april.. (but that is within normal range).. I will say that if you are a fit healthy man, start testing your fasting blood sugar value once every two weeks. The increased urin production should have been investigated much more.. Say I was diagnosed last april.. Then I might have had a greater chance for survival.. now I am dead in weeks. Should have reacted to any changes due to my past. Now i have an aggressive brain tumor (i am 100% convinced).. I am not sure when the change in bowel movement happened,, but probably aslo at least a year or since january 2023.. Pancreatic cancer is by far the most deadly cancer as it is fairly "silent" and when detected spread to other parts of the body..
Why oh why don't they do ct scans as part of your health check up like colonoscopy? If i hadn't gone to er for colitis an had a ct the cancerous mass on my pancreas would of neer been found early
My husband gets so much stomach pain but the gp just tells him it’s wheat or IBS. They don’t test him. Now after falling off a 25 foot ladder onto concrete, a scan showed a pancreatic cyst. They mentioned it was picked up on a scan 5 years ago! No one told my husband and it was never tested. The doctors have been mending broken bones and released him and no one has mentioned the cyst again! I’m going to push for tests now. Thank you for your testimony. I can feel and see how hard it was for you, re-living things. Thank you ❤
Living in America the choice of life and death treatment is being controlled by the insurance companies more and more. My wife passed from breast cancer at 51 fifteen years ago. Without supplement insurance twenty percent or more would come out of your pocket. It appears national insurance has a lot to be desired in your country as well. I would of loved to of sent my wife to best doctors and hospitals in america but insurance companies would say they are out of our network i to am a nurse and seeing your spouse dieing is a different level of grief knowing what we know in our training. It took me 10 years to finally stop grieving and start enjoying the memories and be both parents to my 3 children and grandparent to the grand children. Cancer robs us of the life we thought we were going to live. Myself if cancer would invade me-palliative and hospice would be my choice. No matter what possible could be offered by oncologist i would choose not for sure but I'm not in my forties or fifties I'm in the late 60s. Living with loss but never forgotten 😊
At 7.51 - Medics really do need to talk in plain language. I think they get so used to all the terminology and acronyms every day and forget that this is a foreign language to most people. We had a nurse visit my 86 year old Dad recently and she kept saying "I'll speak to the OT, have a word with Rehab, you'll see one of the DN's"! He was absolutely baffled! 7:51
My mum, Trix, died from Pancreatic cancer in 1985. Mum had not been feeling great for awhile from stomach ache and was back and fore to the doctors over a period of a few months. She eventually was sent to the hospital for tests and was told her colon had narrowed and she would need a small operation. While my mum was on the operating table her bowel had burst, flooding her body with poisons. The found a large tumour on her pancreas, the cancer has also spread around the outside of her bowel and was also found in her liver. The surgeon said this is why it was never picked up from the tests she had had done. He said, he thought the tumour had been laying dormant on the pancreas for around a decade. Mum never recovered at all, she was bedridden for most of the next 4 months before she died. It was awful seeing her suffer so much and losing so much weight. I wished she had died on that operating table as they had fought hard to keep her a live, I wish they hadnt.
You are a lovely man, telling your story I am nearly three years off losing my husband from terminal, inoperable liver cancer. I am so sorry for your loss, my husband had a hard time with the DNR form because before treatment he felt ok, the only symptom was extreme tiredness, it was found by a routine scan, he had palliative targeted chemo, he had a two year two month battle, for most of which he was really ill. God bless you and your family x
So, even with all the technology now available, it's still down to the GP to, initially, do further investigations if patients return with the same symptoms! My friend's daughter was told by her GP that the lump in her breast couldn't possibly be cancer! She was 34yrs old and died of breast cancer which she fought for 4 years so she could see her two boys grow up! ALWAYS seek a second opinion! 😖🇬🇧
So sad 😢 I'm sorry for your loss 🙏 You are brave to share your experienced and heartache. I am a nurse and my hubby is a military veteran medic. My hubby had accidental finding in his pancreas just because he's had gone through CT because he was going to have his hernia repaired. No symptoms n bloods were normal. Surgeon diagnosed him with non functioning benign PNET through gastroscopy. He's had distal panc and spleen removed 2023 of Oct via laparoscopic. and on Creon. He has recovered but still getting pain in operated site from time to time but his BGL is now playing up (high).
My husband was diagnosed in May 2012, and sadly died in July 2014, it's such a difficult Cancer to diagnose, but the doctors did say that anyone who develops type 2 diabetes and has it long term has got to watch out for symptoms like not being able to eat do much and losing weight and feeling tired, my husband got all of these, but like most men would not see the doctor.
Pancreatic cancer is not curable. After whipple surgery the survival rate is only 25 out of a hundred after 5 years . Usually, much less. Prayers and morphine. RIP
Think gp need better training in spotting the signs of cancer. Many cases gp are neglectful and don’t send people for scan etc that could have saved them
Thank you for sharing this heartbreaking story. My mother passed with this disease, and my sister was just diagnosed at Christmas 23 with a similar story to your wife.
THank you for sharing the heartbreaking story of your wife's untimely death from this terrible disease. The love and loss are palpable and the information you share is invaluable.
